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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 21 through 39 (39 total).

U.S. Agency for Healthcare Research and Quality. 2002. Criteria for determining disability in infants and children: Low birth weight. Rockville, MD: U.S. Agency for Healthcare Research and Quality, 2 v.; summ. (7 pp.). (Evidence report/technology assessment; no. 70)

Annotation: This two-volume set examines evidence to determine if very-low-birthweight in infants, with or without other conditions, is associated with long-term disabling outcomes. Volume one reviews six primary outcomes of interest included in this report: (1) cerebral palsy and neurologic disability, (2) abnormal cognitive development and mental retardation, (3) hearing/speech/language impairments, (4) visual disability, (5) adverse pulmonary function, and (6) impaired growth. Report sections include a topic overview, reporting the evidence, study methods, an outline of the findings, and future research. Two additional sections review conclusions and future research. References and a bibliography are provided along with appendices including search strategies, a data abstraction form, acronyms and abbreviations, and acknowledgments. Statistics are included throughout the report. Volume two contains the evidence tables evaluating associations between low-birth-weight and 13 outcomes or disorders.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1104 Secondary Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available in libraries.

Keywords: Cerebral palsy, Congenital abnormalities, Growth disorders, Infants with developmental disabilities, Low birthweight infants, Physical disabilities, Pregnancy complications, Pregnancy outcome, Premature infants, Preterm birth, Research, Sensory impairments, Statistical data

Knight JR, Frazer C, Emans SJ, eds. 2001. Bright Futures case studies for primary care clinicians: Child development and behavior. Boston, MA: Bright Futures Center for Pediatric Education in Growth and Development, Behavior, and Adolescent Health, 269 pp. (xxx)

Annotation: This manual is part of a three volume set designed to provide information to teachers about the many facets of the Bright Futures Pediatric Education Project. The first section of this manual presents case studies in child development, specifically delays in development, Down syndrome, and an atypical behavior situation. Section two focuses on the school environment: school readiness, learning disorders, attention deficit/hyperactivity disorder, and recurrent abdominal pain. The third section addresses case studies in physical and sexual abuse, as well as child neglect. The resources section contains sample forms with evaluation questions. [Funded by the Maternal and Child Health Bureau and the Genentech Foundation for Growth and Development]

Contact: Maternal and Child Health Library at Georgetown University, Contact Fax: xxx E-mail: [email protected] Web Site: https://www.mchlibrary.org Contact for cost information. Document Number: HRSA Info. Ctr. MCHN100 (3 vol set.).

Keywords: Attention deficit disorder, Bright Futures, Case studies, Child behavior, Child development, Child health supervision, Child neglect, Delayed development, Diagnosis, Down syndrome, Educational materials, Hyperactivity, Learning disabilities, Physical abuse, Professional education, Program evaluation, School readiness, Sexual abuse

Jones C. 1996. Single Parents and Early Intervention Programs: Participation and Goodness of Fit [Final report]. Philadelphia, PA: Philadelphia Child Guidance Clinic, 84 pp., plus tables and appendices (178 pp.).

Annotation: The primary objective of this study was to identify the combinations of child, parent/family, and service delivery variables that predict parent involvement in early intervention programs (EIPs) for low-income, single-parent families who have a handicapped child (as defined by Part H of P.L. 99-457). A secondary objective was to identify whether parent involvement in EIPs, in combination with family characteristics, was predictive of parenting outcomes, such as parenting behavior, knowledge, satisfaction, and stress. Parent variables predicted to most affect participation and outcomes include: (1) The supportive resources available to the family, (2) family functioning, (3) parental beliefs, and (4) stress. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-155436.

Keywords: Children with Special Health care Needs, Early Intervention, Families, Low Income Population, MCH Research, Parents, Physical Disabilities, Research

U.S. General Accounting Office. 1995. Social security: New functional assessments for children raise eligibility questions. Washington, DC: U.S. General Accounting Office, 31 pp.

