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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 61 through 80 (1,189 total).

Holt K, Barzel R, eds. 2020. Oral health services for children and adolescents with special health care needs: A resource guide (4th. ed.). Washington, DC: National Maternal and Child Oral Health Resource Center, 23 pp.

Annotation: This resource guide provides information for health professionals to assist them in planning, developing, and implementing efforts to ensure that children and adolescents with special health care needs receive optimal oral health care. The guide describes materials, including brochures, fact sheets, guides, manuals, and reports. It also lists federal agencies, resource centers, and national professional associations that may serve as resources. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents with special health care needs, Children with special health care needs, Oral health, Resource materials

Honsberger K, Tanga AM, Eichner H. 2020. Identification and screening of social determinants of health among children with special health care needs in Medicaid. Itasca, IL: National Resource Center for Patient/Family-Centered Medical Home, 7 pp.

Annotation: This fact sheet discusses the relationship between social determinants of health (SDOH) and children and youth with special health care needs (CYSHCN) and gives case studies from North Carolina, Kansas and Oregon to describe how these states have used screenings and administrative data to identify and assess SDOH in order to better support CYSHCN.

Keywords: Adolescents with special health care needs, Children with special health care needs, Kansas, Managed care, Medicare, North Carolina, Oregon, Social factors, State initiatives

Surdu S, Langelier M, Fosse C, Li Q. 2020. Contributions of general and specialty dentists to provision of oral health services for people with special needs. Rensselaer, NY: Oral Health Workforce Research Center, 50 pp.

Annotation: This report describes a study conducted to evaluate the attitudes and willingness of general and specialty dentists to treat people with special health care needs and to identify barriers that dentists face in caring for them. The report presents findings from a literature review and results and conclusions from the study.

Keywords: Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Dentists, Oral health, Statistical data, Studies, Training

National Academy for State Health Policy. 2020. National standards for CYSHCN one-pagers showcase most utilized domains. Portland, ME: National Academy for State Health Policy, 1 web resource.

Annotation: The National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) define the core components of a comprehensive, coordinated, and family-centered system of care for CYSHCN. These one-pagers highlight the five most utilized National Standards domains, including identification and assessment, access to care, transition to adult care, medical homes, and community-based services and supports. The downloadable one-pagers include standards language, relevant quality measures, and examples of state implementation.

Keywords: Adolescents with special health care needs, Children with special health care needs, Standards, Young adults

Barbara Aved Associates. 2020. Painful realities: General anesthesia access in Sacramento GMC dental managed care. Sacramento, CA: Sacramento County Department of Health Services, Public Health Division, Oral Health Program, 71 pp.

Annotation: This report describes a study conducted to determine the availability of general anesthesia (GA) for oral health care in Sacramento County, CA, particularly for individuals with special health care needs (SHCN). The report discusses the importance of GA for those with SHCN who may be unable to tolerate oral health care without it. Topics include process and data sources, background, findings, and recommendations.

Keywords: Access to health care, Adults with special health care needs, California, Children with special health care needs, Oral health, State programs

U.S. Maternal and Child Health Bureau. 2020. Request for Information: A Blueprint for Change: Guiding Principles for Advancing the System of Services for Children and Youth with Special Health Care Needs (CYSHCN) and Families . Rockville, MD: U.S. Maternal and Child Health Bureau, 8 pp.

Annotation: This document requests input on a blueprint designed to inform programs and policy at the community, state, and federal levels on how systems of care for children and youth with special health care needs (CYSHCN) can be operationalized in the key areas of health equity, access to services and supports, family/child well-being and quality of life, and financing of services. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents with special health care needs, Children with special health care needs, Health care systems, Public health services, Service delivery systems

U.S. Maternal and Child Health Bureau. 2020. Children with special health care needs. Rockville, MD: U.S. Maternal and Child Health Bureau, 3 pp. (NSCH data brief)

Annotation: This brief provides a 2017-2018 data snapshot of children and youth with special health care needs (CHSYCN) from the National Survey of Children's Health (NSCH). It covers types of special health care needs in this population, frequency/degree of activity limitations, prevalence of certain health conditions, key indicators and effective systems. It also describes the NCSH data collection.

Keywords: Adolescents with special health care needs, Children with special health care needs, Statistics

Anderson KA, Rast JE, Roux AM, Garfield T, Shattuck PT. 2020. National autism indicators report: Children on the autism spectrum and family financial hardship. Philadelphia, PA: A. J. Drexel Autism Institute, Life Course Outcomes Research Program, 47 pp.

