Search Results: MCHLine

Annotation: This report identifies key policy flexibilities enacted during the COVID-19 public health emergency. It summarizes stakeholders' perspectives about the impact of the pandemic and policy flexibilities on children and youth with special health care needs and their families and providers. The authors present recommendations for continuing or ceasing temporary policy changes after the public health emergency, as well as new policies and actions to best support children and youth with special heath care needs and their families.

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Keywords: Access to health care, Children with special health care needs, Family support, Federal initiatives, Infectious diseases, Medicaid, Mental health, Telehealth, Virus diseases, Work force

Annotation: This report provides practical recommendations for providers, payers, and policy makers to consider in adopting approaches to transform child health care delivery. The report is a product of the Accelerating Child Health Transformation initiative, which works to identify, test, and disseminate a comprehensive and adaptable set of blueprints that can be used to transform child health care services to lead to improved child and family well-being, as well as racial equity. The Center for Health Care Strategies identified three key strategies that are integral to child health care transformation: adopting anti-racist practices and policies to advance health equity; co-creating equitable partnerships with patients, families, and providers; and identifying family strengths and addressing health-related social needs to promote resilience.

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Keywords: Access to health care, Child health, Family centered services, Family health, Family support programs, Health care disparities, Health status disparities, Policy development

Annotation: In this video presentation, AMCHP's Evidence and Implementation team discusses practical approaches for incorporating partners, families, and individuals with lived experience into program development and evaluation processes, with careful consideration of organizational resources and capabilities. Featured speaker Becky Burns, who serves as the Statewide Coordinator for Wisconsin Children and Youth with Special Health Care Needs, shares insights on implementing these engagement strategies effectively while working within the constraints of available organizational capacity.

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Keywords: Children with special health care needs, Youth with special health care needs, Epidemiology, Program evaluation, Staff development, Family support services

Annotation: This report focuses on the financial hardships facing families raising children on the autism spectrum. It discusses disability and sociodemographic characteristics of children with autism spectrum disorders, levels of family financial hardship, and safety net program use. Recommendations are included. [Funded by the Maternal and Child Health Bureau]

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Keywords: Autism, Children with special health care needs, Family support services, Financial barriers, Financial support, Statistics

Annotation: These guidelines were developed by a Curriculum Workgroup in June 2016, reviewed by FPSS Advisory in July 2016, and field-tested by FPSS practitioners and their supervisors in March 2017, with the program being administered through the University of Iowa Healthcare's Iowa Peer Support Training Program. This report outlines the comprehensive scope of practice for Family Peer Support Specialists (FPSS) in Iowa, organized into five main categories. It outlines comprehensive professional guidelines starting with core ethical responsibilities and professionalism, followed by family engagement strategies, teaching and support methods, advocacy and resource navigation, and additional optional training opportunities. Notable elements include maintaining confidentiality, utilizing personal lived experience, practicing trauma-informed care, providing documentation, supporting families through various systems, and offering practical assistance.

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Keywords: Iowa, Children with special health care needs, Family support services, Staff development

Annotation: From the 2020 AMCHP/SPARC Peer to Peer Exchange, this presentation outlines the comprehensive training program for Family Peer Support Specialists (FPSS) in Iowa, detailing four key components: a 25-hour in-person skills training covering essential topics like cultural responsiveness, boundaries, and advocacy; specific training tools including active listening skills and the "assertion sandwich" technique for communication; supervisor training focusing on workforce management and best practices; and continuing education opportunities in areas such as ethics, mental health, and trauma. The slides also describe the development of a credentialing process through the Iowa Board of Certification, noting that Iowa is among the few states offering FPSS credentials, with the program's role including training verification and exam administration. This structured approach ensures that FPSS professionals receive comprehensive preparation for supporting families while maintaining professional standards and continuing professional development.

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Keywords: Iowa, Children with special health care needs, Family support services, Staff development

Annotation: This presentation details the certification program for Family Navigators in Iowa, including its online curriculum covering 13 domains (from System of Care to Trauma-Informed Care), assessment methodology using a four-level proficiency scale (Aware to Proficient), and pilot project results showing significant growth in participant proficiency. The slides outline the program's formal certification and examination requirements, along with the reasons why certification (or recertification) should be sought. Positive outcomes of the program are also discussed, noting increased professional confidence and knowledge base among participants, while highlighting the Division's support through covering certification costs. This presentation was given at the 2020 AMCHP/SPARC Peer to Peer Exchange.

