Skip Navigation

Strengthen the Evidence for Maternal and Child Health Programs

Sign up for MCHalert eNewsletter

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 41 through 60 (440 total).

Youth Transitions Collaborative, Got Transition/Center for Health Care Transition Improvement, U.S. Department of Labor, Office of Disability Employment Policy. 2015. Transition quickguide: Take charge of planning and managing your own health and career goals. Washington, DC: Center for Health Care Transition Improvement, 6 pp.

Annotation: This checklist for youth and young adults, including those with disabilities and chronic health conditions, from ages 12-30, provides information and resources about health insurance coverage, self-care, health care transition, decision-making, and career planning and management. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Decision making, Guidelines, Health insurance, Life skills, School to work transition, Special health care services, Transition planning, Young adults

Bachman SS, Comeau M, Jankovsky KM. 2015. The care coordination conundrum and children and youth with special health care needs. Boston, MA: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, 16 pp.

Annotation: This paper provides an analysis of issues related to care coordination for children and youth with special health care needs and recommendations for moving the field forward. Topics include various definitions of care coordination, persistent barriers to adequate financing and reimbursement, and financing and payment reform to support care coordination. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Barriers, Care coordination, Children, Financing, Health care reform, Health services delivery, Reimbursement, Young adults: Special health care needs

Family Voices, IMPACT. 2015. Well Visit Planner media toolkit. Albuquerque, NM: Family Voices, IMPACT, multiple items.

Annotation: This toolkit is designed to help families raise awareness about the Well-Visit Planner™, a tool to help parents of children ages four months to 6 years learn about and plan for their child's next preventive care visit. Contents include handouts in English and Spanish, sample articles, videos, presentations, social media content, and web buttons. [Funded by the Maternal and Child Health Bureau]

Keywords: Consumer education materials, Families, Mass media, Patient care planning, Pediatric care, Preventive health services, Spanish language materials, Special health care needs, Young children

Special Olympics. 2014-. Project UNIFY toolkit. Washington, DC: Special Olympics,

Annotation: This toolkit provides resources to help schools implement Project UNIFY, an initiative that focuses on social inclusion that brings youth with and without intellectual disabilities together through sports and related activities. The resources describe Project UNIFY's vision, its major components, how to get started, implementation models, the connection to equal education and inclusion, evaluation reports, and the project's impact.

Keywords: Physical fitness, Children with special health care needs, Chronic illnesses and disabilities, Developmental disabilities, Inclusive schools, Information services, Mental retardation, School health programs, Sports

Endocrine Society. 2014-. A successful approach to managing pediatric adult transitions of care. Chevy Chase, MD: Endocrine Society, multiple items.

Annotation: These toolkits are designed to help health professionals manage pediatric-to-adult transitions of care for their clients with various chronic endocrine conditions including growth hormone deficiency and type 1 diabetes. Topics include assessing client skills, client self-assessment, recommended approach to planning for pediatric practices, and recommended approach to receiving a new client. Forms, clinical summaries, client fact sheets, dosing guides, and and other resources are included. Toolkits for childhood cancer, congenital adrenal hyperplasia, and Turner syndrome are forthcoming.

Keywords: Adolescent health services, Adolescents, Assessment, Children, Chronic illnesses and disabilities, Diabetes mellitus, Disease management, Endocrine diseases, Forms, Pediatric care, Resources for professionals, Special health care needs, Transition planning

Health Resources and Services Administration, Emergency Medical Services for Children Program; Emergency Medical Services for Children National Resource Center; Office of the Assistant Secretary for Preparedness and Response; National Library of Medicine, Disaster Information Management Research Center. 2014-. Health resources on children in disasters and emergencies. Bethesda, MD: National Library of Medicine, multiple items.

Annotation: This website is a compendium of resources related to medical and public health issues of children in disasters and emergencies. Contents include links to journal articles and other documents and materials that may be useful in preparedness, mitigation, response and recovery activities. Resources are national or international in scope. Topics include natural disasters; chemical and biological agents, radiologicals and nuclear, and explosives (CBRNE); psychological and behavioral health; and special topics such as children with disabilities, school and care providers, hospital preparedness, resilience, and pandemics.

Keywords: Child care, Communicable diseases, Databases, Disaster planning, Disasters, Emergencies, Emergency medical services for children, Hospitals, International health, Mental health, Resilience, Resources for professionals, Schools, Special health care needs

Lorenzo SB. 2014. Kids and teens with special health care needs: Family resource brief (2nd ed., upd.). Washington, DC: National Center for Education in Maternal and Child Health, 1 p.

Jee J, Nagarajan J. 2014. Identification and assessment of children and youth with special health care needs in Medicaid managed care: Approaches from three states. Portland, OR: National Academy for State Health Policy, 23 pp.

Annotation: This report describes approaches in three states (California, Michigan, and Minnesota) to identify and assess children and youth with special health care needs (CYSHCN) in Medicaid managed care. Topics include identification and assessment of contract requirements; monitoring and quality improvement; and collaboration between Medicaid, health plans, Title V, and families. The report concludes with a discussion and promising practices for implementing Medicaid managed care for CYSHCN that emerged from the states studied.

