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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 21 through 40 (194 total).

Association of Maternal and Child Health Programs; March of Dimes. 2019. Preparing for the future: Zika & long-term implications for systems of care. Washington, DC: Association of Maternal and Child Health Programs; [Arlington, VA]: March of Dimes, 8 pp.

Annotation: Based on data from the U.S. Zika Pregnancy and Infant Registry (USZPIR) and a 2019 multidisciplinary leadership meeting organized by AMCHP, March of Dimes, and CDC, this report outlines the long-term challenges and preparedness needs for supporting children and families affected by the Zika virus. It highlights that approximately 14% of infants born to mothers with confirmed or possible Zika infection experienced health problems, requiring comprehensive, long-term support across multiple systems. The document identifies seven key areas for systems improvement, and for each area, it provides detailed recommendations for both individual/family needs and systems-level responses, emphasizing the importance of sustainable healthcare coverage, coordinated care systems, cultural competency, and ongoing surveillance. The report concludes that states must assess and strengthen their infrastructure, leverage existing programs, and foster collaborative partnerships to better serve both Zika-affected families and all children with special healthcare needs.

Keywords: Title V programs, Children with special health care needs, Disaster planning, Health screening, Congenital abnormalities, Infant health, Maternal health

American Academy of Pediatrics. 2018. Bright Futures tool and resource kit (2nd ed.). Itasca, IL: Amercan Academy of Pediatrics,

Annotation: This companion to the most current edition of the Bright Futures Guidelines for Health Supervision of Infants, Children and Adolescents, the national standard for well-child care provides updated forms and materials relate to preventive health supervision and health screening for infants, children, and adolescents. These include pre-visit questionnaires, visit documentation forms, parent and patient handouts, supplemental education handouts, and medical screening reference tables.

Keywords: Adolescent development, Adolescent health, Anticipatory guidance, Child development, Child health, Communities, Disease prevention, Emotional development, Families, Guidelines, Health promotion, Health screening, Health supervision, Infant development, Infant health, Injury prevention, Mental health, Nutrition, Oral health, Pediatric care, Perinatal health, Physical activity, Preventive health services, Professional resources, Protective factors, Psychosocial development, Safety, Sexual health, Standards, Weight management

Association of Maternal and Child Health Programs;. 2018. Title V and newborn screening: State performance measures and long-term follow-Up. Washington, DC: Association of Maternal and Child Health Programs;, 6 pp. (Issue Brief)

Annotation: This report is a comprehensive analysis of how Title V Maternal and Child Health (MCH) Services Block Grant programs support newborn screening initiatives in the United States. It examines the various ways Title V programs integrate newborn screening into their state-level priorities and action plans, including adopting specific performance measures related to newborn screening. The document also explores the long-term follow-up activities conducted by Title V programs, such as care coordination through medical homes, ensuring evidence-based treatment, and ongoing data surveillance and evaluation. The findings illustrate the critical role Title V programs play in building and maintaining coordinated systems of care for children and youth with special health care needs identified through newborn screening, including providing essential services, tracking outcomes, and driving continuous quality improvement.

Keywords: Title V programs, Developmental screening, Infant health, Performance measures

Smile Alabama!. 2017. 1st Look Program. Montgomery, AL: Alabama Medicaid Agency, multiple items.

Annotation: These tools are designed to help primary care physicians reduce the incidence of dental caries in early childhood by conducting oral health risk assessments, providing anticipatory guidance, applying fluoride varnish, and referring children to a dental home by age 1. Contents include information about fluoride varnish products and vendors; program participation, certification, and billing; presentation slides and handouts; and educational materials about oral health in infants, young children, and pregnant women. A training course is also available.

Keywords: Alabama, Anticipatory guidance, Continuing education, Fluorides, Infants, Medicaid, Medicaid, Oral health, Preventive health services, Primary care, Referrals, Risk assessment, Screening, State programs, Training, Young children

Virginia Department of Health, Division of Dental Health. 2017. Bright Smiles for Babies: Virginia Oral Health Partnership for Children. Richmond, VA: Virginia Department of Health, Division of Dental Health, 1 v.

