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Strengthen the Evidence for Maternal and Child Health Programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (359 total).

Peter M. n.d.. Medical Home Project: [Final report]. Honolulu, HI: Hawaii Medical Association, 30 pp.

Annotation: The goals of this project were to: (1) Develop and demonstrate office-based models that assure comprehensive services through the medical home for all children, especially those served under Part H of P.L. 99-457; (2) promote effective linkages and coordination of care between the medical home and early intervention service providers through community forums; and (3) gather, develop, and disseminate nationally creative strategies that promote comprehensive care through the medical home. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121-891.

Keywords: Children with Special Health care Needs, Early Intervention, Information dissemination, Medical Home, Minority Groups, PL 99-457, Service Coordination

Lindsley C. n.d.. Mid-America Pediatric Rheumatology Outreach Program: [Final report]. Kansas City, KS: University of Kansas Medical Center, Department of Pediatrics, 18 pp.

Annotation: The goal of this project was to establish a network of care that provided early and effective intervention for children with rheumatic disease in a four State area including Kansas, Western Missouri, Nebraska, and Iowa. Two specific components were clinical service and education. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-153005.

Keywords: Arthritis Service coordination, Children with special health care needs, Infants with special health care needs, Pediatric rheumatology, Rheumatic diseases

Partridge S. n.d.. PROJECT AIMS [Final report]. Portland, ME: University of Southern Maine, 37 pp.

Annotation: Project AIMS worked to strengthen the capacity of Maine's service system (including P.L. 99-457 efforts) to meet the emotional health needs of young children (birth to 5 years old) and their families. The project objectives were to: (1) Establish a multidisciplinary network of project associates; (2) develop and field-test an emotional health brief assessment tool for children birth to 5 years old; (3) recommend to the service network methods of conducting comprehensive psychosocial assessments of children/families with emotional difficulties; and (4) strengthen treatment services which facilitate attachment, interaction, mastery, and support within families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158608.

Keywords: 99-457, Community-Based Health Services, Coordination of Health Care, Data Collection, Early Intervention, Emotional Health, High risk children, High risk groups: Families, L, P, Parent-Child Interaction, Screening Tools

Force J. n.d.. Project Copernicus [Final report]. Baltimore, MD: Maryland Department of Health and Mental Hygiene, 15 pp.

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121859.

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Valentine S. n.d.. Developing Community-Based Family Centered Care/Case Management and Family Support Services for Mississippi's Children with Special Health Care Needs [Final report]. Jackson, MS: Mississippi State Department of Health, 25 pp.

Annotation: This project sought to develop a statewide system of community-based, comprehensive care/case management and family support services. Program strategies included developing a training curriculum for the skilled delivery of home-based family support services by medical professionals, paraprofessionals, and parents; piloting a respite providers' network; providing statewide training on the provision of family support services; and developing and disseminating a statewide directory of trained family support service providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158277.

Keywords: 99-457, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Family-Based Health Care, Financing Health Care, Fragmentation of Services, L, P, Parents, Rural Population

Davis J. n.d.. Improving Coordination of Services for Chronically Impaired Children and Their Families [Final report]. Santa Fe, NM: New Mexico Health and Environment Department, 18 pp.

Annotation: This project sought to increase coordination of service provision to chronically ill and disabled children, with a special focus on Native American children. Activities included organizing an annual conference, tracking legislation, establishing a committee which analyzed relevant portions of the state budget, and conducting a survey on the number of children receiving case management services. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB91-241935.

Keywords: American Indians, Chronically Ill, Coordination of Health Care, Families, Fragmentation of Services, PL 94-142

Malach R. n.d.. Case Management for Parents of Indian Children with Special Health Care Needs [Final report]. Bernalillo, NM: Southwest Communication Resources, 20 pp.

Annotation: This project provided a model program for American Indian families and the professionals who served them. The program goals were to identify cultural, systemic, institutional, and policy barriers that inhibit Native American family participation in the "Western" health care/case management system; improve case management by facilitating effective communication between Native American families and the non-Native American health care professionals who serve them; and increase Native American family participation in health care policy development and planning forums in order to promote changes that improve services for Native American children and families. Activities included developing a videotape illustrating effective cross-cultural communication strategies for non-Indian health care providers and training an Indian parent advocate to help families seen at IHS special pediatric clinics. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158251.

Keywords: American Indians, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Developmentally Delayed/Disabled, Family-Based Health Care, Indian Health Service (IHS), Low income groups, Parents, Rural Population

Branca P. n.d.. The Care of Bronchopulmonary Dysplasia In a System Encompassing Tertiary, Rehabilitative and Home Care [Final report]. Philadelphia, PA: Thomas Jefferson University Hospital, 13 pp.

Annotation: The goal of this project was the development of a multilevel model of care for infants with bronchopulmonary dysplasia that was cost effective, decreased length of hospital stays, and allowed for a physically, emotionally, socially, and developmentally healthier child. Inservice training for staff and parenting workshops were conducted as part of this project. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161966.

