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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 21 through 33 (33 total).

Arcia E, Keyes L, Gallagher J, Herrick H. 1992. Potential underutilization of Part H services: An empirical study of national demographic factors. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 45 pp.

Annotation: This report describes a study in which factors that have been associated with underutilization of health and social services were reviewed with regard to Part H of the Individuals with Disabilities Education Act (IDEA). The investigators devised a generic model of service utilization, examined the national distribution of several of the model's factors, and recommended policies that may prevent systematic underutilization of Part H services. The investigators suggested that a substantial proportion of the children in need of services may be underserved.

Contact: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, University of North Carolina at Chapel Hill, 300 NationsBank Plaza, Chapel Hill, NC 27599, Telephone: (919) 962-7374 Available from the website.

Keywords: Chronic illnesses and disabilities, Early intervention, Individuals with Disabilities Education Act, Part H, Special health care needs, Utilization review

Arcia E, Serling J, Gallagher J. 1992. Review of state policies to empower families and reach populations typically underserved. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 14 pp.

Annotation: This study evaluated states' policies and programs aimed at reaching populations typically underserved, and for empowering families by providing them maximum choice and flexibility for their early intervention services. Early intervention services are covered by Part H of the Individuals with Disabilities Education Act (IDEA).

Contact: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, University of North Carolina at Chapel Hill, 300 NationsBank Plaza, Chapel Hill, NC 27599, Telephone: (919) 962-7374 Available from the website.

Keywords: Chronic illnesses and disabilities, Early intervention, Family centered, Individuals with Disabilities Education Act, Part H, Special health care needs, Utilization review, community based care

Arcia E, Gallagher JJ. 1992. Parity or equity: Can we even tell?. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Policy Studies Program, 24 pp.

Annotation: This report is the study of a random sample of sixteen Part H coordinators who were interviewed to assess the availability of sociodemographic variables in their Part H data system and to document their perception of which population was most underserved in their state. It provides the results of the study and their implications. It also gives policy recommendations.

Contact: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, University of North Carolina at Chapel Hill, 300 NationsBank Plaza, Chapel Hill, NC 27599, Telephone: (919) 962-7374 Available from the website.

Keywords: Children with special health care needs, Demographics, Federal legislation, Individuals with Disabilities Education Act, Part H, Socioeconomic status, Surveys, Underserved communities

Berman C, Melner J. 1992. Communicating with primary referral sources: A synthesis report. Chapel Hill, NC: National Early Childhood Technical Assistance System, 45 pp.

Annotation: This report assists Part H state officials in identifying appropriate approaches and resources as procedures are developed to meet the requirements of the Individuals with Disabilities Education Act and its amendments relating to child find and public awareness procedures. It consolidates information and ideas about communication with primary referral sources that may serve to inform state planning. The report provides information on the survey and includes four attachments: A is a list of the questions included in the request for resources survey; B is an annotated list of respondents; C is a list of selected additional resources; and D is a bibliography.

Contact: Early Childhood Technical Assistance Center, Campus Box 8040, UNC-CH, Chapel Hill, NC 27599-8040, Telephone: (919) 962-2001 Secondary Telephone: (919) 843-3269 Fax: 919.966.7463 E-mail: [email protected] Contact E-mail: [email protected] Web Site: http://ectacenter.org/ Available from the website.

Keywords: Bibliographies, Children with special health care needs, Early intervention, Federal legislation, Individuals with Disabilities Education Act, Part H, State programs, Surveys

Place PA, Brown C. 1992. Trust, entitlement, or some of both: Can the Part H system provide the supports families need and want?. Chapel Hill, NC: University of North Carolina at Chapel Hill, Frank Porter Graham Child Development Center, Carolina Policy Studies Program, 36 pp.

Annotation: This report deals with the implementation of Part H of the Individuals with Disabilities Education Act (IDEA). A case study of three states that use very different approaches to the development of family-centered policies illuminates the wide diversity of processes and approaches to policy development. Study findings and recommendations are given for each of the three states.

Contact: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, University of North Carolina at Chapel Hill, 300 NationsBank Plaza, Chapel Hill, NC 27599, Telephone: (919) 962-7374 Available from the website.

Keywords: Children with developmental disabilities, Children with special health care needs, Early intervention, Family centered services, Family support services, Federal legislation, Individuals with Disabilities Education Act, Part H, Infants with special health care needs, Interagency cooperation, Policy analysis, Policy development, State agencies

Place PA, Gallagher JJ. 1992. Part H policy development for families: A case study report. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, 48 pp.

Annotation: This report identifies critical factors in two states as they begin to develop family-centered policies for the Infant and Toddlers Program (Part H of IDEA). The study has focused on the policies the states have developed that most directly have an impact on families of young children with disabilities: the Individual Family Service Plan, the identification of families' strengths and needs, and case management. Data for this report were gathered through structured on-site interviews with a variety of state agency personnel.

Contact: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, University of North Carolina at Chapel Hill, 300 NationsBank Plaza, Chapel Hill, NC 27599, Telephone: (919) 962-7374 Available from the website.

Keywords: Children with special health care needs, Empowerment, Family centered services, Family support services, Federal legislation, Individuals with Disabilities Education Act, Part H, Infants with special health care needs, Interagency cooperation, Policy analysis, Policy development, State agencies

Harbin G, Danaher J, Derrick T. 1992. Comparison of infant/toddler and preschool eligibility policies. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, 25 pp.