Annotation: This manual contains information and resources to promote oral health in pregnant women and infants and children from birth to age 3 by providing oral health screenings and risk assessment, education, fluoride varnish applications, and referrals. Contents include an oral health protocol; resources about assessment and fluoride varnish; anticipatory guidance; parent handouts in English and in Spanish; and information about oral health in pregnant women and children, including children with special health care needs. Information about Medicaid reimbursement, resources for supplies, professional policies and guidelines, and forms is also included.

Keywords: Disease prevention, Fluorides, Health promotion, Infants, Oral health, Pregnancy, Pregnant women, Prevention programs, Resources for professionals, Risk assessment, Screening, Service integration, Special health care needs, State programs, Training materials, Virginia, Young children

Hagan JF, Shaw JS, Duncan PM, eds. 2017. Bright Futures: Guidelines for health supervision of infants, children, and adolescents–Pocket guide (4th ed.). Elk Grove Village, IL: American Academy of Pediatrics, 123 pp.

Annotation: These guidelines provide background information and recommendations for promoting the healthy development of infants, children, and adolescents from birth to age 21, as well as standards for health supervision visits. Topics include lifelong health for families and communities, family support, health for children and adolescents with special health care needs, development, mental health, weight, nutrition, physical activity, oral health, use of social media, and safety and injury prevention. A companion pocket guide is also available. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescent development, Adolescent health, Anticipatory guidance, Child development, Child health, Communities, Disease prevention, Emotional development, Families, Guidelines, Health promotion, Health screening, Health supervision, Infant development, Infant health, Injury prevention, Mental health, Nutrition, Oral health, Pediatric care, Perinatal health, Physical activity, Preventive health services, Protective factors, Psychosocial development, Safety, Sexual health, Standards, Weight management

Hagan JF, Shaw JS, Duncan PM, eds. 2017. Bright Futures: Guidelines for health supervision of infants, children and adolescents (4th ed.). Itasca, IL: American Academy of Pediatrics,

Annotation: These guidelines provide background information and recommendations for promoting the healthy development of infants, children, and adolescents from birth to age 21, as well as standards for health supervision visits. Topics include lifelong health for families and communities, family support, health for children and adolescents with special health care needs, development, mental health, weight, nutrition, physical activity, oral health, use of social media, and safety and injury prevention. A companion pocket guide is also available. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescent development, Adolescent health, Anticipatory guidance, Child development, Child health, Communities, Disease prevention, Emotional development, Families, Guidelines, Health promotion, Health screening, Health supervision, Infant development, Infant health, Injury prevention, Mental health, Nutrition, Oral health, Pediatric care, Perinatal health, Physical activity, Preventive health services, Protective factors, Psychosocial development, Safety, Sexual health, Standards, Weight management

Massachusetts Act Early. 2016. Considering culture in autism screening. [no place]: Massachusetts Act Early, 8 pp.

Annotation: This document for primary care health professionals provides tips for promoting the identification of autism spectrum disorders (ASDs) and other developmental disabilities for children from immigrant families or from families whose primary language is not English. Contents include tips for culturally- and linguistically-competent autism screening; the Modified Checklist for Autism in Toddlers (M-CHAT) screening tool in English and in four translations (Chinese, Haitian Creole, Spanish, and Vietnamese); an assortment of materials from the Centers for Disease Control and Prevention's Learn the Signs. Act Early campaign for use in practice; and resource and referral information.

Keywords: Autism, Culturally competent services, Developmental disabilities, Developmental screening, Early identification, Immigrants, Infants, Massachusetts, Non English language materials, Public awareness campaign materials, Referrals, State initiatives, Young children

Casamassimo P, Holt K, eds. 2016. Bright Futures: Oral health—Pocket guide (3rd ed.). Washington, DC: National Maternal and Child Oral Health Resource Center, 90 pp.

