Search Results: MCHLine

Annotation: These guidelines contain a set of standards to advance the quality and safety of early care and education environments. It is a companion to Caring for Our Children: National Health and Safety Performance Standards -- Guidelines for Early Care and Education Programs, 3rd edition. Included are new and updated standards on on safe sleep, handling and feeding of human milk, introducing solid foods to infants, monitoring children's development, unimmunized children, preventing expulsions, and availability of drinking water. [Funded by the Maternal and Child Health Bureau]

Contact: National Resource Center for Health and Safety in Child Care and Early Education, University of Colorado Denver, 13120 East 19th Avenue, Mail Stop F541, P.O. Box 6511, Aurora, CO 80045, Telephone: (800) 598-5437 (598-KIDS) Fax: (303) 724-0960 E-mail: [email protected] Web Site: http://nrckids.org Available from the website.

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Keywords: Child care, Child care centers, Children with special health care needs, Facilities, Health promotion, Learning activities, Management, Nutrition, Out of home care, Personnel, Prevention, Safety, Spanish language materials , Standards

Annotation: This tip sheet outlines strategies for health professionals in planning, developing, and implementing state and local efforts to ensure access to oral health care for children and adolescents with special health care needs. Topics include working with parents and other caregivers to provide oral hygiene care, work force issues, health care financing, the importance of dental and medical homes, and a review of state and local programs addressing these issues. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

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Keywords: Adolescents with special health care needs, Children, Children with special health care needs, Dental hygiene, Health care systems, Oral health, Oral health care

Annotation: This resource identifies key components and themes across five states’ approaches to financing care coordination for children and youth with special health care needs (CYSHCN) through Medicaid, which can be used to support high-quality care coordination as outlined in the National Care Coordination Standards for Children and Youth with Special Health Care Needs. The resource describes three types of Medicaid service delivery models and highlights the approaches to Medicaid financing of care coordination for CYSHCN in Texas, Georgia, Florida, California, and Wisconsin.

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org Available from the website.

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Keywords: Child health, Children with special health care needs, Medicaid, Service coordination

Annotation: This article presents the principles and strategies behind the Blueprint for Change-- a national framework for a system of services for children and youth with special health care needs (CYSHCN) where they can enjoy a full life and thrive in their community from childhood through adulthood. Included is a discussion of the comprehensives needs of CYSHCH, the changing health care system, and the disparities experienced by CYSHCN. The critical areas that drive the Blueprint for Change-- health equity, access to services, finanancing of services, and family and child well-being and quality of life-- are described as being inherently interconnected and intend to move the field forward at the community, state, and federal levels.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: 800/433-9016 Secondary Telephone: 202/347-8600 E-mail: https://www.aap.org/en/pages/contact-us/contact-national-headquarters/ Web Site: https://www.aap.org

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• U.S. Health Resources And Services Administration Website

Keywords: , Adolescents with special health care needs, Children with special health care needs, Families, Federal initiatives

Annotation: The toolkit provides guidelines, action steps, and resources to help health providers integrate care coordination elements into their practice. Using a quality improvement framework, it is divided into actionable steps and arranged for ease of use at any (or various) stages of implementation. The toolkit is intended for use by pediatric medical providers and staff (physicians, nurses, social workers, clinic managers, support staff, etc.) who want to maximize their capacity to make care coordination services as efficient and effective as possible in their clinic. This includes improving existing services, or integrating new services, into the regular clinic practice.

Contact: Louisiana Department of Health, Bureau of Family Health, 1450 Poydras Street, Room 2035, New Orleans, LA 70112, Telephone: (504) 568-3504 Secondary Telephone: (800) 251-BABY (2229) Fax: (504) 568-3503 E-mail: [email protected] Web Site: http://new.dhh.louisiana.gov/index.cfm/page/936

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Keywords: Adolescents with special health care needs, Children with special health care needs, Louisiana , Quality improvement, Service coordination, Service integration, State initiatives

Annotation: This article outlines recommendations for improving financing for children and youth with special health care needs (CYSHCN), including potential innovations to address barriers, such as state Medicaid expansion for CYSHCN, greater transparency in medical necessity processes and determinations, and adequate reimbursement and funding.

