Skip Navigation

Strengthen the Evidence for Maternal and Child Health Programs

Sign up for MCHalert eNewsletter

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 21 through 40 (212 total).

American Academy of Pediatrics. 2016. Blueprint for children: How the next president can build a foundation for a healthy future. Elk Grove Village, IL: American Academy of Pediatrics, 58 pp.

Annotation: This document outlines a vision for what the federal government can do to improve the lives of children. Contents include a child health policy agenda followed by specific recommendations for each of the relevant federal agencies and departments. Recommendations for administrative and congressional actions and funding priorities are included.

Keywords: Advocacy, Child health, Family centered care, Federal agencies, Financing, Health insurance, Health services, Legislation, Pediatric care, Policy development, Strategic plans

Damiano PC, Reynolds JC, McKernan SC, Mani S, Kuthy RA. 2015. The need for defining a patient-centered dental home model in the era of the Affordable Care Act. Iowa City, IA: University of Iowa, Public Policy Center, 32 pp.

Annotation: This report describes medical home and dental home models of care, Affordable Care Act–related health care system changes, and options for integrating oral health care and other health care. Topics include medical-dental integration approaches, features of highly integrated systems, integrating oral health into medical and health home models, integrating oral health into training programs, advantages and barriers to integration, and future directions for the patient-centered dental home.

Keywords: Family centered services, Health care delivery, Health care reform, Health insurance, Medical home, Model programs, Oral health, Oral health care, Patient Protection and Affordable Care Act, Patient care, Service coordination, Service delivery systems, Service integration

Lorenzo SB. 2014. Kids and teens with special health care needs: Family resource brief (2nd ed., upd.). Washington, DC: National Center for Education in Maternal and Child Health, 1 p.

National Center for Family / Professional Partnerships. 2014. Family-centered care assessment. Albuquerque, NM: National Center for Family / Professional Partnerships, multiple items.

Annotation: This resource describes a tool to help pediatricians and other health professionals improve family-centeredness of their care. The quality measurement questionnaire comprises 24 validated questions on topics such as decision-making interactions, family support, community services, and cultural competence. The resource includes information about using the Family-Centered Care Assessment (FCCA) for families, health care providers, and researchers; a FCCA fact sheet and project timeline; and links to a self-assessment tool and user guide for families and providers. Additional resources on family-centered care are included. [Funded by the Maternal and Child Health Bureau]

Keywords: Assessment, Cultural competence, Decision making, Family centered care, Family support services, Measures, Pediatric care, Program improvement, Quality assurance, Special health care needs

Building Bridges Initiative. 2014. Supporting siblings when a brother or sister is receiving residential interventions: Key issues and tips for providers and families. [no place]: Building Bridges Initiative, 11 pp. (A Building Bridges Initiative tip sheet)

Hughes D. 2014. A review of the literature pertaining to family-centered care for children with special health care needs. Palo Alto, CA: Lucile Packard Foundation for Children's Health, 32 pp.

Annotation: This document summarizes findings from a review of selected research related to family-centered care (FCC) for children with special health care needs (CSHCN). Contents include highlights from studies that examine the following components of FCC: family-provider partnerships, coordinated care, racial/ethnic and linguistic barriers, and culturally competent care. It also examines access, unmet need and satisfaction for CSHCN and outcomes of FCC and medical homes.

Keywords: Adolescents, Children, Culturally competent services, Ethnic factors, Families, Family centered care, Health care delivery, Language barriers, Literature reviews, Parent professional relations, Service coordination, Special health care needs

Georgia State University school of Public Health, Center for Leadership in Disability. 2014. Autism plan for Georgia. Atlanta, GA: Georgia State University school of Public Health, Center for Leadership in Disability,

Annotation: This resource outlines a plan for improving access to comprehensive, coordinated health care and related services for children, youth, and adults with autism spectrum disorder and related developmental disabilities in Georgia. The plan addresses the following ten areas of activity: early identification and screening; referral and diagnosis; medical, behavioral health, and dental services; family support; early intervention and preschool services; elementary and secondary education; community services and supports; transition from youth to adult systems; adult services and supports; and emergency preparedness and first responders. For each area, the report provides a definition, quality indicators (problem statements and data drivers), and recommendations (objectives). The report also describes foundational supports considered in developing the recommendations including work force, awareness, informational resources, finances, and policy. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Autism, Community based services, Comprehensive health care, Diagnosis, Disaster planning, Early intervention, Educational objectives, Family centered care, Family support services, Financial planning, Georgia, Health care delivery, Life course, Policy development, Program coordination, Referrals, Screening, Special health care needs, State programs, Systems development, Transition planning, Work force