Annotation: This guide offers health professionals an overview of preventive oral health supervision during five developmental periods: prenatal, infancy, early childhood, middle childhood, and adolescence. It is designed to help health professionals implement specific oral health guidelines during these periods. For each period, information about family preparation, risk assessment, interview questions, screening, examination, preventive procedures, anticipatory guidance, measurable outcomes, and referrals is discussed. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Assessment, Bright Futures, Children, Disease prevention, Guidelines, Health promotion, Infants, Injury prevention, Oral health, Oral health care, Outcome and process assessment, Postpartum care, Pregnancy, Pregnant women, Preventive health services, Referrals, Resources for professionals, Screening

[U.S. Maternal and Child Health Bureau]. 2016. Resource guide for states and communities caring for infants and children affected by Zika (upd.). [Rockville, MD: U.S. Maternal and Child Health Bureau], 18 pp. (Latest update 10/21/2016; document doesn't cite author/publisher; received via AMCHP's Emerging Issues Committee. (JMB))

Annotation: This resource is designed to assist states and communities in developing a coordinated response to the immediate and long term needs of infants and children affected by Zika virus (ZIKV), and their families. Contents include an overview of ZIKV, infection, and outcomes; systems of care as a public health approach for comprehensive care for infants and children exposed to ZIKV; and an overview of federal and state programs serving children affected by ZIKV. [Funded by the Maternal and Child Health Bureau]

Keywords: Assessment, Child health, Community coordination, Comprehensive health care, Emergency medical services for children, Federal programs, Health care systems, Infant health, Infection control, Neonatal screening, Policy development, Population surveillance, Program coordination, Program planning, Quality assurance, Resources for professionals, Service coordination, Service integration, Special health care needs, State programs, Systems development, Virus diseases, Work force

Wilson K, Charmchi P, Dworetzky B. 2016. State statutes & regulations on dietary treatment disorders identified through newborn screening. Boston, MA: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, 82 pp.

Annotation: This chart provides information about state-specific legislation that mandates the coverage of medically necessary foods by employer-sponsored health insurance, Medicaid, and coverage and related services funded by other state programs such as the Supplemental Food Program for Women, Infants, and Children (WIC); Title V; or relief funds. Contents include descriptions of medical foods products, abbreviations and definitions, a list of coverage types for dietary treatments of disorders identified through newborn screening, and a list of states that provide phenylketonuria (PKU) only coverage. Details about covered services and any benefit limits or age and income restrictions are included. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Diet therapy, Dietary assessment, Financing, Food supplements, Genetic disorders, Health insurance, Medicaid, Metabolic diseases, Newborn infants, Newborn screening, Nutrition, Phenylketonuria, Postnatal care, Regulations, Special health care needs, State legislation, State programs, Title V programs, Unfunded mandates, WIC program

U.S. Government Accountability Office. 2015. Prenatal drug use and newborn health: Federal efforts need better planning and coordination. Washington, DC: U.S. Government Accountability Office,

Annotation: This report provides information on how federal agencies have addressed opioid use by pregnant women and neonatal abstinence syndrome (NAS). Topics include federally funded research, federal programs, and other federal agency efforts related to prenatal opioid use or NAS; gaps identified by federal agency officials and experts in efforts to address prenatal opioid use or NAS; and how federal efforts to address prenatal opioid use or NAS are planned and coordinated.

Keywords: Analgesic drugs, Federal agencies, Infant health, Newborn infants, Prenatal influences, Prevention, Program coordination, Program development, Program planning, Referrals, Research, Screening, Substance use

Association of Maternal and Child Health Programs. 2015. Resources for Title V action planning: Developmental screening strategies and measures. Washington, DC: Association of Maternal and Child Health Programs, 8 pp. plus appendices.

Monahan S, Thomas J, Paulsell D, Murphy L . 2015. Learning about infant and toddler early education services (LITES): A systematic review of the evidence. Washington, DC: U.S. Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation, 48 pp. plus appendices

Annotation: This document summarizes findings from a systematic review to identify effective and replicable program models to support infant and toddler early learning in out-of-home early care and education (ECE) settings. Contenst include the purpose and scope of the review, methods, review results, and suggestions for future research. Appendices include direct multicomponent program model summaries, direct and indirect enhancement model summaries, screening disposition tables, citation of studies, and a glossary.

