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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 21 through 40 (52 total).

Fox J. 2008. A contribution to the evaluation of recent developments in the investigation of sudden unexpected death in infancy. Guildford, Surrey, England: Department of Sociology, University of Surrey, 76 pp. (Briefing paper)

Annotation: This paper contributes to the evaluation of a new protocol for the multi-agency investigation of sudden unexpected death in infancy (SUDI) that was introduced by the United Kingdom government in April 2006. The paper discusses the concept of the police investigation of infant deaths and the main differences between the investigations of adult vs. child deaths. The paper introduces the issue, discusses a literature review that was conducted, and covers the following topics: (1) history of SUDI investigation until 1999, (2) the emergence of police guidance, (3) the effect of public and judicial concern, 1999-2004, (4) the impact of the Victoria Climbie inquiry, (5) the Kennedy Report and the new protocol, (6) anatomy of a police sudden death investigation, (7) evaluation and analysis of chapter 7 of Working Together (child-protection guidance document used by police, health professionals, and social services professionals in England and Wales), and (8) conclusions and the future. A biography of the author and references are included. The paper includes four appendices: (1) respondent sample, (2) example interview schedule, (3) working group members, and (4) methodology.

Contact: British Association for the Study and Prevention of Child Abuse and Neglect, 17 Priory Street, York, England Y01 6ET, Telephone: 44(0) 1904 613605 Fax: 44(0) 1904 642239 E-mail: [email protected] Web Site: http://www.baspcan.org.uk Available from the website.

Keywords: Child death, Evaluation, Infant death, Investigation, Literature reviews, Protocols, Research, SIDS

National Fetal and Infant Mortality Review Program. 2008. Fetal and infant mortality review manual: A guide for communities. (2nd ed.). Washington, DC: National Fetal and Infant Mortality Review Program, 169 pp.

Annotation: This manual provides communities interested in developing a new Fetal and Infant Mortality Review (FIMR) Program, or continuing an existing FIMR program, with a step-by-step guide for implementing FIMR and making systems change happen for women, infants, and familles through FIMR. Contents include a description of the FIMR process, laying the groundwork, building community support and collaboration, abstracting medical records and conducting the home interview, basic team building and group process concepts for FIMR programs, the role of the case review team, the role of the community action team, taking stock of the FIMR process, and other maternal and child case review and related processes and the opportunities for collaboration. Standard definitions for reporting selected perinatal health statistics, and a glossary of terms, diagnoses and procedures is also included. [Funded by the Maternal and Child Health Bureau]

Contact: National Fetal-Infant Mortality Review Program, American College of Obstetricians and Gynecologists, 409 12th Street, S.W.***DEFUNCT***, Washington, DC 20024, Telephone: (202) 863-2587 E-mail: [email protected] Web Site: http://www.nfimr.org Available from the website.

Keywords: Child death review, Collaboration, Fetal death, Infant death review, Infant mortality, Investigations, Manuals, Neonatal death, Program development, Surveillance

Foundation for the Study of Infant Deaths. 2007. When a baby dies suddenly and unexpectedly. London, England: Foundation for the Study of Infant Deaths, 27 pp.

Annotation: This booklet helps explain what happens after a baby dies, both in terms of practicalities, and the feelings and emotions families may experience. Contents include legal procedural matters involving the coroner, registering the baby's death or an inquest, keepsakes, and funeral and financial arrangements. Additional topics include common feelings and experiences of grieving, family and sibling grief, infant death in child care, questions families ask, finding and giving support, and care of the next infant. A list of publications and further reading is provided.

Contact: Lullaby Trust, 11 Belgrade Road, London, England SW1V 1RB, Telephone: (020) 7802-3200 E-mail: [email protected] Web Site: http://lullabytrust.org.uk Available from the website; contact for muiltple copy cost information.

