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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

Coffin-Lowry Syndrome Foundation (CLSF)

Annotation: The Coffin-Lowry Syndrome Foundation was founded in 1991 to serve as a clearinghouse for information on CLS and as a general forum for exchanging experience, advice and information with other CLS families. The Foundation seeks to become a visible group in the medical, scientific, education and professional communities in order to facilitate referrals to newly diagnosed individuals, and to encourage medical and behavioral research to improve methods of social integration of CLS individuals. The Foundation maintains an international mailing list of CLS families and publishes a newsletter which is posted on the Web site.

Keywords: Coffin-Lowry syndrome, Coffin-Siris-Wegienka syndrome, Coffin syndrome, Craniofacial abnormalities, Informationdissemination, Parent support services