Search Results: MCHLine

Annotation: This case study examines how Iowa's Title V Children and Youth with Special Health Care Needs (CYSHCN) program has implemented the National Standards for Systems of Care to build family leadership and partnerships. The program, influenced by disability rights advocate Julie Beckett (mother of Katie Beckett, for whom the Medicaid waiver was named), uses the National Standards as a framework to ensure families are active partners in decision-making at all levels of care. Key initiatives include the Iowa Family Leadership Training Institute (IFLTI), which has trained over 50 parents and caregivers since 2016 in advocacy skills, and the Iowa Family Advisory Council (FAC), established in 2014 to guide policies and programs. The program utilizes both Version 1.0 and 2.0 of the National Standards to help families advocate within health systems and to assess program performance, with a particular focus on ensuring culturally and linguistically appropriate care coordination. The case study also demonstrates how embedding these standards throughout practices helps promote family perspectives in care systems and supports peer-to-peer family support networks.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, Standards, Case studies, Iowa, Family support services, Children with special health care needs

Annotation: This tip sheet for providers supporting parents or caregivers offers guidance on selecting appropriate telehealth providers, particularly for specialized services like pediatric psychiatry for children with autism. It emphasizes the importance of thorough provider vetting through licensing boards, health plan networks, and specific board guidelines for telehealth services. The document pays special attention to autism diagnosis via telehealth, comparing different assessment tools: the M-CHAT (Modified Checklist for Autism in Toddlers) and CARS (Childhood Autism Rating Scale) screenings are noted as being well-suited for telehealth delivery, while the ADOS-2 (Autism Diagnostic Observation Schedule-Second Edition) diagnostic tool presents more challenges due to its interactive nature, requiring additional preparation and parent training to be administered remotely. Considerations for selecting providers-- e.g., technical setup quality and ability to maintain effective rapport with young patients-- are included.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Resources for professionals, Telemedicine, Title V programs, Family support services, Family centered care, Autism

Annotation: This information package provides a comprehensive guide for organizations planning to implement a telehealth program, using the example of behavioral health services for children with autism ages 2-18. It outlines key initial considerations through a series of essential questions, including identifying the target population, addressing specific barriers to care, determining service delivery locations, assessing payer coverage policies, evaluating technology requirements, and considering community support. The document also details six additional considerations for program implementation: utilizing Telehealth Resource Centers for guidance; securing funding sources for start-up costs; finding qualified providers; developing efficient workflows; ensuring staff buy-in through early involvement and adequate training; and providing education to families and caregivers. The example case demonstrates how these elements come together under specific Medicaid requirements, emphasizing the importance of meeting criteria for live video services, approved service locations (FQHCs - Federally Qualified Health Centers - and schools), and provider licensing requirements.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telemedicine, Title V programs, Family support services,

Annotation: This poster illustrates how the Minnesota Act Early and the Minnesota Department of Health cooperated to increase early childhood developmental screenings in their state. It outlines how the project trained parent leaders from Hmong, Somali, and Latino communities to promote awareness of developmental milestones and early intervention services. The document highlights the project's components, including recruitment of community leaders, customized cultural materials, and outreach through various channels such as radio stations and community events. The project involved partnerships between the Minnesota Department of Health, University of Minnesota, and several community organizations to integrate culturally appropriate developmental screening messages across diverse communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Minnesota, Developmental screening, State CSHCN programs, Posters, Family support services, Children', s health

Annotation: This report from the Washington State Department of Health provides insights into how telehealth can improve access to services for children with autism spectrum disorder and other developmental disabilities, particularly in underserved and rural areas. Funded by the AS3D (Autism Spectrum Disorders and Other Developmental Disabilities) federal grant, the goal of this initiative is to increase early diagnosis and service entry for these populations by leveraging telehealth. To better understand how families access and use telehealth, a survey was conducted in 2017, focusing on caregiver access to technology, interest in telehealth, and the barriers they face. The survey analyzed responses from 118 caregivers, with 94.4% being mothers and 42% on Medicaid insurance. Survey respondents discuss barriers and benefits of telehealth care, their child’s engagement with telehealth compared to in-person visits, insurance coverage, and their desire for more information on various topics. Overall, this assessment underscores the potential of telehealth to bridge gaps in service access for children with special health care needs, while highlighting the importance of addressing caregiver concerns about technology, security, and insurance coverage to ensure broader telehealth adoption.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telehealth, Washington, Autism, State CHSCN programs, Surveys, Family support services, Children', s health

Annotation: This 2017 report from Washington State's AS3D (Autism Spectrum Disorders and Other Developmental Disabilities) Initiative examines the potential for expanding telehealth services for children with autism spectrum disorders and other developmental disabilities. The assessment, which included provider capacity surveys, key informant interviews, and family/caregiver feedback, the reveals significant barriers to telehealth implementation. Despite these challenges, both providers and caregivers expressed interest in telehealth and the document highlights the benefits that can be achieved by the successful implementation of a telehealth program.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telehealth, Washington, Autism, State CHSCN programs, Surveys, Family support services, Children', s health

