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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.


Displaying records 1 through 3 (3 total).

Intersex Society of North America (ISNA)

Annotation: The Intersex Society of North America (ISNA) is a public awareness, education, and advocacy organizations that works to create a world free of shame, secrecy, and unwanted surgery for intersex people (individuals born with anatomy or physiology that differs from cultural ideals of male and female). ISNA publishes a newsletter and offers referrals, publications, and reference information to consumers. Spanish-language materials are available.

Keywords: Congenital adrenal hyperplasia, Consumers, Endocrine sexual disorders, Gonadal dysgenesis, Hermaphroditism, Informatoin sources, Klinefelters syndrome, Reference materials, Sex differentiation disorders, Testicular feminization

MAGIC Foundation (MAGIC)

Annotation: The MAGIC(Major Aspects of Growth in Children)Foundation is a national nonprofit organization serving children and adults with critical and or chronic illnesses affecting their growth, including Precious Puberty, Congenital Adrenal Hyperplasia, Septo Optic Dysplasia, Adult Growth Hormone Deficiency, McCune Albright syndrome, Truner syndrome, Genital and Reproductive Anomalies, Hypophosphatasia, Panphypopituitarism, Congenital Hypothyroidism, Growth Hormone Deficiency, Russell-Silver Syndrome and many other Rare Disorders. Incorporated within MAGIC are families, children, and medical professionals in various fields of children's health. Services available through the foundation include support groups, referrals, a financial assistance fund, a birthday club for kids, kid's pen pal program, community outreach programs, family networking, quarterly newsletters, kids' newsletters, and a toll free parent help line (1-800-3 MAGIC 3). Services to consumers include referrals and publications. Educational brochures available include: Congenital Hypothyroidism, Intrauterine Growth Retardation, Hypophosphatasia, Underlying Conditions of Growth Abnormalities, Growth Hormone Deficiency ,The Most Frequently Asked Questions When Beginning Growth Hormone Therapy, Constitutional Growth Delay, Precocious Puberty, Turner's Syndrome, Congenital Adrenal Hyperplasia, Clinical Hypothyroidism, McCune Albright Syndrome, Psychosocial Issues of Growth Delayed Children, Dental Problems Associated with GHD, Me and My Growth Hormone - A Child's View, Septo Optic Dysplasia, Panhypopituitarism, Failure to Thrive, Russell-Silver Syndrome, Newborns with Non-typical Genital Appearance, When My Child May Have Fertility Problems, Adult Growth Hormone Deficiency, etc. The MAGIC Foundation also publishes a magazine and sponsors an annual convention in July.

Keywords: Chronic illnesses and disabilities, Child health, Congenital adrenal hyperplasia, Congenital hypothyroidism, Development, Down syndrome, Education, Financial support, Growth disorders, McCune Albright syndrome, Russell Silver syndrome, Short stature, Support groups, Support groups, Turners syndrome

National Adrenal Diseases Foundation (NADF)

Annotation: The National Adrenal Diseases Foundation provides information about adrenal diseases, physician referrals, networking, and support groups. The Foundation hosts a list serve and publishes a quarterly newsletter. Some materials are available in Spanish.

Keywords: Congenital adrenal hyperplasia

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.