Skip Navigation

Strengthen the Evidence for Maternal and Child Health Programs

Sign up for MCHalert eNewsletter

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 21 through 40 (254 total).

Association of Maternal and Child Health Programs; Georgia Health Policy Center. 2021. Medicaid options for states during COVID-19: Considerations for children and youth with special health care needs. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This fact sheet explores Medicaid policy options for states to meet the needs of children and youth with special health care eneds (CYSHCN) during the COVID-19 public health emergency (PHE) and discusses how future rollbacks of PHE modifications may affect CYSHCN populations.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Children', Communicable diseases, Emergencies, Medicaid, Policy development, State health insurance programs, Virus diseases, Youth, s health insurance program

Okumura MJ, Kuo DZ, Ware AN, Cyr, White PH . 2021. Improving health care transitions for children and youth with special health care needs. Academic pediatrics, 22(2S), S7–S13, 7 pp.

Annotation: This journal article reviews programs and literature on the transfer of care for children and youth with special health care needs (CYSHCN). Often these patients do not have adequate transition structure to adult health care, and it suggests that future research focus on patient and family transitions of care in the context of their social and community environment, and uncover knowledge about adequate services and payment structures and incentives to promote continuity of care and the need for family/youth and young adult-centered models of care across the life-span.

Contact: Elsevier, Health Sciences Division, 1600 John F. Kennedy Boulevard, Suite 1800, Philadelphia, PA 19103-2822, Telephone: (215) 239-3900 Fax: (215) 239-3990 Web Site: http://www.us.elsevierhealth.com

Keywords: Adolescents with special health care needs, Children with special health care needs, Transitions

Oregon Center for Children and Youth with Special Health Needs. 2021. Improving the transition from pediatric to adult health care for Oregon’s youth with special health care needs fact sheet. Portland, OR: Oregon Center for Children and Youth with Special Health Needs, 2 pp.

Annotation: This fact sheet from the state of Oregon uses statistics to draw attention to the need for youth with special health care needs (YSHCN) to receive help in their transition to adult health care. It lists the benefits of adequate transition, and provides strategies to improve transition in the state of Oregon. [From the Oregon Center for Children and Youth with Special Health Needs (OCCYSHN), Oregon’s public health agency for children and youth with special health care needs. OCCYSHN is funded through the Oregon Health Authority, with a designated portion of the state’s annual US Maternal and Child Health Bureau (MCHB) Title V Block Grant.]

Contact: Oregon Center for Children and Youth with Special Health Needs, 707 South West Gaines Road, Portland, OR 97239, Telephone: (503) 494-8303 Secondary Telephone: (877) 307-7070 Fax: (503) 494-2755 E-mail: [email protected] Web Site: http://www.ohsu.edu/xd/outreach/occyshn

Keywords: Adolescents with special health care needs, Oregon, Transitions

Holt K, Barzel R, eds. 2020. Oral health services for children and adolescents with special health care needs: A resource guide (4th. ed.). Washington, DC: National Maternal and Child Oral Health Resource Center, 23 pp.

Annotation: This resource guide provides information for health professionals to assist them in planning, developing, and implementing efforts to ensure that children and adolescents with special health care needs receive optimal oral health care. The guide describes materials, including brochures, fact sheets, guides, manuals, and reports. It also lists federal agencies, resource centers, and national professional associations that may serve as resources. [Funded by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Oral health, Resource materials

Honsberger K, Tanga AM, Eichner H. 2020. Identification and screening of social determinants of health among children with special health care needs in Medicaid. Itasca, IL: National Resource Center for Patient/Family-Centered Medical Home, 7 pp.

Annotation: This fact sheet discusses the relationship between social determinants of health (SDOH) and children and youth with special health care needs (CYSHCN) and gives case studies from North Carolina, Kansas and Oregon to describe how these states have used screenings and administrative data to identify and assess SDOH in order to better support CYSHCN.

