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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.


Displaying records 1 through 2 (2 total).

AHEPA Cooley's Anemia Foundation, Cooley's Anemia Foundation's National Office

Annotation: The AHEPA (American Hellinic Educational Progressive Association) Cooley's Anemia Foundation was established in 1959 and has more than 950 chapters nationwide. The organization offers education and works to raise funds for research. Fact sheets are available in English and Greek.

Keywords: Anemia, Beta thalassemia, Hematologic diseases, Thalassemia, Thalassemia minor

Cooley's Anemia Foundation (CAF)

Annotation: The Cooley's Anemia Foundation (CAF) is a national, not-for-profit health organization dedicated to advancing the treatment and cure of Cooley's Anemia (also known as Thalassemia). CAF, which has over 15 chapters throughout the country, conducts national programs that provide medical research, patient services, awareness, and education. The foundation sponsors the Thalassemia Action Group, a support group for patients and their families. CAF provides information about the disease, referrals to local medical sources, discussion forums, brochures, newsletters, and other information. The foundation sponsors conferences and training seminars. The foundation also provides medical supplies to those patients in need. Materials are available in Chinese, Vietnamese, Cambodian, and Korean. (For a complete list of non-English language materials, contact the Foundation.)

Keywords: Anemia, Beta thalassemia, Hematologic diseases, Support groups, Thalassemia, Thalassemia minor