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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.


Displaying records 1 through 8 (8 total).

Georgetown University Center for Child and Human Development (GUCCHD)

Annotation: The Georgetown University Center for Child and Human Development (formerly Georgetown University Child Development Center) was established over four decades ago to improve the quality of life for all children and youth, especially those with, or at risk for, special needs and their families. A division of Georgetown University's Department of Pediatrics, the Georgetown University Center for Child and Human Development is founded on an interdisciplinary approach to service, training programs, research, community outreach, and public policy. The center sponsors conferences, training seminars and workshops. Services to consumers include referrals, publications, a catalog, and access to a list service. The policy component of the Center works internationally and nationally, as well as with states and communities, to develop and implement policies and service systems that serve the child.

Keywords: Communication disorders, Congenital abnormalities, Developmental disabilities, Early childhood education, Listservs, Nervous system diseases, Neuropsychology

MAGIC Foundation (MAGIC)

Annotation: The MAGIC(Major Aspects of Growth in Children)Foundation is a national nonprofit organization serving children and adults with critical and or chronic illnesses affecting their growth, including Precious Puberty, Congenital Adrenal Hyperplasia, Septo Optic Dysplasia, Adult Growth Hormone Deficiency, McCune Albright syndrome, Truner syndrome, Genital and Reproductive Anomalies, Hypophosphatasia, Panphypopituitarism, Congenital Hypothyroidism, Growth Hormone Deficiency, Russell-Silver Syndrome and many other Rare Disorders. Incorporated within MAGIC are families, children, and medical professionals in various fields of children's health. Services available through the foundation include support groups, referrals, a financial assistance fund, a birthday club for kids, kid's pen pal program, community outreach programs, family networking, quarterly newsletters, kids' newsletters, and a toll free parent help line (1-800-3 MAGIC 3). Services to consumers include referrals and publications. Educational brochures available include: Congenital Hypothyroidism, Intrauterine Growth Retardation, Hypophosphatasia, Underlying Conditions of Growth Abnormalities, Growth Hormone Deficiency ,The Most Frequently Asked Questions When Beginning Growth Hormone Therapy, Constitutional Growth Delay, Precocious Puberty, Turner's Syndrome, Congenital Adrenal Hyperplasia, Clinical Hypothyroidism, McCune Albright Syndrome, Psychosocial Issues of Growth Delayed Children, Dental Problems Associated with GHD, Me and My Growth Hormone - A Child's View, Septo Optic Dysplasia, Panhypopituitarism, Failure to Thrive, Russell-Silver Syndrome, Newborns with Non-typical Genital Appearance, When My Child May Have Fertility Problems, Adult Growth Hormone Deficiency, etc. The MAGIC Foundation also publishes a magazine and sponsors an annual convention in July.

Keywords: Chronic illnesses and disabilities, Child health, Congenital adrenal hyperplasia, Congenital hypothyroidism, Development, Down syndrome, Education, Financial support, Growth disorders, McCune Albright syndrome, Russell Silver syndrome, Short stature, Support groups, Support groups, Turners syndrome

New Mexico School for the Blind and Visually Impaired

Pathways Awareness (PA)

Annotation: Pathways Awareness is a national, non-profit organization dedicated to raising awareness about the benefits of detecting early motor delays and encouraging physical therapy in very young children. It provides a set of standards for tummy time for infants that was developed by a medical round table; online materials for parents on tummy time and infant physical development, including brochures, handouts, and an video; and materials for purchase, including more videos and materials for professionals. Several items are available in Spanish, and the brochure on infant development is available in English, Spanish, French, Hebrew, Bosnian, Chinese, German, Japanese, Polish, Russian, and Brazilian Portuguese. It also provides a program Open Hearts, Open Minds, Open Doors, which helps faith communities be welcoming to individuals with disabilities

Keywords: Child development disorders, Developmental disabilities, Infant development, Motor skills

Special Care Advocates in Dentistry (SAID)

Annotation: The Special Care Advocates in Dentistry (formerly Southern Association of Institutional Dentists) membership comprises oral health professionals working in institutions or professionals who devote a large portion of their time treating people with developmental or mental health challenges, or people who are otherwise medically compromised. Members represent institutional dentistry on local, state, and national committees that write legislation which regulates the practice of dentistry at all levels. The association convenes an annual meeting, produces a newsletter, and offers educational modules, an advocacy toolkit, and a literature review.

Keywords: Children with developmental disabilities, Children with special health care needs, Dental care, Dentists, Mental disorders, Oral health, Professional societies, Residential care

Technical Assistance Center on Social Emotional Intervention for Young Children (TACSEI)

Annotation: The Technical Assistance Center on Social Emotional Intervention for Young Children (TACSEI) takes the research that shows which practices improve the social-emotional outcomes for young children with, or at risk for, delays or disabilities and creates products and resources to help decision-makers, caregivers, and service providers apply these best practices in the work they do every day. Resources available on the website include articles, papers, workshops, presentations, videos, and other materials and tools. The site also provides information on individualized interventions, systems and procedures, and the pyramid model for supporting social emotional competence in infants and young children. TACSEI is a five-year grant made possible by the U.S. Department of Education.

Keywords: Psychosocial development, Affective disorders, Emotional development, Mental health, Resource centers, Technical assistance centers, Young children

U.S. Center for Mental Health Services (CMHS)

Annotation: The U.S. Center for Mental Health Services (CMHS) leads federal efforts to promote the prevention and treatment of mental disorders. The center helps states improve and increase the quality and range of their treatment, rehabilitation, and support; make it easier for people to access mental health programs; encourage a range of programs such as systems of care to respond to the increasing number of mental, emotional, and behavioral problems among children; support outreach and case management programs for people who are homeless and the improvement of these services; and ensure that scientifically-established findings and practice-based knowledge are applied in preventing and treating mental disorders.

Keywords: Access to health care, Adolescents, Children, Federal programs, Mental disorders, Mental health programs, Mental health services, Prevention programs, Program improvement, Systems development, Trauma care

University of California, Davis, MIND Institute

Annotation: The UC Davis MIND Institute (Medical Investigation of Neurodevelopmental Disorders) is a collaborative international research center, committed to the awareness, understanding, prevention, care, and cure of neurodevelopmental disorders. The Institute brings experts from neuroscience to education, from molecular biology to developmental pediatrics, from occupational therapy to psychiatry, to work together toward a common goal: curing neurodevelopmental disorders, starting with autism. Research projects also include Tourette syndrome, fragile X syndrome, ADHD and chromosome 22q11.2 deletion syndrome.

Keywords: Autism, Children with special health care needs, Family support services, Infants, Neural development, Neurologic disorders, Organizations, Research

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.