Annotation: This report considers the effects of using the individualized functional assessment (IFA) process to determine if children should receive Supplemental Security Income (SSI) benefits from the Social Security Administration. Its use has increased the number of children eligible for SSI. The report presents background information, reviews the impact on the Social Security program, considers inconsistencies in the administration of the process, and discusses the possibility of coaching children to influence the results of the process. Appendices describe the scope and methodology used and contain supporting materials.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 Secondary Telephone: E-mail: [email protected] Web Site: http://www.gao.gov Available from the website. Document Number: GAO/HEHS-95-66.

Keywords: Children with special health care needs, Eligibility, Federal government, Federal programs, Low income groups, Mental disorders, Physical disabilities, Regulations, Supplemental Security Income

Lewis M. 1995. Predicting Preschool Function from Contingency Intervention [Final report]. New Brunswick, NJ: University of Medicine and Dentistry-Robert Wood Johnson Medical School, 61 pp.

Annotation: This project determined whether experience with a special early intervention program, focusing on the process of learning itself, was predictive of the cognitive, communicative, and adaptive functioning and motivation of developmentally delayed preschoolers. A group of more than 100 developmentally delayed preschoolers who participated in a special supplemental 3-month contingency intervention program during their first year were seen at 4 years of age. The study provided evidence of the long-term impact of learning to control environment early in life on subsequent functioning. The results have implications for the effective cognitive and physical therapy of the very young disabled child. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB96-177191.

Keywords: Delayed Development, Delayed Development, Early Intervention, Learning Disabilities, Learning Disabilities, MCH Research, Physical Therapy, Preschool Children, Preschool Children, Research

LaPlante MP. 1993. State estimates of disability in America. Washington, DC: U.S. Department of Education, National Institute on Disability and Rehabilitation Research, 33 pp. (Disability statistics report; report 3)

Annotation: This report focuses on differences in the rates of disabilities between regions of the United States and between each of the states. The introduction explains changes in governmental policies that warrant examining these variations and the implications of those changes. The report describes the methodology; defines terms relating to the measurement and estimation of disability; and reviews how data collected in the Census Bureau's 1980 and 1990 Census reports, the Current Population Survey, and the National Health Interview Survey vary prior to analyzing the data to determine regional differences. The report includes discussions and statistical tables on the differences in levels of work disability, severity of work disability, the difficulty of mobility and self-care, basic life activities, and activity limitations.

Keywords: Activities of daily living, Age groups, Disabilities, Geographic regions, National data, Physical activity, Physical disabilities, Special health care needs, State data, Statistics

Carty EM, Riddell L, Holbrook A, Conine TA. 1993. The childbearing and parenting program for women with disabilities or chronic illnesses: A selected annotated bibliography. Vancouver, British Columbia: University of British Columbia, 43 pp.

Annotation: This annotated bibliography, developed by the Childbearing and Parenting Program for Women with Disabilities or Chronic Illnesses, provides a list of what the organization considers to be the most recent and comprehensive resources on childbearing with a disability. It includes resources related to specific disabilities or chronic illnesses as well as general topics such as accessibility, assistive devices, attitudes, care plans, childbirth education, family planning, feminism, parenting, physical and sexual abuse, psychosocial issues, scales, sexuality, stress and anxiety, and theoretical perspectives.

Contact: University of British Columbia, School of Nursing, T206-2211 Wesbrook Mall, Vancouver, B.C., Canada V6T 2B5, Telephone: (604) 822-7420 Fax: (604) 822-7466 Web Site: http://www.nursing.ubc.ca/ Price unknown.

Keywords: Assistive devices, Childbirth, Childbirth education, Chronic illnesses and disabilities, Labor, Parenting, Physical abuse, Physical disabilities, Pregnancy, Pregnant women, Reproduction, Sensory impairments, Sexual abuse, Sexuality, Special health care needs, Women

Pope AM, Tarlov AR, eds. 1991. Disability in America: Toward a national agenda for prevention—Full report, summary and recommendations. Washington, DC: National Academy Press, 376 pp., summ. (52 pp.).

