Search Results: MCHLine

Annotation: This study's objective was to develop, for educable mentally retarded (EMR) children, instructional strategies that were embedded in a social context and enhanced children's memory performance across time and situation. Specifically, the project tested the use of a 12-week training program in which the subject children's memory skills were exercised and developed through the use of demand conditions and self-generated memory strategies. With the accomplishment of this objective, it was hoped that EMR children reach a more nearly normal level of functioning in society. [Funded by the Maternal and Child Health Bureau]

Keywords: Children, Memory Skills, Mental Retardation

Annotation: This booklet summarizes the results of a Presidential Forum on Citizens with Mental Retardation and Community Integration held in Washington, DC in February, 1988. It summarizes the discussions and makes twelve recommendations to improve services provided to people with mental retardation.

Keywords: Adolescent health, Adults, Community based services, Inclusion, Mental retardation, Special health care needs

Annotation: These proceedings present papers from a forum held in Washington, DC in February, 1988 to examine the national effort to develop community-based programs for citizens with mental retardation. Plenary sessions discussed the role of the President's Committee on Mental Retardation, drug abuse, public awareness and acceptance, the family role, zoning, real estate and related issues, financing, promotion of integration, and transition into the community. Panels addressed living arrangements, employment, transportation, education, recreation/leisure/socialization, family supports/respite care, life services planning, quality assurance, health care, and citizen advocacy.

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Keywords: Adolescent health, Adults, Community based programs, Conference proceedings, Inclusion, Mental retardation, Special health care needs

Annotation: This project analyzed the utilization, expenditures, and financing of health care for children and young adults with three different chronic conditions: autism, hemophilia, and severe mental retardation. The purpose of the study was to collect reliable and accurate national data on low incidence conditions useful for making public policy. Among the many policy concerns that the data addressed, two stood out: access to health care services and an equitable system of financing of those services. [Funded by the Maternal and Child Health Bureau]

Keywords: Asians, Autism, Blacks, Case Management, Children, Chronic illnesses and disabilities, Data Collection, Financing Health Care, Hemophilia, Hispanics, Insurance, Medicaid, Mental Retardation, Minorities, Public Policy, Reimbursement

Annotation: This book looks at research and practice aimed at preventing mental retardation (MR) or improving the abilities of individuals who have mental retardation. Topics include genetic and developmental aspects, the relationship of neurological development to MR, nutritional aspects, implications of obstetrics and perinatology in the prevention of MR, the interface of biomedical and behavioral aspects of MR including autism and cognition, and behavioral aspects.

Keywords: Mental retardation, Prevention, Therapeutics

Annotation: This book presents information from a national conference of the same name, held in conjunction with the centennial of the National Institutes of Health and the 25th anniversary of the National Institute of Child Health and Human Development. It provides an overview of 25 years of accomplishments in mental retardation, and discusses these topics: etiological models of retardation, the prenatal and neonatal periods, childhood and adolescence, and adulthood and old age.

Keywords: Conferences, History, Mental retardation

Annotation: This was the fourth wave of a longitudinal cohort study. The aim was to follow a cohort with congenital rubella as they became young adults. 119 survivors of the 1963-65 New York City rubella epidemic were interviewed along with their parents. A broad range of information was obtained including: (1) current level of functioning; (2) problems; (3) prospects for the future; (4) experience with services and with alternative residential and educational models; (5) need for services during different periods of their lives; (6) availability of services; and (7) utility of these services. In addition, burdens and benefits to the family, associated with having a child with congenital rubella, as well as coping mechanisms were assessed. The study determined that deaf youth in their young adult years seem surprisingly cut off from social resources and that there was a high level of distress and expressed need for help on the part of mothers of multihandicapped youth. In addition, the project found some potentially important differences between the responses of mainstreamed youth and their parents. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Deaf, Handicapped, Mental retardation, Rubella

Annotation: This book addresses the direction in which the state of the art for including persons with disabilities in the community and issues that need to be addressed, for people with multiple disabilities, severe and profound mental retardation, challenging behaviors, and medical involvements. Topics include policy and practice, leadership, caregiving, integrated workplaces, and living in the community.

Keywords: Affective disorders, Behavior disorders, Community based services, Developmental disabilities, Inclusion, Mental retardation, Special health care needs

Annotation: This book presents data about federal programs for individuals with mental retardation and developmental disabilities (MR/DD) between 1935 and the 1980s. It provides analytical profiles of numerous federal programs that provide services, personnel training, research, income maintenance, construction, and information and coordination. Analyses of trends are included.

Keywords: Developmental disabilities, Federal government, Federal programs, Mental retardation, Public policy, Statistics

Annotation: This monograph is composed of 10 papers covering a wide variety of issues related to the eating behavior of children, adolescents, and adults with developmental disabilities. Topics addressed include: use of videofluoroscopy in evaluation and treatment of swallowing disorders; interventions for nonoral feeders; various aspects of programs for and the feeding of individuals with compromised oral-motor function; and occupational therapy and feeding in institutions for mentally retarded persons.

