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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 21 through 40 (77 total).

Jivanjee P, Brennan E, Gonzalez-Prats MC, Melton R, Hayden-Lewis K. 2016. Promoting positive pathways to adulthood. Portland, OR: Research and Training Center for Pathways to Positive Futures, multiple items.

Annotation: These training modules are designed to help direct service providers engage transition age youth (ages 14–29) with serious mental health challenges in services. Each module includes information on key topics, video clips, interactive questions, and a quiz. Topics include partnering with youth and young adults; promoting recovery; increasing cultural awareness and building community support; fostering resilience and family support; promoting cross-cultural and intergenerational relationships; providing individualized and developmentally appropriate services; developing healthy relationships; planning partnerships with providers of other services and collaborating to bridge service gaps; promoting support from family, peers, and mentors; and using evidence-supported practices and individualizing interventions. An accompanying toolkit provides practice scenarios, video segments, role plays, and questions to help participants apply their learning to practice in their local context.

Contact: Research and Training Center for Pathways to Positive Futures, Portland State University, Portland, OR Web Site: http://www.pathwaysrtc.pdx.edu Available from the website.

Keywords: Adolescents, Collaboration, Competency based education, Continuing education, Families, Family support programs, Health services delivery, Mental health, Multimedia, Peer support programs, Public private partnerships, Relationships, Resilience, Training, Transition planning, Young adults

American College of Physicians, Got Transition/Center for Health Care Transition Improvement, Society of General Internal Medicine, Society for Adolescent Health and Medicine. 2016. Pediatric to adult care transitions initiative [toolkit]. Philadelphia, PA: American College of Physicians, multiple items.

Annotation: These disease/condition-specific tools were developed by internal medicine subspecialties to assist physicians in transitioning young adults with chronic diseases/conditions into adult care settings. Contents include sets of tools containing the following customized elements (at a minimum): transition readiness assessment, medical summary/transfer record, and self-care assessment. Sets of tools are available for the following subspecialties and diseases: general internal medicine, cardiology, endocrinology, gastroenterology, hematology, nephrology, and rheumatology. [Funded in part by the Maternal and Child Health Bureau]

Contact: American College of Physicians, 190 North Independence Mall West, Philadelphia, PA 19106-1572, Telephone: (215) 351-2400 Secondary Telephone: (800) 523-1546 Web Site: https://www.acponline.org Available from the website.

Keywords: Assessment, Chronic illnesses and disabilities, Coordination, Medical records, Pediatric care, Self care, Special health care services, Transition planning, Young adults

Jim Casey Youth Opportunities Initiative. 2016. Preparing for the road ahead: Helping young people transition from foster care to adulthood. Baltimore, MD: Annie E. Casey Foundation, 24 pp.

Annotation: This report summarizes the successes and vision of a national initiative to help young people transition from foster care and thrive. Contents include information about the initiative's impact, timeline, core strategies, outcome areas, and next steps. The report describes how the initiative is helping young people in foster care achieve critical milestones in permanence, education, employment, financial capability, housing, physical and mental health, and social capital; how the initiative integrates young people's voices into its work; and how it collaborates with national and local partners, policymakers, and young people to create conditions that improve outcomes for youth transitioning to adulthood.

Contact: Annie E. Casey Foundation, 701 Saint Paul Street, Baltimore, MD 21202, Telephone: (410) 547-6600 Fax: (410) 547-6624 E-mail: [email protected] Web Site: http://www.aecf.org Available from the website.

Keywords: Adolescent health, Adolescents, Collaboration, Foster care, National initiatives, Outcome and process assessment, Program descriptions, Program evaluation, Public private partnerships, School to work transition, Transition planning, Transition to independent living, Transitions, Young adults, Youth development, Youth in transition programs

Brown LW, Camfield P, Capers M, Cascino G, Ciccarelli M, de Gusmao CM, Downs SM, Majnemer A, Miller AB, Saninocencio C, Schultz R, Tilton A, Winokur A, Zupanc M. 2016. The neurologist's role in supporting transition to adult health care: A consensus statement. Neurology 87(8):835–840, 7

Annotation: This article describes the child neurologist's role in planning and coordinating successful transition from the pediatric to adult health care system for youth with neurologic conditions. Topics include eight common principles that define the child neurologist's role in a successful transition process as outlined by a multidisciplinary panel, the evidence for successful transition models, and areas for future consideration. [Funded by the Maternal and Child Health Bureau]

Contact: American Academy of Neurology, 1080 Montreal Avenue, Saint Paul, MN 55116, Telephone: (651) 695-2717 Secondary Telephone: (800) 879-1960 Fax: (651) 695-2791 E-mail: [email protected] Web Site: http://www.aan.com Available from the website.