Contact: National Resource Center for Patient/Family-Centered Medical Home, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-7605 Secondary Telephone: (800) 433-9016, ext. 7605 Web Site: https://www.aap.org/en/practice-management/medical-home Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Kansas, Managed care, Medicare, North Carolina, Oregon, Social factors, State initiatives

Surdu S, Langelier M, Fosse C, Li Q. 2020. Contributions of general and specialty dentists to provision of oral health services for people with special needs. Rensselaer, NY: Oral Health Workforce Research Center, 50 pp.

Annotation: This report describes a study conducted to evaluate the attitudes and willingness of general and specialty dentists to treat people with special health care needs and to identify barriers that dentists face in caring for them. The report presents findings from a literature review and results and conclusions from the study.

Contact: Oral Health Workforce Research Center, New York Center for Health Workforce Studies, University of Albany, SUNY, School of Public Health, 1 University Place, Suite 220, Rensselaer, NY 12144-3445, Telephone: (518) 402-0250 Fax: (518) 402-0252 Web Site: http://www.oralhealthworkforce.org Available from the website.

Keywords: Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Dentists, Oral health, Statistical data, Studies, Training

National Academy for State Health Policy. 2020. National standards for CYSHCN one-pagers showcase most utilized domains. Portland, ME: National Academy for State Health Policy, 1 web resource.

Annotation: The National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) define the core components of a comprehensive, coordinated, and family-centered system of care for CYSHCN. These one-pagers highlight the five most utilized National Standards domains, including identification and assessment, access to care, transition to adult care, medical homes, and community-based services and supports. The downloadable one-pagers include standards language, relevant quality measures, and examples of state implementation.

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Standards, Young adults

U.S. Maternal and Child Health Bureau. 2020. Request for Information: A Blueprint for Change: Guiding Principles for Advancing the System of Services for Children and Youth with Special Health Care Needs (CYSHCN) and Families . Rockville, MD: U.S. Maternal and Child Health Bureau, 8 pp.

Annotation: This document requests input on a blueprint designed to inform programs and policy at the community, state, and federal levels on how systems of care for children and youth with special health care needs (CYSHCN) can be operationalized in the key areas of health equity, access to services and supports, family/child well-being and quality of life, and financing of services. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Health care systems, Public health services, Service delivery systems

U.S. Maternal and Child Health Bureau. 2020. Children with special health care needs. Rockville, MD: U.S. Maternal and Child Health Bureau, 3 pp. (NSCH data brief)

Annotation: This brief provides a 2017-2018 data snapshot of children and youth with special health care needs (CHSYCN) from the National Survey of Children's Health (NSCH). It covers types of special health care needs in this population, frequency/degree of activity limitations, prevalence of certain health conditions, key indicators and effective systems. It also describes the NCSH data collection.

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Statistics

Eldridge Q, Khan S, Ravi B, Aronoff D, Yousuf J, Fine J. 2020. Community of practice curriculum: Continuing education trainings for dental care providers—Guide for trainers. Oakland, CA: Office of Dental Health, Alameda County Public Health Department, 69 pp.

Annotation: This guide for trainers provides continuing education (CE) to oral health professionals serving infants, children, and adolescents from birth through age 21, including children with special health care needs (CSHCN) and pregnant women. Topics include (1) introduction to public dental health and care coordination; (2) behavioral guidance; (3) motivational interviewing; (4) early childhood oral health care; (5) tooth decay progression, management, diagnosis, and treatment; (6) restorative techniques; (7) cost-effective practice; (8) pediatric anesthetic and behavior management; (9) oral health care for CSHCN and pregnant women; and (10) tobacco, vaping, and oral health.

Contact: Alameda County Public Health Department, Office of Dental Health, 1100 San Leandro Blvd., San Leandro, CA 94577, Telephone: (510) 208-5910 E-mail: [email protected] Web Site: https://dental.acphd.org/ Available from the website.

Keywords: , Adolescent health, Children with special health care needs, Continuing education, Infant health, Infants with special health care needs, Oral health, Pregnant women, Public health

Honsberger K, Tanga AM. 2020. Social determinants of health referrals in Medicaid and the role of Medicaid managed care contracts. Itasca, IL: National Resource Center for Patient/Family-Centered Medical Home, 6 pp.

