Search Results: MCH Organizations

Annotation: The Academy for Eating Disorders (AED) is a multidisciplinary professional organization that promotes excellence in research, treatment, and prevention of eating disorders, including anorexa nervosa, bulimia nervosa, and binge eating disorder. Founded in 1993, AED provides education, training, and a forum for collaboration and dialogue. The academy sponsors conferences, produces a quarterly newsletter, assists in the development of professional guidelines, and identifies and rewards outstanding achievement in the field.

Keywords: Anorexia nervosa, Bulimia, Eating disorders, Health promotion, Preventive health services, Professional societies

Annotation: The Alexander Graham Bell Association for the Deaf and Hard of Hearing is a membership-based information center on hearing loss, emphasizing the use of technology, speech, speechreading, residual hearing, and written and spoken language. AG Bell focuses specifically on children with hearing loss, providing ongoing support and advocacy for parents, professionals and other interested parties. AG Bell publishes books and brochures on the subject of hearing loss, auditory approaches in education, advocacy, employment, and advances in hearing technology. AG Bell also publishes a magazine, Volta Voices, and a scholarly journal, The Volta Review, and offers resource-referral services to individuals with questions about hearing loss and auditory approaches. AG Bell provides financial aid to qualifying applicants for mainstreamed, auditory-based education at the preschool, school-age, and university levels. Regional conferences and biennial conventions are held to educate both members and non-members on issues relating to hearing loss. AG Bell also provides governmental and education advocacy services through its state chapters, children's rights coordinators, and international affiliates.

Keywords: Deafness, Family support services, Hearing disorders, Lip reading training, Professional training

Annotation: The American Academy of Ophthalmology is a national association of ophthalmologists, Eye M.D.s who provide total eye care, including medical, surgical, and optical care. The organization is dedicated to helping the public maintain healthy eyes and good vision. It develops and disseminates a wide range of print and audiovisual instructional materials to assist ophthalmologists and other ophthalmic providers in the diagnosis and treatment of eye disease. The Academy also offers practice management programs, patient information materials, and a variety of publications including Ophthalmology, a monthly scientific journal, and EyeNet, a monthly clinical publication. A catalog is available. Some materials are available in other languages. The academy foundation also sponsors an annual meeting and consumer web site at www.eyesmart.org

Keywords: Eye care, Ophthalmologists, Professional societies, Vision disorders

Annotation: The American Association of SIDS Prevention Physicians (AASPP) has these objectives: medical education, advocacy, clinical research, career development, and referral networking for medical professionals interested in SIDS and pediatric sleep disorders as well as those involved in the care of infants in the neonatal intensive care unit (NICU) and upon discharge. AASPP holds an annual conference is held each year and is associated with the American SIDS Institute (http://www.sids.org).

Keywords: Child death, Infant death, Research, SIDS, Sleep disorders

Annotation: The mission of the American Association of the Deaf-Blind (AADB) is to assure that a comprehensive, coordinated system of services is accessible to all deaf-blind persons enabling them to achieve their maximum potential through increased independence, productivity and integration into the community. Services to consumers include referrals, publications, and reference information. Some materials are available in large print, Braille, and on disk (MS Word).. AADB prints a quarterly magazine, The Deaf-Blind American. The organization also sponsors conferences.

Keywords: Advocacy, Civil rights, Deafness, Disabilities, Hearing disorders, Information services, Visually impaired, Youth services

Annotation: The American Council of the Blind (ACB) is a national membership organization established to promote the independence, dignity, and well-being of blind and visually impaired people. Members are blind, visually impaired, or fully sighted people from all walks of life. ACB helps to improve the lives of blind Americans by working to enhance civil rights, employment, rehabilitation services, safe and expanded transportation, travel and recreation, accessibility, and Social Security benefits. Frequently ACB works in coalition with other disability groups in this regard. ACB hosts an annual convention, bringing together blind and visually impaired people for programs, product exhibitions, and social events. Services to consumers include referrals, publications, and an open list service. ACB publishes a magazine, "The Braille Forum," which is available in braille, large print, cassette, computer disk, online and e-mail. The magazine is free of charge to individuals living in the United States; schools, organizations, libraries, companies, and those living overseas pay $25 per format per year.

