Search Results: MCHLine

Annotation: This report summarizes a systematic review of studies focusing on therapies for children with autism spectrum disorders (ASD), including behavioral, educational, medical, allied health, and complementary and alternative medicine interventions. The report describes the analytical framework and literature review methods and summarizes the evidence of effectiveness for each form of therapy. Specific outcome measures are presented in separate tables. The appendices include sample data abstraction forms; search strings used the results of the searches; lists of peer reviews and excluded studies; and a discussion of recent systematic reviews of therapies for children with ASDs.

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Keywords: Children with special health care needs, Autism, Literature reviews, Research, Treatment effectiveness evaluation

Annotation: This toolkit for parents of adolescents with autism provides options to help plan for the transition to adulthood. The kit is divided into the following sections: self-advocacy, why transition plans are needed, community living, employment and other options, post-secondary educational opportunities, housing, legal matters, health, internet and technology, and getting organized. At the end of most sections are resources specific to that section as well as forms to help keep track of the transition process. Timelines for each state, with state agency information, are also provided.

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Keywords: Adolescent with special health care needs, Advocacy, Autism, Consumer education materials, Education, Employment, Employment programs, Housing, Legal issues, State programs, Supported employment, Technology, Transition planning

Annotation: This Rhode Island resource guide provides information for families during different stages of the autism spectrum disorder (ASD) diagnosis process in order to assist them in finding help for their children as well as support for the family. The guide discusses the signs and symptoms of ASDs and their effect on child development; offers guidelines to help parents adjust to their child’s diagnosis; and discuses health coverage assistance, treatments and interventions, and educational services. The guide also provides a summary of Rhode Island community resources by type of service, an alphabetical list of state community resources, therapeutic recreation and other activities and programs, state agencies, and websites. The appendices include laws affecting children with disabilities, diagnostic criteria, and answers to frequently asked questions.

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Keywords: Autism, Child health, Children with special health needs, Families, Resource materials, Rhode Island, State initiatives

Annotation: This document presents a policy framework to help states (primarily Title V programs) determine appropriate roles and approaches to pursue in building systems of care for children and youth with autism spectrum disorders and other developmental disabilities (ASD/DD). The framework provides examples from state programs to demonstrate the breadth and depth of involvement from state Title V programs and their partners. It focuses on how state approaches to Title V programs can lead to comprehensive efforts to meet the needs of children and youth with ASD/DD and their families and how such approaches might improve systems of care for all children and youth with special health care needs (CYSHCN.) [Funded by the Maternal and Child Health Bureau]

• Full Report
• Executive Summary

Keywords: Autism, Children with special health needs, Developmental disabilities, Developmental disabilities programs, State programs, Systems development, Title V programs, Youth

Annotation: This issue brief examines the approaches that state Title V programs are taking to address the growing incidence of autism spectrum disorder and other developmental disabilities (ASD/DD) and catalogues ASD/DD activities that fit within the framework of the Maternal and Child Health Bureau (MCHB) critical indicators for children and youth with special health care needs. These indictors include the medical home, insurance and financing, early and continuous screening, easy-to-use services, family-professional partnerships, and transition to adulthood. The Information presented in the brief was obtained from the 2010 Maternal and Child Health Block Grant State Narratives contained in the Title V Information System (TVIS) online database. [Funded by the Maternal and Child Health Bureau]

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Keywords: Autism, Data analysis, Developmental disabilities, Measures, State programs, Title V programs

Annotation: This fact sheet provides information about research programs conducted by the National Institute of Environmental Health Sciences to address children's health issues. Programs summarized are divided into the following categories: disease prevention; studies on the growing brain, studies on air pollution and respiratory disease, studies on reproduction, and studies on breast cancer.

