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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 21 through 40 (221 total).

Bergo CJ . 2020. The association between severe maternal morbidity and interpregnancy interval using Iowa data . Ann Arbor, MI: ProQuest LLC, 95 pp.

Annotation: This academic thesis examines the association between severe maternal morbidity (SMM) and interpregnancy interval using Iowa data from 2009-2014. It utilizes hospital discharge data linked to birth certificates to analyze three main areas: the risk of SMM recurrence and its relation to interpregnancy interval length; the patterns of interpregnancy interval between women with and without SMM; and the comparison of SMM identification between hospital discharge data and birth certificate data. The study found that women who experienced SMM were over eight times more likely to experience a subsequent SMM event, suggesting these women may need enhanced postpartum care.

Keywords: Data analysis, Data collection, Iowa , Maternal morbidity, Maternal mortality, Postpartum care

2019. State Poster Presentations from 2019 SPHARC Peer-to-Peer Exchange. [Washington, DC]: State Public Health Autism Resource Center , 9 pp.

Annotation: Taken from the 2019 SPHARC (State Health Autism Resource Center) Peer-to-Peer Exchange, this poster presents state-by-state profiles of autism spectrum disorder (ASD) initiatives and programs across multiple U.S. states including Wisconsin, Washington, Rhode Island, Ohio, New Hampshire, Minnesota, Maryland, Georgia, and Delaware. Each state profile includes unique state facts, data collection methods, quality improvement (QI) initiatives, and community engagement strategies. Common themes across states include efforts to address disparities in ASD screening and diagnosis, particularly among underserved and diverse populations; implementation of family navigation programs; use of data-driven approaches to identify service gaps; development of culturally competent services; and strategies to improve early identification and intervention. The profiles highlight various successful approaches such as Wisconsin's rural service delivery models, Minnesota's ADDM Network participation, Georgia's insurance coverage expansion through "Ava's Law," and Delaware's M-CHAT-R provider training pilot, while also acknowledging challenges including provider shortages, language barriers, and geographic access disparities.

Keywords: Autism, State CHSCN programs, Data analysis, Wisconsin, Washington, Rhode Island, Ohio, New Hampshire, Minnesota, Maryland, Georgia, Delaware

Bussanich P. 2019. Integrating Title V data into Early Childhood Integrated Data Systems (ECIDs) at the Help Me Grow Forum 2019. Washington, DC: Association of Maternal and Child Health Programs, 61 pp.

Annotation: This presentation focuses on integrating Title V data into Early Childhood Integrated Data Systems (ECIDS) to improve services for children and youth with special health care needs. It outlines the relationship between Title V MCH (Maternal and Child Health) programs and Help Me Grow initiatives, highlighting their shared focus on developmental screening and early intervention. The presenter, Paige Bussanich from the Association of Maternal & Child Health Programs (AMCHP), explains how data integration can enhance cross-system collaboration and improve outcomes for children. The slides cover the structure of Title V programs, performance measurement frameworks, and current state efforts in data integration. The presentation also includes information about AMCHP's Title V Data Integration Toolkit and available technical assistance resources, with examples of successful state collaborations between Title V and Help Me Grow programs in Alabama, Vermont, and Wyoming. The final portion introduces data storytelling as a method to effectively communicate findings from integrated data systems.

Keywords: Title V programs, Data collection, Data analysis, State CHSCN programs, Developmental screening, Vermont

Bussanich P, Corona A, Leahy M, Taft K, Tage S. 2019. Learn the signs. Act Early. AMCHP's state systems grant: Eight years (2011-2018) in review. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This poster uses colorful maps and other graphics to summarize an eight-year review (2011-2018) of AMCHP's "Learn the Signs. Act Early" (LTSAE) state systems grant program, which aimed to strengthen early identification and service coordination for children with autism spectrum disorder and other developmental disabilities (ASD/DD). The analysis, based on an environmental scan of program documents and a survey of grant leads from 31 states (91% response rate), demonstrates the program's success in building state and community capacity through various approaches, including developing state autism plans, increasing legislative awareness, and creating multilingual educational programming. The initiative, part of the CDC's Act Early Initiative launched in 2007, has supported 34 states and jurisdictions through AMCHP's partnership with the Association of University Centers on Disabilities (AUCD), providing not only funding but also technical assistance and interstate collaboration opportunities, ultimately showing that while implementation approaches varied across states, successful strategies could be adapted and replicated to improve developmental monitoring and screening systems.

