Search Results: MCHLine

Annotation: This guide provides information to help community youth organizations develop programs to ensure that youth with autism are offered the same formative opportunities that are made available to their typical peers. The guide is designed to prepare community organizations to serve youth and families with autism and to learn how to integrate youth with autism into existing youth programs. Included are results from a national survey of community youth organizations conduced by Youth Speaks in 2012; an overview of autism and the challenges it presents to community organizations; and strategies for communicating with families and training staff who work with this population.

Contact: Autism Speaks, 1 East 33rd Street, Fourth Floor, New York, NY 10016, Telephone: (212) 252-8584 Fax: (212) 252-8676 E-mail: [email protected] Web Site: http://www.autismspeaks.org Available from the website.

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Keywords: Autism, Community programs, Developmental disabilities, Manuals, Program development, Youth

Annotation: This report describes how U.S. Department of Health and Services (HHS) agencies responded Combating Autism Act of 2006 (CAA) by establishing some new autism activities and continuing others. Included are descriptions of activities carried out in response to the CAA by the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), the Health Resources and Services Administration (HRSA), and the Office of Autism Coordinating Committee (OACC). The appendices list funding amounts (in millions of dollars) provided for autism activities within each of the HHS agencies and also provides funding amounts awarded to individual grantees (organized by type of program) for the period 2008-2011. A description of autism and the challenges in diagnosing this developmental disability are included in the background information.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 E-mail: [email protected] Web Site: http://www.gao.gov Available from the website.

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Keywords: Accountability, Autism, Federal agencies, Federal legislation, Regulation, Reports

Annotation: This document is an authoritative resource that defines and classifies mental disorders in order to improve diagnoses, treatment, and research.

Contact: American Psychiatric Publishing, 1000 Wilson Boulevard, Suite 1825, Arlington, VA 22209, Telephone: 703-907-7322 Secondary Telephone: 800-368-5777 Fax: 703-907-1091 E-mail: [email protected] Web Site: http://www.appi.org $117.70, plus shipping and handling. Document Number: ISBN 0-89042-0254.

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Keywords: Autism, Children, Clinical psychology, Mental health, Psychiatry

Annotation: This nine-minute tutorial consists of six video clips comparing toddlers who show no signs of autism spectrum disorders (ASD) to toddlers who show early signs of ASD. Each video is presented with a voice-over explaining how the specific behaviors exhibited by the child, as they occur on screen, are either suggestive of ASD or typical child development. Although developed as a resource for Maryland’s pediatricians, the tutorial is also available to parents and other professionals. [Funded by the Maternal and Child Health Bureau]

Contact: Kennedy Krieger Institute, 707 North Broadway, Baltimore, MD 21205, Telephone: (443) 923-9200 Secondary Telephone: (443) 923-2645 Fax: (410) 550-9344 E-mail: [email protected] Web Site: http://www.kennedykrieger.org Available from the website.

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Keywords: Audiovisual materials, Autism, Children with special health care needs, Developmental screening, Parent education, Resources for professionals, Toddlers, Videorecordings, Young children

Annotation: This report examines federal efforts to support autism research and autism-related activities, analyzing the extent to which federal agencies fund potentially duplicative autism research and the extent to which the Interagency Autism Coordinating Committee (IACC) and government agencies coordinate and monitor federal autism activities. The report includes background information on autism and a detailed summary of the General Accountability Office's (GAO's) findings based on an analysis of agencies’ data and documents together with interviews of federal officials and nonfederal IACC members. Included in the report are recommendations that some federal government agencies improve their coordination and monitoring of autism research and activity. Comments from federal agencies that cooperated during the GAO evaluation are included in the appendices.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 E-mail: [email protected] Web Site: http://www.gao.gov Available from the website. Document Number: GAO-14-16.

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Keywords: Accountability, Autism, Evaluation, Federal agencies, Federal initiatives, Reports

Annotation: This series of booklets is designed to provide oral health professionals with information about oral health care for people with special health care needs (SHCN). Strategies for care, covering topics such as mobility, neuromuscular problems, behavior problems, and sensory impairment, are discussed in the context of the dental office. Individual booklets on oral health and autism, cerebral palsy, Down syndrome, and intellectual disability offer practical guidance on adapting standard practice to accommodate those with SHCN. A guide for caregivers and one on safe wheelchair transfer are included.

Contact: National Institute of Dental and Craniofacial Research, National Institutes of Health, 900 Rockvilled Pike, Bethesda, MD 20892, Telephone: (866) 232-4528 E-mail: [email protected] Web Site: https://www.nidcr.nih.gov Available from the website.

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• Booklet

Keywords: Adolescents with special health care needs, Adults, Autism, Children with special health care needs, Continuing education, Developmental disabilities, Health care delivery, Oral health, Oral health care

Annotation: This fact sheet provided health professionals with basic information about the prevalence of It provides the surveillance and screening algorithm.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: 800/433-9016 Secondary Telephone: 202/347-8600 E-mail: https://www.aap.org/en/pages/contact-us/contact-national-headquarters/ Web Site: https://www.aap.org Available from the website.