Keywords: Bereavement, Child death, Child death review, Families, Infant death, Public awareness materials, Resources for professionals, SIDS

CityMatCH. 2006. The national SUID initiative and its impact on MCH policy, program and planning. Omaha, NE: CityMatCH,

Annotation: This Webcast is a two-part recording of a conference in which three sudden infant death syndrome/sudden unexpected infant death (SIDS/SUID) experts present on the Centers for Disease Control and Prevention (CDC) SUID death scene investigation initiative, explaining the importance of infant death scene investigation, how new SUID report forms improve the investigation of the process, the SUID reporting system and the national training academy. The second presentation explains why and how the initiative is important for child and maternal health and ways in which MCH leaders can get involved in pushing for improved infant death scene investigation in their own communities. The final presentation speaks to understanding and preventing deaths in Philadelphia. A question and answer session follows the presentations. Powerpoint presentations accompany the audio presentations. [Funded by the Maternal and Child Health Bureau]

Contact: CityMatCH, University of Nebraska Medical Center, Department of Pediatrics, 982170 Nebraska Medical Center, Omaha, NE 68198-2170, Telephone: (402) 552-9500 E-mail: [email protected] Web Site: http://www.citymatch.org Available from the website.

Keywords: Child death review, Infant death, Infant mortality, MCH programs, Multimedia, SIDS

National MCH Center for Child Death Review. 2005. The child death review case reporting system: Systems manual (version 1, pilot test). Okemos, MI: National MCH Center for Child Death Review, ca 140 pp.

Annotation: This manual, which is designed for state and local child death review programs to maximize the effectiveness of the review process and prevent child deaths, focuses on the Child Death Review Case Reporting System. The manual includes an introduction to and description of the system, a sample child death review case report, a user manual, a list of definitions, and a set of standardized reports. The user manual includes a list of terms as well as explanations of how to use the Web site, enter a new case, search for an existing case, create a standardized report, download data, and get help. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: [email protected] Web Site: https://www.ncfrp.org/

Keywords: Child death review, Local programs, Manuals, Prevention, State programs

Covington T, Foster V, Rich S, eds. 2005. A program manual for child death review: Strategies to better understand why children die and taking action to prevent child deaths. Okemos, MI: National MCH Center for Child Death Review, 170 pp.

Annotation: This manual, which is geared toward administrators, state or community organizations, child death review (CDR) teams, and individual CDR team members, describes strategies for developing and managing a state or local CDR program. Suggestions are offered for conducting effective reviews and making recommendations that translate the understanding of how a child died into actions to prevent other deaths. The manual discusses CDR principles and objectives; core functions; establishing a CDR team; team membership; case selection; confidentiality; conducting a case review; effective teams and CDR programs; taking action to prevent child deaths; CDR reporting; legislation and public policy; program evaluation; ethical dilemmas; working with the media; and coordinating with other reviews. A glossary and several tools for CDR teams are included. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: [email protected] Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Legislation, Local programs, Manuals, Prevention, Program evaluation, Public policy, State programs

Iowa Child Death Review Team. 2005. Report to the Governor and General Assembly: Review of child deaths for calendar year 2004. [Des Moines, IA]: Iowa Department of Public Health, 26 pp.

Annotation: This report focuses on a review of child deaths in Iowa during calendar year 2004. The report, which includes an executive summary, includes a report to the governor and the Iowa General Assemby, recommendations for prevention of future deaths, child death review accomplishments, data, and recommendations for actions and strategies.

Contact: Iowa Department of Public Health, 321 East 12th Street, Des Moines, IA 50319-0075, Telephone: (515) 281-7689 Secondary Telephone: (866) 227-9878 E-mail: https://www.idph.iowa.gov/Contact-Us Web Site: https://hhs.iowa.gov/ Available from the website.

Keywords: Child death, Child death review, Child mortality, Iowa, Prevention

Sudden Infant Death Network of Ohio. 2005. A guide for the sudden infant death home visit. Columbus, OH: Sudden Infant Death Network of Ohio, 50 pp.

Annotation: The purpose of this guide is to help public health professionals in the state of Ohio prepare for their mandatory role in responding to infant deaths. It provides (1) an overview of sudden infant death (including a description of characteristics; theories about causes; the state and national responses to it; and the role of SID Network of Ohio); (2) a case scenario of a sudden infant death in Ohio, including a flow chart that illustrates the response to it; (3) a description of grief and bereavement services provided to families who have lost an infant; (4) and guidelines to help reduce the risk of sudden infant death. Although much of the information specifically addresses SIDS deaths, the guide is intended to assist in all sudden and unexpected infant deaths that occur in Ohio. The appendices include copies of the state's infant death forms, a sample family contact letter, and a description of child fatality review in the state of Ohio.

