Search Results: MCH Organizations

Annotation: Established in 1950, the Haemophilia Society is an international organization that provides information and support for people with hemophilia (or AIDS/HIV-related hemophilia and HEPC-related hemophilia) and their families and friends. The society advocates high treatment standards and campaigns for individuals with hemophilia. It holds an annual residential seminar for members, families, and professionals. Publications include a quarterly newsletter,The Bulletin, and other periodicals. Some materials are available in Asian languages.

Keywords: AIDS, Advocacy, HIV, Hematologic diseases, Hemophilia, Overseas organization, Support groups

Annotation: The Hemophilia and AIDS/HIV Network for the Dissemination of Information (HANDI) is a resource center of the National Hemophilia Foundation. Handi maintains a comprehensive resource collection of educational materials on hemophilia and AIDS/HIV. Areas of emphasis are HIV risk reduction (including outreach and strategies for promoting and maintaining behavioral change in people at risk), living with hemophilia and AIDS/HIV, treatments for HIV infection, and finance and reimbursement issues. Publications include HANDI Resource Update, HIV Treatment Information Exchange, and various bibliographies, resource packets, and fact sheets. Publications are available in Spanish.

Keywords: Hemophilia, AIDS, Educational materials, HIV, HIV infected patients, Information dessimination, Outreach

Annotation: The National Hemophilia Foundation (NHF) helps people affected by hemophilia and related bleeding disorders to improve their quality of life. The foundation supports research programs, professional and public education, and services for patients, families, and communities. It also operates as an information center, the Hemophilia and AIDS/HIV Network for the Dissemination of Information (HANDI), which provides resource information on hemophilia and AIDS/HIV to the general public and health professionals. Publications include NHF e*Notes(a monthly electronic publication) and the magazine HemAware (bimonthly). Video and resource listings and article reprints are also available from HANDI.

Keywords: AIDS, HIV, Hemophilia

Annotation: The World Federation of Hemophilia is an international not-for-profit organization dedicated to introducing, improving, and maintaining care for people with hemophilia and related bleeding disorders around the world. The WFH works with national hemophilia organizations, health care providers, and government officials to foster quality health care for people with bleeding disorders. The WFH focuses its activities in health care development programs, humanitarian aid, data collection, public affairs and publications. WFH publications include information on diagnosis and treatment, directories, general guides, hemophilia organization resources, and safety and supply. The organization also sponsors conferences, workshops, and training seminars and provides inquiry responses, reference information, and publications for consumers. Some materials are available in French, Spanish, and Asian languages.

Keywords: Hemophilia, AIDS, Developing countries, HIV, Health education, Health promotion, Hematologic diseases