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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 41 through 60 (191 total).

American College of Preventive Medicine. 2014. Child injury risk assessment tool [and guidance]. Washington, DC: American College of Preventive Medicine, 2 items.

Annotation: These resources are designed to help home visitors start a conversation with families and educate them on major causes of injury in the home. Contents include assessment questions, educational topics, and references for home visitors to gain additional background knowledge on each injury topic.

Contact: American College of Preventive Medicine, 1307 New York Avenue, N.W., Suite 200, Washington, DC 20005, Telephone: (202) 466-2044 Fax: (202) 466-2662 E-mail: [email protected] Web Site: http://www.acpm.org Available from the website.

Keywords: Communication, Data collection, Families, Forms, Home visiting, Infants, Injury prevention, Observation, Psychosocial factors, Risk assessment, Screening, Unintentional injuries, Young children

Association of Public Health Laboratories. (2013). Newborn screening: Four facts policymakers need to know. Silver Spring, MD: Association of Public Health Laboratories, 14 pp.

Annotation: This bochure describes the importance of newborn screening in the early detection of heritable and genetic conditions that may otherwise be hidden in infancy or early childhood. It outlines the history of newborn screening in the United States in the past 50 years, the importance of blood-spot samples from every newborn being screened by a laboratory, the public health success of newborn screening, the economic benefits of early detection of conditions, the success of pre-discharge hearing and heart screening, and the importance of evolving and improving newborn screening. The brochure contains tables describing the most common disorders screened for and partners in the screening process. It also provides several vignettes of people who were diagnosed with various conditions and were able to lead healthy lives because their conditions could be treated if diagnosed early.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website.

Keywords: Blood tests, Genetic screening, Hearing tests, Neonatal screening, Newborn infants, Screening tests

Association of Public Health Laboratories. (2013). What's the best thing you can do to protect your newborn's health?: Newborn screening, 50 years - saving babies' lives. Silver Spring, MD: Association of Public Health Laboratories, 2 pp.

Annotation: This brochure explains the importance of newborn screening for new parents. It discusses national and state testing practices so that parents will know early about potential life threatening illnesses or disabilities to their baby.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website.

Keywords: Consumer education materials, Neonatal screening, Newborn infants, Screening tests

Zero to Three. (2013). Improving access to early identification and intervention: 211 LA County developmental screening and care coordination. [Washington, DC]: Zero to Three, 6 pp.

Annotation: This policy brief focuses on the efforts of 211 L.A. County's Developmental Screening and Care Coordination Program, which works to encourage partnerships between health professionals and community organizations to identify children at risk for developmental delays. The brief provides information about the program and about the importance of identifying developmental delays early. A personal story about a parent and child who received help from the program is also included.

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org Available from the website.

Keywords: Access to health care, Child development, Children with developmental disabilities, Collaboration, Community programs, Early childhood development, Early intervention, Health services, Infant development, Infants, Infants with developmental disabilities, Screening, Diagnosis, Treatment, Service coordination, Young children

Ohio Department of Health. (2013). Preventing infant mortality. [Columbus, OH]: Ohio Department of Health, 5 pp.

Annotation: This fact sheet focuses on efforts to prevent infant mortality in Ohio. It provides information about the Ohio Department of Health's (ODH's) safe sleep campaign, its progesterone prematurity project, its prenatal smoking-cessation initiative, and its decision to add severe combined immune deficiency and critical congenital heart disease to its list of newborn screening items. ODH's project to reduce elective deliveries before 39 weeks' gestation, its institute for equity in birth outcomes, and its support for select communities to participate in an initiative to improve black infant mortality and prematurity rates are also discussed.

Contact: Ohio Department of Health, 246 North High Street, Columbus, OH 43215, Telephone: (614) 466-3543 Web Site: http://www.odh.ohio.gov Available from the website.

Keywords: Blacks, Infant death, Infant mortality, Neonatal screening, Ohio, Prematurity, Prenatal care, Preterm birth, Prevention services, Public awareness campaigns, Safety, Sleep position, Smoking cessation, Smoking during pregnancy, State initiatives

Association of State and Territorial Health Officials. 2013. Preconception care fact sheet. Washington, DC: Association of State and Territorial Health Officials, 2 pp.

Annotation: This preconception care fact sheet provides an explanation of what preconception care is and why it is necessary and gives examples of preconception interventions and opportunities for state health agencies.

