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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (98 total).

U.S. Department of Health and Human Services, Public Health Service, Food and Drug Administration. n.d.. Classroom help from the Food and Drug Administration. Rockville, MD: Food and Drug Administration, 1 p.

Annotation: This publication list highlights the free educational materials available from the Food and Drug Administration for use in the classroom. The materials cover related health and nutrition issues, such as acne, anabolic steroids, snacking, and weight loss. A teacher's kit on health fraud with five lesson plans also is listed.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Single photocopies available at no charge.

Keywords: Eating disorders, Health promotion, Reyes syndrome, Scoliosis, Septic shock, Skin diseases

Kessel R. n.d.. Diagnostic and Followup Project for Native American Children in Wisconsin with Special Health Care Needs = WINGS Project [Final report]. Madison, WI: Board of Regents of the University of Wisconsin at Madison , 42 pp.

Annotation: This project was part of an ongoing effort to identify and address issues related to developmental disabilities among Native American children in Wisconsin to assure that proper diagnostic and followup services are provided to this population. Tribes, State and local agencies, and volunteer organizations were involved in a collaborative effort to design and establish a long-term, community-based, high quality program in each tribal community in Wisconsin to serve the special health care needs of Native American children. The two main goals of the project were to: (1) Become an integral part of the tribal service systems, and (2) improve those systems in such a way that they address both the needs of developmentally disabled children and the issues related to the prevention of disabilities. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161941.

Keywords: American Indians, Community-Based Health Care, Coordination of Health Care, Data Collection, Developmentally Delayed/Disabled, Fetal Alcohol Syndrome

Stuemky J. n.d.. Developing and Improving the Capacity of Existing Pediatric Emergency Medical Services in Oklahoma [Final report]. Oklahoma City, OK: University of Oklahoma,

Annotation: The State of Oklahoma has a limited and fragmented EMS system that has not adequately addressed the needs of its pediatric population. To decrease the negative outcomes of pediatric emergency care, this project: (1) Established a prehospital- and hospital-based data collection system to provide definition of emergency medical services for children (EMSC) and identify negative outcome factors; (2) developed and assisted a statewide consortium in support of EMSC issues; (3) provided pediatric prehospital and hospital care training to emergency medical technicians, nurses, and physicians; and (4) worked with Native Americas and Hispanic populations to prevent child abuse and related injuries. [Funded by the Maternal and Child Health Bureau]

Keywords: Child Abuse, Data Collection, Emergency Medical Services for Children, Emergency Medical Technicians, Pediatric Advanced Life Support Programs, Professional Education in EMSC, Shaken Infant Syndrome

University Centers for Excellence in Developmental Disabilities in California, Massachusetts, Iowa, and Kentucky. n.d.. Your baby and Down Syndrome: Answers to questions you might have. Los Angeles, CA: University of Southern California University Center for Excellence in Developmental Disabilities at Children's Hospital, 2 pp.

Annotation: This brochure is intended to serve as a starting point for new parents looking for information about Down syndrome and related resources and support groups. It includes talking points to use during a diagnostic consultation with a physician and answers to frequently asked questions such as (1) What is Down syndrome? (2) Where do I begin to help my baby? (3) How might Down syndrome affect my baby's health? (4) Where can I find more information about Down syndrome? and (4) How can I find other parents of children with Down syndrome? The brochure is available in both English and Spanish.

Contact: University of Southern California University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, 46550 Sunset Boulevard, Mailstop #53, Los Angeles, CA 90027-0980, Telephone: (323) 361-2300 Secondary Telephone: (323) 480-4192 Fax: (323) 361-8305 E-mail: [email protected] Web Site: http://www.uscucedd.org/ Available from the website.

Keywords: Consumer education materials, Down syndrome, Infants with special health care needs, Spanish language materials

Centers for Disease Control and Prevention. n.d.. Fragile X Syndrome: Fact sheet. Atlanta, GA: Centers for Disease Control and Prevention, 2 pp.