Keywords: Blindness, Listservs, Vision disorders

Annotation: American Epilepsy Society offers publications to members, publishes a newsletter and journal and holds an annual conference. Members are also invited to subscribe to the society's listserv.

Keywords: Epilepsy, Seizure disorders

Annotation: The American Hyperlexia Association (AHA) is a nonprofit organization of speech and education professionals, parents, and concerned individuals that works to identify hyperlexia, which is a syndrome observed in children that exhibit the following characteristics: precocious ability to read words far above what would be expected at their chronological age or an intense fascination with numbers or letters; significant difficulty understanding verbal language; and abnormal social skills. The Association also promotes and facilitates effectual teaching techniques at home and in school, and to educate the public on the existence of this syndrome. Publications include a newsletter. AHA sponsors conferences.

Keywords: Communication disorders, Hyperlexia, Parent groups

Annotation: The Center for Effective Collaboration and Practice (CECP) at the American Institutes for Research supports and promotes a reoriented national preparedness to foster the development and the adjustment of children with or at risk of developing serious emotional disturbance. To achieve that goal, the center has a policy of collaboration at federal, state, and local levels that contributes to and facilitates the production, exchange, and use of knowledge about effective practices. The center is funded by the U.S. Department of Education's Office of Special Education Programs and receives additional support from the Center for Mental Health Services, U.S. Department of Health and Human Services. Topics covered by the center include child welfare, cultural competence, families, juvenile justice, mental health, school violence prevention and intervention, and schools and special education. The center provides publications, list service discussions, information about promising practices and prevention programs that work, and links to further information.

Keywords: Adolescent mental health, Affective disorders, Child mental health, Collaboration, Information services, Listservs, Model programs

Annotation: The American Psychiatric Association is a national society that brings together more than 40,000 physicians and medical students who specialize in the diagnosis and treatment of mental and emotional disorders. The association works to improve treatment, rehabilitation, and care for people who are mentally ill, to promote research and professional education in psychiatry and allied fields, to advance the standards of psychiatric services and facilities, to promote the best interests of users and potential users of mental health services, to foster cooperation among people concerned with the medical, psychological, social, and legal aspects of mental health and illness, and to share psychiatric knowledge with other medical practitioners, scientists in other fields, and the public. APA houses a library, which provides reference information, and publishes a newsletter and two journals. In addition, the American Psychiatric Press, Inc., (AAPI), which is affiliated with the APA, publishes a catalog of their books. APA also sponsors the Healthy Minds Web site (www.healthyminds.org) as part of its Healthy Minds Healthy Lives public information campaign. APA has an annual meeting each May and an Institute on Psychiatric Services in the fall.

Keywords: Mental disorders, Mental health, Professional societies

Annotation: The American Psychiatric Nurses Association (APNA) is a professional organization that provides leadership to advance psychiatric-mental health nursing practice, improve mental health care for culturally diverse individuals, families, groups, and communities, and shape health care policy for the delivery of mental health services. The organization publishes a newsletter and a journal and sponsors workshops and conferences.

Keywords: Mental disorders, Mental health, Nurses

Annotation: The American Sleep Apnea Association (ASAA) was founded in 1990 as a non-profit organization by persons with apnea and concerned health care providers and researchers. The mission of ASAA is to reduce injury, disability, and death from sleep apnea and to enhance the well-being of those affected by this common disorder. The ASAA promotes education and awareness, the A.W.A.K.E. (Alert, Well, And Keeping Energetic) Network of voluntary mutual support groups, research, and continuous improvement of care. Referrals are available upon request, and ASAA publishes a newsletter.

Keywords: Apnea, Education, Sleep disorders, Support groups

Annotation: The American Sleep Association (ASA) is a national organization that focuses on improving public awareness of sleep disorders and sleep health, promoting sleep medicine research, and providing a portal for communication between patients, healthcare professionals, and scientists. ASA provides online information for professionals, technologists, patients, and the general public, including material about sleep problems in children and the diagnosis and treatment of sleep disorders. The association also produces a newsletter, and provides access to research abstracts, a directory of sleep labs, and online support groups, chat rooms, and message boards. Information is available in Spanish. ASA is a member-driven public service project that depends on volunteer efforts. Membership is free to those who register online.

