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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 4 (4 total).

About Face

Annotation: AboutFace is an international organization providing information services, educational programs, and emotional networking support to individuals with facial disfigurements and their families. Membership includes children, adults, and families affected by facial differences, health care and social service providers, dental professionals, and educators. Publications include a bimonthly newsletter, brochures and booklets on medical conditions, treatment issues/plans and socialization issues etc., and a series of educational programs for elementary schools.

Keywords: Apert syndrome, Cleft lip, Cleft palate, Congenital port wine stain, Craniofacial abnormalities, Crouzon syndrome, Goldenhar syndrome, Naevus flammeus

American Cleft Palate-Craniofacial Association (ACPA)

Annotation: The American Cleft Palate-Craniofacial Association (ACPA) optimizes the interdisciplinary care of individuals affected by cleft lip, cleft palate, and other craniofacial anomalies. ACPA’s website provides information and resources for health professionals and also links to the Cleft Palate Foundation’s website for clients and their families. ACPA provides professional education and organizes meetings. The website includes news and information about ACPA’s journal, the Cleft Palate-Craniofacial Journal; programs; research committees; and grants.

Keywords: Cleft palate, Craniofacial abnormalities, Medical societies

Let's Face It

Prescription Parents

Annotation: Established in 1973, Prescription Parents provides support and assistance to parents of children born with cleft lip and/or palate. The organization monitors state and local agencies that serve people with cleft palate, encourages education and research efforts, and offers support groups, a speakers' bureau, and advocacy services. Publications include Concerning Cleft Lip and Cleft Palate, Caring for Your Newborn, Hearing and Behavior: Children Born with Cleft Palate, Growing Up (audiotape), Young Adults Talk with Parents (audiotape).

Keywords: Cleft lip, Advocacy, Cleft palate, Family support, Parent groups, Support groups
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.