Search Results: MCH Organizations

Annotation: Breast Cancer Action (BCA) seeks to inspire and encourage the changes necessary to end the breast cancer epidemic. The organization questions common assumptions and calls for corporate accountability. BCA conducts annual town meetings, publishes a variety of materials, including a newsletter (available in both English and Spanish) and electronic e-mail alerts, recruits volunteers, conducts fundraising campaigns, and advocates for support.

Keywords: , Advocacy, Breast cancer, Public awareness campaigns, Women', s health

Annotation: The Breast Cancer Fund identifies — and advocates for elimination of — the environmental and other preventable causes of the disease.

Keywords: Advocacy, Breast cancer, Women', s health

Annotation: The Breast Cancer Network of Strength (formerly the Y-ME National Breast Cancer Organization) offers breast cancer information, publications, peer support, survivor-staffed hotlines (interpreters available in 150 languages), a newsletter, and conferences. It publishes a newsletter and and distributes For Single Women with Breast Cancer and When the Woman You Love Has Breast Cancer, a booklet that addresses the emotional issues of men whose wives, partners, or other loved ones are diagnosed with breast cancer. A Spanish hotline and Spanish-language publications are available. The organization sponsors conferences, workshops, and training seminars.

Keywords: Breast cancer, Women', s health

Annotation: DES Action is a consumer advocacy group for people exposed to diethylstilbestrol (DES) in utero, for the mothers given this drug during pregnancy and also for the 3rd Generation exposed (grandchildren of women prescribed the drug). DES was prescribed to prevent miscarriage. DES Action provides inquiry responses, medical and legal referral lists and a quarterly newsletter, DES Action Voice.

Keywords: Adenosis, Breast cancer, Cervical cancer, Clear-cell adenocarcinoma, Diethylstilbestrol, Infertility, Pregnancy complications, Preterm birth, Spontaneous abortion, Tubal pregnancy, Vaginal cancer

Annotation: The Mary-Helen Mautner Project for Lesbians with Cancer is a national organization dedicated to women who partner with women/lesbians with cancer, their families and caregivers. The Mautner Project's mission is to deliver direct services and support to lesbians with cancer, their families and caregivers; educate the lesbian community about cancer; educate the health care community about the needs and concerns of lesbians; and promote lesbian health issues in national and local arenas. The project publishes a monthly newsletter; the Web site provides links to some materials in Spanish. The project sponsors conferences, and does training seminars, workshops, phone support, support groups, and community care. A list serve is also available. Training seminars and phone support are available nationwide; some services are available only in the District of Columbia metro area.

Keywords: Breast cancer, Homosexuality, Support groups, Women', s health

Annotation: The National Breast Cancer Coalition is a grassroots advocacy effort created to focus the nation's attention on breast cancer. The goals of NBCC are to promote research into the cause, prevention and treatment of breast cancer by increasing federal research dollars devoted to this disease; to improve access to high-quality screening and treatment for all women; and to increase the involvement and influence of those living with breast cancer into the decision-making process of breast cancer policy and treatment. NBCC conducts a yearly Advocacy Conference to train activists in breast cancer advocacy; offers a science-based training program, Project Lead, to educate members to become effective consumer participants in the medical decision-making process. NBCC hosts a World Conference on Breast Cancer Advocacy, conducts national outreach campaigns and publishes a quarterly newsletter.

Keywords: Advocacy, Breast cancer, Women', s health

Annotation: The National Breast Cancer Foundation works to increase public awareness through education and to provide funding for mammograms for those in need. Patient materials on prevention, signs, symptoms, and treatment options, including audio and video recordings, can be downloaded from the Web site. Spanish-language materials are available.

Keywords: Breast cancer, Consumer education, Foundations, Public awareness campaigns, Spanish language materials, Women', s health

Annotation: The National Women's Health Network (NWHN) works to ensure that women's voices are heard and that their health priorities and concerns are taken seriously. NWHN educates people about health care; helps to create legislation to protect women's rights; and provides information on reproductive health and other topics of importance to women. The Network's advocacy campaigns focus on women’s access to affordable care; reliable information on the safety of drugs, devices, and services; and and women’s autonomy to make decisions about her sexual and reproductive health. Online resources include fact sheets, a bimonthly newsletter, a blog, and links to outside resources.

Keywords: AIDS, Abortion, Breast cancer, Cervical cancer, Contraception, HIV, Infertility, Occupational safety and health, Pregnancy, Reproductive technologies, Sexually Transmitted Diseases, Women', s health

Annotation: The Paget Foundation for Paget's Disease of Bone and Related Disorders (PDF) assists people with Paget's disease, primary hyperparathyroidism, fibrous dysplasia, osteopetrosis, breast and prostate cancer metastatic to bone. The Foundation disseminates educational materials to patients and medical professionals, offers physician referrals and sponsors conferences. Publications include Questions and Answers about Paget's Disease of Bone, Questions and Answers About Primary Hyperparathyroidism, Questions and Answers About Fibrous Dysplasia, Questions and Answers About Breast Cancer Metastatic to Bone, Questions and Answers About Osteopetrosis , Questions and Answers about Prostate Cancer Metastatic to Bone, and a newsletter, Update.

Keywords: Pagets disease, Breast cancer, Health education, Information dissemination, Referrals

Annotation: SHARE: Self-Help for Women With Breast or Ovarian Cancer, formerly SHARE: Self-Help for Women With Breast Cancer, offers bilingual support to women affected by breast or ovarian cancer and their families and friends. Services to consumers include hotlines, support groups, wellness and education programs, referrals, publications, and reference information. SHARE provides some materials in Spanish, and publishes a newsletter and a quarterly calendar listing all programs.

Keywords: Breast cancer, Support groups, Women', s health

Annotation: Susan G. Komen for the Cure (formerly the Susan G. Komen Breast Cancer Foundation) was formed in 1982 to eradicate breast cancer as a life-threatening disease by advancing research, education, screening, and treatment. The organization funds education and screening projects for the medically underserved and awards grants for basic and clinical research. Services to consumers include publications and reference information. Some materials are available in Spanish. The organizations publishes a newsletter and a catalog, and sponsors conferences.

Keywords: Breast cancer, Grants, Research

Annotation: The YWCA of the U.S.A. is dedicated to eliminating racism, empowering women and promoting peace, justice, freedom and dignity for all. It provides crisis help for survivors of rape or domestic violence, job training and career counseling, child care, and health and fitness programs. Local YWCA's implement Hallmark Programs focused on racial justice and women's economic advancement.

Keywords: Breast cancer, Breast cancer screening, Preventive health services, Women', s health