Search Results: MCH Organizations

Annotation: The American Sleep Apnea Association (ASAA) was founded in 1990 as a non-profit organization by persons with apnea and concerned health care providers and researchers. The mission of ASAA is to reduce injury, disability, and death from sleep apnea and to enhance the well-being of those affected by this common disorder. The ASAA promotes education and awareness, the A.W.A.K.E. (Alert, Well, And Keeping Energetic) Network of voluntary mutual support groups, research, and continuous improvement of care. Referrals are available upon request, and ASAA publishes a newsletter.

Keywords: Apnea, Education, Sleep disorders, Support groups

Annotation: CJ First Candle is dedicated to safe pregnancies and the survival of infants through the first years of life. Current priorities are to eliminate stillbirth, sudden infant death syndrome (SIDS), and other sudden unexpected infant deaths (SUIDs) with programs of research, education, and advocacy. CJ First Candle also provides compassionate grief support to anyone affected by the death of an infant through a dedicated crisis hotline. The website provides information and resources for new and expectant parents, families who are grieving, and professionals. First Candle merged with CJ Foundation for SIDS in 2017. [Funded by the Maternal and Child Health Bureau]

Keywords: Infant health, Apnea, Home monitoring, Information services, Medical research, SIDS, Support groups

Annotation: Services to affected families and medical professionals include referrals, publications, and reference information. The CCHS Network sponsors conferences and publishes newsletters twice annually.

Keywords: Congenital central hypoventilation syndrome, Respiratory diseases, Sleep apnea syndrome, Sleep disorders