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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 21 through 33 (33 total).

Dowds DV, Graham MA. 1989. Prevention of handicapping conditions in Florida's infants and toddlers: A proposed definition of at-risk. Tallahassee, FL: Florida Developmental Disabilities Planning Council, 79 pp.

Annotation: The report presents the findings of an expert panel convened in Florida to define at-risk children, ages birth to two, as beneficiaries of early intervention services to prevent/minimize developmental delays. The report examines current definitions and services for at-risk infants and toddlers and discusses the need for identifying a more targeted population to receive presently available intervention services. Recommendations from the panel's findings will be incorporated into Florida's administration of the Education of the Handicapped Act Amendments of 1986, Part H (P. L. 99-457, Part H).

Keywords: Children with special health care needs, Developmental disabilities, Early intervention, Education of the Handicapped Act Amendments of 1986, Part H, Federal legislation, High risk populations, High risk toddlers, Infants

Intriligator BA, Goldman H. 1989. The Part H initiative: Towards a community-based service delivery system for infants and toddlers with handicaps and their families. Arlington, VA: ICA, 146 pp.

Annotation: This is a report of a study of state and local planning for the development of services for services and toddlers with handicaps and their families as required by the Education of the Handicapped Act Amendments of 1986, Part H (P.L. 99-457, Part H). The focus of this report is on the local community, where services will be delivered. Planning and policy issues discussed include: information and accessibility, local planning issues and concerns, state and local relationships, developing a community-based service system, and technical assistance for planning.

Contact: ICA, 1901 N. Moore St. Suite LL-01 , Arlington, VA 22209, Telephone: (703) 527-7888 Fax: (703) 527-9866 E-mail: [email protected] Web Site: http://www.inlinguadc.com/ Available from the website.

Keywords: Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Federal legislation, Interagency cooperation, Part H, State programs

Gossert D. 1989. Family Assessment Project: [Final report]. Denver, CO: Colorado Department of Health , 19 pp.

Annotation: This project developed and refined a family assessment questionnaire and data base, collected data on previously unsurveyed populations of chronically ill children, established the prevalence rate of psychosocial distress among families with chronically ill children, and assessed their readiness for intervention. The goal was to separate out those families at high risk who were not connected to any agency from those at high risk who were using community services. Those high-risk, unconnected families were to have first priority for social work intervention. Through this screening process, scarce staff time was to be directed to those families most in need of services. Services were to be targeted for the coordination of all the agencies involved with a family. Intervention was based on communication from the family. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-149672.

Keywords: Coordination of Health Care, Data Bases, Families, Handicapped, Hemophilia, Parent Education, Screening Tools, Social Work

Smith B, ed. 1988. Mapping the future for children with special needs: P.L. 99-457. Iowa City, IA: University of Iowa University Affiliated Programs, 150 pp.

Annotation: This publication of the American Association of University Affiliated Programs (AAUAP) Early Intervention Consortium is intended to address the needs of decision-makers involved in implementing P.L. 99-457, Part H (Education of the Handicapped Act), including the populations to be served, childfind efforts, family evaluations, services, funding, training, and administrative issues.

Keywords: Children with special health care needs, Early intervention services, Education of the Handicapped Act, Federal legislation, Part H

Schrag E. 1988. Sensitivities, skills, and services: Mental health roles in the implementation of part H of PL 99-457, The Education of the Handicapped Act amendments of 1986. Rockville, MD: National Institute of Mental Health, 20 pp. (An issue paper)

Annotation: This publication provides a discussion of three topics related to mental health services related to the Education of the Handicapped Act, P.L. 99-457, Part H: (1) the population of infants and toddlers who should receive mental health attention and services through P.L. 99-457 and other programs; (2) elements of a continuum of mental health services; and (3) possible roles and responsibilities for mental health professionals and agencies serving infants, toddlers, and their families within the framework of P.L. 99-457. It presents a continuum of care model and includes a summary of P.L. 99-457. [Funded by the Maternal and Child Health Bureau]

Contact: National Institute of Mental Health, Child and Adolescent Service System Program, 5600 Fishers Lane, Room 11C-09, Rockville, MD 20857, Available from the website.

Keywords: Education of the Handicapped Act, Part H, Infants, Mental health, Special education, Toddlers, Young children

Fox HB, Neiswander L. 1988. Private health insurance financing for early intervention services. Washington, DC: Fox Health Policy Consultants, 89 pp.

Annotation: This report aims to assist states in examining the use of private health insurance financing for services for young children with special health care needs under the Education of the Handicapped Act, Part H. It reviews the statutory requirements of Part H; discusses the rate of health insurance protection among children; the types of coverage they are likely to have, and the early intervention service benefits typically available; and examines the policy issues that states will need to address. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Policy Research Center, 750 17th Street, N.W., Suite 1100, Washington, DC 20006-4607, Telephone: (202) 223-1500 Fax: (202) 496-9067 Price unknown.

