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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 21 through 40 (119 total).

Association of Maternal and Child Health Programs;. 2018. Title V and newborn screening: State performance measures and long-term follow-Up. Washington, DC: Association of Maternal and Child Health Programs;, 6 pp. (Issue Brief)

Annotation: This report is a comprehensive analysis of how Title V Maternal and Child Health (MCH) Services Block Grant programs support newborn screening initiatives in the United States. It examines the various ways Title V programs integrate newborn screening into their state-level priorities and action plans, including adopting specific performance measures related to newborn screening. The document also explores the long-term follow-up activities conducted by Title V programs, such as care coordination through medical homes, ensuring evidence-based treatment, and ongoing data surveillance and evaluation. The findings illustrate the critical role Title V programs play in building and maintaining coordinated systems of care for children and youth with special health care needs identified through newborn screening, including providing essential services, tracking outcomes, and driving continuous quality improvement.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Developmental screening, Infant health, Performance measures

Bussanich P, Hirai A, Reuland C, . 2018. Developmental screening alignment: National performance measure 6 data and strategies. Washington, DC: Association of Maternal and Child Health Programs, 58 pp.

Annotation: These presentation slides focus on National Performance Measure 6 (Developmental Screening) and its associated evidence-based resources and technical assistance opportunities. The content covers evidence analysis findings regarding developmental screening quality improvement initiatives, highlighting that healthcare setting interventions and systems-level approaches show effectiveness, while noting that further research is needed for provider training and home visiting programs. It includes information about new evidence tools and resources available through MCH websites, and details the availability of technical assistance from Georgetown University and the National MCH Workforce Development Center. The presentation concludes with contact information for key personnel from AMCHP, HRSA/MCHB, and the Oregon Pediatric Improvement Partnership, along with an evaluation link for attendees.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Developmental screening, Autism, Case Studies, Oregon,

Corona A. 2018. State systems for parent-engaged developmental monitoring: A review of eight years of state system-level grantee work. Washington, DC: Association of Maternal and Child Health Programs, 16 pp.

Annotation: This presentation reviews eight years of state system-level grantee work through the Learn the Signs. Act Early. (LTSAE) initiative focused on improving parent-engaged developmental monitoring. It examines how the Association of Maternal & Child Health Programs (AMCHP) provided grants to states to strengthen early identification systems for developmental delays and disabilities, including autism. The presentation identifies three key impact points: increased awareness among caregivers and providers about developmental monitoring, activated stakeholders and strengthened partnerships, and formalized developmental monitoring as a priority. It showcases case studies from Massachusetts, Oklahoma, and Virginia demonstrating successful approaches to integrating LTSAE developmental monitoring tools into state systems. Survey results indicate high rates of success, with 94% of grantees meeting their objectives and maintaining sustainable efforts. The presentation concludes by highlighting freely available LTSAE resources that can be integrated into existing early childhood systems.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Developmental screening, Autism, Grants, State CHSCN programs, Case Studies, Massachusetts, Oklahoma, Virginia

Bussanich P, Tage S. 2018. Systems coordination for the early identification of autism spectrum disorder and other developmental disabilities: Seven years of lessons learned. Washington, DC: Association of Maternal and Child Health Programs, 21 pp.

Annotation: This presentation from the Association of Maternal & Child Health Programs (AMCHP) discusses seven years of lessons learned in systems coordination for the early identification of Autism Spectrum Disorder and other developmental disabilities. It shares insights from the CDC's "Learn the Signs. Act Early." (LTSAE) initiative and state system-level grant work. The presentation highlights efforts across multiple states including Massachusetts, New Jersey, and Tennessee, showcasing various approaches to developmental monitoring and screening. It emphasizes the importance of early identification of developmental delays, explaining the distinction between developmental surveillance/monitoring and developmental screening. Key accomplishments include creating culturally competent resources, training healthcare providers, establishing partnerships, and integrating developmental monitoring tools into state systems. The presentation concludes with lessons learned about strengthening partnerships and implementing strategies that achieve both short and long-term goals to improve early identification services for children with ASD/DD.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Developmental screening, Autism, Grants, Massachusetts, New Jersey, Tennessee