Keywords: Developmental disabilities, Down syndrome, Eating disorders, Mental retardation, Nutrition services, Occupational therapists

Annotation: These proceedings contain papers from a conference held February 11-12, 1987 in Washington, D.C. whose goals were to stimulate commitment to a national effort to prevent mental retardation and related developmental disabilities; and to facilitate success in the conceptualization, development, implementation or expansion of state and territorial plans to prevent mental retardation and related developmental disabilities.

Keywords: Conference proceedings, Developmental disabilities, Mental retardation, Prevention programs

Annotation: The purpose of this study was to answer three major questions confronting young women with PKU, their families, and those involved in the care of PKU: (1) Does fetal damage occur at any level of maternal hyperphenylalaninemia or only when the mother has classic PKU?; (2) does control of the maternal biochemical abnormalities during pregnancy prevent fetal damage?; and (3) what type and degree of medical and social care and followup is necessary to ensure that women with PKU are given optimal advice and treatment in regard to childbearing? The project studied the effects of maternal phenylketonuria and hyperphenylalaninemia on 58 offspring from untreated pregnancies in 22 mothers who were identified by routine screening of umbilical cord blood. Based on the findings, the researchers concluded that it is likely that fetal damage from maternal phenylketonuria can be largely and perhaps entirely prevented by dietary therapy, but therapy must begin before conception for the best chance of a normal infant. The findings highlight the need for identification and followup of young women with PKU and the need for some kind of limited re-screening program or centralized registry so that women with PKU can be identified and educated regarding the risks of maternal PKU. [Funded by the Maternal and Child Health Bureau]

Keywords: Hyperactivity, Mental retardation, Nervous system diseases, Phenylketonuria (PKU), Pregnant women, Women, Young women

Annotation: This book provides papers from a workshop that brought together basic scientists and clinicians across disciplines in the field of mental retardation and developmental disabilities (MRDD). Topics include epidemiology of MRDD; prenatal environmental risk factors; molecular approaches to MRDD; diagnosis and treatment of perinatal brain damage and nutrition and brain development; dietary and genetic therapy of inborn errors of metabolism; early detection of developmental disabilities; public and professional education; and strategies for translating research findings into services.

Keywords: Conference proceedings, Developmental disabilities, Mental retardation

Annotation: This book on the families of handicapped children emerged from a conference sponsored by the Mental Retardation/Developmental Disabilities Branch of the National Institute of Child Health and Human Development in cooperation with the University of North Carolina at Chapel Hill. Chapters cover topics such as the history of families of handicapped children; exploration of family typologies and life cycles; roles played by fathers, mothers, and siblings; families with mentally retarded parents; patterns and trends in public services to families with a mentally retarded member; implications for public policy; and future research directions.

Keywords: Children with special health care needs, Families, Mental retardation, Parents

Annotation: This report contains papers from a symposium which aimed to identify and propose recommendations to guide future efforts in the development of strategies for achieving a life of quality for all individuals with mental retardation and other developmental disabilities. Issues which guided the discussions were: rights of individuals and responsiveness of government; programmatic trends in the 1980s; biochemical and psychosocial research and prevention; and economic factors and disability.

Keywords: Developmental disabilities, Economic factors, Mental retardation, Public policy

Annotation: This book grew from a conference on the ethics of intervention decision making for persons with severe mental retardation over the life span, which was held at the John F. Kennedy Center for Research on Education and Human Development. Topics include biological being and quality of life, difficult pregnancies, early intervention for children, educational decision making for young children with severe retardation, family research, individual differences, moral aspects of special education, aversive interention, family care, family-responsive policy, the limits of guardian decision making, and determining the limites of reasonableness.

Keywords: Children, Ethics, Mental retardation, Research

Annotation: This directory lists outpatient medical facilities providing comprehensive evaluation, treatment or follow-up services primarily to children suspected or diagnosed as being mentally retarded, including approaches for the prevention of retardation and early intervention, in particular for treatment of infants with metabolic disorders detected through newborn screening.

Keywords: Children with special health care needs, Directories, Mental retardation, Therapeutics

Annotation: This report has two parts. Section one contains reports on the developmental issues of early intervention, intellectually limited mothers, the relationships of prenatal care to the prevention of mental retardation, and the human cost of chronic illness. Section two contains examples of linkages between university affiliated programs and state and local programs.

Keywords: Chronic illnesses and disabilities, Developmental disabilities, Early intervention, Mental retardation, Parents with special health care needs, Prenatal care, Program planning

Annotation: This report contains reviews of the ten areas of research funded by the National Institutes of Child Health and Human Development. Each area is reviewed in a separate report which evaluates the program activities and suggests areas for further research. The topics covered include: Fertility and infertility; pregnancy, birth, and the infant; nutrition; sudden infant death syndrome (SIDS); congenital defects; mental retardation; child and adolescent development; contraceptive development; contraceptive evaluation; and population dynamics.

Keywords: Adolescent development, Child development, Childbirth, Congenital abnormalities, Contraception, Fertility, Infertility, Mental retardation, Nutrition, Population dynamics, Pregnancy, SIDS

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Keywords: Mental retardation