Contact: Ohio Department of Health, 246 North High Street, Columbus, OH 43215, Telephone: (614) 466-3543 Web Site: http://www.odh.ohio.gov Available from the website.

Keywords: Child death review, Home visiting, Infant death, Manuals, Ohio, SIDS, State legislation, State programs

National Sudden Infant Death Syndrome Resource Center. 2004. Responding to a sudden, unexpected infant death: The professional's role [rev. ed.]. Vienna, VA: National Sudden Infant Death Syndrome Resource Center, 4 pp.

Annotation: This fact sheet provides a brief overview of the various professionals involved when a sudden infant death occurs, as well as their responsibilities and how these professionals can help. Topics include those first on the scene, what happens at the hospital, why an autopsy is performed, the death scene investigation, and the impact on families and caregivers. A list of contacts, resources, and references is provided. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Autopsy, Child death review, Infant death, Neonatal death, Resources for professionals, Risk factors, SIDS

National Sudden Infant Death Syndrome Resource Center. 2004. SIDS deaths by race and ethnicity: 1995-2001. Vienna, VA: National Sudden Infant Death Syndrome Resource Center, 4 pp.

Annotation: This brochure gives an overview of statistics of infant deaths attributable to sudden infant death syndrome (SIDS) in a variety of racial and ethnic categories. Topics include efforts to reduce the risks of SIDS through the "back to sleep" campaign. Information is provided for resources designed to reduce SIDS risks in minority communities. References conclude the brochure.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available at no charge.

Keywords: Cultural factors, Asian Americans, Blacks, Child death review, Hispanic Americans, Infant death, Minority groups, Neonatal death, Pacific Islanders, Risk factors, SIDS, Statistics

Washington State Child Death Review Committee. 2004. Child Death Review State Committee recommendations on child drowning prevention. Olympia, WA: Washington State Department of Health, Community and Family Health, 22 pp.

Annotation: This report makes recommendations for the prevention of drowning deaths to children. It is the fourth in a series of reports on prevention of fatal injuries in childhood, using data from reviews of child deaths in Washington state between 1999 and 2001. The report, which begins with a list of summarized key recommendations, also includes background, detailed recommendations, and information about what parents, caregivers, educators, health professionals, social service providers, law enforcement personnel, and legislators and policymakers can do to prevent drownings and near-drowning-related injuries. Statistical information is presented in tables throughout the report. Acknowledgments and endnotes are included.

Contact: Washington State Department of Health, Prevention and Community Health Division, P.O. Box 47890, Olympia, WA 98504-7890, Web Site: https://doh.wa.gov/about-us/executive-offices/prevention-safety-and-health/prevention-and-community-health Available from the website.

Keywords: Child death review, Child mortality, Children, Drowning, Injuries, Near drowning, Prevention, Safety, Washington

Missouri Department of Social Services, State Technical Assistance Team. [2002]. Sudden unexpected infant death: A guide for Missouri coroners and medical examiners. [Jefferson City, MO]: Missouri Department of Social Services, State Technical Assistance Team, 17 pp.

Annotation: These guidelines provide coroners and medical examiners with the information they need to investigate a sudden unexpected death of an infant. The document describes the elements of information needed to accurately diagnose sudden, unexpected infant death and defines sudden infant death syndrome (SIDS). It lists the typical findings for sudden unexpected infant death. It describes the Missouri Child Fatality Review Program, defines the mandated role of the coroner or medical examiner in Child Fatality Review and lists the relevant Missouri state statutes. Guidelines for helping the parents and caregivers are also listed and the form "Death Scene Investigative Checklist for Child Fatalities" is included.

Contact: Missouri Child Fatality Review Program, Missouri Department of Social Services, 221 West High Street, P.O. Box 1527, Jefferson City, MO 65102-1527, Telephone: (800) 487-1626 Web Site: http://www.dss.mo.gov/stat/mcfrp.htm Available from the website.