Contact: Association of State and Territorial Health Officials, 2231 Crystal Drive, Suite 450, Arlington, VA 22202, Telephone: (202) 371-9090 Fax: (571) 527-3189 Web Site: http://www.astho.org Available from the website.

Keywords: Health education, Health promotion, Infant health, Intervention, Preconception care, Pregnancy, Reproductive health, Screening, State initatives, Women', s health

Washington State Department of Health, Health Education Resource Exchange. 2013. Guidelines for testing and reporting drug exposed newborns in Washington state. Olympia, WA: Washington State Department of Health, Health Education Resource Exchange, 16 pp.

Annotation: This document provides guidance to hospitals, health care providers and affiliated professionals about maternal drug screening, laboratory testing, and reporting of drug-exposed newborns delivered in Washington State. Contents include indicators for testing, hospital policy, newborn and maternal risk indicators, consent issues for testing, newborn drug testing, management of a newborn with positive drug toxicology, and reporting to Children's Administration. Appendices include references and resources, guidelines for obtaining consent, a sample letter, neonatal abstinence syndrome scoring system, and information on Washington's Children's Administration prenatal substance abuse policy.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov Available from the website.

Keywords: Drug use during pregnancy, Guidelines, Hospital services, Infant health, Neonatal abstinence syndrome, Neonatal screening, Newborn infants, State initiatives, State social service agencies, Substance abusing pregnant women, Substance use screening, Washington

Child Health Investment Partnership of Roanoke Valley. 2013. [Begin With a Grin]: Final report and abstract. Roanoke, VA: Child Health Investment Partnership of Roanoke Valley, 15 pp.

Annotation: This report describes a program to prevent oral disease and address barriers to early oral health care for infants and young children from families with low incomes in Roanoke Valley, Virginia, by conducting in-home education and screening, applying fluoride varnish, and providing referrals. The report discusses the program’s goals and objectives, methodology, evaluation, outcomes, product dissemination and use, and sustainability. [Funded by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Screening, Access to health care, Community initiatives, Fluorides, Health education, Home visiting, Infants, Low income groups, Oral health, Referrals, Virginia, Young children

Zero to Three. 2013. State policy action team meeting: Moving an infant-toddler policy agenda. Washington, DC: Zero to Three, 24 pp.

Annotation: This report summarizes the proceedings from a May 2013 meeting of teams from five states to discuss strategies for developing and moving forward on an infant-toddler policy agenda. Participants explored innovative state models and strategies for developing and moving an infant policy agenda; assist other states in their efforts to establish an infant-toddler policy agenda; and promote relationships and continued collaborative work among participants. Topics explored during the meeting included policy development, outreach to families, professional development systems integration, coordinated screening and referral systems, effective communication, data systems, and quality improvement,

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org Available from the website.

Keywords: Collaboration, Family support services, Illinois, Infant health, Infants, Massachusetts, Minnesota, Model programs, New Jersey, Outreach, Pennsylvania, Policy development, Quality assurance, Screening, Service integration, State initiatives, Young children

Association of Public Health Laboratories. 2013. The newborn screening story: How one simple test changed lives, science, and health in America. Silver Spring, MD: Association of Public Health Laboratories, 95 pp.

Annotation: This book traces the evolution of newborn screening over the last 50 years, with stories from families affected by newborn screening conditions and portraits of the health professionals who support the newborn screening system. Contents include an outline of the origins of newborn screening, health implications of test results and the impact on treatment, the role of science and laboratory testing, how policy contributes to provide newborn screening, and how future screening research, practices, and policies can help improve the survival and growth of newborn infants.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website. Document Number: ISBN 978-0-9892398-0-6.

Keywords: Congenital abnormalities, History, Infant health, Neonatal mortality, Neonatal screening, Newborn infants

National Perinatal Association. [2012]. Multidisciplinary guidelines for the care of late preterm infants. Alexandria, VA: National Perinatal Association, 38 pp.

Annotation: This document presents guidelines for what the health care team should do in caring for late preterm infants and for specific education to be provided to the families of these infants. The guidelines are divided into four sections: (1) in-hospital assessment and care, (2) transition to outpatient care, (3), short-term follow-up care, and (4) long-term follow-up care. Within each section, the guidelines are further subdivided into four subsections: (1) stability, (2) screening, (3) safety, and (4) support. Each guideline includes recommendations for the health care team and for family education. It closes with a list of collaborative partners and endorsing organizations.

