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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.


Displaying records 1 through 6 (6 total).

Beckwith-Wiedemann Support Network (BWSN)

Annotation: The Beckwith-Wiedemann Support Network (BWSN) is a national nonprofit organization for parents of children with Beckwith-Wiedemann syndrome (BWS) and concerned professionals. It provides information and peer support to people and families affected by BWS, works to increase public and professional awareness of BWS, and encourages research into the cause, early (including prenatal) detection, and treatment of BWS. Publications include a parent directory for family members, a newsletter produced three times a year, and a brochure, What is Beckwith-Wiedemann Syndrome? The network is a member of the International Beckwith-Wiedemann Association. BWSN also does cross references to Simpson-Golabi-Behemel Syndrome. SGBS has similar characteristics and parents with children diagnosed with SGBS can be members here and receive information.

Keywords: Beckwith-Wiedemann syndrome, Early intervention, Information services, Parent groups, Peer support Programs, Simpson-Golabi-Behemel syndrome, Support groups

Early Intervention Program /The Arc -- Baton Rouge (EIP)

Annotation: The Early Intervention Program (EIP) provides educational and other services to Louisiana children 0–3 years old with developmental disabilities, including direct services, information, support, and statewide referrals. The program also provides in-service training and technical assistance on developmental disabilities and early education, publishes a newsletter, and maintains a library of information on Down syndrome, early intervention, and developmental disabilities. EIP also provides an Inclusive Day School; a learning center for typical and special needs children (ages 6 weeks to 6 years).

Keywords: Down syndrome, Developmental disabilities, Early intervention, Educational programs, Information services, Louisiana, Technical assistance

IDEA Infant and Toddler Coordinators Association

Annotation: The Individuals with Disabilities Education Act (IDEA) Infant and Toddler Coordinators Association is organized as a not-for-profit corporation to promote mutual assistance, cooperation, and exchange of information and ideas in the administration of Part C and to provide support to state and territory Part C coordinators. The association is committed to: Identifying and representing the interests of state and territory infant and toddler early intervention programs at the national level; developing and recommending models, standards, policies, and programs that promote quality services to eligible infants and toddlers and their families; and strengthening current leadership and fostering new leadership in early intervention programs at the local, state or territory, and national levels.

Keywords: Children with special health care needs, Early intervention programs, IDEA, Part C, Service coordination, State programs

U.S. Indian Health Service, Head Start Program

Annotation: The Indian Health Service (IHS) Head Start Program promotes health activities that are proven to improve health outcomes for American Indian and Alaska Native Early Head Start and Head Start grantees, centers, staff, children, and communities by reducing the risks of chronic disease. Specific goals include the following: (1) to support the Office of Head Start and the health objectives and performance standard requirements; (2) to assist grantees in the development of health programs for children, family, staff, and community; (3) to develop programs that promote health lifestyle activities; and (4) to assist Head Start grantees in developing local and community partnerships. The Web site features a section specifically devoted to Head Start providers and another to Head Start families; information about the program's mission and focus areas (health priorities, challenges, and trends); resources and links; and contacts. A search tool provides access to information about specific IHS Head Start programs.

Keywords: Alaska Natives, American Indians, Early intervention, Federal programs, Head Start, Health promotion, Program development, Young children

Ohio Coalition for the Education of Children with Disabilities (OCECD)

Annotation: The Ohio Coalition for the Education of Children with Disabilities (OCECD) is a statewide, nonprofit organization that serves families of infants, toddlers, children, and youth with disabilities in Ohio, and the agencies who provide services to them. The coalition's mission is to ensure that every Ohio child with special needs receives a free, appropriate, public education in the least restrictive environment to enable that child to reach his/her highest potential. Programs are designed to help parents become informed and effective representatives for their children in all educational settings. PACER's Family-to-Family Health Information Center provides a single source of information, including resources and support, for families whose children have disabilities and complex health care needs. The coalition provides programs for Native American, African American, Hispanic/Latino, Somali and Southeast Asian communities, and many publications have been translated into Hmong, Somali and Spanish. Other programs focus on grandparents, housing, and bullying prevention. Through the Technical Assistance ALLIANCE for Parent Centers, PACER offers consultation and technical assistance to the over 100 parent centers across the nation funded under the federal Individuals with Disabilities Education Act (IDEA).

Keywords: Special education, Children with special health care needs, Early Intervention, Education programs, Family resource centers, Nuvee, Ohio, Parenting, Public policies, Support groups

ZERO TO THREE: National Center for Infants, Toddlers and Families

Annotation: ZERO TO THREE: National Center for Infants, Toddlers, and Families (formerly the National Center for Clinical Infant Programs) is a nonprofit organization that works to improve the chances for healthy physical, cognitive, and social development of infants, toddlers, and their families and to create a context for improved understanding of early intervention and prevention programs. The organization offers training programs and materials; produces publications; provides technical assistance to administrators at state, community, and program levels; and sponsors seminars and conferences. Other activities include research facilitation to advance knowledge concerning infants and toddlers, communication to foster awareness of the importance of the first three years of life, and leadership development programs. Publications include a catalog, a journal, and over 200 other publications. Some materials are available in Spanish.

Keywords: Child care, Child development, Child health, Cognitive development, Early childhood development, Early intervention, Infant health, Information sources, Physical development, Prevention programs, Program descriptions, Publications, Research, Social development, Spanish language materials

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.