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Keywords: Air pollution, Asthma, Autism, Breast cancer, Child health, Cognitive development, Environmental influences, Mental health, Prevention, Programs, Reproductive health, Research

Annotation: This tool kit provides oral health professionals with information about autism spectrum disorder (ASD) to help them meet the oral health needs of children with ASD. Contents include suggestions to prepare a dental office for a visit, a sample intake questionnaire, and frequently asked questions. A companion document, Dental Guide, is also available. The tool kit is meant to be used together with the guide. [Funded by the Maternal and Child Health Bureau]

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Keywords: Autism, Children, Oral health care, Questionnaires, Resources for professionals, Special health care needs

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Keywords: Autism, Evaluation, Federal initiatives, Health services delivery, Interventions, Program improvement

Annotation: The tool serves as a quick reference guide for families just receiving a new diagnosis of autism for their child. It provides a template to help parents know who to contact and how to start getting help for their child. Topics include health insurance and medical care, early intervention, education, specialized services, child care, family support, parent education, therapies, and medications. Many national resources are included as well as resources for Washington state. The tool is available in Cambodian, English, Korean, and Spanish. [Funded by the Maternal and Child Health Bureau]

Keywords: Asian English language materials, Autism, Children with special health care needs, Community based services, Community coordination, Parenting, Spanish language materials, State programs, Washington

Annotation: In this Webcast focusing on children's emotional, behavioral, and developmental well-being, Dr Rheem Ghandour, a public health analyst from the Maternal and Child Health Bureau, discusses the prevalence of emotional, behavioral, and developmental conditions at the national and state levels. Dr. James Perrin, professor of pediatrics at Harvard Medical School, and director of the Center for Child and Adolescent Health Policy at Mass General Hospital for Children, discusses evidence of the increasing rates of emotional, behavioral, and developmental conditions among children, with a focus on autism. Finally, Dr. Jane Foy, professor of pediatrics for Wake Forest University School of Medicine and chairperson for the American Academy of Pediatrics Task Force on Mental Health, discusses the role that the public health community plays in addressing pediatric mental illness and provides resources that the task force developed. Presenter information, an agenda, resources, and a program archive are available.

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Keywords: Autism, Behavior problems, Child development, Child health, Emotional instability, Mental disorders, Mental health, Multimedia, Public health

Annotation: This website provides a secure bioinformatics platform for scientific collaboration and data-sharing for autism spectrum disorders (ASD) investigators. Content includes the National Database for Autism Research (NDAR), comprising genetic, imaging, and phenotypic data from multiple sources. Additional content includes information about data sharing, standards, tools, policy and procedures, and training.

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Keywords: Autism, Collaboration, Data linkage, Medical research, Online databases, Resources for professionals, Web sites

Annotation: This fact sheet, which is geared toward parents, addresses common questions about diagnosis and treatment options for children with mental illnesses, including anxiety disorders, attention deficit hyperactivity disorder, autism spectrum disorders, bipolar disorders, depression, eating disorders, and schizophrenia. A list of resources for more information is included.

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Keywords: Anxiety, Attention deficit disorder, Autism, Bipolar disorder, Child health, Child health, Depression, Depression, Diagnosis, Eating disorders, Mental disorders, Mental health, Schizophrenic disorders, Treatment

Annotation: This report presents findings from a survey of Vermont health care practices that provide primary care to children from birth to age six conducted to better understand current developmental and autism screening processes and referral patterns as well as barriers and facilitating practices. Developed by the Vermont Child Health Improvement Program (VCHIP) at the University of Vermont in collaboration with the Vermont Agency of Human Services, Office of Vermont Health Access, and professional societies, the survey was administered to 103 primary care practices by mail, fax, online, and telephone during 2009. The results of the survey, including response rates and findings according to type of screening, are summarized, and tables are provided to illustrate survey findings. The authors conclude by describing the wide variation in surveillance and screening practices in Vermont and suggest opportunities for improvement based on the results of the research.