Keywords: Children with special health care needs, Early intervention services, Education of the Handicapped Act, Part H, Health care financing, Health insurance, Young children

Cohen P. 1988. A Longitudinal Study of Service Usage by a Rubella Cohort [Final report]. New York, NY: Research Foundation for Mental Hygiene, 164 pp.

Annotation: This was the fourth wave of a longitudinal cohort study. The aim was to follow a cohort with congenital rubella as they became young adults. 119 survivors of the 1963-65 New York City rubella epidemic were interviewed along with their parents. A broad range of information was obtained including: (1) current level of functioning; (2) problems; (3) prospects for the future; (4) experience with services and with alternative residential and educational models; (5) need for services during different periods of their lives; (6) availability of services; and (7) utility of these services. In addition, burdens and benefits to the family, associated with having a child with congenital rubella, as well as coping mechanisms were assessed. The study determined that deaf youth in their young adult years seem surprisingly cut off from social resources and that there was a high level of distress and expressed need for help on the part of mothers of multihandicapped youth. In addition, the project found some potentially important differences between the responses of mainstreamed youth and their parents. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB89-220917.

Keywords: Adolescents, Deaf, Handicapped, Mental retardation, Rubella

Fox HB, Yoshpe R. 1987. Medicaid financing for early intervention services. Washington, DC: Fox Health Policy Consultants, 85 pp.

Annotation: This document addresses the funding of early intervention services that are authorized in the Education of the Handicapped Act, Part H. It addresses the development and financing of these services, financial arrangements under existing programs, opportunities for Medicaid financing, and some implementation issues. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Policy Research Center, 750 17th Street, N.W., Suite 1100, Washington, DC 20006-4607, Telephone: (202) 223-1500 Fax: (202) 496-9067

Keywords: Children with special health care needs, Early intervention services, Education of the Handicapped Act, Part H, Federal legislation, Medicaid

Shelton TL, Jeppson ES, Johnson BH. 1987. Family-centered care for children with special health care needs. (2nd ed.). Washington, DC: Association for the Care of Children's Health, 74 pp.

Annotation: This book discusses the elements of family-centered care, reviews the research in this area, and provides checklists for implementing family-centered care. In addition, family-centered care technical assistance, programs, and audiovisual and written materials are listed. A subsequent version of this book is called "Family-centered Care for Children Needing Specialized and Developmental Services." [Funded by the Maternal and Child Health Bureau]

Keywords: Child health, Children with special health care needs, Community based services, Education of the Handicapped Act Amendments of 1986, Family centered care, Family support, Federal legislation

Agosta J, O'Neal M, Toubbeh J, eds. 1987. A path to peace of mind: Providing exemplary services to Navajo children with developmental disabilities and their families. Window Rock, AZ: Save the Children Federation, Navajo Field Office, 62 pp.

Annotation: This report presents the findings of a joint project of the Navajo Tribal Council and the Save the Children Federation. The project had as its goal the improvement of services for children with developmental disabilities living in or near the Navajo nation. The report offers 16 policy recommendations related to the needs of children with disabilities ages 0–5 years and their families.

Keywords: American Indians, Children with special health care needs, Developmental disabilities, Education of the Handicapped Act Amendments of 1986, Family support, Federal legislation

U.S. Congress. 1986. Public Law 99-457, October 8, 1986. Washington, DC: U.S. Congress, 31 pp.

Annotation: This document contains the text of Public Law 99-457, also known as Education of the Handicapped Act Amendments of 1986. The Education of the Handicapped Act was amended to reauthorize the discretionary programs under that Act, authorize an early intervention program under that Act for handicapped infants and toddlers and their families, and for other purposes.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHB250.

Keywords: Children with developmental disabilities, Children with special health care needs, Early intervention services, Education of the Handicapped Act Amendments of 1986, Federal legislation, Infants with developmental disabilities, Learning disabilities

U.S. Department of Education, Division of Educational Services, Special Education Programs. 1985. To assure the free appropriate public education of all handicapped children: Annual report to Congress on the implementation of the Education of the Handicapped Act. [Washington, DC]: U.S. Department of Education, Office of Special Education and Rehabilitative Services, 299 pp.

United States Civil Service Commission . 1969. Handbook of selective placement in federal civil service employment of the physically handicapped, the mentally restored, the mentally retarded, the rehabilitated offfender . Washington, DC: United States Civil Service Commission, 48 pp.

Annotation: This handbook describes the federal government's Selective Placement Program aimed at optimizing federal employment opportunities for handicapped individuals. Intended as a reference for those involved in the Selective Placement program, the handbook broadly defines the term "handicapped" to include those with physical and/or mental limitations and encourages employers to focus on abilities and skills, rather than disabilities. The handbook provides an overview of the Selective Placement Program, applicable regulations, and suggestions to help employers refer, place, and retain individuals in positions that best match their abilities.

Contact: Google Books, Web Site: http://www.books.google.com

Keywords: Disabilities, Employment, Federal initiatives, Mental retardation, Physically handicapped, Supported employment, Work force
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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, univerity, state, and federal funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.