Annotation: This infographic discusses the lessons learned from the 2018 SPHARC Peer-to-Peer Exchange on using telehealth to connect children and their families, self-advocates, and providers for individuals with Autism Spectrum Disorder (ASD) and Developmental Disabilities (DD). Discussion points include the advantages of and barriers to telehealth, as well as the need for early and continuous intervention services. Lessons emphasize the importance of meaningful inclusion of self-advocates, addressing the unique challenges of family advocates, and showcasing innovative state grantee solutions. The document concludes with priority action items for states and the need to explore culturally competent care solutions to address the needs of diverse communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Autism, Telemedicine, Family support services, Delaware, Rhode Island, Washington, Wisconsin, Maryland, Iowa, New Hampshire, Minnesota, Texas, Virginia

Annotation: This case study examines how New York State's Title V program leveraged the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) as a framework for improving healthcare delivery and system analysis. Operating through the Division of Family Health within the New York State Department of Health, the program conducted an extensive systems mapping project that included interviews with over 130 diverse families of CYSHCN. This comprehensive analysis revealed the primary needs for improvement, and highlights how New York aligned its improvement efforts with both the National Standards and other guidelines like the American Academy of Pediatrics' Bright Futures, while emphasizing family engagement as a core principle. The state found that linking their work to the National Standards enhanced stakeholder support and plans to continue using this framework to strengthen their healthcare system, ensuring consistency, equal access, and comprehensive support for CYSHCN and their families.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V Programs, New York, Standards, Data Analysis, Family Support Services, CHSCN programs

Annotation: This case study describes New Mexico's implementation of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN). It explains how the state's Title V program, housed within the Department of Health's Family Health Bureau, integrated these standards into its framework and action plans. The document highlights New Mexico's participation in an Action Learning Collaborative that brought together diverse stakeholders from Medicaid, managed care organizations, the family-to-family organization, and the Quality Improvement Partnership to establish common objectives. These objectives included developing a standard CYSHCN definition for Medicaid contracts, creating youth transition best practices, expanding family engagement, and strengthening medical homes with better care coordination. Key lessons learned and recommendations for next steps are included.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V Programs, New Mexico, Standards, Family Support Services, Medical Home, State CHSCN programs, Staff Development

Annotation: This fact sheet examines how health affects school readiness. Topics include oral health and learning and how having a healthy family supports healthy child development. The fact sheet also explores how comprehensive services ensure that children are ready for school and how coordinated systems support health services. It is available in English and in Spanish.

Contact: National Center on Early Childhood Health and Wellness, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (888) 227-5125 E-mail: [email protected] Web Site: https://headstart.gov/about-us/article/national-center-health-behavioral-health-safety-nchbhs Available from the website.

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Keywords: Child development, Child health, Child mental health, Child safety, Family support services, Head Start, Infant health, School readiness, Spanish language materials, Young children

Annotation: This fact sheet describes the role of school nurses in improving student academic achievement and decreasing absenteeism by helping students with chronic health conditions manage their condition. Topics include providing direct care such as giving children medications, providing case management, and advocating for students and their families to help them get the resources and support they need.

Contact: National Center for Chronic Disease Prevention and Health Promotion, Division of Population Health, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov/NCCDPHP/dph Available from the website.

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Keywords: Academic achievement, Case management, Chronic illnesses and disabilities, Disease management, Elementary schools, Families, Family support services, Health services delivery, Homeless persons, Program coordination, Role, School age children, School nurses, Students

Annotation: This report describes early childhood trauma and its effects, offers promising strategies for early care and education (ECE) programs and systems to help young children who have experienced trauma, and presents recommendations for state policymakers and other stakeholders looking to support trauma-informed ECE for this group.

Contact: Child Trends , 7315 Wisconsin Avenue, Suite 1200 W, Bethesda, MD 20814, Telephone: (240) 223-9200 E-mail: Web Site: http://www.childtrends.org Available from the website.

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Keywords: Chlld care, Community based services, Early childhood education, Family support services, Policy development, Service integration, Systems development, Trauma care, Vulnerability, Work force, Young children

Annotation: This checklist serves as a resource for caregivers of children recently diagnosed with Autism Spectrum Disorder (ASD). It outlines emotional responses to the diagnosis, conversation starters for discussions with families, and provides essential resources and support options available in Rhode Island. This document is a tool for caregivers navigating the complexities of an ASD diagnosis. It promotes emotional processing, fosters supportive communication, and connects families to essential local resources, helping to ease the transition into understanding and managing their child's needs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Rhode Island, Autism, Family support services

Annotation: This presentation describes The Autism Project's toolkit for family support. It outlines the program's primary goal to improve Rhode Island's system-level of care integration for children and youth with Autism Spectrum Disorder and Developmental Disabilities, and their families. The presentation details the "Creating the Connections" initiative that works across core communities in Rhode Island, strengthening existing resources through Family Support Specialists who provide navigation services, education, and direct support to families. The toolkit includes training modules, intervention methodologies, resource sharing, and family-centered approaches that emphasize listening, empathy, and responsive support tailored to individual family needs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Rhode Island, Autism, Family support services