Annotation: This book provides a follow-up to the Institute of Medicine's report "Injury in America" released in 1985. It describes a comprehensive approach to disability prevention. Included are developmental disability, disabilities caused by injury, chronic disease and aging, and secondary conditions arising from primary disabling conditions. It presents a five-prong strategy (organization and coordination within and between the public and private sectors, surveillance, research, access to medical care, and education) for reducing the incidence and prevalence of disability as well as its personal, social, and economic consequences. The summary provides an overview of the full report.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Contact Phone: (800) 624-6242 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu Available from the website. Document Number: ISBN 978-0-309-04378-6 .

Keywords: Age, Consumer education, Costs, Disabilities, Emergency medical services, Epidemiology, External cause of injury codes, Head injuries, Integration, Mental disorders, Older adults, Physical disabilities, Planning, Policy statements, Population surveillance, Population surveillance, Prevention, Rehabilitation, Research, Secondary disabilities, Special health care needs, Spinal cord injuries, Training

Perske R, Clifton A, McLean B, Stein J. 1986. Mealtimes for persons with severe handicaps. Baltimore, MD: Paul H. Brookes Publishing Company, 136 pp.

Annotation: This book is one product of a project that engaged more than 600 knowledgeable people in conversations about new directions which need to be considered for persons with profoundly handicapping conditions. The critical human situation of mealtimes for these people was revealed. The purpose of this collection of essays is to allow a wide range of key people to speak about innovative things they are trying to do at mealtimes.

Contact: Brookes Publishing, P.O. Box 10624, Baltimore, MD 21285-0624, Telephone: (800) 638-3775 Secondary Telephone: (410) 337-9580 Fax: (410) 337-8539 E-mail: [email protected] Web Site: http://www.brookespublishing.com

Keywords: Food habits, Physical disabilities

Gliedman J, Roth W. 1980. The unexpected minority: Handicapped children in America. New York, NY: Carnegie Corporation, 525 pp.

Annotation: This book discusses discrimination against persons with disabilities. It is theorized that it is the result of stereotypes and misconceptions on the part of both health care professionals and the rest of society. Civil rights action and special education approaches are recommended to end the discrimination, particularly that in the employment market, against people with disabilities.

Contact: Harcourt Trade Publishers , 525 B Street, Suite 1900, San Diego, CA 92101, Telephone: (619) 231-6616 Web Site: http://www.harcourtbooks.com/default.asp?source=headerlogo Available in libraries.

Keywords: Attitudes, Developmental disabilities, Legislation, Physical disabilities, Social discrimination, Special education, Special health care needs

National Research Council, Committee on National Needs for the Rehabilitation of the Physically Handicapped. 1976. Science and technology in the service of the physically handicapped: Volume II—Supporting papers. Washington, DC: National Academy of Sciences, 104 pp.

Annotation: These papers cover the following topics: the limits of cost-benefit analysis as a guide to priority-setting in rehabilitation; public policy towards disability; benefit and costs of the federal-state vocational rehabilitation program; social issues in rehabilitation; public expectations; consumer perspectives; and critical issues facing the health care system.

Keywords: Physical disabilities, Rehabilitation, Science, Special health care needs, Technology

President's Task Force on the Physically Handicapped. 1970. A national effort for the physically handicapped. No place: President's Task Force on the Physically Handicapped; Washington, DC: for sale by U.S. Government Printing Office, 34 pp.

Annotation: This report discusses assisting handicapped people to achieve maximum independence, security, and dignity. It views the effectiveness of existing programs operated by governmental and private voluntary agencies, recommends methods for improving the quality of services and coordinating these programs, proposes ways to increase community awareness and action in the interest of the handicapped, develops recommendations for legislation or executive governmental action, and suggests how private and voluntary groups could more effectively aid the handicapped.

Keywords: Attitude change, Federal legislation, Federal programs, Physical disabilities, Private sector, Special health care needs

United States Civil Service Commission . 1969. Handbook of selective placement in federal civil service employment of the physically handicapped, the mentally restored, the mentally retarded, the rehabilitated offfender . Washington, DC: United States Civil Service Commission, 48 pp.