Keywords: Adolescents, Family support services, Financing, Health care systems, Interdisciplinary approach, Leadership, Legal issues, Model programs, Multidisciplinary teams, Neurologic disorders, Program coordination, Special health care needs, Transition planning, Young adults

SHAPE America: Society of Health and Physical Educators. 2016. Providing community-based PE services for students with disabilities in special education transition programs. Reston, VA: SHAPE America: Society of Health and Physical Educators, 8 pp.

Annotation: This document for physical educators provides guidance on ensuring that students in community-based transition programs receive physical education services in community settings, and that those services are developed and implemented by certified adapted physical education teachers. Contents include background, reasons for concern, clarification from the U.S. Department of Education's Office of Special Education Programs, a call to action, and best practices and recommendations for providing meaningful physical education services in secondary special education transition programs.

Contact: SHAPE America–Society of Health and Physical Educators, 1900 Association Drive, Reston, VA 20191-1598, Telephone: (800) 213-7193 Fax: (703) 476-9527 E-mail: Web Site: http://www.shapeamerica.org Available from the website.

Keywords: Community action, Community based services, Disabilities, Models, Nutrition education, Physical activity, Physical education, Students, Teaching, Transition planning, Transition to independent living, Youth in transition programs

Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center. 2016. Strengthen the evidence for MCH programs: Environmental scan of strategies National Performance Measure (NPM) #12: Transition. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 12 pp.

Annotation: This environmental scan identifies collections of strategies to advance performance for NPM #12: Transiton--percent of adolescents with and without special health care needs who received services necessary to make transitions to adult health care. It includes a list of reviews and compilations on the topic; frameworks and landmark initiatives; databases and related search terms; and inclusion and exclusion criteria. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: Adolescents, Block grants, Evidence-based practice, Literature reviews, Measures, Model programs, Policy development, Program planning, Resources for professionals, State MCH programs, Title V programs, Transition planning, Transition to independent living

White P, Cooley WC, McAllister J. 2015. Starting a transition improvement process: Using the six core elements of health care transition 2.0. Washington, DC: Center for Health Care Transition Improvement, 3 pp. (Practice resource; no. 1)

Annotation: This document is designed to help pediatric, family medicine, internal medicine-pediatrics, and internal medicine practices (both primary care and specialty practices), and health systems start or improve a transition process for youth moving from pediatric to adult health care. The document describes four interrelated steps and lessons learned from health care transition improvement projects across the United States. Topics include securing senior leadership support, forming the transition improvement team, defining transition processes for improvement, and dedicating time to implement transition improvements. [Funded by the Maternal and Child Health Bureau]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Adolescents, Leadership, Multidisciplinary teams, Patient care teams, Program improvement, Quality assurance, Special health care needs, Teamwork, Transition planning, Young adults

Federal Partners in Transition Strategic Planning Committee. 2015. The 2020 federal youth transition plan: A federal interagency strategy. Washington, DC: U.S. Department of Labor, Office of Disability Employment Policy, 32 pp.

Annotation: This document outlines a plan to enhance federal interagency coordination, to develop compatible goals to improve outcomes for youth with disabilities in transition, and to help agencies approach transition in a more integrated way that will lead to improved outcomes by 2020. Contents include definitions, history, and assumptions; a shared vision and the compatible outcome goals used to frame coordination across federal agencies and respective programs, the approach, examples of current federal cross-systems initiatives that support compatible outcome goals, and policy priorities that will inform work going forward.

Contact: U.S. Department of Labor, Office of Disability Employment Policy, Frances Perkins Building, 200 Constitution Avenue, N.W., Washington, DC 20210, Telephone: (202) 693-7880 Secondary Telephone: (866) 633-7365 Fax: (202) 693-7888 E-mail: [email protected] Web Site: http://www.dol.gov/odep Available from the website.

Keywords: Access to health care, Adolescents, Disabilities, Federal programs, Program improvement, School to work transition, Service integration, Special health care needs, Strategic plans, Transition planning, Transition to independent living, Young adults

U.S. Department of Labor, Office of Disability Employment Policy. 2015. Healthy transitions: A pathway to employment for youth with chronic health conditions and other disabilities. Washington, DC: U.S. Department of Labor, Office of Disability Employment Policy, 12 pp.

Annotation: This policy brief presents research findings about the relationship between disability (including chronic conditions), health and wellness, and transition and employment outcomes for youth with disabilities. The brief also examines the role health care professionals play in establishing employment expectations. Contents include information about the study methods, transition planning, and recommendations.