Annotation: This fact sheet provides an overview of Fragile X syndrome (FXS). It describes what Fragile X is; explains what causes it; and discusses the conditions that are common among children with Fragile X. It also lists some of the signs of FXS and explains what parents should do if they think their child has FXS. One side of the fact sheet is in English and the other is in Spanish.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov Available from the website.

Keywords: Consumer education materials, Disabilities, Fragile X syndrome, Genetic disorders, Spanish language materials

Centers for Disease Control and Prevention . 2023. CHOICES: Preventing alcohol exposed pregnancies. Atlanta, GA: Centers for Disease Control and Prevention,

Annotation: This online document describes the CHOICES program for women who are not pregnant (but could become pregnant) and who are drinking alcohol at excessive levels. The program uses motivational interviewing to increase a woman’s motivation and commitment to change. It is an evidence-based intervention that helps women to reduce or stop drinking, use contraception (birth control) effectively, or both. Links to additional resources on the prevention of fetal alcohol spectrum disorders are included on the website.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov

Keywords: Alcohol abuse, Alcohol use during pregnancy, Contraception, Fetal alcohol syndrome, Prevention, Substance abuse prevention

Barzel R, Holt K, Kolo S. 2022. Opioids and pregnant women: Information for oral health professionals. Washington, DC: National Maternal and Child Oral Health Resource Center, 4 pp.

Annotation: This practice guidance provides an overview of pain management for dental procedures for women of reproductive age. It discusses pharmacological considerations for pregnant women (pharmaceutical agents and indications, contraindications, and special considerations), neonatal opioid withdrawal syndrome, guidelines for providing opioids, managing acute dental pain, and guidelines for discharging women with opioid prescriptions. Information about prescription drug monitoring programs is included. [Funded by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Drug addiction, Guidelines, Narcotics, Neonatal abstinence syndrome, Oral health, Pain relieving drugs, Pregnant women, Prescription drugs

Fond M, Kendall-Taylor N, Volmert A, Pineau MG, L’Hôte E. 2017. Seeing the spectrum: Mapping the gaps between expert and public understandings of fetal alcohol spectrum disorder in Manitoba. Washington, DC: FrameWorks Institute, 49 pp.

Annotation: This report presents an empirically-based framing strategy for communicating about fetal alcohol spectrum disorder (FASD). Contents include a set of principles reflecting expert understanding of what fetal alcohol spectrum disorder (FASD) is, how alcohol affects fetal development, why women consume alcohol while pregnant, what the effects of FASD are, and how FASD can be prevented and addressed. The report also describes shared but implicit understandings, assumptions, and patterns of reasoning that shape how the public thinks about FASD, points at which expert and public understandings overlap and diverge, and key challenges in communicating about FASD. Recommendations are included.

Contact: FrameWorks Institute, 1333 H Street, N.W., Suite 700 West, Washington, DC 20005, E-mail: [email protected] Web Site: http://www.FrameWorksInstitute.org Available from the website.

Keywords: Alcohol consumption attitudes, Alcohol consumption behavior, Alcohol use during pregnancy, Beliefs, Communication, Culturally competent services, Fetal alcohol effects, Fetal alcohol syndrome, Fetal development, Prevention services, Research, Trauma care

Children's Safety Network. 2016. Medication abuse prevention: 2016 resource guide. Waltham, MA: Children's Safety Network, 19 pp.

Annotation: This guide describes organizations, policy and legislation, prevention programs, publications, and webinars focused on prescription drug overdose prevention among youth and young adults. Contents include descriptions of reports, guides, toolkits, campaigns, website, iinitiatives, and research studies. Each item includes a short description and a link to the resource itself. Information about child safety and neonatal abstinence syndrome are included. [Funded by the Maternal and Child Health Bureau]

Contact: Children's Safety Network, Education Development Center, 43 Foundry Avenue, Waltham, MA 02453-8313, Telephone: (617) 618-2918 Fax: (617) 969-9186 E-mail: [email protected] Web Site: http://www.childrenssafetynetwork.org Available from the website.

