Search Results: MCHLine

Annotation: This workbook for Title V program staff focuses on the importance of Medicaid in the system of services for children and youth with special health care needs (CYSHCN). It provides an overview of the Medicaid program, including chapters on Medicaid managed care; the Early and Periodic Screening Diagnostic and Treatment (EPSDT) benefit; and pathways to Medicaid coverage for children who require an institutional level of care. The purpose of the resource is to increase Title V program staff identification and knowledge of finance-related services for CYSHCN, particularly Medicaid. It includes questions to guide users through the process of mapping a Medicaid system and building a strategy for their own state.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/

• Print Workbook
• Online Version

Keywords: Adolescents with special health care needs, Children with special health care needs, Children', Medicaid, Medicaid managed care, Title V, Youth, s Health Insurance Program

Annotation: This article outlines recommendations for improving financing for children and youth with special health care needs (CYSHCN), including potential innovations to address barriers, such as state Medicaid expansion for CYSHCN, greater transparency in medical necessity processes and determinations, and adequate reimbursement and funding.

• Link

Keywords: Barriers, Children with special health care needs, Financing , Health care reform, Health insurance, Medicaid, Youth

Annotation: This videorecording documents a multi-state roundtable discussion on telehealth applications for individuals with hearing impairments, drawing participation from 31 states and territories. The presenters—McVicar (Utah), Stone (Massachusetts), Kirschner (Montana), Culpepper (Georgia), and Messersmith (South Dakota)—share diverse perspectives on teleaudiology implementation within Early Hearing Detection and Intervention (EHDI) programs, including universal newborn screening initiatives. Their presentations highlight both successes and persistent challenges: while telehealth expands access to specialized audiological services, barriers remain including geographic isolation, transportation costs, equipment accessibility, parental hesitation to engage with public health systems, and technical limitations for certain procedures like cochlear implant testing. The interactive format allowed participants to pose questions directly to presenters, and concluded with the sharing of a comprehensive resource website to support ongoing telehealth advancement for hearing-impaired populations across diverse regional contexts.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

• Link

Keywords: Telemedicine, Deafness, Developmental screening, Children with special health care needs, Youth with special health care needs, Utah, Massachusetts, Montana, Family support services, Georgia, South Dakota, Staff development

Annotation: This March 24, 2022 recording features presentations from Dr. Karl White, Director of the National Center for Hearing Assessment and Management (NCHAM), and Dr. Jessica Messersmith, Professor of Communicative Sciences and Disorders at the University of South Dakota, examining post-COVID advancements in tele-audiology technology and implementation. White and colleague Hoffman outline NCHAM's comprehensive tele-audiology support systems, including planning tools, training programs, and technical assistance provided via Zoom, while Messersmith details specialized applications for pediatric diagnosis utilizing a hub-and-spoke service model where central facilities with specialized expertise support satellite locations staffed by technicians. The presentation covers practical considerations for site selection and setup, including necessary equipment and software specifications, while frankly addressing rural healthcare barriers in South Dakota such as poverty, geographic isolation, and workforce shortages of qualified audiologists. The recording concludes by highlighting available training resources for healthcare providers seeking to establish or expand tele-audiology services in underserved communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

• Link

Keywords: Telemedicine, Deafness, Developmental screening, Children with special health care needs, Youth with special health care needs, Infant health, Infants with special health care needs, South Dakota, Utah

Annotation: This presentation by Marsha Quinn, Co-Executive Director of Parent to Parent USA (P2P USA), outlines how the organization virtually supports families of children with special needs. As a mother of two children, Quinn addresses MCH leaders about P2P USA's comprehensive support system, which includes providing resources and best practices, facilitating member communication through various platforms, offering Spanish language services, and organizing virtual events like Coffee Talks and webinars. The presentation emphasizes how Alliance Members provide virtual family support through family/professional partnerships, information sharing, and emotional support via one-on-one matches and virtual support groups. It also highlights the organization's commitment to diversity, equity, and inclusion, particularly in reaching underserved communities, and provides information on how families can connect with P2P programs both locally and nationally.

Contact: Parent to Parent USA , P.O. Box 9054, Austin, TX 78766, E-mail: [email protected] Web Site: http://www.p2pusa.org

• Link

Keywords: Telemedicine, Family support services, Children with special health care needs, Youth with special health care needs

Annotation: This issue brief discusses how state Title V programs, Medicaid agencies, and Medicaid managed care organizations can work collaboratively to strengthen supports for children and youth with special health care needs. The brief enumerates the essential steps in the Medicaid managed care procurement process and provides strategies and considerations for collaboration between Title V and managed care programs.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/ Available from the website.

