Search Results: MCH Organizations

Annotation: Founded in 1983, the Aplastic Anemia & MDS International Foundation (AA&MDSIF) is a nonprofit charitable organization with the following mission: to serve as a resource for patient assistance and emotional support; to provide educational materials and updated medical information; and to financially support research to find effective treatment for aplastic anemia (AA), myelodysplastic syndromes (MDS), and other related bone marrow failure diseases. Services to consumers include inquiry responses, publications, and reference information. Some materials are available in Spanish, French, and other languages. The foundation publishes a newsletter and sponsors conferences.

Keywords: Blood and lymphatic diseases, Fanconis anemia, Neural tube defects

Annotation: Children Anguished with Lymphatic Malformations (CALM) is a non profit organization founded in 1994 to help families of children born with lymphatic malformations. Its provides medical information, family networks, publications, an annual newsletter, and yearly get-togethers for member families.

Keywords: Blood and lymphatic diseases

Annotation: The Children's Cancer and Blood Foundation (CCBF) raises funds necessary for the research, fellowship training programs and comprehensive care of children living with blood disorders, cancers and AIDS. It directly supports the division of pediatric hematology/oncology at the New York hospital-Cornell medical center. CCBF provides referrals and reference information to consumers and their publications include a newsletter. CCBF hosts the ITP Society, whose focus is limited to the condition of immune thrombocytopenia purpura. The ITP Society publishes pamphlets about the condition for consumers.

Keywords: Blood and lymphatic diseases, Immume Thrombocytopenia Purpura

Annotation: The National Heart, Lung, and Blood Institute (NHLBI) Health Information Center is a federal information and referral resource that responds to inquiries and disseminates information and publications on cholesterol, high blood pressure, asthma, heart disease, exercise, obesity, sleep disorders, stroke, sarcoidosis, and Raynaud's phenomenon. Some materials are available in Spanish. Clinical practice guidelines for health professionals are available on high blood cholesterol, high blood pressure, asthma, and obesity. Serial publications include HeartMemo, which provides program updates for health professionals about cholesterol, high blood pressure, and heart attack, and AsthmaMemo, which describes the activities of the National Asthma Education and Prevention Program. Publications can be accessed using the online catalog or ordered from NHLB in print format.

Keywords: Hypertension, Asthma, Blood and lymphatic diseases, Blood pressure disorders, Cardiovascular diseases, Heart diseases, Hematologic diseases, Information dissemination, Lung diseases, Respiratory diseases, Sleep disorders, Smoking

Annotation: The National Lymphedema Network is a non profit organization founded in 1988 to provide education and support to patients, health care professionals, and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. Some materials are available in Spanish and Asian languages The NLN provides an on-line homepage; a quarterly Newsletter containing educational articles, a Resource Guide, Support Groups, Pen Pals/Net Pals, and updates on conferences and professional training courses; a toll-free hotline to give emotional support, provide education, and offer referrals to health care professionals and treatment centers, local support groups and exercise programs; and a computer data bank. The NLN also sponsors a biennial conference focusing solely on lymphedema.

Keywords: Blood and lymphatic diseases