Contact: National Perinatal Association, 457 State Street, Binghampton, NY 13901, Telephone: (888) 971-3295 Fax: (703) 684-5968 E-mail: [email protected] Web Site: http://www.nationalperinatal.org Available from the website.

Keywords: Education, Families, Guidelines, Health care, Health services, Hospital services, Parent support services, Premature infants, Preterm birth, Safety, Screening

Center for Law and Social Policy, Charting Progress for Babies in Child Care. 2012. Promote access to early, regular and comprehensive screenings. Washington, DC: Center for Law and Social Policy, 10 pp.

Annotation: This electronic resource focuses on describing what infants and young children in child care need and offers 15 recommendations to help states move toward ensuring that these needs are met. The resource explains what infant screening is and why it is needed and discusses how states can ensure that infants and young children are screened for developmental delays. A bibliography, policy ideas, state examples, and online resources are included.

Contact: Center for Law and Social Policy, 1200 18th Street, N.W., Suite 200, Washington, DC 20036, Telephone: (202) 906-8000 Fax: (202) 842-2885 E-mail: http://www.clasp.org/about/contact Web Site: http://www.clasp.org Available from the website.

Keywords: Child care, Child health, Children with developmental disabilities, Developmental disabilities, Developmental screening, Early childhood development, High risk children, High risk infants, Infant development, Infant health, Infants with developmental disabilities, Public policy, Resource materials, State programs, Young children

National Initiative for Children's Healthcare Quality, Improving Hearing Screening and Intervention Systems . 2012. Improving hearing screening in infants. Boston, MA: National Initiative for Children's Healthcare Quality , 1 video (7 min., 19 sec.).

Annotation: This online videorecording focuses on the high number of infants in the United States who are diagnosed with hearing loss but who fail to receive any follow-up treatment. The video demonstrates how partners in the Improving Hearing Screening & Interventions System (IHSIS) project are working together to better the hearing screening and intervention process using systematic quality improvement methods. It also shows the ways in which parents, hearing screening services, audiologists, and quality improvement experts are working to streamline communication between different parts of the healthcare system to ensure effective hearing screening follow-up for infants. Examples from program partners in the states of Louisiana, Idaho, and Alaska are included. [Funded by the Maternal and Child Health Bureau]

Contact: National Institute for Children's Health Quality, 30 Winter Street, Sixth Floor, Boston, MA 02108, Telephone: (617) 391-2700 Secondary Telephone: (866) 787-0832 Fax: (617) 391-2701 E-mail: [email protected] Web Site: http://www.nichq.org Available from the website.

Keywords: Health care systems, Hearing screening, Infant health, Multimedia, Program improvement, Quality assurance

National Healthy Mothers, Healthy Babies Coalition. 2012. Vision development and the link to overall development in the premature infant. Alexandria, VA: National Premature Infant Health Coalition, (Maternal and child health webinar series: Webinar 14)

Annotation: This webinar focuses on the most prevalent and significant issues involved in eye and vision care during the growth and development of premature infants. It discusses visual development, ocular growth in prematurity, and the condition known as retinopathy of prematurity resulting from the abnormal development of blood vessels. Autism warning signs which might manifest as visual cues (for example the lack of frequent eye contact by 2-3 months) are also presented. The webinar discusses the history of infant eye care and visual screening; the importance of early intervention; the various ways to test vision in infants; and the importance of addressing potential vision problems. An overview of InfantSEE -- a public health program designed to help ensure that eye and vision care becomes an integral part of infant wellness care -- is included as part of the presentation.

Contact: National Coalition for Infant Health, Alliance for Patient Access, 1275 Pennsylvania Avenue, N.W., Suite 1100A, Washington, DC 20004, Telephone: (202) 499-4114 E-mail: [email protected] Web Site: http://www.infanthealth.org Available from the website.

Keywords: Audiovisual materials, Community programs, Development, Growth, Infant health, Premature infants, Retinopathy of prematurity, Vision screening

Expert Panel on Integrated Guidelines for Cardiovascular Health and Risk Reduction in Children and Adolescents. 2012. Integrated guidelines for cardiovascular health and risk reduction in children and adolescents: The report of the expert panel. Bethesda, MD: National Heart, Lung, and Blood Institute, 202 pp., summ. (73 pp.).

Annotation: This report is from a panel of experts convened by the National Heart, Lung, and Blood Institute to establish a new approach for guideline development on promoting cardiovascular health (CV) and identifying and managing specific CV risk factors from infancy through young adulthood. Topics include the state of the science, screening for risk factors, nutrition and diet, physical activity, tobacco exposure, high blood pressure, lipids and lipoproteins, overweight and obesity, diabetes mellitus and other conditions, risk factor clustering, perinatal factors, inflammatory markers, an integrated CV health schedule, and implications of the guidelines.

