Search Results: MCHLine

Annotation: This organizational self-assessment instrument is intended to help fetal and infant mortality review programs (FIMRs) to (1) plan for and incorporate culturally and linguistically competent policies, structures, and practices in all aspects of their work; (2) enhance the quality of case reviews and action plans within diverse and underserved communities; and (3) promote cultural and linguistic competence as an essential approach in the elimination of disparities and the promotion of health and mental health equity. The instrument gives definitions of terms used in the instrument, and a series of statements to assess the organization in these areas: (1) world view and practices related to cultural and linguistic competence; (2) staff diversity and training; (3) core functions including information gathering, case review, and community engagement; and (4) infrastructure, and funding. A companion document provides guidance on the use of this assessment tool. [Funded by the Maternal and Child Health Bureau]

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Keywords: Questionnaires, Cultural competence, Cultural diversity, Fetal death, Health promotion, Infant death review, Infant mortality, Local programs, Low income groups, Mental health, Underserved communities

Annotation: This document provides guidance on using an accompanying self-assessment instrument to evaluate the cultural and linguistic competence of fetal and infant mortality review programs (FIMRs). It describes the benefits, values, and principles of self-assessment for organizations; the nature of the instrument; and a recommended four-phase approach to organizational self-assessment. It also provides answers to frequently asked questions; definitions of key terms; and a process for community engagement in self-assessment, including a focus group protocol. [Funded by the Maternal and Child Health Bureau]

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Keywords: Cultural competence, Cultural diversity, Fetal death, Guidelines, Health promotion, Infant death review, Infant mortality, Local programs, Low income groups, Mental health, Underserved communities

Annotation: This report provides an evidence base for Healthy Start and other perinatal health initiatives by describing the racial and ethnic disparities in birth outcomes and the risk factors that may be the underlying causes of differences in birth outcomes. The authors conducted a literature review to gather this information. The report, which includes an executive summary, covers the following topics: (1) racial and ethnic disparities in birth outcomes (including racial and ethnic trends in infant mortality and causes of infant death) and (2) risk factors for poor birth outcomes (including behavioral and biological and social risk factors). A discussion section is included. Statistical information is presented in figures and tables throughout the report. The report includes two appendices: detailed tables and a glossary. References are included.

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Keywords: Ethnic factors, Healthy Start, High risk groups, Infant death, Infant mortality, Initiatives, Literature reviews, Perinatal health, Prevention programs, Racial factors, Risk factors, Trends

Annotation: This paper contributes to the evaluation of a new protocol for the multi-agency investigation of sudden unexpected death in infancy (SUDI) that was introduced by the United Kingdom government in April 2006. The paper discusses the concept of the police investigation of infant deaths and the main differences between the investigations of adult vs. child deaths. The paper introduces the issue, discusses a literature review that was conducted, and covers the following topics: (1) history of SUDI investigation until 1999, (2) the emergence of police guidance, (3) the effect of public and judicial concern, 1999-2004, (4) the impact of the Victoria Climbie inquiry, (5) the Kennedy Report and the new protocol, (6) anatomy of a police sudden death investigation, (7) evaluation and analysis of chapter 7 of Working Together (child-protection guidance document used by police, health professionals, and social services professionals in England and Wales), and (8) conclusions and the future. A biography of the author and references are included. The paper includes four appendices: (1) respondent sample, (2) example interview schedule, (3) working group members, and (4) methodology.

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Keywords: Child death, Evaluation, Infant death, Investigation, Literature reviews, Protocols, Research, SIDS

Annotation: This report, which investigates infant deaths going back to 1992, casts doubt on claims that cases of SIDS have decreased by more than half since the 1990s. The report discusses child dealth review procedures, the quality of statistics on sudden infant death, efforts to protect the feelings of grieving parents, professional bias in diagnosis vs. medical evidence and the need for standards in infant death and reporting. Quotations from families who have experienced infant deaths, as well as from experts in the field, are included throughout.