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Keywords: Autism, Children with special health care needs, Developmental screening, Diagnosis, Monitoring, Referrals, Screening, Treatment

Annotation: This fact sheet provides information about autism and communication. The fact sheet answers the following questions: (1) what is autism spectrum disorder (ASD)?, (2) who is affected by ASD?, (3) how does ASD affect communication?, (4) how are the speech and language problems of ASD treated?, (6) what research is being conducted to improve the communication in children with ASD?, and (7) where can I get more information?

Contact: National Institute on Deafness and Other Communication Disorders Information Clearinghouse, One Communication Avenue, Bethesda, MD 20892-3456, Telephone: (800) 241-1044 Secondary Telephone: (800) 241-1055 Fax: (301) 770-8977 E-mail: [email protected] Web Site: http://www.nidcd.nih.gov/Pages/default.aspx Available from the website. Document Number: NIH Pub. No. 12-4315.

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Keywords: Autism spectrum disorders, Communication, Communication disorders, Developmental disabilities, Language disorders, Research, Speech disorders, Treatment

Annotation: This report reviews the epidemiological, clinical, and biological evidence related to adverse health events associated with specific vaccines covered by the National Vaccine Injury Compensation Program, including the varicella zoster vaccine, influenza vaccines, the hepatits B vaccine, and the human papillomavirus vaccine, among others. For each possible adverse event, the report reviews peer-reviewed primary studies, summarizes their findings, and evaluates the epidemiological, clinical, and biological evidence. Findings on the safety of vaccines are presented.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu Available from the website. Document Number: ISBN 978-0-309-21435-3.

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Keywords: Autism, Chicken pox, Human papillomavirus, Influenza, Hepatitis B, Research, Safety, Vaccines

Annotation: This paper examines the relationship between early childhood television watching and two health outcomes – autism and mental retardation. Using cross-sectional data from 1972 until 1992 on county-level autism and mental retardation rates, combined with county-level children's cable-television subscription rates, the authors' aimed tp eliminate questions concerning reverse causation while investigating the effects of early childhood television viewing on the prevalence of mental retardation and autism. Tables compare children's television viewing by race, family structure, income, and other variables, while figures compare rates of autism and mental retardation according to race, county demographics, and cable subscription rates.

Contact: National Bureau of Economic Research, 1050 Massachusetts Avenue, Cambridge, MA 02138-5398, Telephone: (617) 868-3900 Fax: (617) 868-2742 E-mail: [email protected] Web Site: http://www.nber.org Available from the website after free registration.

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Keywords: Autism, Data analysis, Early childhood development, Mental retardation, Studies, Television

Annotation: This report describes selected provisions of the Affordable Care Act (ACA) that have implications for children and adolescents with autism spectrum disorders or other developmental disabilities(ASD/DD). The report also describes how state Title V maternal and child health (MCH) programs can maximize opportunities under the ACA to develop and strengthen systems of care for children and adolescents with ASD/DD. The report provides background on gaps in coverage faced by children and adolescents with ASD/DD and discusses affordability and adequacy of health care coverage for this population, key provisions of the ACA, health care coverage and benefits, and implications for state Title V MCH and children and youth with special health care needs program leaders. [Funded by the Maternal and Child Health Bureau]

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

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Keywords: , Adolescents with developmental disabilities, Adolescents with special health care needs, Autism, Children with developmental disabilities, Children with special health care needs, Costs, Health care systems, Health insurance, Legislation, MCH programs, Title V programs

Annotation: This webcast highlights the roles for state Title V programs in building systems of care for children and youth with Autism Spectrum Disorder and Other Developmental Disabilities (ASD/DD). It outlines a range of roles for Title V as a leader, partner and facilitator; provides opportunities for peer-to-peer technical assistance; highlights ongoing challenges in data and financing and opportunities for collaborative approaches; and provides state resources and examples of leadership, outreach, and family participation to share with policy makers. The presenters provided examples from state programs to demonstrate the depth of involvement from state Title V programs and their partners. The purpose of the webcast was to help states (primarily Title V programs) determine appropriate roles and approaches to building systems of care for children and youth with ASD/DD. The full webcast recording and presenters' powerpoint slides can be downloaded from the website.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

• Full Webcast Recording
• Audio Recording

Keywords: Autism, Children, Developmental disabilities, Multimedia, State programs, Title V programs, Youth

Annotation: This report addresses the rise in the number of children diagnosed with autism and autism spectrum disorders (ASDs), how children are identified and served in local communities, and the need for accelerated research. Contents include defining ASDs, how many people have ASDs, what is the Autism and Developmental Disabilities Monitoring (ADDM) network, results of monitoring and the prevalence of ASDs in national and state-by-state demographics, and how the data can be used. Additional information is provided on related topics and resources.

Contact: National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov/ncbddd Available from the website.

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Keywords: Surveillance, Autism, Children with special health care needs, Developmental disabilities, Monitoring, National surveys, State surveys

Annotation: This toolkit is designed to assist families of children with autism and members of the school community in understanding and supporting students with autism. It offers an introduction to physical, medical, and other challenges for children with autism or Asperger's Syndrome; information for the many types of school service personnel; educating students with autism; and supporting learning in the student with autism. Resources and appendices include web, print, and video resources.