Keywords: Adolescents, Children, Collaboration, Contract services, Families, Medicaid managed care, Monitoring, Program improvement, Quality assurance, Special health care needs, Title V programs

National Center for Family / Professional Partnerships. 2014. Family-centered care assessment. Albuquerque, NM: National Center for Family / Professional Partnerships, multiple items.

Annotation: This resource describes a tool to help pediatricians and other health professionals improve family-centeredness of their care. The quality measurement questionnaire comprises 24 validated questions on topics such as decision-making interactions, family support, community services, and cultural competence. The resource includes information about using the Family-Centered Care Assessment (FCCA) for families, health care providers, and researchers; a FCCA fact sheet and project timeline; and links to a self-assessment tool and user guide for families and providers. Additional resources on family-centered care are included. [Funded by the Maternal and Child Health Bureau]

Keywords: Assessment, Cultural competence, Decision making, Family centered care, Family support services, Measures, Pediatric care, Program improvement, Quality assurance, Special health care needs

Catalyst Center. 2014. Dancing with data: Using data to support your message (rev.). Boston, MA: Catalyst Center, 10 pp.

Annotation: This document provides information for policymakers and advocates on using statistical data to illustrate issues of coverage and financing of care for children and youth with special health care needs (CYSHCN) to inform effective decision making. Topics include types of data, sources of data, and tips for using and different data types and sources. The document also outlines steps for collecting and communicating data and family stories. [Funded by the Maternal and Child Health Bureau]

Keywords: Children, Communication, Data sources, Decision making, Financing, Health insurance, Program improvement, Special health care services, Statistical data, Youth

National Association of County and City Health Officials . 2014. Capacity of local health departments to track, administer, and promote seasonal influenza vaccination for pregnant women, children with special health care needs, and adults with disabilities. Washington, DC: National Association of County and City Health Officials , 8 pp.

Annotation: This research brief highlights the extent to which local health departments (LHDs) provide and have the capacity to track, administer, and promote influenza (flu) vaccination for pregnant women, children with special health care needs, and adults with disabilities. Contents include data on the percentage of LHDs providing adult and child immunizations for the period 2005-2013 and findings from key informant interviews on seasonal flu vaccination rates, administering and promoting vaccinations, and partnerships. Reimbursement issues; the emergence of retail pharmacies in the immunization market; strategies used to promote flu vaccination; and opportunities, challenges, and recommendations are also discussed.

Keywords: Adolescents with special health care needs, Adults, Children with special health care needs, Disabilities, Health agencies, Influenza, Local government, Pregnant women, Prevention services, Public health infrastructure, Vaccines

Hughes D. 2014. A review of the literature pertaining to family-centered care for children with special health care needs. Palo Alto, CA: Lucile Packard Foundation for Children's Health, 32 pp.

Annotation: This document summarizes findings from a review of selected research related to family-centered care (FCC) for children with special health care needs (CSHCN). Contents include highlights from studies that examine the following components of FCC: family-provider partnerships, coordinated care, racial/ethnic and linguistic barriers, and culturally competent care. It also examines access, unmet need and satisfaction for CSHCN and outcomes of FCC and medical homes.

Keywords: Adolescents, Children, Culturally competent services, Ethnic factors, Families, Family centered care, Health care delivery, Language barriers, Literature reviews, Parent professional relations, Service coordination, Special health care needs

Wisconsin Public Health Association and Medical College of Wisconsin. 2014. WISHeS: Wisconsin Improving School Health Services Project. Kimberly, WI: Wisconsin Public Health Association, multiple items.

Annotation: This manual is designed to help school districts improve the health services they provide to students. Contents include a school-health-services assessment tool; injury and illness protocols; sample policies and procedures for emergency nursing services, concussion management, managing and preventing acute reactions to foods in the school setting, and medication administration; and nurse procedures. The manual also contains instructions for unlicensed assistive personnel on hand hygiene, oral care, feeding, transfers, and diapering for students who need such care at school.

Keywords: Assessment, Disease management, Disease prevention, Mobile applications, Nursing services, Oral health, Patient care management, Patient care planning, Protocols, School based management, School districts, School health services, School nurses, School personnel, Special health care needs, Training

Georgia State University school of Public Health, Center for Leadership in Disability. 2014. Autism plan for Georgia. Atlanta, GA: Georgia State University school of Public Health, Center for Leadership in Disability,

Annotation: This resource outlines a plan for improving access to comprehensive, coordinated health care and related services for children, youth, and adults with autism spectrum disorder and related developmental disabilities in Georgia. The plan addresses the following ten areas of activity: early identification and screening; referral and diagnosis; medical, behavioral health, and dental services; family support; early intervention and preschool services; elementary and secondary education; community services and supports; transition from youth to adult systems; adult services and supports; and emergency preparedness and first responders. For each area, the report provides a definition, quality indicators (problem statements and data drivers), and recommendations (objectives). The report also describes foundational supports considered in developing the recommendations including work force, awareness, informational resources, finances, and policy. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Autism, Community based services, Comprehensive health care, Diagnosis, Disaster planning, Early intervention, Educational objectives, Family centered care, Family support services, Financial planning, Georgia, Health care delivery, Life course, Policy development, Program coordination, Referrals, Screening, Special health care needs, State programs, Systems development, Transition planning, Work force

U.S. Maternal and Child Health Bureau. 2013. The National Survey of Children With Special Health Care Needs: Chartbook 2009–2010. Rockville, MD: U.S. Maternal and Child Health Bureau, 109 pp.

