Search Results: MCHLine

Annotation: The goal of this project was the development of a multilevel model of care for infants with bronchopulmonary dysplasia that was cost effective, decreased length of hospital stays, and allowed for a physically, emotionally, socially, and developmentally healthier child. Inservice training for staff and parenting workshops were conducted as part of this project. [Funded by the Maternal and Child Health Bureau]

Keywords: Bronchopulmonary dysplasia, Children with special health care needs, Coordination of services, Infants, Length of stay, Ventilator dependent

Annotation: The goal of this project was to develop an optimum habilitation and/or rehabilitation process for children (ages birth to 21 years) with special health needs, within Puerto Rico's Caguas Health Region. The principal outcomes of this project were the development of an electronic central register for patients with special health needs in the Caguas Health Region, and the interagency work agreement and interagency referral form, which have enabled project staff and Pediatric Center personnel to share information and coordinate services with other government service providers from central and local levels. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Chronically Ill, Collaboration of Care, Community-Based Health Care, Confidentiality, Families, Family-Based Health Care, Habilitation, Home Visiting, Referrals, Rehabilitation

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

Annotation: The goal of this project was to improve the overall system of health care delivery for West Virginia children with special health needs. Specific goals were to: (1) Provide individualized family empowerment training with specific emphasis on skills in case management; (2) strengthen the Handicapped Children's Services system of case management; (3) provide coordinated, comprehensive medical and educational evaluations for children with special health needs; (4) establish a movement recognizing parents as equal partners within the professional team; (5) enhance networking through a parent-provider interdisciplinary, interagency conference; (6) identify a primary medical home for every child with special health needs; (7) emphasize the role of the primary care physician as a member of the community team; (8) assure continuation of the project beyond the funding period; and (9) expand services to all children with special health needs in West Virginia. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Case Management, Children with Special Health care Needs, Families, Family Professional Collaboration, Interagency Cooperation, Medical Home, PL 99-457, Parent Professional Communication, Parents, Primary Care, Service Coordination

Annotation: The goal of this project was to reduce the barriers to obtaining health and educational services for children with special health needs by providing a community-based, family-oriented system of comprehensive and coordinated services. Strategies included increasing community awareness of services; establishing interagency collaboration; and developing a centralized data collection system related to health status, service, and educational needs. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Community-Based Health Care, Data Collection, Family-Based Health Care

Annotation: This project was a partnership between families and their medical home to develop a demonstration model for care coordination for environmentally at-risk infants and toddlers in low-income culturally diverse urban and rural settings. The families were being served as part of the eligible population under P.L. 99–457, with an individualized family support plan (IFSP) developed for each family. The target population included many families of different ethnic origins. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Children with Special Health care Needs, Cultural Diversity, Families, Family Centered Health Care, Family Support Programs, Hawaiians, Health Promotion, Healthy Tomorrows Partnership for Children, Low Income Population, PL 99-457, Parents, Preschool Children, Primary Care, Rural Population, Service Coordination, Urban Population

Annotation: This brochure is intended to serve as a starting point for new parents looking for information about Down syndrome and related resources and support groups. It includes talking points to use during a diagnostic consultation with a physician and answers to frequently asked questions such as (1) What is Down syndrome? (2) Where do I begin to help my baby? (3) How might Down syndrome affect my baby's health? (4) Where can I find more information about Down syndrome? and (4) How can I find other parents of children with Down syndrome? The brochure is available in both English and Spanish.

• English Version
• Spanish Version

Keywords: Consumer education materials, Down syndrome, Infants with special health care needs, Spanish language materials

Annotation: This fact sheet gives recommendations for supporting children and families about sexuality, discusses sexual abuse and assault and reproductive health, and gives resources in the District of Columbia.

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Keywords: Adolescents with special health care needs, Children with special health care needs, Sexuality education

Annotation: This fact sheet lists resources on sexuality education, education curricula, health conditions and disabilities, online learning, educators and counselors, and national resources related to sexuality and children and adults with disabilities. Resources also cover parenting with a disability, reproductive health, sexual violence, and screening for abuse or violence.

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Keywords: Adolescents with special health care needs, Adults, Children with special health care needs, Disabilities, Sexuality education

Annotation: This document encourages families to partner with health professionals on getting preventive health services and to take a lead role in promoting health at home and where they live, work, and play. Topics include how information sharing between families and health professionals can promote child health, the Affordable Care Act's preventive health services for children, the Bright Futures initiative, and tips for a healthy lifestyle. [Funded by the Maternal and Child Health Bureau]

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Keywords: Bright Futures, Child health, Children, Families, Family centered care, Health care reform, Health promotion, Parent professional relations, Patient Protection and Affordable Care Act, Preventive health services, Public private partnerships, Special health care needs

Annotation: This fact sheet provides tips to help parents of adolescents with special health care needs support their sons' and daughters' transition into adulthood.

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Keywords: Adolescent development, Adolescents with special health care needs, Parenting, Transition planning, Transitions, Young adults

Annotation: This customizable toolkit for dental schools provides information about people with intellectual and developmental disabilities (IDD) to help schools prepare graduates to care for those with IDD. Selected topics include health disparities and history of treatment of people with IDD, social determinants of health, physical and sexual abuse and people with IDD, history of special care dentistry in education, the challenge of aging people with cognitive disability, defining the population across government and culture, financing oral health care for people with IDD, and cost savings.