Keywords: Child development, Early childhood education, Infants, Learning, Model programs, Research, Screening, Toddlers

Catalyst Center. [2014]. Health care reform: What's in it for children who are deaf or hard of hearing?. Logan, UT: National Center for Hearing Assessment and Management, 4 pp. (Health care reform: ACA fact sheet)

Annotation: This fact sheet provides an overview of some of the provisions of the Affordable Care Act (ACA) that help improve access to coverage and care for children who are deaf or hard of hearing (D/HH). Topics include how consumer protections in the ACA impact children who are D/HH, provisions that help children who are D/HH receive needed health benefits, how implementation of the ACA varies by state, how the ACA supports hearing screening of infants and young children, coverage for hearing screening, and how programs and families can help improve future policies. [Funded by the Maternal and Child Health Bureau]

Keywords: Children, Consumer protection, Deafness, Health care reform, Health insurance, Hearing disorders, Infants, Patient Protection and Affordable Care Act, Policy development, Screening, Special health care needs

Association of Public Health Laboratories. 2014-. Newborn screening and genetics. Silver Spring, MD: Association of Public Health Laboratories, multiple items.

Ramakrishnan M. 2014. Neonatal abstinence syndrome: How states can help advance the knowledge base for primary prevention and best practices of care. Arlington, VA: Association of State and Territorial Health Officials, 24 pp.

Annotation: This report describes opportunities to avert or ameliorate the outcome of neonatal abstinence syndrome (NAS) along a continuum of care spanning timeframes in the mother's and infant's life and the role of state health agencies. Topics include surveillance for NAS-affected infants and the sources of maternal opiate use; reimbursement for using screening protocols to detect substance abuse early in pregnancy and withdrawal signs in newborns; development of measures to ensure follow-up with opioid-dependent women and receipt of comprehensive services; and collaborative efforts to strengthen clinical standards for identification, management, and follow-up with NAS-affected infants and their families. A state index of resources is included.

Keywords: Comprehensive health care, Intervention, Neonatal abstinence syndrome, Neonatal addiction, Newborn infants, Opiates, Population surveillance, Primary prevention, Screening, State health agencies, Substance use

Birth to 5: Watch Me Thrive! . 2014. A compendium of screening measures for young children. Washington, DC: U.S. Department of Health and Human Services, 111 pp.

Annotation: This compendium is a collection of research-based developmental screening tools (screeners) for children under age 5. The compendium provides information on the purpose of developmental screening and the reliability and validity of commonly-used screeners for different languages and populations. Contents include summary tables that provide general information about screeners, individual instrument profiles, and the standards used to evaluate the tools' reliability and validity.

Keywords: Child development, Developmental disabilities, Developmental screening, Evaluation, Infant development, Infants, Measures, Standards, Young children

Birth to 5: Watch Me Thrive!. 2014. Birth to 5: Watch Me Thrive!. Washington, DC: U.S. Administration for Children and Families, multiple items.

Annotation: This website describes a federal coordinated effort to encourage healthy child development,universal developmental and behavioral screening for children, and support for the families and providers who care for them. Contents include information about the importance of developmental and behavioral screening, the Compendium of Screening Measures for Young Children, and a list of accompanying guides tailored for use by early care and education providers, early intervention service and early childhood special education providers, families, primary care providers, communities, child welfare, home visitors, behavioral health providers, and housing and homeless shelter providers. Resources are available in English and Spanish.

Keywords: Child development, Developmental disabilities, Developmental screening, Early intervention services, Family support services, Federal initiatives, Infant development, Infants, Measures, Spanish language materials, Young children

Association of State and Territorial Health Officials. 2014. Improving newborn screening processes. Arlington, VA: Association of State and Territorial Health Officials, 1 p.

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, univerity, state, and federal funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.