Keywords: Child death, Child death review, Coroners, Forms, Guidelines, Infant death, Medical examiners, Missouri, Neonatal death, SIDS

Indiana Perinatal Network. [2002]. Lessons learned from the Indiana Fetal and Infant Mortality Review projects 1993-1997. [Indianapolis, IN]: Indiana Perinatal Network, 14 pp.

Annotation: This report contains summaries of the findings from community-based reviews of fetal and infant deaths in the state of Indiana conducted by the Indiana Fetal - Infant Mortality Review (FIMR) Projects during 1993 through 1997. Included as part of the lessons learned from this review of over 500 cases of fetal and infant deaths are findings and recommendations related to preterm labor, smoking during pregnancy, late entry into prenatal care, decreased fetal movement, inadequate weight gain, and infant sleep position.

Contact: Indiana Perinatal Network, 1991 East 56th Street , Indianapolis, IN 46220, Telephone: (317) 924-0825 Fax: (317) 924-0831 E-mail: [email protected] Web Site: http://www.indianaperinatal.org/ Available from the website.

Keywords: Assessment, Child death review, Guidelines, Indiana, Infant death, Infant mortality, Prevention programs, Reports, State programs

Grason H, Liao M. 2002. Fetal and infant mortality review (FIMR): A strategy for enhancing community efforts to improve perinatal health. Baltimore, MD: Johns Hopkins University Bloomberg School of Public Health, Women's and Children's Health Policy Center, 8 pp.

Annotation: This brief is intended to provide program evaluation information to both existing fetal and infant mortality review (FIMR) programs and communities that are in the process of establishing new FIMRs. It includes information about study methods, key contributions of FIMR programs, factors contributing the the success of individual FIMR programs, and FIMR teams. It concludes with observations and a list of references. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website. Document Number: HRSA Info. Ctr. MCH00071.

Keywords: Child death review, Community based services, Fetal mortality, Infant mortality, National programs, Program development

National Fetal and Infant Mortality Review Program. 2002. Fetal and infant mortality review: A guide for home interviewers. Washington, DC: National Fetal and Infant Mortality Review Program, 92 pp.

Annotation: The purpose of this manual is to help prepare new home interviewers for the key fetal infant mortality review role of interviewing grieving mothers. It includes the following sections: (1) the fetal and infant mortality review (FIMR) process, (2) conducting the FIMR review, (3) understanding the grief experience, (4) FIMR interviewer skills and training, (5) summarizing the FIMR review; (6) self-care for the FIMR interviewer, (7) references, (8) bibliography, and (9) about the authors. The manual also contains several appendices, including field safety, suggested reading, Web site resources for families, infant loss literature for families, Web resources for home interviewers, and other printed materials.

Contact: National Fetal-Infant Mortality Review Program, American College of Obstetricians and Gynecologists, 409 12th Street, S.W.***DEFUNCT***, Washington, DC 20024, Telephone: (202) 863-2587 E-mail: [email protected] Web Site: http://www.nfimr.org Available from the website.

Keywords: Child death review, Fetal mortality, Grief, Infant mortality, Interviews, Mothers, Training

Cox G. 2002. Tulsa Healthy Start Initiative: Phase II impact report. Tulsa, OK: Tulsa Healthy Start, 236 pp.

Annotation: This report describes the Healthy Start program to reduce infant mortality in targeted areas in Tulsa, Oklahoma from September 1997 through June 2001. Report sections include an introduction; service initiation using the following models: community-based consortium, case coordination and case management, outreach and client recruitment, facilitating services, and education and training; a review of service accomplishments; mentoring; consortium and collaboration efforts; the impact of the consortium program; and other Healthy Start components such as administration and management, sustainability, the role of local government; lessons learned, local evaluation, Fetal and Infant Mortality Review. A final section on project data contains extensive forms and tables. The appendices include charts, objectives, summaries, and the local evaluation plan. [Funded by the Maternal and Child Health Bureau]