Keywords: Bronchopulmonary dysplasia, Children with special health care needs, Coordination of services, Infants, Length of stay, Ventilator dependent

Williams S. n.d.. Improving Community-Based Services for Special Needs Children and Their Families in Rural Utah [Final report]. Salt Lake City, UT: Utah Department of Health, 19 pp. pp.

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121834.

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Johnson C. n.d.. Making It Work for Children with Special Needs: The Family, the Community, the State [Final report]. Morgantown, WV: W. G. Klingberg Center for Child Development, 17 pp.

Annotation: The goal of this project was to improve the overall system of health care delivery for West Virginia children with special health needs. Specific goals were to: (1) Provide individualized family empowerment training with specific emphasis on skills in case management; (2) strengthen the Handicapped Children's Services system of case management; (3) provide coordinated, comprehensive medical and educational evaluations for children with special health needs; (4) establish a movement recognizing parents as equal partners within the professional team; (5) enhance networking through a parent-provider interdisciplinary, interagency conference; (6) identify a primary medical home for every child with special health needs; (7) emphasize the role of the primary care physician as a member of the community team; (8) assure continuation of the project beyond the funding period; and (9) expand services to all children with special health needs in West Virginia. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121867.

Keywords: Access to Health Care, Case Management, Children with Special Health care Needs, Families, Family Professional Collaboration, Interagency Cooperation, Medical Home, PL 99-457, Parent Professional Communication, Parents, Primary Care, Service Coordination

Johnson J. n.d.. Parent-Pediatric Partnerships: Strengthening Families to Make the Vulnerable Invincible [Final report]. Honolulu, HI: Hawaii Department of Health, 16 pp.

Annotation: This project was a partnership between families and their medical home to develop a demonstration model for care coordination for environmentally at-risk infants and toddlers in low-income culturally diverse urban and rural settings. The families were being served as part of the eligible population under P.L. 99–457, with an individualized family support plan (IFSP) developed for each family. The target population included many families of different ethnic origins. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-133969.

Keywords: Access to Health Care, Children with Special Health care Needs, Cultural Diversity, Families, Family Centered Health Care, Family Support Programs, Hawaiians, Health Promotion, Healthy Tomorrows Partnership for Children, Low Income Population, PL 99-457, Parents, Preschool Children, Primary Care, Rural Population, Service Coordination, Urban Population

National Quality Measures Clearinghouse. n.d.. Tutorials on quality measures. Rockville, MD: National Quality Measures Clearinghouse, multiple items.

Annotation: These tutorials provide an introduction to the field of quality measurement and how best to use resources available from the National Quality Measures Clearinghouse. Topics include quality care measures related to health care delivery and to population health; desired attributes, uses, selection, and validity of clinical quality measures; and finding care-coordination measures.

Contact: National Quality Measures Clearinghouse , Agency for Healthcare Research and Quality , 540 Gaither Road, Suite 2000 , Rockville, MD 20850, Telephone: (301) 427-1364 E-mail: Web Site: http://www.qualitymeasures.ahrq.gov/ Available from the website.

Keywords: Health care delivery, Measures, Public health, Quality assurance, Service coordination, Training

CrossBear S, LeGore S. n.d.. Family involvement in child-serving systems and the need for cross-system collaboration. Rockville, MD: U.S. Substance Abuse and Mental Health Services Administration, Center for Substance Abuse Treatment, 10 pp.

Annotation: This brief reviews what has been accomplished to date in the development of the family voice in all child-serving systems including substance abuse, mental health, child welfare, juvenile justice, trauma support, education, and primary care. The review indicates what needs to occur to create true cross-systems collaboration supporting family involvement, so that youth and their families can fully access the service and supports they need to obtain and maintain optimum health.

Contact: U.S. Substance Abuse and Mental Health Services Administration, One Choke Cherry Road, Rockville, MD 20857, Telephone: (877) SAMHSA-7 Secondary Telephone: (877) 726-4727 E-mail: Web Site: https://www.samhsa.gov Available from the website.

Keywords: Child health, Child welfare, Collaboration, Families, Family centered care, Health care systems, Interagency cooperation, Parent professional relations, Service coordination, Service delivery systems

Wanty NI, Long C, Park BZ, McNeill AR, Malicoate K, Phelps E. 2024. Oral medical care coordination: A systematic literature review and guide forward. Atlanta, GA: National Association of Chronic Disease Directors, 27 pp.

Annotation: This report discusses systemic barriers to oral health care and overall health care coordination and how these barriers can be mitigated. It provides an analysis of 715 pieces of literature and categorizes them into five primary segments: education exploratory, education implemented, health professional exploratory, health professional implemented, and informative. The report highlights ways that the literature reflects four main themes: awareness, workforce development and operations, information exchange, and payment. Recommendations for developing frameworks to address oral health care and overall health care coordination are included.

Contact: National Association of Chronic Disease Directors, 2200 Century Parkway, Suite 250, Atlanta, GA 30345, Telephone: (770) 458-7400 Web Site: https://chronicdisease.org Available from the website.