Keywords: Adolescents, Children, Drug effects, Infants, Legislation, Multimedia, Neonatal abstinence syndrome, Policy development, Prescription drugs, Resource materials, Resources for professionals, Safety, Substance abuse prevention, Substance abuse prevention programs, Young adults

Ko HY, Patrick SW, Tong VT, Patel R, Lind JN, Barfield WD. 2016. Incidence of neonatal abstinence syndrome: 28 states, 1999–2013. Morbidity and Mortality Weekly Report 65(31):799–802,

Annotation: This report examines state trends in neonatal abstinence syndrome (NAS) incidence using all-payer, hospital inpatient delivery discharges compiled in the State Inpatient Databases of the Healthcare Cost and Utilization Project (HCUP) during 1999–2013. The findings underscore the importance of state-based public health programs to prevent unnecessary opioid use and to treat substance use disorders during pregnancy, as well as decrease the incidence of NAS.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov Available from the website.

Keywords: Drug use during pregnancy, Measures, Neonatal abstinence syndrome, Newborn infants, Opiates, Pregnant women, State programs, Statistical data, Substance use disorders, Trends

American College of Nurse-Midwives and Centers for Disease Control and Prevention. [2015]. Alcohol and pregnancy: Tips on why and how to stop drinking. Silver Spring, MD: American College of Nurse-Midwives, 1 v.

Annotation: This resource for pregnant women provides information about drinking alcohol during pregnancy and the risk of fetal alcohol syndrome disorders (FASDs). Topics include some of the behavioral and intellectual disabilities of people with FASDs, what women can do to help themselves stop drinking alcohol, and related organizational resources.

Contact: American College of Nurse-Midwives, 8403 Colesville Road, Suite 1550, Silver Spring, MD 20910, Telephone: (240) 485-1800 Secondary Telephone: (888) MID-WIFE (643-9433) Fax: (240) 485-1818 E-mail: Web Site: http://www.midwife.org Available from the website.

Keywords: Adverse effects, Educational materials, Fetal alcohol effects, Fetal alcohol syndrome, Pregnant women, Prevention, Substance use

National Institute for Health Care Management Foundation. 2015. Reducing neonatal abstinence syndrome in Tennessee. Washington, DC: National Institute for Health Care Management Foundation, 2 pp. (Women, children & adolescents)

Annotation: This fact sheet highlights partnerships to address the neonatal abstinence syndrome (NAS) epidemic in Tennessee. Topics include efforts to expand a community-based program to assist mothers with substance abuse problems and ensure a drug-free and safe home for their newborns; provide start-up costs for a regional detox center for women addicted to prescription drugs; research the effectiveness of detox from opiate drugs during pregnancy, and the long-term effect of detox treatment on NAS rates in the state; and establish a hospital-based NAS treatment process.

Contact: National Institute for Health Care Management Foundation, 1225 19th Street, N.W., Suite 710, Washington, DC 20036, Telephone: (202) 296-4426 Fax: (202) 296-4319 E-mail: http://www.nihcm.org/contact Web Site: http://www.nihcm.org Available from the website.

Keywords: Drug addiction, Drug use during pregnancy, Financing, Neonatal abstinence syndrome, Newborn infants, Opiates, Postpartum care, Pregnant women, Prenatal care, Prevention program, State initiatives, Substance abuse treatment, Tennessee

Rady's Children's Hospital—San Diego, Anderson Center for Dental Care. [2014]. Healthy smiles for children with Down syndrome [flyer]. San Diego, CA: Rady's Children's Hospital—San Diego, Anderson Center for Dental Care, 1 p.

Annotation: This flyer for parents and health professionals provides oral health information specific to children with Down syndrome. Topics include oral characteristics of children with Down syndrome, oral sensitivities, and challenges and recommendations. The flyer provides tips on preventing dental caries in early childhood, including tips on toothbrushing, eating healthy snacks, and visiting the dentist. Information on finding a dentist and scheduling an in-home dental visit is included, along with a list of resources. The content is available in English and in Spanish.

Contact: Children's Hospital and Health Center, Anderson Center for Dental Care, 3020 Children's Way, San Diego, CA 92123, Telephone: (858) 576-1700 Secondary Telephone: (800) 788-9029 E-mail: [email protected] Web Site: https://www.rchsd.org/ Available from the website.