Contact: National Heart, Lung, and Blood Institute Health Information Center, P.O. Box 30105, Bethesda, MD 20824-0105, Telephone: (301) 592-8573 Secondary Telephone: (240) 629-3255 Fax: (301) 592-8563 E-mail: [email protected] Web Site: http://www.nhlbi.nih.gov/health/infoctr/index.htm Available from the website. Document Number: NIH Publication No. 12-7486.

Keywords: , Adolescent health, Blood pressure disorders, Cardiovascular diseases, Child health, Diabetes mellitus, Guidelines, Health promotion, Infant health, Nutrition, Physical activity, Research, Risk factors, Screening, Tobacco use

Washington State Department of Health, Health Education Resource Exchange. 2012. Can your baby hear?: Your baby's first hearing test. Olympia, WA: Washington State Department of Health, Health Education Resource Exchange, 2 pp.

Annotation: This brochure explains to new parents the importance of newborn hearing screening and provides a form for recording testing results. It also contains milestones in the first year for parents to watch for to indicate normal speech, language, and hearing. Te brochure is available in English, Spanish, and Russian.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov Available from the website.

Keywords: Brochures, Consumer education materials, Hearing screening, Neonatal screening, Newborn infants, Non English language materials, Spanish language materials

Genetic Alliance. [2011]. Baby's first test. [Washington, DC]: Genetic Alliance,

Annotation: This website provides information on newborn screening primarily for expecting and new parents. Resources are also available for prenatal and pediatric health professionals, including information about dried blood spot storage and usage. The content is based on 2008 legislation (the Newborn Screening Saves Lives Act) to expand support, research, and education opportunities for newborn screening. The website is organized as follows: About Newborn Screening (newborn screening facts, genetic and family history, screening resources, conditions screened by state); What to Expect (before birth, testing procedure, responding to results, testing outcomes, and what happens to the blood sample); Find a Condition; and Living with Conditions (family experiences, talking about a diagnosis, advocacy and support groups, finding a specialist, insurance and planning, looking to the future). [Funded by the Maternal and Child Health Bureau]

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

Keywords: Blood tests, Educational materials, Family support, Genetic services, Newborn infants, Resources for professionals, Screening, Special health care needs

Brazelton TB. 2011. Neonatal behavioral assessment scale (4th ed). London: Spastics International Medical Publications, 66 pp. (Clinics in developmental medicine, no. 50)

Nebraska Department of Health and Human Services, Newborn Screening Program. 2011. Newborn screening in Nebraska: Newborn screening for metabolic and inherited disorders and early hearing detection and intervention. Lincoln, NE: Nebraska Department of Health and Human Services, 40 pp.

Annotation: This annual report describes the Nebraska program for newborn screening for inborn errors of metabolism and inherited disorders. Contents include sections on major initiatives, process and output data, plans, continuing activities. Additional sections review the newborn hearing screening system and data as well as additional projects and summaries. [Funded by the Maternal and Child Health Bureau]

Contact: Nebraska Department of Health and Human Services, P.O. Box 95026, Lincoln, NE 68509-5026, Telephone: (402) 471-3121 E-mail: [email protected] Web Site: http://www.dhhs.ne.gov Available from the website.

Keywords: Genetic screening, Hearing screening, Nebraska, Neonatal screening, Newborn infants, State programs

American Dental Association. 2011. ADA caries risk assessment forms (upd.). [Chicago, IL]: American Dental Association, 3 items.

Annotation: These risk-assessment forms and instructions assist health professionals in screening and in communicating with clients about dental caries. Forms are provided for infants and children from birth through age 6 and for children ages 6 and older. The instructions provide background information on the development of the forms; discuss factors associated with low, medium, and high levels of caries risk; and provide information about fluoride exposure, sugary or starchy foods and beverages, clients with special health care needs, and medications that reduce salivary flow.

Contact: American Dental Association, 211 East Chicago Avenue, Chicago, IL 60611-2678, Telephone: (312) 440-2500 Fax: (312) 440-7494 E-mail: [email protected] Web Site: http://www.ada.org Available from the website.

Keywords: Dental caries, Early childhood caries, Forms, Infants, Oral health, Screening, Surveys, Young children

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.