Annotation: This fact sheet discusses social determinants of health screening and referrals for children and youth with special health care needs and their families, particularly in reference to Medicaid and Medicaid managed care contracts. The document provides examples of state-level programs.

Contact: National Resource Center for Patient/Family-Centered Medical Home, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-7605 Secondary Telephone: (800) 433-9016, ext. 7605 Web Site: https://www.aap.org/en/practice-management/medical-home

Keywords: Adolescents with special health care needs, Child health, Children with special health care needs, Managed care, Medicaid, Social factors

National Resource Center for Patient/Family-Centered Medical Home. 2020. Implementing medical homes for children and youth with special health care needs (CYSHCN) within Medicaid managed care. Itasca, IL: National Resource Center for Patient/Family-Centered Medical Home, 8 pp.

Annotation: This fact sheet discusses strategies for implementing medical homes for children and youth with special health care needs (CYSHCN) through Medicaid managed care. The document provides examples of state-level programs that have implemented a range of strategies to support medical homes for CYSHCN. These strategies include developing partnerships to connect children to medical homes, incorporating the medical home model in managed care contract language, and using incentives for providers to use a medical home approach. The fact sheet also provides links to additional resources.

Contact: National Resource Center for Patient/Family-Centered Medical Home, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-7605 Secondary Telephone: (800) 433-9016, ext. 7605 Web Site: https://www.aap.org/en/practice-management/medical-home

Keywords: Adolescents with special health care needs, Child health, Children with special health care needs, Health care delivery, Managed care, Medicaid, Medical home

University of Michigan Health System, Adolescent Health Initiative. 2020. Starter guide: Building dental practice capacity to serve adolescent patients. Ann Arbor, MI: University of Michigan Health System, Adolescent Health Initiative, 6 pp.

Annotation: This guide focuses on building dental practices’ capacity to serve adolescents. It discusses barriers to accessing oral health care for adolescents and strategies for increasing their use of oral health care. Strategies include how to make care accessible to adolescents, creating a welcoming environment, using strengths-based approaches to care, encouraging adolescents to return for follow-up care, and collecting feedback from adolescents. Providing care to adolescents, including those who are pregnant, who have special health care needs, and who use tobacco or other substances, is also discussed.

Contact: University of Michigan Health System, Adolescent Health Initiative, 2025 Traverwood Drive, Suite A6, Ann Arbor, MI 48105-2197, Telephone: (734) 998-2034 Fax: (734) 998-2213 E-mail: [email protected] Web Site: http://umhs-adolescenthealth.org Available from the website.

Keywords: Access to health care, Adolescent health, Adolescents with special health care needs, Health care utilization, Oral health, Pregnant adolescents

Leeb RT, Danielson ML, Bitsko RH, Cree RA, Godfred-Cato S, Hughes MM, Powell P, Firchow B, Hart LC, Lebrun-Harris LA. 2020. Support for transition from adolescent to adult health care among adolescents with and without mental, behavioral, and developmental disorders — United States, 2016–2017. MMWR Morb Mortal Wkly Rep. 69(34):1156-1160, 5 pp. (MMWR )

Annotation: This report from the CDC provides statistics and tables about transition for youth aged 12-17, with a particular focus youth with mental, behavioral, and developmental disorders (MBDDs). Statistics list details such as sex, ethnicity, and what disorders the patients were diagnosed with. It calls for improved access to to comprehensive and coordinated programs and services, as well as increasing provider training concerning adolescents’ unique mental and physical health care needs in the future.

Contact: Centers for Disease Control and Prevention , 1600 Clifton Road, Atlanta, GA 30333, Telephone: 1-800-CDC-INFO (232-4636 Web Site: http://www.cdc.gov

Keywords: Adolescents with special health care needs, Behavioral health issues, Depression, Mental disorders, Transition

Abdi FM, Seok D, Murphey D. 2020. Children with special health care needs face challenges accessing information, support, and services. Bethesda, MD: Child Trends, 23

Annotation: This brief analyzes national and state-level data from the 2016-2017 National Survey of Children’s Health (NSCH) on children and youth with special health care needs (CYSHCN) and their families. Racial and ethnic disparities in access to appropriate, comprehensive, and coordinated health care are highlighted, as well the widely variable outcomes for CYSHCN across states. Challenges associated with family, neighborhood, and school circumstances are among the barriers identified.