Keywords: Children with special health care needs, Dental care, Dental hygiene, Down syndrome, Oral health, Spanish language materials, children

Rady's Children's Hospital—San Diego, Anderson Center for Dental Care. [2014]. Healthy smiles for children with Down syndrome [brochure]. San Diego, CA: Rady's Children's Hospital—San Diego, Anderson Center for Dental Care, 2 pp.

Annotation: This brochure provides information for parents and caregivers on how to help ensure good oral health for children with Down syndrome. The brochure provides information about how Down syndrome may affect children's mouths and teeth, how to keep the teeth of children with Down syndrome healthy, tips for overcoming toothbrushing difficulties, and other ways to help prevent tooth decay. The content is available in both English and Spanish.

Contact: Children's Hospital and Health Center, Anderson Center for Dental Care, 3020 Children's Way, San Diego, CA 92123, Telephone: (858) 576-1700 Secondary Telephone: (800) 788-9029 E-mail: [email protected] Web Site: https://www.rchsd.org/ Available from the website.

Keywords: Children with special health care needs, Consumer education materials, Dental care, Dental hygiene, Down syndrome, Oral health, Spanish language materials

Ramakrishnan M. 2014. Neonatal abstinence syndrome: How states can help advance the knowledge base for primary prevention and best practices of care. Arlington, VA: Association of State and Territorial Health Officials, 24 pp.

Annotation: This report describes opportunities to avert or ameliorate the outcome of neonatal abstinence syndrome (NAS) along a continuum of care spanning timeframes in the mother's and infant's life and the role of state health agencies. Topics include surveillance for NAS-affected infants and the sources of maternal opiate use; reimbursement for using screening protocols to detect substance abuse early in pregnancy and withdrawal signs in newborns; development of measures to ensure follow-up with opioid-dependent women and receipt of comprehensive services; and collaborative efforts to strengthen clinical standards for identification, management, and follow-up with NAS-affected infants and their families. A state index of resources is included.

Contact: Association of State and Territorial Health Officials, 2231 Crystal Drive, Suite 450, Arlington, VA 22202, Telephone: (202) 371-9090 Fax: (571) 527-3189 Web Site: http://www.astho.org Available from the website.

Keywords: Comprehensive health care, Intervention, Neonatal abstinence syndrome, Neonatal addiction, Newborn infants, Opiates, Population surveillance, Primary prevention, Screening, State health agencies, Substance use

National Center for Emerging and Zoonotic Infectious Diseases, Division of High-Consequence Pathogens and Pathology. 2014. Chronic fatigue syndrome (CFS) in children and adolescents: Factsheets. Atlanta, GA: National Center for Emerging and Zoonotic Infectious Diseases, Division of High-Consequence Pathogens and Pathology, 3 items.

Annotation: These fact sheets provide information about chronic fatigue syndrome (CFS) in children and adolescents. Topics include helping clients reduce symptoms, understanding how CFS affects children and adolescents in school, communicating with schools, and supporting students with CFS and other chronic conditions in the school environment. Each sheet is directed at specific audiences, including health professionals, parents, and education professionals.

Contact: National Center for Emerging and Zoonotic Infectious Diseases, Division of High-Consequence Pathogens and Pathology, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov/ncezid/dhcpp/index.html Available from the website.

Keywords: Chronic fatigue syndrome, Chronic illnesses and disabilities, Communication, Parents, Resources for professionals, School age children, Schools, Special health care needs

National Institute for Health Care Management Foundation and Association of State and Territorial Health Officials. 2014. Neonatal abstinence syndrome: Strategies for states and health plans. Washington, DC: National Institute for Health Care Management Foundation, multiple items.

Annotation: These resources, from a webinar held on July 16, 2014, highlight strategies for preventing and treating neonatal abstinence syndrome (NAS). Contents include a recording of the speaker's presentations (1 hour, 27 min., 23 sec.), the webinar agenda and speaker biographies, and related materials. Topics include recent trends in opioid abuse and NAS, with an overview of federally-led prevention efforts; the impact of rising NAS rates across the states, including implications for Medicaid and examples of state-level action; a health plan-led initiative to improve care coordination and social support for pregnant women in treatment for addiction; and the latest in NAS treatment, and an assessment of where public and private investments would be most beneficial.

