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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 21 through 40 (66 total).

Board on Health Care Services, Committee on the Future of Emergency Care in the United States Health System. 2007. Emergency care for children: Growing pains. Washington, DC: National Academies Press, 338 pp. (Future of emergency care)

Annotation: This book examines the challenges associated with the provision of emergency services to children and offers analysis of (1) the role of pediatric emergency services as an integrated component of the overall health system; (2) system-wide pediatric emergency care planning, preparedness, coordination, and funding; (3) pediatric training in professional education; and (4) research in pediatric emergency care. Additional topics include a review of the history and current state of pediatric emergency care and building a 21st-century emergency and trauma care system. Appendices include a list of committee and subcommittee membership, biographical information for main committee and pediatric emergency care subcommittee members, a list of presentations to the committee, a list of commissioned papers, and recommendations and responsible entities from the Future of Emergency Care series.

Keywords: Emergencies, Emergency medical services for children, Health services delivery, MCH research, Pediatric care, Professional training, Trauma care

National Research Council, Committee on Fluoride in Drinking Water. 2006. Fluoride in drinking water: A scientific review of EPA's standards. Washington, DC: National Academies Press, 507 pp., brief (4 pp.)

Annotation: This report presents a review of the scientific basis of the Environmental Protection Agency's levels for fluoride, and the adequacy for protecting children and others from adverse health effects. Chapter contents include an introduction to fluoride in drinking water and its history; measures of exposure to fluoride; pharmacokinetics of fluoride; effects of fluoride on teeth, effects on systems including musculoskeletal, reproductive and developmental, endocrine, gastrointestinal, renal, hepatic, and immune; neurotoxicity and neurobehavioral effects, as well as genotoxicity and carcinogenicity. The final chapter focuses on drinking water standards for fluoride.

Keywords: Adverse effects, Carcinogens, Disease prevention, Environmental exposure, Fluorides, Medical research, Oral health, Oral health, Water

Bravata DM, Wang E, Holty J, Lewis R, Wise PH, Nayak,S, Liu H, McDonald M, Owens DK. 2006. Pediatric anthrax: Implications for bioterrorism preparedness. Rockville, MD: U.S. Agency for Healthcare Research and Quality, 34 pp. (Evidence report/technology assessment; no. 141)

Annotation: This report describes a literature search about children with anthrax (from 1900 to 2005) to describe their clinical course, treatment responses, and the predictors of disease progression and mortality, and to differentiate any requirements specific to children in the case of a terrorist attack utilizing anthrax. Chapters include an introduction to key research questions, methods used in the data collection and analysis, results of the various forms of anthrax, and a discussion section outlining limitations of the research and future research needs. References are also included. Appendices provide information on data abstracted, adult anthrax cases not included in this analysis, and a list of peer reviewers.

Keywords: Literature reviews, Children, Emergency medical services for children, Pediatric care, Research, Terrorism

Friedman DJ. 2006. Assessing the potential of national strategies for electronic health records for population health monitoring and research. Rockville, MD: National Center for Health Statistics, 83 pp. (Vital and health statistics: Series 2, Data evaluation and methods research; no. 125)

Annotation: This report assesses the potential of national strategies for electronic health records for population health monitoring and research. The report has a fourfold purpose: (1) to describe the current status of national strategies for electronic health records and their supporting national health infrastructures in Australia, Canada, England, and New Zealand; (2) to summarize themes about potential contributions of strategies for electronic health records, and to describe barriers; (3) to summarize themes emerging from key informant interviews; and (4) to delineate fundamental issues in the relationship between national strategies for electronic health records and population health and monitoring.