Annotation: This chartbook presents major findings from the 2009–2010 National Survey of Children with Special Health Care Needs. Contents include a description of the children with special health care needs (CSHCN) population, progress on indicators of core outcomes for the community-based system of services required for all CSHCN under Title V and Healthy People 2020, and the impact of having a child with special health care needs on families. The authors present findings from the survey on the national level, stratifying each indicator by selected sociodemographic variables such as age, race/ethnicity, income level, and type of insurance. Findings for each state and the District of Columbia are included. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Children with special health care needs, Data, Families, Family support, Health services, Prevalence, Surveys

Genetic Alliance, Family Voices. 2013. Children and youth with special healthcare needs in Healthy People 2020: A consumer perspective. Washington, DC: Genetic Alliance; Albuquerque, NM: Family Voices, 44 pp.

Annotation: This document examines Healthy People 2020 objectives and serves as a companion to Envision 2020, the 10-year strategic plan for the Division of Services for Children with Special Heath Needs in the Health Resources and Services Administration's Maternal and Child Health Bureau. The document provides background; discusses trends in programs, legislation, and care for children and youth with special health care needs (CYSCN); provides core performance measures for CYSCN; discusses who is at risk for chronic illnesses and disabilities; and offers information about preparing children and families for the future. Stories about individual children and families are included.

Keywords: Adolescents with special health care needs, Chronic illnesses and disabilities, Environmental influences, Families, Health services, Healthy People 2020: Children with special health care needs, High risk children, High risk infants, Infants with special health care needs, Legislation, Programs, Transition planning, Young adults

Lucile Packard Foundation for Children's Health. 2013. Strengthening the system: An enhanced model of health care for children with special health care needs in California. Palo Alto, CA: Lucile Packard Foundation for Children's Health, 17 pp. (Report)

Annotation: This report describes a process to redesign or enhance models of health care for children with special health care needs (CSHCN) and their families that involve complex chronic conditions. Topics include examining the existing system of services and providers, payment sources, and challenges for California; and looking toward an enhanced system of care based on the federal Maternal and Child Health Bureau six core outcomes that should characterize systems of care for CSHCN. The medical home is discussed as well as elements of an enhanced model, including unified financing, standardized eligibility determination and uniform benefits, provider reimbursement, care principles and quality metrics, family-centered care, and accountable care.

Keywords: California, Children with special health care needs, Chronic illnesses and disabilities, Families, Health care systems, Health services delivery, Models, State initiatives

Nelson J, Yadrich D. 2013. Family caregivers of children with special health care needs: The need for caregiver support as truly family-centered care. Minneapolis, MN: University of Minnesota, Leadership Education in Neurodevelpomental and Related Disabilities Program, 4 pp.

Annotation: This fact sheet presents information on the importance of family caregiver support to the health and well-being of children and adolescents with special health care needs and their families throughout the life course. Topics include caregiving and the life course, parent perspectives, and recommendations for health professionals. [Funded by the Maternal and Child Health Bureau]

Keywords: Caregivers, Children with special health care needs, Family centered care, Family support services, Parent professional relations

Kenney GM, Coyer C, Anderson N. 2013. Racial and ethnic differences in access to care and service use for children with coverage through Medicaid and the Children's Health Insurance Program. Washington, DC: Urban Institute, 28 pp. (Low-income working families, paper 23)

Annotation: This paper discusses evidence that black and Hispanic children with Medicaid/CHIP coverage may have more problems accessing care, relative to their white counterparts, in two areas: specialty and mental health care. It also discusses the need for further study to explore both the causes and the potential implications of these patterns.

Keywords: Access to health care, Blacks, Children, Children's Health Insurance Program, Health care financing, Hispanic Americans, Medicaid, Mental health services, Special health care services

Association of Maternal and Child Health Programs. 2013. The ABCs of ACOs for MCH. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This 90-minute video training explores key considerations of the Patient Protection and Affordable Care Act (ACA) for maternal and child health populations, the role of public health in accountable care organization (ACO) implementation, and efforts to implement ACOs that have a focus on pediatric populations with an emphasis on children with special health care needs.

Keywords: Access to health care, Children with special health care needs, Health insurance, Health reform, MCH services, MCH training, Patient Protection and Affordable Care Act, Resources for professionals, Training materials
« Previous Page     Next Page »

The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.