Contact: Tulsa Healthy Start Initiative, Tulsa City-County Health Department, 5051 South 129th East Avenue, Tulsa, OK 74134-2842, Telephone: (918) 595-4460 Fax: (918) 595-4473 E-mail: [email protected] Web Site: http://www.tulsa-health.org

Keywords: Child death review, Final reports, Healthy Start, Infant health, Infant mortality, Local initiatives, MCH programs, Models, Oklahoma, Prenatal care, Prevention programs, Program descriptions

Ohio Department of Health, Sudden Infant Death Program. 2002. Infant death home visit report. Columbus, OH: Ohio Department of Health, Sudden Infant Death Program, 1 p.

Annotation: This standard reporting form is designed for use by home visiting professionals in the state of Ohio who are responsible for collecting data as part of their mandatory role in responding to infant deaths. The form includes questions about the infant's sleep environment, whether the infant had any signs of illness prior to the death, and the tentative diagnosis upon pronouncement. The form also provides space for the parents' contact information; the infant's gender, ethnicity, weight, age, and place of birth; and details about the home visiting encounter itself.

Contact: Ohio Department of Health, 246 North High Street, Columbus, OH 43215, Telephone: (614) 466-3543 Web Site: http://www.odh.ohio.gov Available from the website.

Keywords: Child death review, Forms, Home visiting, Infant death, Ohio, SIDS, State legislation, State programs

[Virginia Department of Health, Office of the Chief Medical Examiner]. 2002. Virginia Morbidity/Mortality Review Project: Final report. [Richmond, VA: Virginia Department of Health, Office of the Chief Medical Examiner], 17 pp.

Annotation: This final report describes a collaborative effort among various infant mortality/child death review programs in Virginia to improve coordination, limit redundancy, and provide networks across the state. Contents include a description of the project's purpose and objectives, methodology, evaluation, and results/outcomes. A list of publication and products is included as well as an overview of dissemination and utilization of results, future plans, and project replication needs. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Child death review, Collaboration, Final reports, Infant death review committees, Infant mortality, State agencies, Virginia

Ohio Department of Health and Ohio Children's Trust Fund. 2001-. Ohio Child Fatality Review: __ annual report. Columbus, OH: Ohio Department of Health,

Annotation: This web site archives the annual reports discussing the activities and achievements of the Ohio Child Fatality Review (CFR), the mission of which is to reduce the incidence of preventable deaths in Ohio. The reports include an executive summary, key findings, an overview of CFR, a summary of CFR data for annual deaths, special focus reports on motor vehicle deaths and SIDS and sleep-related deaths, natural deaths, suffocation and strangulation, firearms and weapons, drowning and submersion, child abuse and neglect, fire and burn, other causes of death and unknown causes of death, and suicide. In addition, the report presents child deaths by a map of counties, CFR law, and lists of CFR advisory committee members, CFR program staff, and local CFR board chairs.

Contact: Ohio Department of Health, 246 North High Street, Columbus, OH 43215, Telephone: (614) 466-3543 Web Site: http://www.odh.ohio.gov Available from the website.

Keywords: Burns, Child abuse, Child death, Child death review, Child neglect, Drowning, Fire, Firearms, Motor vehicle deaths, Ohio, SIDS, Strangulation, Suffocation, Suicide, Weapons

Allston A, Baldwin K M, Grason H, Liao M, McDonnell K, Misra D, Strobino D. 2001. The evaluation of FIMR programs nationwide: Early findings. [Baltimore, MD]: Johns Hopkins University,Women's and Children's Health Policy Center, 8 pp.

Annotation: This report describes the early findings of an evaluation of the national Fetal and Infant Mortality Review (FIMR) program. Topics include bolstering community efforts for perinatal health; FIMR-specific influences; perinatal initiative-specific influences; recommending and acting on strategies to improve systems of perinatal health care; FIMR programs' structure, operational features, and associated activity; system changes evolving from FIMR; and observations and conclusions. The evaluation methodology and respondents are described and references are provided. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available at no charge; also available from the website.

Keywords: Child death review, Federal initiatives, Fetal mortality, Infant mortality, Perinatal health, Program evaluation, Research

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.