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Keywords: Sleep position, Bereavement, Families, Infant death review, Parents, SIDS: Infant death, Statistics, Trends

Annotation: This manual provides communities interested in developing a new Fetal and Infant Mortality Review (FIMR) Program, or continuing an existing FIMR program, with a step-by-step guide for implementing FIMR and making systems change happen for women, infants, and familles through FIMR. Contents include a description of the FIMR process, laying the groundwork, building community support and collaboration, abstracting medical records and conducting the home interview, basic team building and group process concepts for FIMR programs, the role of the case review team, the role of the community action team, taking stock of the FIMR process, and other maternal and child case review and related processes and the opportunities for collaboration. Standard definitions for reporting selected perinatal health statistics, and a glossary of terms, diagnoses and procedures is also included. [Funded by the Maternal and Child Health Bureau]

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Keywords: Child death review, Collaboration, Fetal death, Infant death review, Infant mortality, Investigations, Manuals, Neonatal death, Program development, Surveillance

Annotation: This booklet helps explain what happens after a baby dies, both in terms of practicalities, and the feelings and emotions families may experience. Contents include legal procedural matters involving the coroner, registering the baby's death or an inquest, keepsakes, and funeral and financial arrangements. Additional topics include common feelings and experiences of grieving, family and sibling grief, infant death in child care, questions families ask, finding and giving support, and care of the next infant. A list of publications and further reading is provided.

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Keywords: Bereavement, Child death, Child death review, Families, Infant death, Public awareness materials, Resources for professionals, SIDS

Annotation: This Webcast is a two-part recording of a conference in which three sudden infant death syndrome/sudden unexpected infant death (SIDS/SUID) experts present on the Centers for Disease Control and Prevention (CDC) SUID death scene investigation initiative, explaining the importance of infant death scene investigation, how new SUID report forms improve the investigation of the process, the SUID reporting system and the national training academy. The second presentation explains why and how the initiative is important for child and maternal health and ways in which MCH leaders can get involved in pushing for improved infant death scene investigation in their own communities. The final presentation speaks to understanding and preventing deaths in Philadelphia. A question and answer session follows the presentations. Powerpoint presentations accompany the audio presentations. [Funded by the Maternal and Child Health Bureau]

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Keywords: Child death review, Infant death, Infant mortality, MCH programs, Multimedia, SIDS

Annotation: The purpose of this guide is to help public health professionals in the state of Ohio prepare for their mandatory role in responding to infant deaths. It provides (1) an overview of sudden infant death (including a description of characteristics; theories about causes; the state and national responses to it; and the role of SID Network of Ohio); (2) a case scenario of a sudden infant death in Ohio, including a flow chart that illustrates the response to it; (3) a description of grief and bereavement services provided to families who have lost an infant; (4) and guidelines to help reduce the risk of sudden infant death. Although much of the information specifically addresses SIDS deaths, the guide is intended to assist in all sudden and unexpected infant deaths that occur in Ohio. The appendices include copies of the state's infant death forms, a sample family contact letter, and a description of child fatality review in the state of Ohio.

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Keywords: Child death review, Home visiting, Infant death, Manuals, Ohio, SIDS, State legislation, State programs

Annotation: This fact sheet provides a brief overview of the various professionals involved when a sudden infant death occurs, as well as their responsibilities and how these professionals can help. Topics include those first on the scene, what happens at the hospital, why an autopsy is performed, the death scene investigation, and the impact on families and caregivers. A list of contacts, resources, and references is provided. [Funded by the Maternal and Child Health Bureau]

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Keywords: Autopsy, Child death review, Infant death, Neonatal death, Resources for professionals, Risk factors, SIDS

Annotation: This brochure gives an overview of statistics of infant deaths attributable to sudden infant death syndrome (SIDS) in a variety of racial and ethnic categories. Topics include efforts to reduce the risks of SIDS through the "back to sleep" campaign. Information is provided for resources designed to reduce SIDS risks in minority communities. References conclude the brochure.

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Keywords: Cultural factors, Asian Americans, Blacks, Child death review, Hispanic Americans, Infant death, Minority groups, Neonatal death, Pacific Islanders, Risk factors, SIDS, Statistics

Annotation: These guidelines provide coroners and medical examiners with the information they need to investigate a sudden unexpected death of an infant. The document describes the elements of information needed to accurately diagnose sudden, unexpected infant death and defines sudden infant death syndrome (SIDS). It lists the typical findings for sudden unexpected infant death. It describes the Missouri Child Fatality Review Program, defines the mandated role of the coroner or medical examiner in Child Fatality Review and lists the relevant Missouri state statutes. Guidelines for helping the parents and caregivers are also listed and the form "Death Scene Investigative Checklist for Child Fatalities" is included.

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Keywords: Child death, Child death review, Coroners, Forms, Guidelines, Infant death, Medical examiners, Missouri, Neonatal death, SIDS

Annotation: This report contains summaries of the findings from community-based reviews of fetal and infant deaths in the state of Indiana conducted by the Indiana Fetal - Infant Mortality Review (FIMR) Projects during 1993 through 1997. Included as part of the lessons learned from this review of over 500 cases of fetal and infant deaths are findings and recommendations related to preterm labor, smoking during pregnancy, late entry into prenatal care, decreased fetal movement, inadequate weight gain, and infant sleep position.