Association of Maternal and Child Health Programs and National Institute for Children's Health Quality. 2017. Early childhood developmental screening and Title V: Building better systems. Washington, DC: Association of Maternal and Child Health Programs; Boston, MA: National Institute for Children's Health Quality, 13 pp. (An issue brief sharing Title V strategies and measures on National pPerformance Measure 6: Developmental screening)

Annotation: This issue brief provides insight into developmental screening activities of Maternal and Child Health Title V state programs, which are aimed at addressing the growing incidence of developmental disabilities and improving comprehensive systems and services to better support early childhood development. It describes activities of states which have chosen National Performance Measure 6 (Percentage of children, ages 9 through 71 months, receiving a developmental screening using a parent-completed screening tool), discusses challenges, and point to next steps.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Developmental screening, Measures, State programs, Title V programs

Massachusetts Act Early. 2016. Considering culture in autism screening. [no place]: Massachusetts Act Early, 8 pp.

Annotation: This document for primary care health professionals provides tips for promoting the identification of autism spectrum disorders (ASDs) and other developmental disabilities for children from immigrant families or from families whose primary language is not English. Contents include tips for culturally- and linguistically-competent autism screening; the Modified Checklist for Autism in Toddlers (M-CHAT) screening tool in English and in four translations (Chinese, Haitian Creole, Spanish, and Vietnamese); an assortment of materials from the Centers for Disease Control and Prevention's Learn the Signs. Act Early campaign for use in practice; and resource and referral information.

Contact: Massachusetts Act Early, MA Web Site: https://www.maactearly.org/ Available from the website.

Keywords: Autism, Culturally competent services, Developmental disabilities, Developmental screening, Early identification, Immigrants, Infants, Massachusetts, Non English language materials, Public awareness campaign materials, Referrals, State initiatives, Young children

American Academy of Pediatrics. 2016. Friends of Children Healthy People 2020 Grant Program for Chapters: Poverty and child health–Goals, outcomes, and future plans. [Elk Grove Village, IL]: American Academy of Pediatrics, 21 pp.

Annotation: This compendium of program summaries describes the approaches of American Academy of Pediatrics' state chapters to develop and implement programs focused on poverty and child health in California, New York City, Oklahoma, and Vermont. Topics include developing and using innovative technologies to address food insecurity, pediatricians promoting food security, ensuring the delivery of health and developmental screening services to young children who are homeless, supporting adolescent parents and their children, and accessing summer meal programs. Each summary includes information about program collaboration, evaluation and measurement, outcomes, barriers and lessons learned, and future plans.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: 800/433-9016 Secondary Telephone: 202/347-8600 E-mail: https://www.aap.org/en/pages/contact-us/contact-national-headquarters/ Web Site: https://www.aap.org Available from the website.

Keywords: Access to health care, Adolescent health, Adolescent parents, Child health, Collaboration, Community action, Community based services, Developmental screening, Food, Health screening, Healthy People 2020, Homeless persons, Low income groups, Model programs, Nutrition, Poverty, Program descriptions, Public private partnerships

U.S. Preventive Services Task Force. 2015. Speech and language delay and disorders in children age 5 and younger: Screening. [Rockville, MD]: U.S. Preventive Services Task Force, multiple items.

Association of Maternal and Child Health Programs. 2015. Resources for Title V action planning: Developmental screening strategies and measures. Washington, DC: Association of Maternal and Child Health Programs, 8 pp. plus appendices.

Annotation: This document highlights strategies, measures and resources to help Title V develop action plans to implement and improve screening and early identification systems and impact the national performance measure on developmental screening

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Children with special health care needs, Developmental screening, Infants with special health care needs, Program development

Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center. 2015. Strengthen the evidence for MCH programs: Environmental scan of strategies National Performance Measure (NPM) #6: Developmental screening. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 13 pp.

Annotation: This environmental scan identifies collections of strategies to advance performance for NPM #6: Developmental Screening--percent of children, ages 10 through 71 months, receiving a developmental screening using a parent-completed screening tool. It includes a list of reviews and compilations on the topic; frameworks and landmark initiatives; databases and related search terms; and inclusion and exclusion criteria. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: , Block grants, Developmental screening, Evidence-based practice, Literature reviews, Measures, Model programs, Policy development, Program planning, Resources for professionals, State MCH programs, Title V programs, Young children

State Public Health Autism Resource Center, Association of Maternal and Child Health Programs. 2015. National Landscape: Program and Initiative to Promote Developmental and Autism Screening. Washington, DC: State Public Health Autism Resource Center, 17 pp.