Contact: U.S. Department of Labor, Office of Disability Employment Policy, Frances Perkins Building, 200 Constitution Avenue, N.W., Washington, DC 20210, Telephone: (202) 693-7880 Secondary Telephone: (866) 633-7365 Fax: (202) 693-7888 E-mail: [email protected] Web Site: http://www.dol.gov/odep Available from the website.

Keywords: Adolescent health, Chronic illnesses and disabilities, Employment, Outcome and process assessment, Role, School to work transitions, Transition planning, Young adults

Youth Transitions Collaborative, Got Transition/Center for Health Care Transition Improvement, U.S. Department of Labor, Office of Disability Employment Policy. 2015. Transition quickguide: Take charge of planning and managing your own health and career goals. Washington, DC: Center for Health Care Transition Improvement, 6 pp.

Annotation: This checklist for youth and young adults, including those with disabilities and chronic health conditions, from ages 12-30, provides information and resources about health insurance coverage, self-care, health care transition, decision-making, and career planning and management. [Funded by the Maternal and Child Health Bureau]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Adolescents, Decision making, Guidelines, Health insurance, Life skills, School to work transition, Special health care services, Transition planning, Young adults

Society for Adolescent Health and Medicine, Pfizer, Unity Consortium. 2015. THRIVE (Teen Health Resources, Information and Vaccine Education). Deerfield, IL: Society for Adolescent Health and Medicine,

Annotation: This app is designed to empower parents to begin a dialogue with their adolescent or young adult on important health topics, and help manage their own health. Features include a library of health and wellness topics to help parents have discussions with their teen or young adult. The app also provides parents with conversation starters for difficult or sensitive topics; health exams and preventive health information including vaccinations and well-visits; risk-oriented behavior, such as drinking, smoking, or sexual health; social media; and more.

Contact: Society for Adolescent Health and Medicine, 111 Deer Lake Road, Suite 100, Deerfield, IL 60015, Telephone: (847) 753-5226 Fax: (847) 480-9282 E-mail: [email protected] Web Site: http://www.adolescenthealth.org Available from the website.

Keywords: Adolescents, Communication, Mobile applications, Parents, Self care, Transition planning, Young adults

Cooley WC, Cheetham T. 2015. Integrating young adults with intellectual and developmental disabilities into your practice: Tips for adult health care providers. Washington, DC: Center for Health Care Transition Improvement, 3 pp. (Practice resource; no. 3)

Annotation: This resource offers tips for preparing the office and staff for caring for young adults with intellectual/developmental disabilities. Topics include recommended transition actions that can be taken prior to the initial visit, during the visit, and after the visit. [Funded by the Maternal and Child Health Bureau]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Adolescents, Developmental disabilities, Health care delivery, Intellectual development, Patient care planning, Self care, Special health care needs, Transition planning, Young adults

Endocrine Society. 2014-. A successful approach to managing pediatric adult transitions of care. Chevy Chase, MD: Endocrine Society, multiple items.

Annotation: These toolkits are designed to help health professionals manage pediatric-to-adult transitions of care for their clients with various chronic endocrine conditions including growth hormone deficiency and type 1 diabetes. Topics include assessing client skills, client self-assessment, recommended approach to planning for pediatric practices, and recommended approach to receiving a new client. Forms, clinical summaries, client fact sheets, dosing guides, and and other resources are included. Toolkits for childhood cancer, congenital adrenal hyperplasia, and Turner syndrome are forthcoming.

Contact: Endocrine Society, 2055 L Street, N.W., Suite 600, Washington, DC 20036, Telephone: (202) 971-3636 Web Site: http://www.endo-society.org Available from the website.

Keywords: Adolescent health services, Adolescents, Assessment, Children, Chronic illnesses and disabilities, Diabetes mellitus, Disease management, Endocrine diseases, Forms, Pediatric care, Resources for professionals, Special health care needs, Transition planning

Center for Health Care Transition Improvement. 2014. Six core elements of health care transition 2.0. Washington, DC: Center for Health Care Transition Improvement, multiple items.