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Keywords: Assessment, Child death review, Guidelines, Indiana, Infant death, Infant mortality, Prevention programs, Reports, State programs

Annotation: This brief is intended to provide program evaluation information to both existing fetal and infant mortality review (FIMR) programs and communities that are in the process of establishing new FIMRs. It includes information about study methods, key contributions of FIMR programs, factors contributing the the success of individual FIMR programs, and FIMR teams. It concludes with observations and a list of references. [Funded by the Maternal and Child Health Bureau]

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Keywords: Child death review, Community based services, Fetal mortality, Infant mortality, National programs, Program development

Annotation: The purpose of this manual is to help prepare new home interviewers for the key fetal infant mortality review role of interviewing grieving mothers. It includes the following sections: (1) the fetal and infant mortality review (FIMR) process, (2) conducting the FIMR review, (3) understanding the grief experience, (4) FIMR interviewer skills and training, (5) summarizing the FIMR review; (6) self-care for the FIMR interviewer, (7) references, (8) bibliography, and (9) about the authors. The manual also contains several appendices, including field safety, suggested reading, Web site resources for families, infant loss literature for families, Web resources for home interviewers, and other printed materials.

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Keywords: Child death review, Fetal mortality, Grief, Infant mortality, Interviews, Mothers, Training

Annotation: This report describes the Healthy Start program to reduce infant mortality in targeted areas in Tulsa, Oklahoma from September 1997 through June 2001. Report sections include an introduction; service initiation using the following models: community-based consortium, case coordination and case management, outreach and client recruitment, facilitating services, and education and training; a review of service accomplishments; mentoring; consortium and collaboration efforts; the impact of the consortium program; and other Healthy Start components such as administration and management, sustainability, the role of local government; lessons learned, local evaluation, Fetal and Infant Mortality Review. A final section on project data contains extensive forms and tables. The appendices include charts, objectives, summaries, and the local evaluation plan. [Funded by the Maternal and Child Health Bureau]

Keywords: Child death review, Final reports, Healthy Start, Infant health, Infant mortality, Local initiatives, MCH programs, Models, Oklahoma, Prenatal care, Prevention programs, Program descriptions

Annotation: This standard reporting form is designed for use by home visiting professionals in the state of Ohio who are responsible for collecting data as part of their mandatory role in responding to infant deaths. The form includes questions about the infant's sleep environment, whether the infant had any signs of illness prior to the death, and the tentative diagnosis upon pronouncement. The form also provides space for the parents' contact information; the infant's gender, ethnicity, weight, age, and place of birth; and details about the home visiting encounter itself.

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Keywords: Child death review, Forms, Home visiting, Infant death, Ohio, SIDS, State legislation, State programs

Annotation: This final report describes a collaborative effort among various infant mortality/child death review programs in Virginia to improve coordination, limit redundancy, and provide networks across the state. Contents include a description of the project's purpose and objectives, methodology, evaluation, and results/outcomes. A list of publication and products is included as well as an overview of dissemination and utilization of results, future plans, and project replication needs. [Funded by the Maternal and Child Health Bureau]

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Keywords: Child death review, Collaboration, Final reports, Infant death review committees, Infant mortality, State agencies, Virginia

Annotation: This report describes the early findings of an evaluation of the national Fetal and Infant Mortality Review (FIMR) program. Topics include bolstering community efforts for perinatal health; FIMR-specific influences; perinatal initiative-specific influences; recommending and acting on strategies to improve systems of perinatal health care; FIMR programs' structure, operational features, and associated activity; system changes evolving from FIMR; and observations and conclusions. The evaluation methodology and respondents are described and references are provided. [Funded by the Maternal and Child Health Bureau]

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Keywords: Child death review, Federal initiatives, Fetal mortality, Infant mortality, Perinatal health, Program evaluation, Research

Annotation: This document provides a critical review of current literature and a set of recommendations to guide future research leading towards an empirical base for culturally competent practice in sudden infant death syndrome and other infant deaths (SIDS/ID). The six sections include the statement of purpose; methodology; categorical review of literature; conclusions; recommendations; and the appendices. Topics specifically addressed in the categorical review include racial and ethnic disparities in SIDS/ID; an examination of cultural protective factors; and development of culturally competent approaches to bereavement support. The appendices include an annotated bibliography; resource bank and literature review criteria; articles at a glance; and a policy brief on cultural competency in primary health care. [Funded by the Maternal and Child Health Bureau]

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Keywords: Cultural competence, Cultural diversity, Cultural factors, Ethnic factors, Infant death, Literature reviews, Racial factors, SIDS