Keywords: Health, Medical records, Monitoring, National programs, Population dynamics, Research

Petersen DJ, Alexander GR, eds. 2005. Addressing state-level issues for children with special health care needs: Steps towards building improved systems of care for children. Maternal and Child Health Journal 9(2):S1-S130. June 2005 Supplement.,

Annotation: This special issue illustrates the importance of being able to conduct state-specific analyses on improving systems of care for children with special health care needs. The issue includes articles from 11 states about how they have used the 2001 survey findings to improve programs or policies for children with special health care needs (CSHCN). The issue also includes articles that examine (1) whether rates of functional limitations are associated with access to care, (2) methods for comparing state outcomes for children with CSHCN, and (3) the use of survey data in meetings with program managers and policy makers. Examples include outlines of case studies on a variety of topics such as using community-based systems of care, determining access to care, or coordinating comprehensive care with a medical home. A concluding commentary touches on how this special issue can be used to improve services for, and better the lives of, children with special health care needs.

Keywords: Access to health care, Case studies, Children with special health care needs, Community based services, Comprehensive health care, Health care systems, MCH research, Medical home, Needs assessment, State initiatives

Perez de Otero N. [2004]. Puerto Rico CISS/COG project to enhance managed care systems/Puerto Rico medical home project [Final report]. [Rio Piedras, PR]: Puerto Rico Department of Health, Division of Habilitation Services, 1 v.

Annotation: This report describes a three year project in Puerto Rico to (1) introduce the core elements and principles of the medical home concept that is accessible, comprehensive, family-centered, continuous, coordinated, compassionate, well coordinated, and culturally effective care for children with special health care needs and (2) to develop infrastructure for the support of the concept. Report contents include descriptions of the purpose of the project, goals and objectives, methodology, evaluation, and results and outcomes. Additional sections list publications and products, dissemination and utilization of results, future plans and follow-up, and type and amount of support and resources needed to replicate the project. Appendices include (in Spanish) a manual, brochures, assessment tools, an evaluation instrument, pre- and post-text, audiovisual materials, an organizational chart, and a financial status report. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Children with special health care needs, Culturally competent services, Family centered services, Final reports, Health services delivery, Local initiatives, MCH research, Medical home, Puerto Rico, Service delivery systems, Spanish language materials

Levy H. 2004. Expanded newborn screening for metabolic disorders: Model program for integration of health care services—Final report. Boston, MA: Children's Hospital Boston, 47 pp., plus appendices (ca. 75 pp.).

Annotation: This final report describes a project to develop an optimal model of care for children with metabolic disorders, incorporating newborn screening in conjunction with follow-up in a community-based medical home that is linked to a metabolic center and community services. Report sections include the project identification; an abstract including the purpose of the program, goals and objectives, methodology, methods of enrollment, and data analysis; evaluation; results and outcomes; discussion; a list of publications and products generated by the project; future plans and follow-up; and type and amount of support and resources needed to replicate the project. Appendices include examples of screening and treatment protocols, representative published articles, and surveys and questionnaires. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Community based services, Final reports, MCH research, Medical home, Metabolic diseases, Neonatal screening, Newborn infants, Program development

Bradley EH, Webster TR, Baker D, Schlesinger M, Inouye SK, Barth MC, Lapane KL, Lipson D, Stone R, Koren MJ. 2004. Translating research into practice: Speeding the adoption of innovative health care programs. New York, NY: Commonwealth Fund, 11 pp. (Issue brief)

Annotation: This issue brief focuses on a study conducted to learn key factors influencing the diffusion and adoption of evidence-based innovations in health care. The authors conducted case studies of four varied clinical programs. The brief, which includes an executive summary, is divided into the following main sections: (1) background, (2) a conceptual framework and lessons learned about diffusing innovations in the clinical setting, and (3) summary. The brief concludes with references and an about the authors section.

Keywords: Evidence based medicine, Case studies, Diffusion of innovation, Health care, Medical research, Programs

Eddy NH. 2004. Touchstone support network [Final report]. Santa Clara, CA: Parents Helping Parents, 56 pp.