Annotation: This environmental scan describes national and federal programs and initiatives aimed at improving developmental and autism screening for children.

Contact: State Public Health Autism Resource Center, Association of Maternal & Child Health Programs , 2030 M Street, N.W., Suite 350 , Washington, D.C. 20036, Telephone: (202) 775-0436 Web Site: http://www.amchp.org/programsandtopics/CYSHCN/projects/spharc/Pages/default.aspx Available from the website.

Keywords: Autism, Developmental disabilities, Developmental screening, Federal initiatives , Federal programs, National programs

Taft K. 2015. National landscape: Program and initiative to promote developmental and autism screening. Washington, DC: Association of Maternal and Child Health Programs, State Public Health Autism Resource Center, 17 pp.

Annotation: This report, developed by AMCHP’s State Public Health Autism Resource Center (SPHARC), provides an environmental scan of national and federal programs, initiatives, and efforts aimed at improving developmental and autism screening. It builds on an earlier scan and aims to compile a comprehensive overview of key initiatives with a significant national or multi-state reach and specific objectives related to developmental and autism screening. This guide is intended for use by professionals, policymakers, and organizations involved in developmental and autism screening to stay informed about relevant programs and initiatives, and it is expected to be updated as new initiatives emerge.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Autism, Federal agencies, State agencies, Developmental screening, Title V programs,

Lorenzo SB. 2014. Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) services in Medicaid: Family resource brief (2nd ed.). Washington, DC: National Center for Education in Maternal and Child Health, 1 p.

Annotation: This brief is designed to help families find care, services, and support and websites about Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) Services in Medicaid. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Education in Maternal and Child Health, Georgetown University, Telephone: (202) 784-9770 E-mail: [email protected] Web Site: https://www.ncemch.org Available from the website.

Keywords: Bibliographies, Child health supervision, Consumer education materials, Developmental screening, EPSDT, Electronic publications, Families, Medicaid

Birth to 5: Watch Me Thrive! . 2014. A compendium of screening measures for young children. Washington, DC: U.S. Department of Health and Human Services, 111 pp.

Annotation: This compendium is a collection of research-based developmental screening tools (screeners) for children under age 5. The compendium provides information on the purpose of developmental screening and the reliability and validity of commonly-used screeners for different languages and populations. Contents include summary tables that provide general information about screeners, individual instrument profiles, and the standards used to evaluate the tools' reliability and validity.

Contact: U.S. Administration for Children and Families, 370 L'Enfant Promenade, S.W., Washington, DC 20447, Telephone: (202) 401-9215 Secondary Telephone: (800) 422-4453 Web Site: http://www.acf.hhs.gov Available from the website.

Keywords: Child development, Developmental disabilities, Developmental screening, Evaluation, Infant development, Infants, Measures, Standards, Young children

Birth to 5: Watch Me Thrive!. 2014. Birth to 5: Watch Me Thrive!. Washington, DC: U.S. Administration for Children and Families, multiple items.

Annotation: This website describes a federal coordinated effort to encourage healthy child development,universal developmental and behavioral screening for children, and support for the families and providers who care for them. Contents include information about the importance of developmental and behavioral screening, the Compendium of Screening Measures for Young Children, and a list of accompanying guides tailored for use by early care and education providers, early intervention service and early childhood special education providers, families, primary care providers, communities, child welfare, home visitors, behavioral health providers, and housing and homeless shelter providers. Resources are available in English and Spanish.

Contact: U.S. Administration for Children and Families, 370 L'Enfant Promenade, S.W., Washington, DC 20447, Telephone: (202) 401-9215 Secondary Telephone: (800) 422-4453 Web Site: http://www.acf.hhs.gov Available from the website.