Contact: National Institute for Health Care Management Foundation, 1225 19th Street, N.W., Suite 710, Washington, DC 20036, Telephone: (202) 296-4426 Fax: (202) 296-4319 E-mail: http://www.nihcm.org/contact Web Site: http://www.nihcm.org Available from the website.

Keywords: Analgesic drugs, Collaboration, Drug addiction, Drug effects, Federal initiatives, Health care systems, Model programs, Neonatal abstinence syndrome, Newborns, Opiates, Pregnant women, Prevention programs, Public private partnerships, State MCH programs, Substance abuse treatment

U.S. Substance Abuse and Mental Health Services Administration, Fetal Alcohol Spectrum Disorders Center for Excellence. 2014. Tools for success: Working with youth with fetal alcohol spectrum disorders (FASD) in the juvenile justice system (rev.). Rockville, MD: U.S. Substance Abuse and Mental Health Services Administration, Fetal Alcohol Spectrum Disorders Center for Excellence, 1 v.

Annotation: These modules for individuals working with youth in the juvenile justice system provide information and resources on fetal alcohol spectrum disorders (FASD). Contents include six modules on topics such as FASD basics; behaviors; screening, assessment, and diagnosis; collaborating effectively; and intervention services. Each module ends with a 10-question quiz.

Contact: U.S. Substance Abuse and Mental Health Services Administration, Fetal Alcohol Spectrum Disorders Center for Excellence, 2101 Gaither Road, Suite 600, Rockville, MD 20850, Telephone: (866)786-7327 E-mail: [email protected] Web Site: http://www.fascenter.samhsa.gov Available from the website.

Keywords: Continuing education, Criminal justice system, Fetal alcohol effects, Fetal alcohol syndrome, Intervention, Resources for professionals, Training, Youth

Moon R, ed. 2013. Sleep: What every parent needs to know (2nd ed.). Elk Grove Village, IL: American Academy of Pediatrics, 219 pp.

Annotation: This book covers the importance of sleep to growth and development and addresses proper sleep and the challenges parents face in getting their children to sleep. Topics include ages, stages, and phases for all ages of children; bedtime routines and rituals; dealing with fears, nightmares, night terrors, sleep apnea; allergies and asthma; headaches, leg pains, seizures, abdominal or gastrointestinal issues, in addition to developmental disabilities or attention deficit/hyperactivity disorders. Sleep safety and risk factors for sudden infant death are also discussed.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (630) 626-6000 Secondary Telephone: (847) 434-4000 Fax: (847) 434-8000 Web Site: https://www.aap.org $16.95, plus shipping and handling.

Keywords: Adolescents, Child development, Children, Children with special health care needs, Disabilities, Infants, SIDS, Sleep, Sleep apnea syndromes, Sleep disorders, Sleep position, Sleep stages

Washington State Department of Health, Health Education Resource Exchange. 2013. Guidelines for testing and reporting drug exposed newborns in Washington state. Olympia, WA: Washington State Department of Health, Health Education Resource Exchange, 16 pp.

Annotation: This document provides guidance to hospitals, health care providers and affiliated professionals about maternal drug screening, laboratory testing, and reporting of drug-exposed newborns delivered in Washington State. Contents include indicators for testing, hospital policy, newborn and maternal risk indicators, consent issues for testing, newborn drug testing, management of a newborn with positive drug toxicology, and reporting to Children's Administration. Appendices include references and resources, guidelines for obtaining consent, a sample letter, neonatal abstinence syndrome scoring system, and information on Washington's Children's Administration prenatal substance abuse policy.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov Available from the website.

Keywords: Drug use during pregnancy, Guidelines, Hospital services, Infant health, Neonatal abstinence syndrome, Neonatal screening, Newborn infants, State initiatives, State social service agencies, Substance abusing pregnant women, Substance use screening, Washington

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.