• PDF

Keywords: Access to care, Adolescents with special health care needs, Children with special health care needs, Health insurance, Medicaid, State programs, Title V programs, Youth with special health care needs

Annotation: This fact sheet explores Medicaid policy options for states to meet the needs of children and youth with special health care eneds (CYSHCN) during the COVID-19 public health emergency (PHE) and discusses how future rollbacks of PHE modifications may affect CYSHCN populations.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

• Link

Keywords: Adolescents with special health care needs, Children with special health care needs, Children', Communicable diseases, Emergencies, Medicaid, Policy development, State health insurance programs, Virus diseases, Youth, s health insurance program

Annotation: In this video presentation, AMCHP's Evidence and Implementation team discusses practical approaches for incorporating partners, families, and individuals with lived experience into program development and evaluation processes, with careful consideration of organizational resources and capabilities. Featured speaker Becky Burns, who serves as the Statewide Coordinator for Wisconsin Children and Youth with Special Health Care Needs, shares insights on implementing these engagement strategies effectively while working within the constraints of available organizational capacity.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

• Link

Keywords: Children with special health care needs, Youth with special health care needs, Epidemiology, Program evaluation, Staff development, Family support services

Annotation: This environmental scan summarizes themes that emerged during interviews with key informants on the implementation of telehealth solutions during the COVID-19 pandemic. The brief describes several themes that emerged across multiple programs: (1) There is significant variance in the level of telehealth implementation occurring across jurisdictions; (2) Systemic and widespread connectivity issues exist for families and some programs; (3) There is a lack of evidence by which to make decisions about if and how to continue or expand telehealth to best meet families’ needs; and (4) Improved mechanisms are needed to connect available educational and training resources with the providers and staff who need them, when they need them. Contributors include representatives from Title V and children and youth with special health care needs (CYSHCN) programs, newborn screening functions, and maternal, infant, and early childhood home visiting (MIECHV) services.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

• PDF

Keywords: Barriers, Child health, Children with special health needs, Health care delivery, Interviews, Maternal health, Telecommunications, Telemedicine, Youth

Annotation: In an effort to improve statewide care coordination, Rhode Island's Title V Maternal and Child Health program utilized the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN). This case study illustrates how the state implemented these standards through two main initiatives: the Patient-Centered Medical Home for Kids (PCMH-Kids) program launched in 2015, which adapted adult care models to better serve children's unique needs, and improvements to specialty care coordination through Medicaid managed care. The National Standards provided an evidence-based framework that helped stakeholders understand the importance of family-centered, comprehensive care coordination, identified key barriers (such as limited communication between coordinators and reimbursement issues), and guided policy changes. Rhode Island's experience demonstrates how the National Standards can serve as an effective tool for achieving shared understanding among partners and implementing improved care coordination systems, with particular emphasis on family engagement and access to community-based services.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

• Link

Keywords: Rhode Island, Title V programs, State CSHCN programs, Standards, Case studies, Children with special health care needs, Youth with special health care needs

Annotation: This framework describes desired systems performance outcomes for children and youth with special health care needs (CYSHCN) in the domains of health services; family support and social services; education and employment services; and law enforcement and juvenile justice contact. The document provides a table listing services used by CYSHCN and their families by domain; a description of how the literature was reviewed; a list of statutes, policies and existing documents relating to the outcomes; a list of state, federal and other actors who support CYSHCN and their families; and available datasets and state policy compendia. The audience for the framework is parents, state lawmakers, and other stakeholders.

Contact: Child Trends , 7315 Wisconsin Avenue, Suite 1200 W, Bethesda, MD 20814, Telephone: (240) 223-9200 E-mail: Web Site: http://www.childtrends.org Available from the website.

• PDF

Keywords: Adolescents with special health care needs, Children with special health care needs, Families, Health care systems, Policies, Service delivery systems, State programs, Youth with special health care needs

Annotation: This brief highlights collaborative Title V partnerships that hold promise for advancing the national performance measure focusing on adequate health insurance. The brief focuses on ways Title V Children and Youth with Special Health Care Needs (CYSHCN) programs can leverage their ability to partner with families, in particular with their state Family to Family program, to improve their capacity to contribute meaningfully to the challenges of financing and ensuring the availability of quality care for CYSHCN.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/ Available from the website.

• PDF

Keywords: Access to care, Adolescents with special health care needs, Children with special health care needs, Health insurance, State programs, Title V programs, Youth with special health care needs

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: [email protected] Web Site: http://www.aucd.org Available from the website.

• PDF

Keywords: Adolescents with developmental disabilities, Adolescents with special health care needs, Self care, Transition to independent living, Young adults, Youth in transition programs

Annotation: This report provides information about best practices in therapeutic or treatment foster care (TFC), a clinical intervention for youth from birth to age 18 who have severe mental, emotional, or behavioral health needs. Topics include essential partners; building relationships among provider agencies and child advocates; example practices in Connecticut, Illinois, Michigan, Oklahoma, Nebraska; efforts to expand the focus beyond safety and permanency to well-being for youth in therapeutic foster care; and public policy challenges.

Contact: First Focus, 1400 Eye Street, N.W., Suite 650, Washington, DC 20005, Telephone: (202) 657-0670 Fax: (202) 657-0671 Web Site: http://www.firstfocus.net Available from the website.