Keywords: Title V programs, Autism, Data analysis, State grants, State CHSCN programs

Centers for Medicare & Medicaid Services. 2018. About the Technical Assistance and Analytic Support Program. Baltimore, MD: Centers for Medicare & Medicaid Services, 1 p. (Medicaid/CHIP health care quality measures)

Annotation: This fact sheet describes a program to support states in collecting, reporting, and using datafrom three core sets of quality measures in Medicaid and the Children's Health Insurance Program. Topics include technical assistance and analytic support vehicles such as issue briefs, fact sheets, analytic reports, and toolkits; one-on-one support; virtual learning opportunities; and hands-on information and networking opportunities.

Keywords: Adults, Children, Children's Health Insurance Program, Data analysis, Measures, Medicaid, Medical home, Program improvement, Quality assurance, Technical assistance

Connecticut Department of Public Health. 2018. Oral health improvement plan for Connecticut 2019–2024. Hartford, CT: Connecticut Department of Public Health, 24 pp.

Annotation: This report provides information on oral health in Connecticut. Four focus areas are discussed: prevention, oral health and overall health systems integration, and data collection and analysis. For each focus area, goals and objectives are presented, many of which encompass health equity. A section on oral health equity in the state is included.

Keywords: , Access to health care, Community programs, Connecticut, Data analysis, Data collection, Health care utilization, Oral health, Prevention, State planning

Association of Maternal and Child Health Programs. 2018. Title V data integration state example: Rhode Island. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This document describes Rhode Island's public health data integration systems as part of the Title V Data Integration Toolkit. It details two main systems: the RI DataHUB, a statewide longitudinal data system managed by the University of Rhode Island that integrates public health data with education and other social services data; and KIDSNET, a universal database for young children managed by the Rhode Island Department of Health that assigns unique identifiers at birth and tracks health services. The document explains how these systems facilitate data sharing across programs, manage privacy concerns through appropriate agreements and HIPAA compliance, and generate both individual-level reports for service providers and aggregate data for public use.

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Rhode Island, MCH training, Children's health

Association of Maternal and Child Health Programs. 2018. Title V data integration state example: North Carolina. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This report describes North Carolina's Early Childhood Integrated Data System (NC ECIDS) as part of the Title V Data Integration Toolkit. It details how the state built this advanced data system with Race to the Top - Early Learning Challenge funding in 2012 and later secured ongoing state funding. The system integrates data from multiple public programs including early childhood education, social services, and public health sources such as SNAP and Child Protective Services, with plans to add WIC data in the future. The report explains the governance structure, which includes an Executive Committee and Program Management Committee with representation from contributing agencies, and outlines the data request and approval process. NC ECIDS generates standard and customizable reports that show unduplicated counts of children receiving services, allowing users to analyze program participation patterns and demographic data.

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, North Carolina, MCH training, Children's health.

2018. Title V data integration state example: Kentucky. Washington, DC: Association of Maternal and Child Health Programs, 3 pp.

Annotation: This report discusses the Title V Data Integration Toolkit, focusing on Kentucky's experience with integrating early childhood and public health data into their state's longitudinal data system. In 2015, KCEWS (Kentucky Center for Education and Workforce Statistics) collaborated with GOEC (Governor’s Office of Early Childhood) and the Early Childhood Advisory Council to develop a county-level "Early Childhood Profile" using KLDS (Kentucky’s Longitudinal Data System) data. This profile combines integrated data with data planned for future integration, covering areas such as kindergarten readiness, child care capacity, and early childhood indicators on family, health, and social services. It includes public health data from programs like HANDS home visitation, WIC, and First Steps early intervention. Key takeaways from Kentucky's experience include demonstrating the value of integrated data early, prioritizing privacy and confidentiality, ensuring data sources understand how their data will be used, and learning from other states' experiences with public health data integration.