• Link

Keywords: Adults with special health care needs, Children with special health care needs, Costs, Curricula, Dental schools, Dentistry, Education, Financing, Oral health, Physical abuse, Sexual abuse

Annotation: This curriculum provides oral health professionals with information about children with special health care needs and oral health, oral health supervision, prevention of oral disease, and behavior guidance. The curriculum can help fulfill dental education and dental hygiene education program requirements on the management and treatment of patients with special health care needs. The curriculum can be taken for continuing education credit at no charge or for no credit (self-assessment). [Funded by the Maternal and Child Health Bureau]

• Link

Keywords: Children with special health care needs, Curricula, Dental education, Disease prevention, Distance education, Oral health, Oral health care, Resources for professionals, Young children

Annotation: This overview and project profiles provides information about the eight Maternal and Child Health–Improving Oral Health Integration projects that aim to advance the integration of preventive oral health care (POHC) into primary care to make POHC more accessible to infants, children, adolescents, and pregnant women, including those with special health care needs, who are at risk for poor oral health. Each project profile includes information about the project's state-level and local-level approaches, early successes and lessons learned, and early challenges.

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Keywords: Adolescent health, High risk groups, Infant health, Oral health, Pregnant women, Prevention, Primary care, Service integration, Special health care needs

Annotation: This series of handouts for pregnant women and parents of infants and young children provides simple tips on nutrition and oral health issues. Topics include brushing a young child’s teeth, choosing healthy drinks, encouraging children to drink water with fluoride, giving children healthy snacks, taking care of oral health for pregnant women, and taking care of an infant’s oral health. The series is written in simple language and is available in English and in Spanish. One handout, Using Silver Diamine Fluoride on Children's Teeth, is also available in Arabic, Chinese, Haitian Creole, Persian, and Somali.

• English
• Spanish

Keywords: Asian language materials, Chronic illnesses and disabilities, Consumer education materials, Fluorides, Infants, Injury prevention, Non Englishs language materials, Nutrition, Oral health, Oral hygiene, Pregnant women, Preventive health services, Spanish language materials, Special health care needs, Young children

Annotation: This brief provides information on expanding access to oral health care in New York. It discusses challenges to accessing oral health care among young children, uninsured children, children living in poverty, non-Hispanic black children, children from non-English-speaking households, and children with special health care needs. It addresses structural inequities that create barriers to achieving good oral health and pregnant women’s difficulties with accessing oral health care, in spite of the fact that they are at high risk for oral health problems. Policy recommendations are included.

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Keywords: Access to care, Children with special health care needs, High risk groups, New York, Oral health, Poverty, Pregnant women, Racial factors, State information, Uninsured persons, Young children

Annotation: This report summarizes discussions and takeaways from an expert panel conducted by NOHC of the University of Chicago to discuss challenges related to, opportunities for, and promising approaches to providing equitable oral health care for children with special health care needs (CSHCN). Topics include accessibility and accommodations, health professional training and education, dental insurance coverage policies, supporting families with oral health care guidance at home, innovative models and approaches, and future research needs.

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Keywords: Access to health care, Family support, Health education, Health insurance, Health services accessibility, Oral health, Research, Special health care needs, Training

Annotation: This online resource from the American Academy of Pediatrics for state Title V programs and their partners describes strategies to improve systems of services for children and youth with special health care needs (CYSHCN) and their families. It presents vignettes from Arizona, Colorado, Iowa, Louisiana, Rhode Island, Utah, and Wyoming that highlight peer-to-peer learning and cross-sector partnerships. Featured activities include engaging families and young adults with lived experience, developing electronic referral systems, and integrating national standards for systems of care into needs assessment processes. The resource also discusses provider toolkits for developmental screening, Medicaid payment incentives for health care transition services, and the use of telehealth for care coordination in rural and frontier areas.

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Keywords: Arizona, Child health, Children with special health care needs, Colorado, Developmental screening, Intersectoral collaboration, Iowa, Louisiana, Partnerships, Program coordination, Rhode Island, State initiatives, Title V programs, Utah Wyoming, Youth, Youth in transition programs

Annotation: This policy statement from the American Academy of Pediatrics describes the role of home health care for children with disabilities, medical complexity, and chronic conditions in supporting their daily health and community participation. It outlines the legal obligations of payers under federal programs and mandates, including Medicaid’s Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) provision and the Americans with Disabilities Act. The document identifies systemic barriers such as workforce shortages, low reimbursement rates, and the significant financial and emotional burden of unpaid caregiving on families. Recommendations are provided for the Centers for Medicare and Medicaid Services to improve regulatory oversight, standardize pediatric electronic data structures, and expand paid family caregiver programs.The statement also advocates for payment reforms to support workforce retention, the provision of specialized medical equipment, and the use of telemedicine for remote clinical support.

• Link

Keywords: Barriers, Child health, Children with special health care needs, Federal legislation, Financing, Home visits, Medicaid, Pediatrics, Policy, Policy development