Keywords: , Sleep, Public awareness campaigns, Research, Sleep deprivation, Sleep disorders

Annotation: The American Society for Deaf Children (ASDC) provides information and support to parents and families of deaf or hearing-impaired children. The society offers assistance with educational or legal problems related to rearing a hearing-impaired child. Services are also provided to the public. Publications include a journal and a quarterly newsletter, The Endeavor. Some materials are available in Spanish, and the ASDC sponsors a biennial convention, a "First Year Free" program, and a listserv.

Keywords: Civil rights, Deafness, Disabilities, Family support services, Hearing disorders, Information services, Parent groups

Annotation: Founded in 1985, the American Society of Hypertension (ASH) is a nonprofit organization of 2,700 physicians and scientists who conduct research and exchange scientific information on hypertension. The society receives support from member and corporate contributions and through education grants. The society publishes a newsletter and the monthly American Journal of Hypertension. The society also sponsors an annual convention, conferences, workshops, and training seminars. The Society also sponsors two award programs annually. The first program, the Young Scholars Award, focuses on the area of ongoing research training in the field of hypertension for young clinicians planning a career in academic medicine. The other award, the ASH Distinguished Scientist Award, recognizes and rewards a senior scientist who has carried out a significant body of work in the field of hypertension or related cardiovascular diseases. Both Awards are presented at the ASH Annual Scientific Meeting, held in May of each year.

Keywords: Blood pressure disorders, Cardiovascular diseases, Heart diseases, Hematologic diseases, Hypertension, Lung diseases, Respiratory diseases, Smoking

Annotation: The American Speech-Language-Hearing Association (ASHA) certifies professional speech-language pathologists and audiologists and accredits graduate school programs in these areas. The association conducts research in communication disorders and provides information and referrals to speech-language pathologists and audiologists. Publications include Journal of Speech and Hearing Research, American Journal of Audiology, American Journal of Speech-Language Pathology, Language, Speech and Hearing Services in the Schools, ASHA Leader and ASHA Magazine. Some publications are available in Spanish. ASHA also sponsors conference, training seminars and workshops.

Keywords: Communication disorders, Deafness, Hearing disorders, Language, Medical research, Speech, Speech disorders, Speech pathologists, Speech pathology, Speech therapy

Annotation: The American Tinnitus Association (ATA) supports educational activities and conducts research on the treatment of tinnitus. The association offers information about self-help groups, provides referrals to professionals, maintains a tinnitus bibliography, provides materials in Spanish and publishes a quarterly magazine, Tinnitus Today. The ATA sponsors conferences and training seminars.

Keywords: Hearing disorders, Information services, Medical research, Spanish language materials, Tinnitus

Annotation: Auditory-Verbal International aims to provide the choice of listening and speaking as the way of life for children and adults who are deaf or hard of hearing. The organization provides services to consumers that include referrals, publications, and reference information. The organization publishes a newsmagazine and sponsors conferences, training seminars, and workshops.

Keywords: Hearing disorders

Annotation: Beginnings for Parents of Children who are Deaf or Hard of Hearing serves families of children who are deaf or hard of hearing (0–21 years old) and concerned professionals. The organization provides parent support and information about hearing loss, including communication and educational options. Publications include videotapes, a parent manual, and brochures. Some materials are available in Spanish.

Keywords: Children, Deafness, Hearing disorders, Parent groups, Parent support services, Testing

Annotation: The Benign Essential Blepharospasm Research Foundation (BEBRF) is an international clearinghouse for information on spasms of the facial musculature (blepharospasm, Meige's syndrome, and hemifacial spasms). The foundation works to eradicate blepharospasm and to support people with the disorder. Activities include sponsorship of continuing education and an annual international conference. The foundation provides referrals, publications, and reference information to consumers. Publications include Benign Essential Blepharospasm, Meige's and Other Related Disorders , a bimonthly newsletter, and a catalog of audiovisual materials. Some materials are available in Spanish. The Foundation also sponsors conferences and workshops.

Keywords: Benign essential blepharospasm, Facial dystonia, Meige syndrome, Neuromuscular diseases, Support groups, Information services, , Vision disorders