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Keywords: Iowa, Children with special health care needs, Family support services, Staff development

Annotation: This case study examines how Iowa's Title V Children and Youth with Special Health Care Needs (CYSHCN) program has implemented the National Standards for Systems of Care to build family leadership and partnerships. The program, influenced by disability rights advocate Julie Beckett (mother of Katie Beckett, for whom the Medicaid waiver was named), uses the National Standards as a framework to ensure families are active partners in decision-making at all levels of care. Key initiatives include the Iowa Family Leadership Training Institute (IFLTI), which has trained over 50 parents and caregivers since 2016 in advocacy skills, and the Iowa Family Advisory Council (FAC), established in 2014 to guide policies and programs. The program utilizes both Version 1.0 and 2.0 of the National Standards to help families advocate within health systems and to assess program performance, with a particular focus on ensuring culturally and linguistically appropriate care coordination. The case study also demonstrates how embedding these standards throughout practices helps promote family perspectives in care systems and supports peer-to-peer family support networks.

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Keywords: Title V programs, Standards, Case studies, Iowa, Family support services, Children with special health care needs

Annotation: In this video presentation from Bright Futures, the presenters showcase initiatives and resources related to medical homes and care transitions, featuring specific examples from Virginia's Got Transition family toolkit and New Mexico's family-centered medical home programs. Representatives from Resource Centers share comprehensive overviews of their National Performance Measures (NPMs) related work, followed by detailed state presentations. The content includes an overview of Bright Futures, with particular attention to its medical home components and the newly released 4th edition Resource Kit, along with its website containing extensive state and community resources. The presentation also covers implementation tools focusing on social determinants of health and highlights AMCHP's implementation toolkits, providing practical guidance for program development and execution. Length: 1 hour, 32 mins.

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Keywords: Bright Futures, Medical home, Case studies, New Mexico, Virginia, Transition planning, Family centered health care, Children with Special Health Care Needs, Title V, Autism

Annotation: This white paper approaches family involvement from the perspective of the family discipline itself, and the ongoing paradigm shift in family-centered care--from fringe to fabric. This document includes a summary of the history of family involvement in the LEND network and a series of 8 individual handouts which detail the definition, need, benefits, resources and strategies associated with each type of family involvement.

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Keywords: Children with developmental disabilities, Family centered care, Parent participation

Annotation: This article discusses the origins and history of patient- and family-centered care; provides as overview of several existing frameworks for patient-centeredness; and highlights several strategies for promoting coproduction in Hospital Medicine, organized around 4 key tenets (cocommissioning, codesign, c-delivery, and coassessment).

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Keywords: Child health, Family centered care, Hospital services, Patient care

Annotation: This document describes the modified adjusted gross income (MAGI) methodology for evaluating eligibility for health care affordability program applicants and enrollees. It also provides guidance on implementing and governing the methodology. Topics include Medicaid and Children's Health Insurance Program (CHIP) populations and eligibility categories subject or exempted from MAGI, determination of countable income, household composition in the marketplace vs. Medicaid/CHIP, household scenarios, MAGI conversion for Medicaid and CHIP, state options for the transition to MAGI-based eligibility systems, and MAGI and the single streamlined application. An accompanying webinar, The World According to MAGI, covers the ins-and-outs of the rules by working through hypothetical family scenarios.

• 2018 Update

Keywords: Applications, Children, Eligibility determination, Families, Family income, Federal initiatives, Health care reform, Health insurance, Patient Protection and Affordable Care Act, State programs

Annotation: This report describes early childhood trauma and its effects, offers promising strategies for early care and education (ECE) programs and systems to help young children who have experienced trauma, and presents recommendations for state policymakers and other stakeholders looking to support trauma-informed ECE for this group.

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Keywords: Chlld care, Community based services, Early childhood education, Family support services, Policy development, Service integration, Systems development, Trauma care, Vulnerability, Work force, Young children

Annotation: This report provides a snapshot of Title V Children and Youth with Special Health Care Needs (CYSHCN) programs across the United States. Contents include background and history of CYSHCN programs, recent changes affecting CYSHCN programs, and methods and results from an electronic survey of Title V CYSHCN directors to assess key characteristics of each state's CYSHCN program. Topics include program structure and strengths, roles in systems of care, CYSHCN program partnerships, financing of care for CYSHCN populations and emerging issues for CYSHCN programs.