Annotation: These resources are designed to help health professionals implement and evaluate transition quality improvement. Contents include a document that describes six core elements of health care transition and tools for implementing and evaluating the following three transition processes: (1) transitioning youth to adult health care providers, (2) transitioning to an adult approach to health care without changing providers, and (3) integrating youth into adult health care. Contents include sample policies, registries, transition readiness/self-care assessments, condition fact sheets, medical summary and emergency care plans, transfer letters and checklists, young adult orientation material, care plans, feedback surveys, and measurement approaches. The tools can be adapted and customized for an individual practice. [Funded by the Maternal and Child Health Bureau]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Adolescents, Measures, Patient care planning, Process evaluation, Program improvement, Quality assurance, Special health care needs, Transition planning, Young adults

Wisconsin Community of Practice on Transition, Practice Group on Health. 2014. Transition health care checklist: Preparing for life as an adult [upd.]. Madison, WI: University of Wisconsin-Madison, Waisman Center, 48 pp.

Annotation: This booklet provides an overview of the knowledge, skills, and actions required to help ensure a smooth transition from adolescence to adulthood for youth with special health care needs. It includes basics of transition planning, a checklist to help adolescents identify the skills they need in order become independent, and fact sheets for making it all happen.

Contact: Waisman Center for Mental Retardation and Human Development, University of Wisconsin, Madison, 1500 Highland Avenue, Madison, WI 53705-2280, Telephone: (608) 263-5776 Secondary Telephone: (608) 263-1656 Fax: (608) 263-0529 Web Site: http://www.waisman.wisc.edu Available from the website.

Keywords: Adolescents with special health care needs, Transition planning, Transition to independent living

Syed K. 2014. Youth confidentiality in the Affordable Care Act: Approaches for ensuring greater privacy protections for vital health care. Washington, DC: Advocates for Youth, 4 pp.

Annotation: This policy brief focuses on national and state efforts to secure comprehensive confidentiality protections for young adults insured as dependents. Topics include Affordable Care Act provisions related to young adults, insurance communications that may compromise young adults' confidentiality and negatively impact their health, young adults' need for confidentiality as recognized by law and state law approaches to securing confidentiality in dependent coverage. Recommendations are included.

Contact: Advocates for Youth, 2000 M Street, N.W., Suite 750, Washington, DC 20036, Telephone: (202) 419-3420 Fax: (202) 419-1448 Web Site: http://www.advocatesforyouth.org Available from the website.

Keywords: Communication, Confidentiality, Health care reform, Health insurance, Medical records, Patient Protection and Affordable Care Act, Patient rights, Reproductive health, Sexual health, Transition planning, Transition to independent living, Young adults

Bonnie RJ, Stroud C, Breiner H, eds.; Institute of Medicine, Committee on Improving the Health, Safety, and Well-Being of Young Adults; National Research Council. 2014. Investing in the health and well-being of young adults. Washington, DC: National Academies Press, 433 pp.

Annotation: This report summarizes what is known about the health, safety, and well-being of young adults and offers recommendations for policy and research. Contents include a cross-cutting recommendation that applies to all policies and programs addressing young adults, whether public or private, in all sectors of society. Subsequent recommendations focus on the key domains of relationships, education and employment, civic engagement and national service, public health, the health care systems, and government investments in marginalized young adults.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu Available from the website.

Keywords: Adolescents, Evidence based medicine, Health status, Preventive health services, School to work transition, Service integration, Transition planning, Transition to independent living, Young adults, Youth in transition programs

Center for Health and Health Care in Schools. 2014. Autism spectrum disorders and transitions from high school: Challenges and opportunities. Washington, DC: Center for Health and Health Care in Schools, multiple items.

Annotation: This website comprises information and resources from the Autism Transition Project (2012-2014), a two-year project to study how students with an autism spectrum disorder are being prepared to move from the public schools into employment or additional education in the community. Resources include a national and state scan; literature and resources; and the agenda and presentations from the Symposium on Autism Spectrum Disorders & Transition (June 16, 2014) and the Conference Autism Spectrum Disorders & Transitions from High School: Challenges & Opportunities (December 5, 2014).

Contact: Center for Health and Health Care in Schools, George Washington University Milken Institute School of Public Health, 2175 K Street, N.W., Suite 200, Room 213, Washington, DC 20037, Telephone: (202) 994-4895 E-mail: [email protected] Web Site: http://www.healthinschools.org Available from the website.

Keywords: Autism, Conference proceedings, Literature reviews, Students, Transition planning, Transition to independent living, Young adults

Center for Health Care Transition Improvement. 2014. Sample transition readiness assessment for youth. Washington, DC: Center for Health Care Transition Improvement, 1 p. (Six core elements of health care transition 2.0)

Center for Health Care Transition Improvement. 2014. Sample self-care assessment for young adults. Washington, DC: Center for Health Care Transition Improvement, 1 p. (Six core elements of health care transition 2.0)
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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.