Annotation: This report addresses the three early concerns expressed by parents, professionals, and policy makers about continuity of eligibility as children move from early intervention for infants and toddlers (Part H of IDEA) to preschool special education (Part B of IDEA). These concerns are: 1) inclusion of at-risk children in the infant/toddler program; 2) possible differences in the use of a categorical versus a noncategorical approach to eligibility determination; and 3) differences in the level of delay required for the two programs. Each of these concerns focuses on the possibility that children eligible for services as infants and toddlers will no longer be eligible when they turn three, because different requirements in the law can result in different eligibility policies for the two age groups.

Contact: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, University of North Carolina at Chapel Hill, 300 NationsBank Plaza, Chapel Hill, NC 27599, Telephone: (919) 962-7374 Available from the website.

Keywords: Children with special health care needs, Early intervention, Eligibility, Federal legislation, Individuals with Disabilities Education Act, Individuals with Disabilities Education Act, Infants with special health care needs, Part B, Part H, Programs, Special education, State programs, Young children

Rooney R, Gallagher JJ, Fullagar P, Eckland J, Huntington G. 1992. Higher education and state agency cooperation for Part H personnel preparation. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, 39 pp.

Annotation: This reports on a study conducted to examine the relationship between state agencies and higher education in planning for the personnel components of Part H of the Individuals with Disabilities Education Act (IDEA). The authors' mission was to uncover strategies for successful cooperation from states that were demonstrating progress in meeting the personnel challenges of Part H. A qualitative research design was employed to examine the issues associated with the process of developing and maintaining working relationships between state agencies and higher education. Policy recommendations derived from the study are included.

Contact: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, University of North Carolina at Chapel Hill, 300 NationsBank Plaza, Chapel Hill, NC 27599, Telephone: (919) 962-7374 Available from the website.

Keywords: Children with special health care needs, Early intervention, Federal legislation, Individuals with Disabilities Education Act, Infants with special health care needs, Interdisciplinary approach, Part H, Personnel needs, Policy development, Professional education, State agencies, Training

Orloff TM, Rivera L, Harris P, Rosenbaum S. 1992. Medicaid and early intervention services: Building comprehensive programs for poor infants and toddlers. Washington, DC: Children's Defense Fund, 133 pp. (Walker)

Annotation: This report examines the EPSDT program of Medicaid and Part H program of the Individuals with Disabilities Education Act (IDEA) and identifies ways in which these programs can work together to provide a comprehensive set of health and therapeutic services to children. It also provides guidance on how the issues of eligibility, benefits, and providers are interpreted by the Medicaid and Part H programs, focusing specifically on low income infants and children, and those with special health needs.

Contact: Children's Defense Fund, 25 E Street, N.W., Washington, DC 20001, Telephone: (202) 628-8787 Secondary Telephone: (800) 233-1200 E-mail: [email protected] Web Site: http://www.childrensdefense.org $7.50.

Keywords: Children, Children with special health care needs, EPSDT, Early intervention services, Federal legislation, Individuals with Disabilities Education Act, Infants, Infants with special health care needs, Medicaid, Part H, Poverty, Programs

Harbin GL, Maxwell K. 1991. Progress toward developing a definition for developmentally delayed: Report Number 2. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 33 pp.

Annotation: This report describes states' eligibility criteria for developmentally delayed and at-risk infants and toddlers. It is based on definitions from 49 states, and describes the definitions for infants and toddlers to be served under Part H of the Individuals with Disabilities Education Act (P.L. 101-476), which succeeds P.L. 99-457.

Keywords: Children with developmental disabilities, Children with special health care needs, Eligibility, Federal legislation, Individuals with Disabilities Education Act, Part H, Policy analysis, Policy development, State programs

Sonnier C. 1991. Implementing early intervention services for infants and toddlers with disabilities (P.L. 101-476, Part H). Denver, CO: National Conference of State Legislatures, 34 pp.

Annotation: This report informs state legislators about the federal Part H program that provides funds to plan and implement early intervention services for children from birth through the age of two years and their families. It discusses the costs and benefits of early intervention, policy considerations, and financing the services.

Contact: National Conference of State Legislatures, 7700 East First Place, Denver, CO 80230, Telephone: (303) 364-7700 Contact Phone: (303) 830-2054 Fax: (303) 364-7800 Web Site: http://www.ncsl.org Available from the website.

Keywords: Early intervention, Individuals with Disabilities Education Act, Part H

Harbin GL, Gallagher JJ, Lillie T, Eckland J. 1991. Status of states' progress in implementing Part H of IDEA: Report no. 3. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 28 pp.

Harbin G, Danaher J, Bailer D, Eller S. 1991. Status of states' eligibility policy for preschool children with disabilities. Chapel Hill, NC: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, 34 pp.

Annotation: This report presents the findings of a study that analyzed the current status of the states' eligibility policies for children with disabilities, age 3 through 5. It provides background to the legislation involved, looks at issues related to the development of eligibility policy, explains the methodology of the study, and presents results and conclusions.

Contact: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, University of North Carolina at Chapel Hill, 300 NationsBank Plaza, Chapel Hill, NC 27599, Telephone: (919) 962-7374 Available from the website.

Keywords: Access to health care, CSHCN programs, Children with special health care needs, Eligibility, Individuals with Disabilities Education Act, Part B, Policy analysis, Preschool children
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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.