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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 3 (3 total).

American Medical Association (AMA)

Annotation: The American Medical Association (AMA), a federation of 54 state or comparable medical associations, works to promote the art and science of medicine and the improvement of public health. The association brings together 82 national societies representing a variety of medical specialties. Publications include the Journal of the American Medical Association. A list of publications and audiovisual materials is available. The AMA also sponsors conferences.

Keywords: Public health, AMA, Advocacy, Conferences, Health promotion, Physicians, Policy analysis, Policy development, Professional education, Professional ethics, Professional societies, Publications, Training

Foundation Fighting Blindness (FFB)

Annotation: The Foundation Fighting Blindness, Inc. (FFB) supports research aimed at preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. FFB offers information and referral services for affected individuals and their families as well as for doctors and eye care professionals. The Foundation also provides comprehensive information kits on retinitis pigmentosa, macular degeneration, and usher syndrome. FFB's newsletter (In Focus) and its e-newsletter (In Sight) present articles on coping, research updates, and Foundation news. In Focus is published 3 times per year; In Sight is sent approximately 6 times per year. A national conference is usually held every other year.

Keywords: Retinitis pigmentosa, Bassen-Kornzweig Syndrome, Best disease, Blindness, Choroideremia, Fundraising, Gyrate atrophy, Information services, Laurence Moon Biedl Syndrome, Leber congenital amaurosis, Refsum disease, Stargardt disease, Usher Syndrome, Visiondisorders

Retinitis Pigmentosa International

Annotation: Retinitis Pigmentosa International offers referrals, peer support, and education. The organization has twenty chapters nationwide and operates a school for blind adults and sponsors conferences. Publications include a quarterly newsletter, brochures, research news items and videotapes. Through TheatreVision (description for the blind) major movies are becoming available to the blind community. RPI is actively involved nationally with organizations representing the blind, and offers a national radio program. Some materials are available in Spanish.

Keywords: Bassen-Kornzweig Syndrome, Best disease, Blindness, Choroideremia, Gyrate atrophy, Laurence Moon Biedl Syndrome, Leber congenital amaurosis, Refsum disease, Retinitis pigmentosa, Stargardt disease, Usher Syndrome, Vision disorders, Visually impaired
   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.