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Keywords: Barriers, Children with special health care needs, Financing , Health care reform, Health insurance, Medicaid, Youth

Annotation: This videorecording documents a multi-state roundtable discussion on telehealth applications for individuals with hearing impairments, drawing participation from 31 states and territories. The presenters—McVicar (Utah), Stone (Massachusetts), Kirschner (Montana), Culpepper (Georgia), and Messersmith (South Dakota)—share diverse perspectives on teleaudiology implementation within Early Hearing Detection and Intervention (EHDI) programs, including universal newborn screening initiatives. Their presentations highlight both successes and persistent challenges: while telehealth expands access to specialized audiological services, barriers remain including geographic isolation, transportation costs, equipment accessibility, parental hesitation to engage with public health systems, and technical limitations for certain procedures like cochlear implant testing. The interactive format allowed participants to pose questions directly to presenters, and concluded with the sharing of a comprehensive resource website to support ongoing telehealth advancement for hearing-impaired populations across diverse regional contexts.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telemedicine, Deafness, Developmental screening, Children with special health care needs, Youth with special health care needs, Utah, Massachusetts, Montana, Family support services, Georgia, South Dakota, Staff development

Annotation: This March 24, 2022 recording features presentations from Dr. Karl White, Director of the National Center for Hearing Assessment and Management (NCHAM), and Dr. Jessica Messersmith, Professor of Communicative Sciences and Disorders at the University of South Dakota, examining post-COVID advancements in tele-audiology technology and implementation. White and colleague Hoffman outline NCHAM's comprehensive tele-audiology support systems, including planning tools, training programs, and technical assistance provided via Zoom, while Messersmith details specialized applications for pediatric diagnosis utilizing a hub-and-spoke service model where central facilities with specialized expertise support satellite locations staffed by technicians. The presentation covers practical considerations for site selection and setup, including necessary equipment and software specifications, while frankly addressing rural healthcare barriers in South Dakota such as poverty, geographic isolation, and workforce shortages of qualified audiologists. The recording concludes by highlighting available training resources for healthcare providers seeking to establish or expand tele-audiology services in underserved communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telemedicine, Deafness, Developmental screening, Children with special health care needs, Youth with special health care needs, Infant health, Infants with special health care needs, South Dakota, Utah

Annotation: This presentation by Marsha Quinn, Co-Executive Director of Parent to Parent USA (P2P USA), outlines how the organization virtually supports families of children with special needs. As a mother of two children, Quinn addresses MCH leaders about P2P USA's comprehensive support system, which includes providing resources and best practices, facilitating member communication through various platforms, offering Spanish language services, and organizing virtual events like Coffee Talks and webinars. The presentation emphasizes how Alliance Members provide virtual family support through family/professional partnerships, information sharing, and emotional support via one-on-one matches and virtual support groups. It also highlights the organization's commitment to diversity, equity, and inclusion, particularly in reaching underserved communities, and provides information on how families can connect with P2P programs both locally and nationally.

Contact: Parent to Parent USA , P.O. Box 9054, Austin, TX 78766, E-mail: [email protected] Web Site: http://www.p2pusa.org

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Keywords: Telemedicine, Family support services, Children with special health care needs, Youth with special health care needs

Annotation: This report provides information about the oral health of individuals with intellectual or developmental disabilities in Missouri. Topics include oral hygiene, dental sealants, treated and untreated tooth decay, treatment urgency, and history of rampant tooth decay. Information about survey participants’ ages, genders, races, and ethnicities, as related to these topics, is included.

Contact: Missouri Department of Health and Senior Services, Office of Dental Health, P.O. Box 570, Jefferson City, MO 65102-0570, Telephone: (573) 751-5874 E-mail: [email protected] Web Site: http://health.mo.gov/living/families/oralhealth/index.php Available from the website.

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Keywords: Adults with special health care needs, Children with special health care needs, Chronic illnesses and disabilities, Dental caries, Dental hygiene, Missouri, Oral health, State surveys, Treatment

Annotation: This report offers information about the oral health of people with special health care needs (SHCN). It presents background information, including information on considerations for oral health care delivery, promising initiatives, the workforce, sites of care, financing of care, establishing comprehensive care, and data. Strategic calls to action for improving the oral health care of people with SHCN are also included. The report offers guidelines and recommendations, research evidence, and state practice examples illustrating strategies and interventions for people with SHCN. [Funded by the Maternal and Child Health Bureau]

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: [email protected] Web Site: https://www.astdd.org

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Keywords: Access to health care, Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Guidelines, Model programs, Oral health, Research

Annotation: This report identifies key policy flexibilities enacted during the COVID-19 public health emergency. It summarizes stakeholders' perspectives about the impact of the pandemic and policy flexibilities on children and youth with special health care needs and their families and providers. The authors present recommendations for continuing or ceasing temporary policy changes after the public health emergency, as well as new policies and actions to best support children and youth with special heath care needs and their families.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: [email protected] Web Site: http://www.lpfch.org

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Keywords: Access to health care, Children with special health care needs, Family support, Federal initiatives, Infectious diseases, Medicaid, Mental health, Telehealth, Virus diseases, Work force

Annotation: This issue brief discusses how state Title V programs, Medicaid agencies, and Medicaid managed care organizations can work collaboratively to strengthen supports for children and youth with special health care needs. The brief enumerates the essential steps in the Medicaid managed care procurement process and provides strategies and considerations for collaboration between Title V and managed care programs.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/ Available from the website.