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Keywords: Autism, Developmental disabilities, Developmental screening, Screening, State surveys, Vermont

Annotation: This monograph focuses on the role of the medical home in serving families and children with autism. Specifically it (1) describes the current prevalence and understanding of autism spectrum disorders (ASD), (2) summarizes challenges that families and professionals face as they work to provide early diagnosis of children with ASD and assure access to services, (3) describes principles of the medical home for children and youth with special health care needs, (4) describes a conceptual framework within which partners can ensure early identification and continuous services for children with ASD and their families, and (5) disseminates ASD service system guidelines for medical home primary care practice.

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Keywords: Children with special health care needs, Autism, Guidelines, Medical home, Service coordination, Strategic plans

Annotation: These proceedings provide information from the workshop, Autism and the Environment: Challenges and Opportunities for Research. The workshop, conducted by the Institute of Medicine's Forum on Neuroscience and Nervous System Disorders, was held on April 18-19, 2007. The focus was on improving the understanding of the ways in which environmental factors such as chemicals, infectious agents, or physiological or psychological stress can affect brain development. Topic include presentations, as well as a transcript of question-and-answer sessions following the presentations.

Keywords: Autism, Chemicals, Conference proceedings, Environmental influences, Nervous system diseases, Research, Stress

Annotation: This manual provides information and tools to strengthen skills in collaboration for organizations serving persons with developmental disabilities and enhance the lives of the families and individuals who live with autism spectrum disorders (ASD). Section topics include (1) steps to organizing a collaboration, (2) ten best practices to ensure success, and (3) what successful collaboration looks like. Additional information is provided on elements of cooperation, coordination, and collaboration; sample ground rules; a visioning activity; an action plan, tips on evaluating best practices; and sample evaluation questions.

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Keywords: Service integration, Autism, California, Cast studies, Collaboration, Developmental disabilities, Family support services, Model programs

Annotation: This Powerpoint presentation provides information from a study of autism spectrum disorders and the lifetime challenges that those who live with autism face. The document presents information about independence, family life, financial planning, and education.

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Keywords: , Adolescents with special health care needs, Autism, Children with special health care needs, Costs, Education, Families, Independence, Independent living

Annotation: This archived audio webcast from April 17, 2008 increases awareness of autism spectrum disorders (ASDs) and highlights opportunities for public health professionals to play a role in helping those affected to reach their full potential. Topics include autism spectrum disorders and their impact on children and families; CDC's ongoing surveillance and research in the area of autism spectrum disorders; CDC's "Learn the Signs. Act Early." campaign and related resources; the important roles public health plays in increasing dialogue about important developmental milestones; identifying children at risk for ASDs, and connecting children and families to appropriate early intervention. [Funded by the Maternal and Child Health Bureau]

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Keywords: Children with special health care needs, Autism, Child health, Developmental delays, Multimedia, Public awareness campaigns, Public health

Annotation: This knowledge path is a guide to resources about autism spectrum disorder (ASD) screening, diagnosis, treatment, care, and impact on family life. The knowledge path includes tools for health care practices; training; improving state systems and services; research; and finding data and statistics, journal articles, reports, and other materials. Companion resource briefs include Autism Spectrum Disorder: Resources for Families; Autism Spectrum Disorder: Resources for Schools; and Screening: Resource Brief. [Funded by the Maternal and Child Health Bureau]

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Keywords: Autism, Bibliographies, Child health, Children with special health care needs, Electronic publications, Families, Knowledge paths

Annotation: This guide, which is intended for education personnel who work with students with autism spectrum disorders (ASD), provides a summary of these students' strengths and deficits, the challenges these deficits create in the classroom, and strategies that education personnel can use to facilitate positive social and educational experiences for students with ASD. The guide provides a general description of ASD, explains the characteristics of students with ASD, suggests evidence-based strategies for working with students with ASD, and identifies resources where additional information can be found.The appendix contains additional information on autism, specific Web sites, and references.

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Keywords: Children with special health care needs, Autism, Education