Contact: Child Trends , 7315 Wisconsin Avenue, Suite 1200 W, Bethesda, MD 20814, Telephone: (240) 223-9200 E-mail: Web Site: http://www.childtrends.org

Keywords: , Access to care, Adolescents with special health care needs, Barriers, Children with special health care needs, National surveys, Statistics, Trends

University of Kentucky Human Development Institute. 2019. Glossary of disability terms and acronyms. [Lexington, KY?]: University of Kentucky Human Development Institute, 10 pp.

Virginia Department of Health. 2019. Virginia's individuals with special health care needs oral health basic screening survey 2019 results. Richmond, VA: Virginia Department of Health, 20 pp.

Annotation: This report provides information about Virginia’s first Special Health Care Needs Oral Health Basic Screening Survey. The report describes results in the following areas: whether the respondent has a special health care need, respondent age and living situation, respondent health insurance and dental insurance status, whether the respondent had a problem with their teeth or mouth during the past 12 months, whether the respondent had a dentist to go to regularly and whether they had their teeth cleaned in the last 12 months, how confident the respondent or their caregiver is about caring for teeth at home, and whether anything prevented the respondent from receiving dental care in the past 12 months.

Contact: Virginia Department of Health, P.O. Box 2448, Richmond, VA 23218, Telephone: (804) 864-7000 E-mail: [email protected] Web Site: https://www.vdh.virginia.gov Available from the website.

Keywords: Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Chronic Illnesses and disabilities, Oral health, State initiatives, Surveys, Virginia

Minnesota Department of Health . 2019. Minnesota Department of Health white paper on the transition from pediatric to adult health care. St. Paul, MN: Minnesota Department of Health, 20 pp.

Annotation: This report provides data on the 25.6% of Minnesota youth with special health care needs and how well they transition to adult health care, as well as recommendations on how the system can be improved in the future. At the writing of this report, only 1 in 5 youth received the care they needed. The white paper identifies factors that contribute to the lack of transition planning and readiness, and makes recommendations on how to improve the outcomes of healthcare transition in the future.

Contact: Minnesota Department of Health , Children and Youth with Special Health Needs, PO Box 64882, St. Paul , MD 55164-0882, Telephone: 651-201-3650 E-mail: [email protected] Web Site: www.health.state.mn.us

Keywords: Adolescents with special health care needs, Minnesota, Transitions

Catalyst Center . 2018 . Fundamentals of financing the system of care for children and youth with special health care needs (CYSHCN). Boston, MA: Catalyst Center, 10 pp.

Annotation: This document describes various pathways to financing systems of care for children and youth with special health care needs (CYSHCN). Topics addressed include Medicaid coverage, Early and Periodic Screening, Diagnostic and Treatment, inequities in coverage and financing, financial hardship experienced by families raising CYSHCN and the importance of forming partnerships to advance financing and health coverage.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/

Keywords: Adolescents with special health care needs, Children with special health care needs, EPSDT, Financing, Medicaid

Harper K; Ne'eman A. 2018. A state multi-sector framework for supporting children and youth with special health care needs. Bethesda, MD: Child Trends, 24 pp.

Annotation: This framework describes desired systems performance outcomes for children and youth with special health care needs (CYSHCN) in the domains of health services; family support and social services; education and employment services; and law enforcement and juvenile justice contact. The document provides a table listing services used by CYSHCN and their families by domain; a description of how the literature was reviewed; a list of statutes, policies and existing documents relating to the outcomes; a list of state, federal and other actors who support CYSHCN and their families; and available datasets and state policy compendia. The audience for the framework is parents, state lawmakers, and other stakeholders.

Contact: Child Trends , 7315 Wisconsin Avenue, Suite 1200 W, Bethesda, MD 20814, Telephone: (240) 223-9200 E-mail: Web Site: http://www.childtrends.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Families, Health care systems, Policies, Service delivery systems, State programs, Youth with special health care needs
« Previous Page     Next Page »

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.