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Keywords: Advocacy, Children with special health care needs, Community based services, Consultation, Cultural competency, Data, Family centered care, Financing, Health care delivery, Health care reform, Health care systems, Health insurance, Leadership, Medicaid managed care, Models, Networking, Pediatric care, Policy development, Program coordination, Program development, Public health infrastructure, Public private partnerships, Quality assurance, Reimbursement, Role, Standards, State MCH programs, Title V programs

Annotation: This report summarizes an assessment of obesity prevention content in states' child care licensing regulations for child care centers, large or group family child care homes, and small family child care homes. Regulations were assessed for text consistent with best practices drawn from selected standards in Caring for Our Children: National Health and Safety Performance Standards: Guidelines for Early Care and Education (3rd ed.). Topics include national results, changes specific to states that made changes in the current year, states' results, and conclusion. A supplement to include supporting information and additional results related to the assessment is also available. [Funded by the Maternal and Child Health Bureau]

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• Previous Editions

Keywords: Assessment, Child care, Family child care, Licensing, Obesity, Policy development, Program improvement, Regulations, Standards

Annotation: This chartbook for families, advocates, policymakers, and researchers provides a national portrait of how children in the United States receive their diagnosis of autism spectrum disorder (ASD), how their daily lives are impacted, and how their families are doing. Topics include the prevalence of ASD, diagnosing ASD, the child's health, health care and related services, school and social wellbeing, and coping with ASD. The appendices contain information on the ASD data presented in the chartbook including a glossary, a crosswalk of the data sources, methodological information, and guidance for accessing the data. [Funded by the Maternal and Child Health Bureau]

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Keywords: Adolescent health, Adolescents with special health care needs, Autism, Child health, Child with special health care needs, Coping, Data sources, Diagnosis, Early intervention services, Family health, Prevalence, Relationships, Special health care services, Statistical data

Annotation: This final report presents a vision for realigning organizations, communities, and priorities to identify and support children at highest risk of abuse or neglect fatality. Contents include recommendations for addressing the needs of American Indian/Alaska Native children and reducing child abuse and neglect deaths in disproportionately affected communities, improving leadership and accountability, grounding decisions in better data and research, and enhancing multidisciplinary support for families. A report fact sheet, social media toolkit, public meeting materials, deliberations, and resources on child abuse and neglect fatalities and National Child Abuse Prevention Month are also available.

• Final Report
• Report Fact Sheet, Social Media Toolkit, Public Meeting Materials, Deliberations, Resources

Keywords: Alaska Natives, American Indians, Child abuse, Child death, Child neglect, Children, Decision making, Family centered care, Injury prevention, Leadership, Multidisciplinary approach, National initiatives, Program improvement, Resources for professionals, Strategic plans, Systems development, Welfare reform

Annotation: This flip book for health professionals to share with parents covers the basics of good oral health in infants and young children. Each page is double-sided and designed as a teaching tool. The patient-facing pages feature simple text (in English and in Spanish) and pictures and illustrations to educate families. On the back of the intended to complement the materials that home visitors use with families and can be incorporated into topics that home visitors address with families. Topics include the importance of primary teeth, brushing and flossing, eating healthy foods, drinking water, and visiting the dentist. Setting and reaching oral health goals and addressing oral health problems or emergencies are also discussed.

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Keywords: Dental caries, Disease prevention, Family centered care, Health education, Health promotion, Infants, Nutrition, Oral health, Oral hygiene, Patient education materials, Preventive health services, Spanish language materials, Young children

Annotation: This fact sheet for Title V programs, clinicians, and family leaders provides information about the potential effect of Medicaid and Children's Health Insurance Program (CHIP) managed care on children and youth with special health care needs (CYSHCN) and their families. Topics include requirements for managed care organizations in CHIP and opportunities to mitigate potential unintended negative consequences of Medicaid managed care for CYSHCN and their families. Promising practices and strategies from states are included. [Funded by the Maternal and Child Health Bureau]

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Keywords: Children, Contract services, Enrollment, Family centered care, Health care delivery, Health care reform, Medicaid managed care, Medical home, Model programs, Primary care, Service delivery systems, Special health care needs, State MCH programs, Youth

Annotation: This policy brief discusses the unique rural challenges related to opioid use disorder and the experiences of families in crisis and recommendations for federal action. Topics include the opioid epidemic as a national problem with rural differentials, opioid abuse trends in rural communities, substance abuse and child welfare, the role of federal block grants, and barriers to treatment and services. Opportunities for creating a stronger treatment system for opioid use disorders are also addressed including the role of support services, care coordination and mental health workers to address current shortages in rural communities, increasing the availability of treatment programs, and research. A case study from Indiana is included.

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Keywords: Access to health care, Barriers, Child welfare, Crisis intervention, Drug addiction, Family support services, Federal initiatives, Health care systems, Health policy, Interagency cooperation, Mental health, Opiates, Policy development, Program coordination, Rural population, Service coordination, Substance abuse prevention programs, Substance abuse treatment services, Substance use disorders, Systems development, Work force