Annotation: This PowerPoint presentation provides an overview of how family navigation services have developed in Rhode Island, focusing on the roles and impacts of three key organizations in supporting families of children with special healthcare needs, particularly those with autism. The information concerns the Autism Project's Family Support Program, the RI Department of Health's PPEP (Pediatric Practice Enhancement Project) and their interaction with RIPIN (Rhode Island Parent Information Project, an organization created by parents for families of children with special healthcare needs). The presentation details both system-level and individual-level evaluations, utilization analyses, and projections of cost savings from these integrated systems, emphasizing the importance of family support in healthcare. The evaluation framework and family support programming detailed in this document highlight the importance of integrated care systems in improving outcomes for individuals with disabilities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Rhode Island, Autism, Family support services

Annotation: These training modules are designed to help direct service providers engage transition age youth (ages 14–29) with serious mental health challenges in services. Each module includes information on key topics, video clips, interactive questions, and a quiz. Topics include partnering with youth and young adults; promoting recovery; increasing cultural awareness and building community support; fostering resilience and family support; promoting cross-cultural and intergenerational relationships; providing individualized and developmentally appropriate services; developing healthy relationships; planning partnerships with providers of other services and collaborating to bridge service gaps; promoting support from family, peers, and mentors; and using evidence-supported practices and individualizing interventions. An accompanying toolkit provides practice scenarios, video segments, role plays, and questions to help participants apply their learning to practice in their local context.

Contact: Research and Training Center for Pathways to Positive Futures, Portland State University, Portland, OR Web Site: http://www.pathwaysrtc.pdx.edu Available from the website.

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Keywords: Adolescents, Collaboration, Competency based education, Continuing education, Families, Family support programs, Health services delivery, Mental health, Multimedia, Peer support programs, Public private partnerships, Relationships, Resilience, Training, Transition planning, Young adults

Annotation: This online, searchable database is designed to provide program planners and public health practitioners with easy and immediate access to evidence-based cancer control interventions and program materials. Program areas include breast, cervical, colorectal, and prostate cancer screening; diet and nutrition; HPV vaccination; informed decision making; obesity; physical activity; public health genomics; sun safety; survivorship/supportive care; and tobacco control.

Contact: National Cancer Institute, 6116 Executive Boulevard, Suite 300, Bethesda, MD 20892-8322, Telephone: (800) 422-6237 Secondary Telephone: Fax: (301) 402-0555 E-mail: [email protected] Web Site: http://www.cancer.gov Available from the website. Document Number: NIH Pub. No. 12-7617.

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Keywords: Breast cancer, Cervical cancer, Colon cancer, Decision making, Disease prevention, Evidence based medicine, Family support programs, Genomics, Human papillomavirus, Informed consent, Nutrition, Obesity, Online databases, Peer support programs, Physical activity, Prevention programs, Preventive health services, Risk factors, Screening, Smoking, Sun exposure, Survivors, Tobacco use, Vaccines

Annotation: This report summarizes existing evidence on family intervention strategies for youth experiencing or at risk of homelessness. The report includes a summary of common elements of effective interventions and a discussion of gaps in the evidence base. Key implementation lessons and challenges of implementing family intervention models are also included. The appendices contain information abuot the literature review methodology; key informants; and program descriptions including evidence-based, evidence-informed, promising, and emerging interventions as well as interventions of interest and those with mixed findings.

Contact: Urban Institute, 500 L'Enfant Plaza, SW, Washington, DC 20024, E-mail: https://www.urban.org/about/contact-us Web Site: http://www.urban.org Available from the website.

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Keywords: Family support services, Homeless persons, Homelessness, Interventions, Model programs, Youth services

Annotation: This report examines the proportion and characteristics of Medicaid beneficiaries served in fee-for-service arrangements and federal and state resources to help them find participating providers and report related challenges. A discussion of state actions to address access challenges is included. The report addresses medical care and specialty services such as behavioral/mental health care, oral health care, vision care, pharmacies, and ancillary services such as transportation and translation and sign language services.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 E-mail: [email protected] Web Site: http://www.gao.gov Available at no charge. Document Number: GAO-16-809.

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Keywords: Access to health care, Barriers, Consumer satisfaction, Family support services, Hotlines, Information sources, Low income groups, Medicaid, Oral health, Provider participation, Service delivery systems, State programs

Annotation: This fact sheet for people who assist health care consumers living in rural areas provides information about health insurance eligibility and enrollment barriers and what assisters can do to bolster education and outreach efforts in rural areas. Scenarios and resources are included.

Contact: U.S. Centers for Medicare & Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Telephone: (800) 633-4227 Secondary Telephone: (877) 267-2323 Fax: Web Site: https://www.cms.gov Available from the website.

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Keywords: Access to health care, Barriers, Communication, Community participation, Costs, Family support services, Health insurance, Outreach, Relationships, Resources for professionals, Rural populations, Transportation, Trust