Annotation: This report focuses on the financial hardships facing families raising children on the autism spectrum. It discusses disability and sociodemographic characteristics of children with autism spectrum disorders, levels of family financial hardship, and safety net program use. Recommendations are included. [Funded by the Maternal and Child Health Bureau]

Keywords: Autism, Children with special health care needs, Family support services, Financial barriers, Financial support, Statistics

Honsberger K, Bayer E, Tanga AM, VanLandeghem K. 2020. State approaches to providing home health services to children with medical complexity enrolled in Medicaid. Portland, ME: National Academy for State Health Policy, 16 pp.

Annotation: This policy brief examines how six states structure, finance and provide home health services that are designed to provide important home-based care and family supports, improve quality of care, and avoid costly, hospitalizations and institutionalized care. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Home care services, Medicaid, State programs

Boston Children's Hospital. 2020. Organizing care and relationships for families: Care map. Boston, MA: Boston Children's Hospital, multiple items.

Annotation: This resource provides information on the care map application, a tool to assist families and the professionals they partner with to coordinate and plan health care for children with special health care needs and for all children. The website includes a how-to guide for families and a guide for professionals supporting families. This resource won the 2020 Care Coordination for Children with Special Health Care Needs Challenge sponsored by the Maternal and Child Health Bureau.

Keywords: Care coordination, Children with special health care needs, Mobile applications

Eldridge Q, Khan S, Ravi B, Aronoff D, Yousuf J, Fine J. 2020. Community of practice curriculum: Continuing education trainings for dental care providers—Guide for trainers. Oakland, CA: Office of Dental Health, Alameda County Public Health Department, 69 pp.

Annotation: This guide for trainers provides continuing education (CE) to oral health professionals serving infants, children, and adolescents from birth through age 21, including children with special health care needs (CSHCN) and pregnant women. Topics include (1) introduction to public dental health and care coordination; (2) behavioral guidance; (3) motivational interviewing; (4) early childhood oral health care; (5) tooth decay progression, management, diagnosis, and treatment; (6) restorative techniques; (7) cost-effective practice; (8) pediatric anesthetic and behavior management; (9) oral health care for CSHCN and pregnant women; and (10) tobacco, vaping, and oral health.

Keywords: , Adolescent health, Children with special health care needs, Continuing education, Infant health, Infants with special health care needs, Oral health, Pregnant women, Public health

University of California, San Francisco, School of Dentistry. 2020. Special needs dentistry: Summit synopsis. San Francisco, CA: University of California, San Francisco, School of Dentistry, 8 pp.

Annotation: This report provides information from the Special Needs Dentistry Summit attended by stakeholders across community, education, government, and industry sectors to develop consensus on the conditions necessary to improve access to care for people with special health care needs and steps to address the problem of poor access. Report topics include barriers to accessing care and causes of the problem. Goals for progress in the short, medium, and long term are presented.

Keywords: Access to health care, Adults with special health care needs, California, Children with special health care needs, Oral health, State initiatives

Honsberger K, Tanga AM. 2020. Social determinants of health referrals in Medicaid and the role of Medicaid managed care contracts. Itasca, IL: National Resource Center for Patient/Family-Centered Medical Home, 6 pp.

National Resource Center for Patient/Family-Centered Medical Home. 2020. Implementing medical homes for children and youth with special health care needs (CYSHCN) within Medicaid managed care. Itasca, IL: National Resource Center for Patient/Family-Centered Medical Home, 8 pp.

Annotation: This fact sheet discusses strategies for implementing medical homes for children and youth with special health care needs (CYSHCN) through Medicaid managed care. The document provides examples of state-level programs that have implemented a range of strategies to support medical homes for CYSHCN. These strategies include developing partnerships to connect children to medical homes, incorporating the medical home model in managed care contract language, and using incentives for providers to use a medical home approach. The fact sheet also provides links to additional resources.

Keywords: Adolescents with special health care needs, Child health, Children with special health care needs, Health care delivery, Managed care, Medicaid, Medical home

Association of Maternal and Child Health Programs . 2020. Telehealth capacity of maternal & child health public health systems in response to the COVID-19 pandemic: environmental scan . Washington, DC: Association of Maternal and Child Health Programs , 15 pp.