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Kentucky, MCH training, Children's health

2018. Title V data integration use case: Developmental screening. Washington, DC: Association of Maternal and Child Health Programs, 13 pp.

Annotation: This report outlines a use case for Title V programs to leverage Early Childhood Integrated Data Systems (ECIDS) to analyze developmental screening data for children from birth through age 5. The document is part of the Title V Data Integration Toolkit and focuses on two key questions: how many children are receiving developmental screenings using parent-completed tools, and how many are achieving five-domain developmental health based on these screenings. The document provides detailed guidance on analytic considerations, including the importance of defining which screening tools to analyze, understanding data sources within the ECIDS, and determining how to handle multiple screenings for individual children. A comprehensive list of recommended data elements is provided, including child identifiers, demographic information, and screening-related data. Examples of data visualization are provided using fictitious data, showing how to present overall screening rates and breakdowns by age categories.

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Developmental screening, Data integration, MCH training, Children's health

Association of Maternal and Child Health Programs. 2018. Title V data integration use case: Community-based services. Washington, DC: Association of Maternal and Child Health Programs, 38 pp.

Annotation: This report focuses on the Title V Data Integration Toolkit's use case for analyzing community-based services data through Early Childhood Integrated Data Systems (ECIDS). It emphasizes the importance of coordinated and integrated community-based services for children and families, highlighting how data integration can help Title V programs track referrals, monitor progress, and inform decision-making. The report suggests that Title V programs should request a current list of data sources from ECIDS to understand what data can be included in each analysis, and encourages Title V programs to adapt the information to fit their state's specific needs and potentially analyze data by various factors such as time, geographic area, or demographic variables. Overall, this use case aims to help Title V programs leverage ECIDS data to gain insights into community-based services, their utilization, and their impact on children's readiness for kindergarten and overall well-being.

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Community based services, Children's health, MCH training

Association of Maternal and Child Health Programs. 2018. Title V data integration use case: Autism. Washington, DC: Association of Maternal and Child Health Programs, 24 pp.

Annotation: This report outlines the Title V Data Integration Toolkit's use case for autism. It highlights the increasing incidence of autism and the importance of early identification, diagnosis, and intervention. The document emphasizes how autism data can help Title V programs improve screening opportunities and services and notes that Title V programs participating in ECIDS can access autism data for strategic planning. It provides guidance on analyzing autism data, highlighting the importance of considering the 2013 DSM V criteria changes and adapting analysis to state-specific needs. Overall, this use case aims to help Title V programs use ECIDS data to gain insights into autism diagnosis, early intervention, and service provision in their states.

Keywords: Autism, Children's health, Data analysis, MCH training

Association of Maternal and Child Health Programs. 2018. Guide to Title V data integration use cases. Washington, DC: Association of Maternal and Child Health Programs, 3 pp.

Annotation: This document from the Title V Data Integration Toolkit explains the development and use of data integration "use cases" for Title V maternal and child health programs working with Early Childhood Integrated Data Systems (ECIDS). It describes how use cases help determine which data elements, timeframes, and geographic boundaries are needed to answer specific program questions. The document outlines key considerations including data element integration requirements, analytic considerations, computed variables, data suppression techniques to protect privacy, and data quality assessment. It also explains the importance of the Common Education Data Standards (CEDS) framework, which provides standardized terminology and tools to facilitate data sharing across different systems.

Keywords: Children's health, Data analysis, MCH training, Children's health

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Return on investment. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This tip sheet from AMCHP provides guidance on integrating Title V data into the Early Childhood Integrated Data Systems (ECIDS), emphasizing the importance of establishing a return on investment (ROI) for Title V programs. The document recommends early engagement between leadership from both the Title V program and ECIDS to discuss ROI and suggests several ways in which ROI can be measured. The importance of documenting and regularly reviewing the ROI is also stressed. The guide incoporates links to presentations on creating a statewide longitudinal data system (SLDS) for further information.