• PDF

Keywords: Access to health care, Adolescents with special health care needs, Advocacy, Behavioral medicine, Children with special health care needs, Foster care, Foster parents, Health services delivery, Intervention, Medically fragile children, Mental health, Policy development, Psychological needs, Reimbursement, Relationships, Therapeutics, Training, Trauma care, Youth

Annotation: This issue brief provides data on the number of children and youth with special health care needs (CYSHCN) enrolled in Medicaid and outlines how they qualify for coverage. It presents findings from case studies collected by Family Voices and interviews with families of CYSHCN about Medicaid’s role in their lives (conducted by the Georgetown University Health Policy Institute Center for Children and Families). It includes snapshots of families around the country whose children with special needs receive Medicaid services and a table listing the upper income eligibility level for CYSHCN coverage in all 50 states. The brief concludes with a discussion of policy implications and recommendations.

Contact: Georgetown University McCourt School of Public Policy , Center for Children and Families, 600 New Jersey Avenue , Washington, DC 20001, Telephone: (202) 687-0880 Fax: (202) 687-3110 E-mail: [email protected] Web Site: http://ccf.georgetown.edu Available from the website.

• PDF

Keywords: Adolescents, Children with special health care needs, Data, Health care financing, Medicaid, Policy development, State children', State programs, Statistics, Youth, s health insurance

Annotation: This training manual is designed to inform both families and professionals about a wide range of potential funding sources to improve access to care and access to other resources for children, youth, young adults, and families in the state of Minnesota. It describes major funding programs, other possible funding options, and tools to help identify funding resources. Included are lists of programs and services for children with special health care needs; general brochures about programs offered by Minnesota's Department of Human Services; information on multicultural resources (including public benefits for non-citizens; information on mental health programs and school services); and tools for use in finding resources for families including how to apply, income and asset guidelines; and covered services.

Contact: Minnesota Department of Health, P.O. Box 64975, St. Paul, MN 55164-0975, Telephone: (651) 201-5000 Secondary Telephone: (888) 345-0823 Web Site: http://www.health.state.mn.us Available from the website.

• PDF
• 5/20/2011 Updates

Keywords: Adolescent health, Child health, Children with special health care needs, Financing, Health care financing, Minnesota, State programs, Training materials, Youth

Annotation: This report describes a Title V five-year needs assessment (2008-2012) and strategic plan for a comprehensive assessment to identify the need in Iowa for: preventive and primary care services for pregnant women, mothers, and infants; preventive and primary care services for children; and services for children and youth with special health care needs. Contents include summaries of goals and vision; leadership; methodology; methods for assessing the MCH populations and state capacity; data sources; linkages between assessment, capacity, and priorities; dissemination; and strengths and weaknesses of process. [Funded by the Maternal and Child Health Bureau]

Contact: Iowa Department of Public Health, Bureau of Family Health, Lucas State Office Building, 321 East 12th Street, Des Moines, IA 50319, Telephone: (800) 383-3826 Secondary Telephone: (800) 443-8336 Fax: (515) 725-1760 Web Site: http://www.idph.iowa.gov/family-health Available from the website.

Keywords: Adolescents, Children, Children with special health care needs, Final reports, Health services delivery, Iowa, Needs assessment, Pregnant women, State surveys, Strategic plans, Title V programs, Youth

Annotation: This final report for the Wisconsin Integrated Services for Children with Special Health Care Needs program discusses the project purpose; goals and objectives; methodology; evaluation; results, outcomes, and lessons learned; publications and products; dissemination and utilization of results; and sustainability. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org

Keywords: Adolescents with special health care needs, Children with special health care needs, Community health services, Families, Final reports, Health care systems, Leadership, Medical home, Parents, Service integration, Wisconsin, Youth in transition programs

Annotation: This final report for the Sooner SUCCESS (State Unified Children's Comprehensive Exemplary Service for Special Needs) program discusses the project purpose; goals and objectives; methodogy; evaluation; results, outcomes, and lessons learned; publications and products; dissemination and utilization of results; and sustainability. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org

Keywords: Final reports, Adolescents with special health care needs, Children with special health care needs, Communities, Community health services, Families, Family support services, Health care systems, Medical home, Oklahoma, Parents, School to work transition, Service coordination, Service integration, Transition to independent living, Youth in transition programs

Annotation: This guide presents a training curriculum developed through needs assessment, pilot testing, and post implementation evaluation to raise expectations about what youth with special health care needs can achieve, build specific transition-to-adulthood related resources among participants, increase participants' knowledge about transition related resources, and promote a collaborative approach among community service providers who work with youth and families during transition. [Funded by the Maternal and Child Health Bureau]

Contact: New England SERVE, 101 Tremont Street, Suite 812, Boston, MA 02108, Telephone: (617) 574-9493 Fax: (617) 574-9608 Available from the website.

• PDF

Keywords: Adolescents, Children with special health care needs, Curricula, Professional training, Transition planning, Youth, Youth in transition programs