Search Results: MCH Organizations

Annotation: The Association of University Centers on Disabilities (AUCD) supports and promotes a national network of university-based interdisciplinary programs. Network members comprise University Centers for Excellence in Developmental Disabilities, Leadership Education in Neurodevelopmental Disabilities programs, and Intellectual and Developmental Disability Research Centers. AUCD programs serve as a bridge between the university and the community, bringing the resources of both to achieve meaningful change. AUCD’s website addresses the range of interdisciplinary network activities, including services for children, adults, and families; academic training; research; training and technical assistance; policy advocacy; program evaluation; and dissemination of best practices and new information.

Keywords: Children with special health care needs, Developmental disabilities, Fundraising, Medical research, Mental retardation, SCAN, University affiliated centers, University affiliated programs

Annotation: The International Association for Life Quality (IALQ) was established online in 2009 as an initiative of the Training, Education, and Research Institute (TERI Inc.) to help educate, advocate and propagate programs and services focusing on quality of life issues without being hindered by geographical boundaries. Goals are to offer the world’s first specialization, coursework and accreditation programs focusing on special needs life coaching and more. This online community is a place for scholars, researchers, professionals, families and others interested in improving and assuring life quality for persons with developmental disabilities to become colleagues together in this mission.

Keywords: Children with special health care needs, Developmental disabilities, Family support services, Individualized family service plans, Life skills, Parent education, Special health care services

Annotation: PACT(Parents and Children Together): Helping Children with Special Needs serves children up to age five with developmental delays, disabilities, medical challenges, and/or high risk factors for developmental delays. PACT operates six programs including three specialized childcare centers serving children with disabilities or medical problems including heart and breathing problems, feeding disorders, severe allergies, seizure disorders and organ transplants. Pact also operates a Therapeutic Nursery for children under three whose families are living in homeless shelters. In addition to childcare, the program offers mental health and social work services along with nursing assessments and physical, occupational and speech therapy. PACT's Parents in Action program is a home and center-based supportive parenting program for mothers and fathers with cognitive limitations who have children under age three. PACT's oldest program is Early Intervention Services. This program provides physical, occupational, speech/language therapies along with special instruction. Publications include a newsletter.

Keywords: Children with special health care needs, Counseling, Developmental disabilities, Early intervention, Family support, Health education, Parenting, Special health care needs

Annotation: The Special Care Advocates in Dentistry (formerly Southern Association of Institutional Dentists) membership comprises oral health professionals working in institutions or professionals who devote a large portion of their time treating people with developmental or mental health challenges, or people who are otherwise medically compromised. Members represent institutional dentistry on local, state, and national committees that write legislation which regulates the practice of dentistry at all levels. The association convenes an annual meeting, produces a newsletter, and offers educational modules, an advocacy toolkit, and a literature review.

Keywords: Children with developmental disabilities, Children with special health care needs, Dental care, Dentists, Mental disorders, Oral health, Professional societies, Residential care

Annotation: Special Olympics (SO) is an international organization that promotes understanding, acceptance, and inclusion between people with and without intellectual disabilities through year-round sports training and athletic competition and other related programming. SO provides children and adults with intellectual disabilities continuing opportunities to realize their potential, develop physical fitness, demonstrate courage, and experience joy and friendship. Resources include research reports, an e-newsletter, a fellowship program, and schools and youth outreach. SO also offers free health screenings and health information at local, regional, and World Games. SO's Project Unify is a school-based initiative in the United States that focuses on social inclusion, bringing youth with and without intellectual disabilities together through sports and related activities.

Keywords: Children with special health care needs, Chronic illnesses and disabilities, Developmental disabilities, Inclusive schools, Information services, Mental retardation, Physical fitness, School health programs, Sports

Annotation: St. John's Community Services provides a variety of community-based services for children, youth, adults and seniors with developmental and other disabilities in Washington, DC, Virginia, New Jersey, Pennsylvania, and Tennessee..

Keywords: Childrenwith developmental disabilities, Children with special health care needs, Community agencies, Community based services, Community programs

Annotation: The State Public Health Autism Resource Center (SPHARC) is a resource center for state Title V agencies (supported through the MCH Block Grant) and others interested in improving systems for children, youth, and families with autism spectrum disorders and developmental disabilities. The SPHARC Web site provides state snapshots, promising practices, and other resources to support states as they develop and implement systems to improve the health and well-being of infants, children, and adolescents with autism and other special health care needs.

Keywords: Autism, Block grants, Child health, Children with special health care needs, CSHN programs, Developmental disabilities, Federal MCH programs, Maternal health, Models, National MCH resource center, Resource centers, State programs, Technical assistance, Title V