Annotation: This environmental scan summarizes themes that emerged during interviews with key informants on the implementation of telehealth solutions during the COVID-19 pandemic. The brief describes several themes that emerged across multiple programs: (1) There is significant variance in the level of telehealth implementation occurring across jurisdictions; (2) Systemic and widespread connectivity issues exist for families and some programs; (3) There is a lack of evidence by which to make decisions about if and how to continue or expand telehealth to best meet families’ needs; and (4) Improved mechanisms are needed to connect available educational and training resources with the providers and staff who need them, when they need them. Contributors include representatives from Title V and children and youth with special health care needs (CYSHCN) programs, newborn screening functions, and maternal, infant, and early childhood home visiting (MIECHV) services.

Keywords: Barriers, Child health, Children with special health needs, Health care delivery, Interviews, Maternal health, Telecommunications, Telemedicine, Youth

National Academy for State Health Policy. 2020. National care coordination standards for children and youth with special health care needs. Portland, OR: National Academy for State Health Policy, 31 pp.

Annotation: This report is an update of the 2014 report by the same name, created by by the Association of Maternal and Child Health Programs (AMCHP) and the National Academy for State Health Policy (NASHP). To create the standards for coordinated care of CYSHCN, a literature review was conducted to establish the best standards of care for both adults and children, and over 80 documents were consulted. The report describes six domains of care, including screening procedures to determine the special health care needs of children and youth. (Appendices list terms and key informants.)

Keywords: Care coordination, Children with special health care needs, Medical home, Service coordination, Standards

Abdi FM, Seok D, Murphey D. 2020. Children with special health care needs face challenges accessing information, support, and services. Bethesda, MD: Child Trends, 23

Annotation: This brief analyzes national and state-level data from the 2016-2017 National Survey of Children’s Health (NSCH) on children and youth with special health care needs (CYSHCN) and their families. Racial and ethnic disparities in access to appropriate, comprehensive, and coordinated health care are highlighted, as well the widely variable outcomes for CYSHCN across states. Challenges associated with family, neighborhood, and school circumstances are among the barriers identified.

Keywords: , Access to care, Adolescents with special health care needs, Barriers, Children with special health care needs, National surveys, Statistics, Trends

Association of Maternal and Child Health Programs. 2020. Title V Data integration tip sheet: Data privacy and security. Washington, DC: Association of Maternal and Child Health Programs, 1 pp. (Tip Sheet)

Annotation: This tip sheet outlines essential guidelines for Title V programs when integrating their data into Early Childhood Integrated Data Systems (ECIDS), with a focus on data privacy and security measures. It contains key recommendations and guidance emphasizes for protecting sensitive information through proper administrative, physical, and technical safeguards while ensuring data accuracy and reliability. The document provides critical checkpoints for Title V programs to maintain data integrity and confidentiality when participating in integrated data systems, and includes references to additional privacy and security resources and tools for implementation.

Keywords: Confidentiality, Data collection, Title V programs, Children with special health care needs

Association of Maternal and Child Health Programs. 2020. Partnership assessment and relationship profile. Washington, DC: Association of Maternal and Child Health Programs, 5 pp.

Annotation: The purpose of the Partnership Assessment and Relationship Profile is to identify strengths and areas of needed growth across partners serving CYSHCN (Children and Youth with Special Health Care Needs). The tool is designed to aid partners working in systems that serve CYSHCN to do the following: identify previous and current collaborations among partners serving CYSHCN; determine the broad strengths and barriers to collaborations; create a plan to build on partnership-related strengths; and address identified barriers.

Keywords: Children with special health care needs, Assessment tools, Collaboration, Standards

Willard J. 2020. Partnership with Title V. [Iowa City, IA: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics], 28 pp.

Annotation: These presentation slides outline partnership strategies and opportunities within Iowa's Title V Maternal and Child Health Block Grant program, specifically focusing on Children and Youth with Special Health Care Needs (CYSHCN). They describe Iowa's unique structure, where the CYSHCN program is housed within the University of Iowa, and details their 2021-2026 priorities. The presentation provides guidance for other states on developing partnerships with Title V programs, emphasizing the importance of reviewing state Block Grant applications to identify partnership opportunities, and suggests focusing on specific sections like the Needs Assessment and State Action Plan for Children and CYSHCN populations.

Keywords: Children with special health care needs, Title V programs, Iowa
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The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.