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Keywords: Access to care, Adolescents with special health care needs, Children with special health care needs, Health insurance, Medicaid, State programs, Title V programs, Youth with special health care needs

Annotation: This paper provides information from a summit focusing on difficulties people with special health care needs face in accessing oral health care in California. Topics include oral health care for children vs. adults with special health care needs, financial considerations, and steps toward solutions.

Contact: University of California, San Francisco, School of Dentistry, 513 Parnassus Avenue, S 630, San Francisco, CA 94143, Web Site: https://dentistry.ucsf.edu/ Available from the website.

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Keywords: Access to health care, Adults with special health care needs, California, Children with special health care needs, Conferences, Oral health, State information

Annotation: This fact sheet explores Medicaid policy options for states to meet the needs of children and youth with special health care eneds (CYSHCN) during the COVID-19 public health emergency (PHE) and discusses how future rollbacks of PHE modifications may affect CYSHCN populations.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

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Keywords: Adolescents with special health care needs, Children with special health care needs, Children', Communicable diseases, Emergencies, Medicaid, Policy development, State health insurance programs, Virus diseases, Youth, s health insurance program

Annotation: This journal article reviews programs and literature on the transfer of care for children and youth with special health care needs (CYSHCN). Often these patients do not have adequate transition structure to adult health care, and it suggests that future research focus on patient and family transitions of care in the context of their social and community environment, and uncover knowledge about adequate services and payment structures and incentives to promote continuity of care and the need for family/youth and young adult-centered models of care across the life-span.

Contact: Elsevier, Health Sciences Division, 1600 John F. Kennedy Boulevard, Suite 1800, Philadelphia, PA 19103-2822, Telephone: (215) 239-3900 Fax: (215) 239-3990 Web Site: http://www.us.elsevierhealth.com

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Keywords: Adolescents with special health care needs, Children with special health care needs, Transitions

Annotation: This issue brief describes key characteristics of children with special health care needs and explores insurance affordability, adequacy of coverage, and benefits for children covered by Medicaid/CHIP compared to those with private insurance only. The brief provides a context for ongoing policy discussions around additional investments in Medicaid, including home and community-based services (HCBS), for children with special health care needs.

Contact: Henry J. Kaiser Family Foundation, 2400 Sand Hill Road, Menlo Park, CA 94025, Telephone: (650) 854-9400 Secondary Telephone: (202) 347-5270 Fax: (650) 854-4800 Web Site: http://www.kff.org

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Keywords: Children with special health care needs, Community based services, Health care costs, Health insurance, Home care, Medicaid, Public assistance, Special health care services, Statistics

Annotation: In this video presentation, AMCHP's Evidence and Implementation team discusses practical approaches for incorporating partners, families, and individuals with lived experience into program development and evaluation processes, with careful consideration of organizational resources and capabilities. Featured speaker Becky Burns, who serves as the Statewide Coordinator for Wisconsin Children and Youth with Special Health Care Needs, shares insights on implementing these engagement strategies effectively while working within the constraints of available organizational capacity.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Children with special health care needs, Youth with special health care needs, Epidemiology, Program evaluation, Staff development, Family support services

Annotation: This resource guide provides information for health professionals to assist them in planning, developing, and implementing efforts to ensure that children and adolescents with special health care needs receive optimal oral health care. The guide describes materials, including brochures, fact sheets, guides, manuals, and reports. It also lists federal agencies, resource centers, and national professional associations that may serve as resources. [Funded by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

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Keywords: Adolescents with special health care needs, Children with special health care needs, Oral health, Resource materials

Annotation: This fact sheet discusses the relationship between social determinants of health (SDOH) and children and youth with special health care needs (CYSHCN) and gives case studies from North Carolina, Kansas and Oregon to describe how these states have used screenings and administrative data to identify and assess SDOH in order to better support CYSHCN.

Contact: National Resource Center for Patient/Family-Centered Medical Home, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-7605 Secondary Telephone: (800) 433-9016, ext. 7605 Web Site: https://www.aap.org/en/practice-management/medical-home Available from the website.

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Keywords: Adolescents with special health care needs, Children with special health care needs, Kansas, Managed care, Medicare, North Carolina, Oregon, Social factors, State initiatives