Keywords: Child development, Developmental disabilities, Developmental screening, Early intervention services, Family support services, Federal initiatives, Infant development, Infants, Measures, Spanish language materials, Young children

U.S. Centers for Medicaid & Medicare Services. 2014. EPSDT: A guide for states–Coverage in the Medicaid benefit for children and adolescents. Baltimore, MD: U.S. Centers for Medicaid & Medicare Services, 38 pp.

Annotation: This guide is intended to help states, health professionals, and others understand the scope of services covered under the Early and Periodic Screening, Diagnosis, and Treatment (EPSDT) program. The guide provides information about periodic and interperiodic screenings, diagnostic services, the scope of treatment services, permissible limitations on coverage of EPSDT services, services available under other federal authorities, access to services, and notice and hearing requirements.

Contact: U.S. Centers for Medicare & Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Telephone: (800) 633-4227 Secondary Telephone: (877) 267-2323 Fax: Web Site: https://www.cms.gov Available from the website.

Keywords: Developmental screening, EPSDT, Health supervision, Medicaid, Well child care

U.S. Centers for Medicaid & Medicare Services. 2014. Paving the road to good health: Strategies for increasing Medicaid adolescent well-care visits. Baltimore, MD: U.S. Centers for Medicaid & Medicare Services, 32 pp.

Annotation: This document discusses why adolescent health is important, the adolescent well-care visit, and strategies for promoting adolescent well-care visits, including adopting current Bright Futures guidelines for adolescents, incentivizing preventive care, encouraging teen-centered care, leveraging missed opportunities, using social media, and developing partnerships with key community stakeholders.

Contact: U.S. Centers for Medicare & Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Telephone: (800) 633-4227 Secondary Telephone: (877) 267-2323 Fax: Web Site: https://www.cms.gov Available from the website.

Keywords: Adolescent health, Developmental screening, EPSDT, Health supervision, Medicaid, Well child care

Lorenzo SB. 2014. Screening: Professional resource brief (3rd ed., upd. ed.). Washington, DC: National Center for Education in Maternal and Child Health, 1 p.

Centers for Disease Control and Prevention. 2014. Use of selected clinical preventive services to improve the health of infants, children, and adolescents: United States, 1999–2011. Morbidity and Mortality Weekly Report 63(2, Suppl.):1–107,

Annotation: This supplement to Morbidity and Mortality Weekly Report examines the use of selected clinical preventive services for infants, children, and adolescents in the United States. Topics include breastfeeding counseling; screening for hearing loss and provision of follow-up services; screening for developmental delays, lead poisoning, vision impairment, and hypertension; vaccination against human papillomavirus; tobacco use and tobacco cessation counseling and medication; screening for chlamydia infection; and provision of reproductive health services. Additional topics include the potential benefits of selected services, the challenges related to their underuse, and effective collaborative strategies to improve use.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: https://www.cdc.gov/cdc-info/forms/contact-us.html Web Site: http://www.cdc.gov Available from the website. Document Number: ISSN 1546-0738.

Keywords: Adolescents, Breastfeeding, Children, Chlamydia infections, Clinics, Counseling, Developmental screening, Health care utilization, Health services delivery, Hearing screening, Human papillomavirus, Hypertension, Infants, Lead poisoning screening, Oral health, Prenatal care, Prevention services, Reproductive health, Smoking cessation, Tobacco use, Vision screening

Johnson-Staub C. 2014. First steps for early success: State strategies to support develpmental screening in early childhood settings. Washington, DC: Center for Law and Social Policy, 16 pp.

Annotation: This document discusses current trends to access to developmental screening, private and federal efforts to increase access (including Head Start, the Individuals with Disabilities Education Act Parts B and C, Medicaid and Title V of the Maternal and Child Health Block Grants), and challenges in expanding access. It then discusses state policies supporting developmental screening in child care and early education (including licensing, subsidies, pre-kindergarten, quality initiatives and service coordination) and state policy recommendations.

Contact: Center for Law and Social Policy, 1200 18th Street, N.W., Suite 200, Washington, DC 20036, Telephone: (202) 906-8000 Fax: (202) 842-2885 E-mail: http://www.clasp.org/about/contact Web Site: http://www.clasp.org Available from the website.

Keywords: Access to health care, Developmental screening, Public policies, State programs, Young children
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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.