Contact: Autism Speaks, 1 East 33rd Street, Fourth Floor, New York, NY 10016, Telephone: (212) 252-8584 Fax: (212) 252-8676 E-mail: [email protected] Web Site: http://www.autismspeaks.org Available from the website.

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Keywords: Autism, Children with special health care needs, Community role, Family support services, Resources for professionals, School health, School personnel, Special education, Students

Annotation: This report examines the effects of available interventions for adolescents and young adults with autism spectrum disorders (ASD), focusing on the following outcomes: core symptoms of ASD (impairments in social interaction, communication, and repetitive behavior); medical and mental health comorbidities; functional behaviors and independence; the transition to adulthood; and family outcomes. The report discusses the various interventions discussed in the literature (behavioral, social skills, educational, comprehensive intensive behavioral, vocational, adaptive/life skills, medical, and allied health); discusses the method used to systematically review the evidence; and summarizes the study findings. It examines the strength of the evidence for effective therapies; examines the applicability of the evidence; and discusses gaps in the evidence and areas for future research.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website. Document Number: AHRQ Pub. No. 12-EHC063-EF.

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Keywords: Adolescents, Autism, Interventions, Literature reviews, Reports, Research, Young adults

Annotation: This data brief provides information on diagnosis and treatment of school-age children and adolescents (ages 6-16) with special health care needs (CSHCN) and autism spectrum disorders (ASD). Topic include age of diagnosis, types of health professionals that identify CSHCN as having ASD, and health services and medications used by CSHCN with ASD.

Contact: National Center for Health Statistics, Centers for Disease Control and Prevention, 3311 Toledo Road, Room 5419, Hyattsville, MD 20782, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 Fax: (301) 458-4020 E-mail: [email protected] Web Site: http://www.cdc.gov/nchs Available from the website.

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Keywords: Prescription drugs, Adolescents with special health care needs, Autism, Children with special health care needs, Diagnosis, Health services, Statistical data, Treatments

Annotation: In this video, parents and health professionals share their stories of success in working with the National Initiative for Children's Healthcare Quality's Autism Collaborative project and using quality-improvement techniques to improve the care of children with autism. The video also provides information about autism and about the program. [Funded by the Maternal and Child Health Bureau]

Contact: National Institute for Children's Health Quality, 30 Winter Street, Sixth Floor, Boston, MA 02108, Telephone: (617) 391-2700 Secondary Telephone: (866) 787-0832 Fax: (617) 391-2701 E-mail: [email protected] Web Site: http://www.nichq.org Available from the website.

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Keywords: Audiovisual materials, Access to health care, Autism, Autistic children, Collaboration, Families, Family support programs, Family support services, Health care services, Parents, Programs, Service coordination, Videos

Annotation: This guide for parents of children with autism provides tools for teaching oral health routines and preparing for dental visits. Topics include toothbrushing and flossing, behavior modification, sensory modification, finding a dental team, and visiting the dentist.

Contact: Dr. Samuel D. Harris National Museum of Dentistry, University of Maryland School of Dentistry, 650 West Baltimore Street, Baltimore, MD 21201-1504, Telephone: (410) 706-7146 Fax: (410) 706-3214 E-mail: [email protected] Web Site: https://www.dental.umaryland.edu/museum/index.php Available from the website.

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Keywords: Anticipatory guidance, Autism, Children, Dental hygiene, Family centered care, Oral health, Oral health care

Annotation: This online learning module provides tools and training to help parents teach their child with autism or a related neurodevelopmental disorder functional skills using Applied Behavior Analysis (ABA) techniques. The learning module includes ten interactive lessons; forms and checklists; notes on accessibility; and a glossary of terms.

Contact: University of California, Davis, MIND Institute, 2825 50th Street, Sacramento, CA 95817, Telephone: (916) 703-0280 E-mail: http://www.ucdmc.ucdavis.edu/mindinstitute/contactus/ Web Site: http://www.ucdmc.ucdavis.edu/mindinstitute/ Available from the website.

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Keywords: Autism, Children with special health care needs, Developmental disabilities, Life skills, Parent education, Parenting

Annotation: This curriculum is designed to educate health professionals on fundamental components of identifying, diagnosing, and managing autism spectrum disorders (ASDs) through real life scenarios. The in-class curriculum comprises 7 learning modules with case descriptions, videos, facilitator guides, and presentations. Topics include early warning signs of autism, screening for autism, communicating abnormal results on a screening tool, making an autism diagnosis, early intervention and education, treatments for autism, and autism-specific anticipatory guidance. The continuing education version comprises three modules on identifying ASD, assisting a family through the diagnostic process, and caring for clients with ASD. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov/ncbddd Available from the website.

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• Continuing Education Version

Keywords: Children with special health care needs, Autism, Behavior development, Case assessment, Continuing education, Curricula, Developmental pediatrics, Multimedia, Training