Annotation: This handbook describes the federal government's Selective Placement Program aimed at optimizing federal employment opportunities for handicapped individuals. Intended as a reference for those involved in the Selective Placement program, the handbook broadly defines the term "handicapped" to include those with physical and/or mental limitations and encourages employers to focus on abilities and skills, rather than disabilities. The handbook provides an overview of the Selective Placement Program, applicable regulations, and suggestions to help employers refer, place, and retain individuals in positions that best match their abilities.

Contact: Google Books, Web Site: http://www.books.google.com

Keywords: Disabilities, Employment, Federal initiatives, Mental retardation, Physically handicapped, Supported employment, Work force

Maternal and Child Health Service. 1968-. Children who received physicians' services under the crippled children's program, fiscal year 197_. Rockville, MD: U.S. Maternal and Child Health Service, annual. (MCH statistical series; no. CC1 (FY 1968), no 1 (FY1969), no. 3 (FY 1970), no. 5 (FY 1971), no. 8 (FY 1972), no. 10 (FY 1973))

Annotation: This report examines the physicians' services received by children under the federally aided state crippled children's programs during 1970. There is much variation from state to state of children served. The report contains four types of physicians' services: children receiving services in clinic settings; children receiving other physicians' services, chiefly in a physician's office or in the child's home; hospital inpatient service; and convalescent home care.

Keywords: Child health services, Health statistics, Physical disabilities: Children with special health needs , Statistics

American Medical Association. 1967. Proceedings of Rehabilitation Conference. Chicago, IL: American Medical Association, 95 pp.

May EE, Waggoner NR, Boettke EM. 1966. Homemaking for the handicapped. New York, NY: Dodd, Mead and Company, 206 pp.

American Academy of Pediatrics, Committee on School Health. 1966. Report of the Committee on School Health of the American Academy of Pediatrics. Evanston, IL: American Academy of Pediatrics, 128 pp.

Annotation: This report discusses school health policy, provides background information on school health topics, and outlines some techniques used by school health services. The report was prepared for physicians but will also be of interest to educators. Topics discussed include the relationship between schools and health services; the school health education medical specialty; health screening of students; special school health needs of adolescents; children with special health needs and schools; academic performance and school attendance; physical fitness and sports medicine; the health of school personnel; and cooperation and communication between physicians and educators.

Keywords: Adolescent health, Child health, Children with developmental disabilities, Children with special health care needs, Collaboration, Confidentiality, Education, Emergency medical services for children, Health policy, Health promotion, Health screening, Health screening, Human development, Medical education, Occupational safety and health, Physical fitness, School attendance, School failure, School health education, School health programs, School health services, School personnel, Schools, Sports medicine, Tests

Gooch M. [1940]. Crippling conditions found among children on state registers, December 31, 1939. The Child-Monthly News Summary 4(12)Social Statistics-Supplement Number 4, June 1940:1-15,

Annotation: This report gives data on the number of crippled children reported by states. Charts are broken down by state, by diagnostic classification, and by age.

Contact: Home Economics Archive: Research, Tradition and History, Cornell University, Albert R. Mann Library, 260 Tower Road, Ithaca, NY 14853, Telephone: (607) 255-5406 Fax: (607) 255-0318 E-mail: [email protected] Web Site: http://hearth.library.cornell.edu/

Keywords: Children with special health care needs, Physical disabilities, Statistics, Title V programs

White House Conference on Child Health and Protection (1930: Washington, D.C.). 1930. White House conference on child health and protection: Preliminary committee reports. New York, NY: Century, 593 pp.

Annotation: The reports of this publication prepared for the White House Conference on Child Health and Protection concern the welfare of children in the United States. The topics of the reports are growth and development, prenatal and maternal care, medical care, public health organization, communicable disease control, milk production and control, family and parent education, the infant and preschool child, the school child, vocational guidance and child labor, recreation and physical education, special classes, youth outside the home and school, organizations for children with developmental disabilities and special health needs, physically and mentally handicapped, socially handicapped, and delinquency.

Keywords: Child development, Child health, Child labor, Child protective services, Child welfare, Children with developmental disabilities, Children with special health care needs, Communicable disease control, Conferences, Family life education, Health services, Infants, Juvenile delinquency, Milk, Physical education, Prenatal care, Preschool children, Public health services, Recreation, Social work, United States, Vocational education

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.