Keywords: Care coordination, Oral health, Reimbursement, Research, Service integration

Association of State and Territorial Dental Directors and American Mobile and Teledentistry Alliance. 2023. Mobile and portable school-based/school-linked oral health programs: Delivery models to expand care for children and adolescents. Reno, NV: Association of State and Territorial Dental Directors, 25 pp.

Annotation: This report provides guidance for developing and implementing a school-based or school-linked mobile or portable oral health program. It discusses challenges and strategies for overcoming these challenges. Selected challenges discussed include workforce considerations; state dental practice acts, legislation, and other regulations limiting the provision of oral health care; community opposition; infrastructure issues; and infection-control issues. Strategies include program planning, developing policies and procedures, community engagement and education, care coordination, developing business plans and budgets, and implementing quality measures and evaluation.

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: [email protected] Web Site: https://www.astdd.org Available from the website.

Keywords: Budgets, Health programs, Infection control, Legislation, Oral health, Prevention programs, Program planning, Quality assurance, Regulations, School health, Service coordination

CareQuest Institute for Oral Health. 2023. Medical and dental integration: A need for improved electronic health records. Boston, MA: CareQuest Institute for Oral Health, 4 pp.

Annotation: This report provides information from a survey conducted to assess the perspectives of oral health professionals and medical professionals working in federally qualified health centers on their ability to access and contribute to patient dental and medical records across disciplines within the same health care system. Topics include challenges that oral health professionals face in accessing medical records and that medical professionals face in accessing dental records; and oral health professionals and medical professionals’ interest in improving the sharing of dental and medical records.

Contact: CareQuest Institute for Oral Health, 465 Medford Street, Boston, MA 02129-1454, Telephone: (617) 886-1700 Web Site: https://www.carequest.org Available from the website.

Keywords: Medical records, Oral health, Records, Service coordination, Surveys

Heaton LJ, Tiwari T, Tranby E. 2023. Oral-systemic interactions and medical-dental integration: A life course approach. Boston, MA: CareQuest Institute for Oral Health, 18 pp. (Research report)

Annotation: This report provides information on a life course approach to oral health that focuses on the oral-systemic interactions upon which a medical-dental integration (MDI) model can be built. The report offers an overview of the bidirectional nature of oral and systemic diseases across different life phases and how integrated health care delivery can improve access to care and health outcomes. It also discusses gaps in, challenges to, and barriers to creating integrated models and provides recommendations to improve the future of MDI.

Contact: CareQuest Institute for Oral Health, 465 Medford Street, Boston, MA 02129-1454, Telephone: (617) 886-1700 Web Site: https://www.carequest.org Available from the website.

Keywords: Health care delivery, Oral health, Prevention, Program coordination, Service integration

Washington State Department of Health . 2023. Children and youth with special health care needs care coordination toolkit. Olympia, WA: Washington State Department of Health, 58 pp.

Annotation: This toolkit consolidates resources and guidance across multiple systems of care for children and youth with special healthcare needs in Washington state. There are three main components to the toolkit: (1) The Washington systems of care for CYSHCN: Resource referral guide provides thorough descriptions of pertinent CYSHCN agencies and programs, while the (2) Shared Plan of Care: Resource Referral Guide and (3) the Life Course Transitions and Eligibilities sections offer initial grounding guidance followed by tables with consolidated and organized resources for quick reference. The guide is geared to support the needs of care coordinators and the CYSHCN clients that they serve, but it is also available for distribution to other pertinent CYSHCN partners and families.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov

Keywords: Adolescents with special health care needs, Children with special health care needs, Service coordination, State initiatives, Washington

Randi O, Gould Z. 2022. Medicaid financing of care coordination services for children and youth with special health care needs . Portland, ME: National Academy for State Health Policy , 12 pp.

Annotation: This resource identifies key components and themes across five states’ approaches to financing care coordination for children and youth with special health care needs (CYSHCN) through Medicaid, which can be used to support high-quality care coordination as outlined in the National Care Coordination Standards for Children and Youth with Special Health Care Needs. The resource describes three types of Medicaid service delivery models and highlights the approaches to Medicaid financing of care coordination for CYSHCN in Texas, Georgia, Florida, California, and Wisconsin.

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org Available from the website.

Keywords: Child health, Children with special health care needs, Medicaid, Service coordination

South Dakota Oral Health Coalition. 2022. 2022-2027 South Dakota Oral Health Coalition oral health plan. Pierre, SD: South Dakota Oral Health Coalition, 8 pp.

Annotation: This plan was created with a vision of empowering all South Dakotans to embrace oral health as a critical component of overall health and well-being throughout life. The plan includes the following goals: improve oral health literacy and awareness of the importance of oral health; prevent oral diseases; increase the availability, accessibility, and use of oral health care; and coordinate state oral health efforts. For each goal, objectives and strategies are presented.

Contact: South Dakota Oral Health Coalition, South Dakota Dental Association, 804 N. Euclid Avenue, Suite 103, Pierre, SD 57501, Telephone: (605) 224-9133 Web Site: https://www.sddental.org/public-resources/oral-health-coalition Available from the website.

Keywords: Access to health care, Health care utilization, Health literacy, Oral health, Prevention, Service coordination, South Dakota, State materials

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.