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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

National Organization for Rare Disorders (NORD)

Annotation: The National Organization for Rare Disorders (NORD) is a federation of voluntary health organizations and individuals dedicated to helping people with rare diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. NORD provides information on diseases, referrals to patient organizations, a networking program, medication assistance programs, research grants and fellowships, and advocacy on issues related to rare diseases. Publications include the NORD resource guide (5th edition, 2005) for use in offices and instititional settings; the NORD Guide to Rare Disorders, a series of booklets for physicians, and reports on specific diseases. The organization also publishes a newsletter and sponsors an annual conference.

Keywords: Orphan drugs, Advocacy, Health education, Information services, Information sources, Medical research, Online databases, Publications, Rare diseases
   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.