Search Results: MCH Organizations

Keywords: Health supervision, Adolescents, Children, Children with special health care needs, Consumer education materials, Family centered care, Infants

Annotation: The Catalyst Center at the Boston University School of Public Health is dedicated to improving coverage and financing of care for children and youth with special health care needs. The center creates publications and products, answers technical assistance questions, researches innovative state-based financing strategies, guides stakeholders to outside resources, and connects those interested in working together to address complex health care financing issues. The center is funded by the Maternal and Child Health Bureau.

Keywords: Children with special health care needs, Adolescents with special health care needs, Health care financing, Health insurance, National MCH resource center, Resource centers, Youth

Annotation: Educational Equity Concepts, formerly the National Clearinghouse on Women and Girls with Disabilities, is a national not-for-profit organization that promotes bias-free learning through programs and materials. Founded in 1982, their mission is to decrease discrimination based on gender, race/ethnicity, disability, and level of family income. The organization provides materials and programs for early childhood and elementary classrooms and after-school settings, offers workshops and training, and publishes resources for women and girls with disabilities.

Keywords: Children with special health care needs, Adolescents, Adolescents with special health care needs, Special health care needs, Women

Annotation: IMPACT, a project of national Family Voices, promotes a holistic approach to health and wellness for all families and children including those with special healthcare needs and disabilities. IMPACT elevates and expands the capacity of family organizations – those that serve all children as well as those that serve children with special needs and disabilities – to educate and inform families about lifestyle strategies and choices that positively impact the long-term good health of children. IMPACT promotes health and wellness by developing materials and tools and sharing other resources that help families learn skills to build healthy relationships, healthy families, and healthy communities.

Keywords: Children with special health care needs: Adolescents with special health care needs, Families, Health promotion

Annotation: Family-to-Family Health Information Centers (F2F HICs) are family-staffed organizations that assist families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. F2F HICs provide support, information, resources, and training on health itopics such as health insurance availability; early screening and intervention; the medical home, appropriate transition services for youth; and leadership and decision-making capacity for all families. The Health Resources and Services Administration (HRSA), Maternal Child Health Bureau (MCHB) provides the primary funding support for the centers.

Keywords: Adolescents with special health care needs, Children with special health care needs, Family resource centers

Annotation: Got Transition™/Center for Health Care Transition Improvement advances access to effective transition supports from pediatric to adult health care for all youth, including those with special needs, by facilitating the implementation and dissemination of health care transition best practices in pediatric and adult medical homes and specialty settings. Activities include surveillance and needs assessment, evidence-based practices and innovative strategies, youth and family leadership expansion and support, policy supports, and information exchange. The center is a national resource supported by a cooperative agreement between the Maternal and Child Bureau and the National Alliance to Advance Adolescent Health.

Keywords: Adolescents with special health care needs, Health services, Transition to independent living

Annotation: The Healthy & Ready to Work National Resource Center (HRTW) serves as a national focal point for the Health Resources and Services Administration, Maternal and Child Health Bureau, Transition to Adulthood initiative. The center’s mission is to create changes in policy, programs, and practices that will assist or support the transition of youth with special health care needs to adult health care with funding, work, and independence.

Keywords: Adolescents with special health care needs, National MCH resource center, Resource centers, Transition to independent living

Annotation: Kids as Self Advocates (KASA), a project of Family Voices co-sponsored by the Diana, Princess of Wales Memorial Fund and the U.S. Maternal and Child Health Bureau (MCHB), is a national network made up of adolescents with special health care needs and their families and friends. KASA's mission is to educate society about issues concerning youth with disabilities and special health care needs and works to empower youth to learn how to self-advocate. KASA also assists with building support networks for youth with special needs to share information with their peers. Members of KASA serve as youth advisors to Family Voices and work to educate policymakers, medical students, physicians, and fellow students on issues such as living with special health care needs, health care transition, education, and employment. The organization publishes a newsletter, sponsors a listservice and an electronic bulletin board and offers payment to youth for Web site contributions. KASA also operates the KASA National Youth Information, Training, and Resource Center with funding from the Administration on Developmental Disabilities.

Keywords: Adolescents with developmental disabilities, Adolescents with special health care needs, Advocacy, Listservs, Peer education, Peer support programs

Annotation: The Human Development Center (HDC) was established in 1974 to focus on issues related to people with disabilities and their families across the life span. HDC projects focus on one of three areas of emphasis: (a) Early Intervention and Education, (b) Employment and (c) Quality Assurance. The Human Development Center (HDC) provides leadership and innovation in interdisciplinary education, community service, research, and to disseminate information to strengthen and increase the capacity of local communities to support and include individual with [developmental] disabilities and their families in all aspects of life in the community.

Keywords: Louisiana, Adolescents with special health care needs, Advocacy, Children with special health care needs, Families, Family support services, Integrated services

Annotation: The National 4-H Council provides grants, sponsors awards, establishes programs and initiatives, designs and publishes curriculum and reference materials, and creates linkages fostering innovation and shared learning to advance the 4-H youth development movement, building a world in which youth and adults learn, grow, and work together as catalysts for positive change. Programs focus on afterschool activities, safety, (including ATV safety), health and wellness, environmental stewardship, youth governance, rural youth development, and family strengthening. The council partners with 4-H at all levels—national, state and local. Publications are available through an online bookstore.

Keywords: Adolescents with special health care needs, Child health, Child safety, Injury prevention, Youth development

Annotation: The National Collaborative on Workforce and Disability for Youth (NCWD/Youth) is composed of partners with expertise in disability, education, employment, and workforce development policy and practice. NCWD/Youth is housed at the Institute for Educational Leadership in Washington, DC. The Collaborative, funded through the U.S. Department of Labor's Office of Disability Employment Policy, is charged with assisting state and local workforce development systems to integrate youth with disabilities into their service strategies.

Keywords: Adolescents with special health care needs, Disabilities, Transition to independent living, Work force, Workplace, Young adults, Youth

Annotation: The Southwest Institute for Families and Children with Special Needs focuses on services for children and adolescents with special health care needs in making the transition to adult life in Arizona. Research is conducted to produce scientifically and socially valid results; contribute to knowledge about families, children, and youth with special needs; focus on topics that reflect changing demographics, life spans, barriers, and needs; use research designs that include potential consumers (parents, children and youth, teachers, physicians) in every step of the research process; produce research products that promote the transfer of knowledge to families and service providers; use multiple methods of research to ensure that results reflect the most current knowledge in the area, as well as the beliefs, expectations and daily lives of its potential consumers. Demonstration and implementation of research translates state-of-the-art knowledge into practice in conducting demonstration and implementation projects based on evidence supported practices; developing products for practitioners and parents that synthesize research-findings; promote collaboration between families and health, education, and social service providers through demonstration and implementation projects; and promote system-wide change as an outcome of family-provider collaboration in project activities. Additional focus is on program evaluation for projects-in-process and preparing personnel including inservice providers in the research-to-practice process.

Keywords: Children with special health care needs, Adolescents with special health care needs, Inservice training, Professional training, Service delivery, Transition to independent living