Annotation: This report from the Healthy Tomorrows program describes a project to foster family-centered medical homes providing practical and emotional support services for families of children with chronic and/or life threatening illnesses who live and receive their care in Santa Clara County, CA. Contents include a project summary; a narrative including the project purpose, goals and objectives, methodology, evaluation, results and outcomes, a list of publications and products, summaries of dissemination and utilization of results, future plans and follow up, and support and resources needed to replicate. Additional information is provided from the program advisory board meeting, sample newsletters, and a brochure detailing program services. [Funded by the Maternal and Child Health Bureau]

Keywords: California, Children with special health care needs, Family centered services, Family support programs, Final reports, Healthy Tomorrows Partnership for Children, MCH research, Medical home

Regalado M, Inkelas M, Halfon N. 2004. Improving systems of health and developmental services in early childhood. Los Angeles, CA: UCLA Center for Healthier Children, Families and Communities, 2 pp. (Building state early childhood comprehensive systems; brief no. 10)

Annotation: This fact sheet discusses ways to improve systems of health and developmental services in early childhood, with particular focus on the State Childhood Comprehensive Systems (SECCS) Initiative. The SECCS Initiative is intended to enable state MCH agencies to collaborate with other agencies and stakeholders in developing comprehensive early childhood service systems. The fact sheet provides an overview of the issues and discusses what parents and young children need, why the medical home concept is important for the SECCS Initiative, what responsive primary care looks like for young children, what improvements are needed, what a better system would look like, what has been shown to work, and what should be done. [Funded by the Maternal and Child Health Bureau]

Keywords: Collaboration, Early childhood development, Initiatives, MCH research, MCH services, Medical home, Parents, Primary care, Service delivery systems, State MCH programs, State agencies, State programs, Young children

Bronheim S, Tonniges T, DuVall H, ed. 2004. Strengthening the community system of care for children and youth with special health care needs and their families: Collaboration between health care and community service systems—A workbook. Washington, DC: Georgetown University Center for Child and Human Development, 27 pp.

Annotation: This workbook outlines ways to build community services for families of children with special health care needs (CSHCN). Section one introduces the challenges families of CSHCN face in establishing community access to health care services and finding a medical home. Section two provides suggestions and exercises designed to help the health care system reach out to the broader system of community services and to help the community services system engage the health system to build a comprehensive community system of care. The third section contains a list of resources related to collaboration. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Children with special health care needs, Collaboration, Community health services, Families, Health care delivery, MCH research, Medical home, Program development

Horvitz L. 2004. Implementing a learning collaborative on the medical home for children with special health care needs: Final report. Boston, MA: National Initiative for Children's Healthcare Quality, 28 pp., exec. summ. (6 pp.), plus appendices.

Annotation: This final report describes the Implementing a Learning Collaborative on the Medical Home for Children with Special Health Care Needs project which was carried out from February 2003 through February 2004. The project brought together state Title V agencies and primary care practices in their states to test changes and create improvements in their respective organizations and in the relationships between agencies and practices to better meet the needs of children with special health care needs. The final report, which includes an abstract and an executive summary, is divided into the following sections: (1) purpose , (2) background, (3) methodology, (4) other aspects of total contract effort, (5) results and findings, (6) conclusions, (7) recommendations, and (8) assessment of success. The report also includes 7 appendices: (1) roster of participants, (2) models, (3) collaborative tools, (4) medical home collaborative newsletter, (5) parent partner interview report, (6) feedback, and (7) revised change package. [Funded by the Maternal and Child Health Bureau]

Keywords: MCH research, Children with special health care needs, Collaboration, Families, Final reports, Medical home, Primary care, Social Security Act, Title V, State agencies

Thorson S. [2003]. SAFE at home: Final report. St. Paul, MN: Minnesota Department of Health, 74 pp.