Smith H, Yadrich D, Farley R. 2014. How to select a family delegate. Washington, DC: Association of Maternal and Child Health Programs, 3 pp. (AMCHP Issue Brief)

Annotation: This issue brief discusses the role of the Family Delegate in advocating for all families in their territories (including those with special health care needs), working with both families and local systems of care as an advisor, promoter, and educator. The brief explains the importance of the Family Delegate, the process by which this person might be selected, and provides two state examples (from Kansas and Arkansas) on the selection process and the benefits of the role in their localities.

Keywords: Advocacy, Family centered health care, Family support services, Title V programs, Arkansas, Kansas

Center on the Developing Child at Harvard University. 2013. Building adult capabilities to improve child outcomes: A theory of change. Cambridge, MA: Center on the Developing Child at Harvard University, 1 video (5 min. 19 sec.).

Annotation: This 5-minute video depicts a theory of change from the Frontiers of Innovation community for achieving breakthrough outcomes for vulnerable children and families. It describes the need to focus on building the capabilities of caregivers and strengthening the communities that together form the environment of relationships essential to children’s lifelong learning, health, and behavior.

Keywords: Audiovisual materials, Children, Community based services, Families, Family centered services, Family support services, Vulnerability

Nelson J, Yadrich D. 2013. Family caregivers of children with special health care needs: The need for caregiver support as truly family-centered care. Minneapolis, MN: University of Minnesota, Leadership Education in Neurodevelpomental and Related Disabilities Program, 4 pp.

Annotation: This fact sheet presents information on the importance of family caregiver support to the health and well-being of children and adolescents with special health care needs and their families throughout the life course. Topics include caregiving and the life course, parent perspectives, and recommendations for health professionals. [Funded by the Maternal and Child Health Bureau]

Keywords: Caregivers, Children with special health care needs, Family centered care, Family support services, Parent professional relations

Kavanaugh ML, Anderson RM. 2013. Contraception and beyond: The health benefits of services provided at family planning centers. New York, NY: Guttmacher Institute, 39 pp.

Annotation: This report summarizes research on the health benefits associated with services provided at family planning facilities, whether directly related to contraceptive care or to benefits resulting from other services received during a family planning visit. Drawing on an extensive literature review conducted in 2012, the report examines the health benefits associated with delaying, planning, and spacing pregnancies; the noncontraceptive health benefits of contraceptive methods (for example, reduced cancer risk and treatment for menstrual-related symptoms and disorders); and the health benefits of receiving noncontraceptive services at Family Planning Clinics. The appendices include a list of the studies and journal articles reviewed.

Keywords: Clinics, Contraceptive use, Family centered services, Family planning, Health services, Literature reviews, Maternal health, Research

Moursi A. 2013. Patient centered care. Chicago, IL: American Academy of Pediatric Dentistry, Pediatric Oral Health Research and Policy Center, 12 pp.

Annotation: This brief describes principles of and case studies on how patient- and family-centered care fit within the dental home. The brief also addresses health information technology and government programs that promote this care model. Finally, policy recommendations for patient- and family-centered care are presented. Topics include respect and cultural competence, integration and coordination of care, communication and information sharing, quality of care, and whole-person and comprehensive care.

Keywords: Cultural competence, Family centered care, Health services delivery, Oral health, Oral health care, Patient care management, Physician patient relations, Service integration

Henry H, Schor E. 2013. Teaching families to fish: How to support families as care coordinators. Palo Alto, CA: Lucile Packard Foundation for Children's Health, 2 pp. (Issue brief)

National Center for Chronic Disease Prevention and Health Promotion, Division of Population Health and SHAPE America. 2013. National framework for physical activity and physical education. Atlanta, GA: National Center for Chronic Disease Prevention and Health Promotion, Division of Population Health, 3 pp.

Annotation: This document presents a multi-component approach by which school districts and schools use all opportunities for students to be physically active; meet the nationally-recommended 60 minutes of physical activity each day; and develop the knowledge, skills, and confidence to be physically active for a lifetime. The document presents components of a comprehensive school physical activity program (CSPAP) to include quality physical education as the foundation; physical activity before, during, and after school; staff involvement; and family and community engagement Resources to support CSPAPs such as cross-cutting documents, data sources, assessment and policy tools, and topical resources are also included.