Keywords: Title V programs, Data collection, Data analysis, MCH training, Children's health

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Purpose and vision statement. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: In this tip sheet, AMCHP (Association of Maternal and Child Health Programs) provides guidance on creating a purpose and vision statement for Title V programs integrating their data into Early Childhood Integrated Data Systems (ECIDS). This document is meant to serve as a guide throughout the planning, implementation, and continuous improvement phases. The guide outlines the components of an effective purpose and vision statement and explains how data sharing can improve population health and primary care, support public health professionals and organizations, and ultimately lead to better outcomes for children and families. Included in the guide are references to additional resources and tools for developing purpose and vision statements in the context of early childhood data systems.

Keywords: Title V programs, Data analysis, Children's health, MCH training

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Parental consent. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This tip sheet on Title V and parental consent outlines essential guidelines for effectively integrating Title V data into an Early Childhood Integrated Data System (ECIDS) while respecting family preferences regarding data sharing. It emphasizes best practice in informing parents of privacy rights and their options concerning decision making. Title V programs are encouraged to thoroughly review relevant federal, state, local, and internal regulations as well as the ECIDS Data Governance Manual to ensure compliance with parental consent requirements. The guide includes a list of resources and tools for dealing with issues of parental consent.

Keywords: Title V programs, Data analysis, Children's health, Parental consent, MCH training,

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Obtaining leadership support. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: One of several from AMCHP that deals with Title V Data Integration, this tip sheet emphasizes the critical role of leadership in successfully integrating Title V data into an Early Childhood Integrated Data System (ECIDS). The document emphasizes that genuine engagement through discussion, debate, and shared problem-solving helps Title V programs recognize the value proposition of ECIDS participation, thereby increasing stakeholder investment in data integration initiatives. Included are links to resources and tools for obtaining leadership support on data integration.

Keywords: Title V programs, Data analysis, Children's health, MCH training, Administration

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Getting a seat at the table. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This guide expresses the fundamental need for Title V programs to clearly articulate their purpose, participation objectives, and potential contributions in partnering with an ECIDS (Early Childhood Integrated Data System). The tip sheet provides guidance for Title V programs on how to communicate their aims and the value they can bring to an ECIDS, as well as the questions they should ask the ECIDS representative concerning data sharing and how data is handled. It concludes with a resource section providing tools for stakeholder engagement, communication planning, and strategic integration into healthcare planning activities.

Keywords: Title V programs, Data analysis, Children's health

Bussanich P, Taft K. 2018. Partnering with Title V programs to integrate child welfare data into early childhood integrated data systems (ECIDS). Washington, DC: Association of Maternal and Child Health Programs;, 60 pp.

Annotation: These presentation slides focus on introducing the Association of Maternal and Child Health Programs (AMCHP's) Title V Data Integration toolkit to the child welfare community through interactive activities designed to support partnerships between agencies and Title V programs aimed at integrating child welfare data into early childhood integrated data systems (ECIDS) and learning best practices to identify needs and tailor programs aimed at improving family health. The presentation's core objectives center on identifying cross-system collaboration opportunities and understanding how data integration fits into comprehensive service systems for optimal family outcomes.

Keywords: Children's health, Data analysis, MCH training, Children's health, Adolescent health, Developmental screening, Child welfare

2018. New York's Title V CYSHCN program: Using the national standards as a framework for action planning and data analysis. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp.

Annotation: This case study examines how New York State's Title V program leveraged the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) as a framework for improving healthcare delivery and system analysis. Operating through the Division of Family Health within the New York State Department of Health, the program conducted an extensive systems mapping project that included interviews with over 130 diverse families of CYSHCN. This comprehensive analysis revealed the primary needs for improvement, and highlights how New York aligned its improvement efforts with both the National Standards and other guidelines like the American Academy of Pediatrics' Bright Futures, while emphasizing family engagement as a core principle. The state found that linking their work to the National Standards enhanced stakeholder support and plans to continue using this framework to strengthen their healthcare system, ensuring consistency, equal access, and comprehensive support for CYSHCN and their families.

Keywords: Title V Programs, New York, Standards, Data Analysis, Family Support Services, CHSCN programs

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The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.