Annotation: This final report describes the Minnesota SAFE (Special Needs Assessment, Follow-up and Education) program designed to link the identification of children with special health care needs (CSHCN) in the Title V program with the quality indicator of assuring CSHCN have a "medical home" within a managed care setting as defined by the American Academy of Pediatrics. Report sections include goals and objectives; project methodology, evaluation, and results/outcomes (positive and negative); a list of publications/products; dissemination/utilization of results, a discussion of future plans and follow-up; and support and resources needed to replicate the project. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Barriers, Children with special health care needs, Final reports, MCH research, Managed care, Medical home, Minnesota, Needs assessment, Title V programs

Salganicoff A, Wentworth B, Greene L. 2003. Baby boom to Generation X: Progress in young women's health. In Costello, C. B., Wight, V. R., and Stone, A. J. The American woman 2003-2004 (pp.93-126). Washington, DC: Womens Research and Education Institute, 33 pp.

Annotation: This chapter explores the health and well-being of women ages 25-35 today and examines how changes in national policy, advances in science and medical research, and critical shifts in culture and society have influenced the health and expectations of today's young women. Key changes are reviewed, and trends in global indicators of young women's health status and their interactions with the health care system, as well as the health-related accomplishments of young women today, are presented. Health challenges for young women are discussed, as well.

Keywords: Health care systems, Health policy, International health, Medical research, Trends, Women's health

U.S. Agency for Healthcare Research and Quality. 2003. Creating partnerships, improving health: The role of community-based participatory research. [Rockville, MD]: U.S. Agency for Healthcare Research and Quality, 9 pp.

Annotation: This brochure focuses on community-based participatory research (CBPR), a type of research that actively involves the community being studied. The brochure discusses how CBPR is different and how a community can make sure that its involvement is worthwhile, why health-related research has had to change, challenges that CBPR partners face, and how to get involved. A national meeting on CBPR that took place in November 2001 is also discussed. The brochure contains a list of resources as well as descriptions of different perspectives on CBPR, two from communities' points of view and one from a researcher's point of view.

Keywords: Community health services, Community participation, Community surveys, Health promotion, Low income groups, Medical research, Research design

Olson AL. 2003. Partnership for Enhanced Managed Care: Final report. Hanover, NH: Dartmouth College, 63 pp.

Annotation: This final report describes a partnership with major private insurers in New Hampshire in two initiatives. The first is a collaboration to identify children with medical, developmental, and emotional chronic conditions and assess their quality of care; and develop improvement initiatives for all children in the plan as well as those with more complex unmet needs. The second initiative is the development and implementation of a new collaborative approach of the subject managed care plans to provide care coordination services in a structured team model implemented in the primary care setting with the goal of helping families to develop practical, creative solutions to the families' medical and psychosocial needs. Report sections include goals and objectives; project methodology, evaluation, and results/outcomes (positive and negative); a list of publications/products; dissemination/utilization of results, a discussion of future plans and follow-up; and support and resources needed to replicate the project. Appendices include assessment questionnaires, the feedback/feedforward process tool, a training manual for care coordinators at participating pediatric practices, and a child health satisfaction survey. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Barriers, Children with special health care needs, Final reports, MCH research, Managed care, Medical home, Needs assessment, New Hampshire, Questionnaires, Surveys

National Institute for Health Care Management Foundation and National Committee for Quality Health Care. 2003. Accelerating quality improvement in health care: Strategies to speed the diffusion of evidence-based innovations—Proceedings from a conference. Washington, DC: National Institute for Health Care Management Foundation, 27 pp.

Annotation: This report summarizes the proceedings of a conference convened to explore (1) why the slow diffusion of many health care and medical innovations persists and (2) how to accelerate the adoption of clinical technologies and health service innovations that have been shown to improve the quality and/or cost effectiveness of health care. The report, which includes an executive summary, focuses on the following issues: (1) devices and drugs: obstacles to timely product uptake, (2) innovation in the hospital and at the bedside, (3) innovation in public health, prevention, and disease management, (4) the imperative of information technology and e-health, and (5) better quality through informed consumer choice. The report also includes synopses of three papers commissioned for the conference. Statistical information is presented in figures throughout the report. The appendix lists conference faculty with contact information.