Keywords: After school programs, Community participation, Comprehensive programs, Family centered services, Family school relations, Interdisciplinary approach, Physical activity, Physical education, Prevention programs, Program improvement, Quality assurance, School age children, School districts, School health programs, Schools

Mitts L. 2013. Principles for consumer-friendly value-based insurance design. Washington, DC: Families USA, 6 pp.

National Center for Chronic Disease Prevention and Health Promotion, Division of Adolescent and School Health. 2012. Parent engagement: Strategies for involving parents in school health. Atlanta, GA: National Center for Chronic Disease Prevention and Health Promotion, Division of Adolescent and School Health, 27 pp.

Annotation: This guide describes strategies schools can take to increase parent engagement in promoting positive health behaviors among students. Contents include parent engagement in schools, how the strategies were developed, why parent engagement in schools is important, and how school staff can increase parent engagement in school health. The guide includes examples of ways school staff can connect with parents, provide parent support, communicate with parents, provide volunteer opportunities, support learning at home, encourage parents to be part of decision making at school, and collaborate with the community. Solutions for common challenges to sustaining parent engagement are also discussed.

Keywords: Communication, Family centered services, Family school relations, Parent participation, Parent support services, Parents, School health, Strategic planning

National Center for Family/Professional Partnerships. 2012. 2012 activities and accomplishments of family-to-family health information centers. Albuquerque, NM: National Center for Family / Professional Partnerships, 75 pp.

Annotation: This report summarizes the activities and accomplishments of F2F HICs (family-to-family health information centers) from June 2010 through May 2011 in helping families of children with special health care needs. Aggregated data on assistance and training provided by F2F HICs as well as other broader-scoped activities is included in this report along with descriptions of an exemplary activity from each F2F. State-by-state charts list the involvement of each F2F with specific initiatives and partners. [Funded by the Maternal and Child Health Bureau]

Keywords: Case studies, Children with special health care needs, Data, Families, Family centered services, Family support services

Family-to-Family Health Information Center at the Federation for Children with Special Needs, Mass Family Voices, National Institute for Children's Health Quality. 2012. Creating a patient and family advisory council: A toolkit for pediatric practices. Boston, MA: National Institute for Children's Health Quality, 42 pp.

Annotation: This toolkit is designed to assist pediatric practices in building a system for listening to feedback by creating a Patient and Family Advisory Council (PFAC). It provides step-by-step guidance on how to effectively engage family perspectives in the design of pediatric services and to improve overall quality in the delivery of those services. Topics include assessing practice readiness for a PFAC; recruiting diverse patient and family representatives as council members; supporting the process of authentic family engagement and involvement; and sustaining and evaluating a PFAC. An index of resources and an annotated bibliography are included.

Keywords: Advisory committees, Family centered care, Health services delivery, Multimedia, Patient care, Pediatric care, Quality improvement

First Focus. 2012. Big ideas: Children in the Southwest. Washington, DC: First Focus, 176 pp.

Annotation: This compilation of 12 papers examines the distinct needs of children in the southwestern United States (Arizona, California, Colorado, Nevada, New Mexico) and provides ideas for meeting those needs. Topics include changing demographics; inclusive, culturally relevant, and family-focused policy solutions; successful programs; and establishing common-ground for addressing challenges facing children in the Southwest.

Keywords: Children, Culturally competent services, Family centered care, Language, Model programs, Policy development, Regional factors, Sociocultural factors, Trends

National Resource Center for Health and Safety in Child Care and Early Education. 2011. Family checklist for nutrition in early care and education. Aurora, CO: National Resource Center for Health and Safety in Child Care and Early Education, 2 pp.

Annotation: This checklist contains pointers on good nutrition policies and practices that families can look for in choosing, or observing, current settings for their children's early care and education. Topics include infant feeding, specific foods and drinks, nutrition plans and policies, behavior and socialization, teaching opportunities for children ages 2 and over, how families can help caregivers and teachers promote good nutrition, and additional resources and organizations.

Keywords: , Best practices, Child care, Consumer education materials, Families, Family centered services, Nutrition policy, Young children
« Previous Page     Next Page »

The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.