Keywords: Conference proceedings, Consumers, Cost effectiveness, Diffusion of innovation, Disease management, Disease prevention, Health care, Hospitals, Information systems, Internet, Management, Medical devices, Medical research, Prescription drugs, Prevention, Public health, Technology

Berg C, Danel I, Atrash H, Zane S, Bartlett L, eds. 2001. Strategies to reduce pregnancy-related deaths: From identification and review to action. Atlanta, GA: National Center for Chronic Disease Prevention and Health Promotion, Division of Reproductive Health, 214 pp.

Annotation: This manual describes strategies for conducting pregnancy-related or maternal mortality surveillance in the United States through identification, data collection and analysis, and action. Chapter topics include the structure of pregnancy-related mortality surveillance in the U.S.; definition of terms; classifying a woman's death in relation to pregnancy; death reviews; analyzing and interpreting findings; taking action; evaluating the surveillance system; and special issues. Subtopics discussed include unclear causal relationships; review of death certificates and other records; mortality review committees; legal issues of liability and confidentiality; making, implementing, and disseminating recommendations; funding mortality studies; and monitoring health and morbidity/near misses. An epilogue and references complete the text. Extensive appendices contain instructions for the completion of death certificates; a state-by-state review of the American College of Obstetricians and Gynecologists Review Provisions; sample data extraction forms for medical records and questionnaires; extracts from "State Level Expert Review Committees--Are They Protected?"; measures of pregnancy-related mortality; and a sample review committee report from Massachusetts.

Keywords: Data analysis, Data collection, Death certificates, Maternal death, Maternal mortality, Medical records, Population surveillance, Pregnancy complications, Pregnancy outcome, Research, Vital statistics

Hinton CF, Greendale K, Laxova R, Elsas LJ II, eds. 2000. Cancer, genetics, and public health: Proceedings transcribed from a conference held on May 16, 1998, Atlanta, Georgia. Atlanta, GA: Council of Regional Networks for Genetic Services, 128 pp.

Annotation: This conference proceedings is the product of an interdisciplinary meeting among public health professionals, academic leaders, and consumers, all dedicated to promoting the beneficial use of the discipline of medical genetics in predicting and preventing premature morbidity and death caused by genetic sensitivity. The proceedings was transcribed and edited from platform presentations delivered in Atlanta, Georgia in parallel with the first National Conference on Genetics and Disease Prevention. It is divided into four sections, which deal with: (1) transferring genetics research into public health action to prevent cancer, (2) educational resources for public health programs, (3) barriers to accessing cancer genetics services and services for underserved minorities, and (4) the closing statement on challenges for public health in cancer genetics. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Access to health care, Barriers, Cancer, Conference proceedings, Genetics, Medical research, Minority health, Predisposition, Public health, Public health programs, Underserved communities

Congressional Quarterly. 2000. Issues in health policy: Selections from the CQ Researcher. Washington, DC: CQ Press, 239 pp.

Annotation: This reader is a compilation of 12 recent articles from the CQ Researcher, a weekly policy brief that brings into focus issues on the public agenda. The collection is organized into three subject areas: (1) illness, treatment and health policy (which includes chapters of Alzheimer's disease, obesity and health, childhood depression, asthma, and vaccine controversies); (2) policy in a managed-care environment (which includes chapters on patients' rights, managing managed care, and medical mistakes; and (3) the future of health policy (which includes chapters on embryo research, humane genome research, the global AIDS crisis, and computers and medicine). Each chapter includes endnotes and a bibliography. The compilation also includes credits and an index.

Keywords: AIDS, Alzheimer's disease, Asthma, Child health, Computers, Depression, Genomics, Health, Health policy, Immunization, Managed care, Medical errors, Obesity, Patient rights, Research, Treatment

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The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.