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Strengthen the Evidence for Maternal and Child Health Programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 20 (71 total).

Bronheim S, Fiel S, Schidlow D, MagrabP, Boczar K, Dillon C. n.d.. Crossings: A manual for transition of chronically ill youth to adult health care. Harrisburg, PA: Pennsylvania Department of Health, 52 pp.

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://gucchd.georgetown.edu Price unknown.

Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Family Voices; IMPACT. n.d.. Transitions--Growing up and away. Albuquerque, NM: Family Voices, IMPACT, 3 pp.

Annotation: This fact sheet provides tips to help parents of adolescents with special health care needs support their sons' and daughters' transition into adulthood.

Contact: Family Voices, P.O. Box 37188, Albuquerque, NM 87176, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.familyvoices.org Available from the website.

Keywords: Adolescent development, Adolescents with special health care needs, Parenting, Transition planning, Transitions, Young adults

American Academy of Pediatrics. n.d.. Helping children in foster care make successful transitions into child care. Elk Grove Village, IL: American Academy of Pediatrics , 2 pp.

Genetic Alliance, Parent to Parent USA, Family Voices. 2023. Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success. Washington, DC: Genetic Alliance, multiple items.

Annotation: This resource provides individuals with special health care needs and their families with tools and strategies to advocate for whatever they may need. Topics include access to health care, accessible communities, advocacy and leadership skills, communicating about health, education services and support, insurance and financial assistance, legislation and political action, steps to employment success, transition to adulthood, and youth leadership.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

Keywords: Access to health care, Advocacy, Communication, Family support services, Leadership, Life course, Special health care needs, Transitions

Nemours Children's Health System. 2023. Transition of Care . Jacksonville, FL: Nemours Children's Health System, multiple

Annotation: This website includes information for families about changes that occur when a child with a disability or with special health care needs becomes a legal adult. Teaching your child how to navigate the health care system and encouraging them to become actively involved in their medical care are among the topics explored in video and e-publication formats.

Contact: Nemours Children's Health System, 10140 Centurion Parkway North, Jacksonville, FL 32256, Telephone: (904) 697-4100 Web Site: http://www.nemours.org Available from the website.

Keywords: Adolescents, Consumer education, School to work transitions, Special health care needs, Transition planning, Transition to independent living, Young adults

Ziemann M, Salsberg E, McManus M, White P, Schmidt A. 2023. Strengthening the adult primary care workforce to support young adults with medical complexity transitioning to adult health care. Washington, DC: George Washington University ,

Annotation: This report presents recommendations to strengthen the primary care workforce for young adults with medical complexity (YAMC) by promoting and increasing the supply of well-prepared adult primary care physicians for YAMC transitioning to adult care. Included is an overview of the YAMC population and the current care landscape, including health workforce and financing consideration. The recommendations were developed by a national advisory committee established by the National Alliance to Advance Adolescent Health/Got Transition and the George Washington University Fitzhugh Mullan Institute for Health Workforce Equity.

Contact: George Washington University , Fitzhugh Mullan Institute for Health Workforce Equity , 2175 K Street, NW, Suite 250, Washington, DC 20037, Telephone: (202) 994-3423 Web Site: https://www.gwhwi.org/

Keywords: Adolescents, Chronic illnesses and disabilities, Primary care, Professional education, Professional training, Program improvement, Transition planning, Transitions, Young adults

McManus M, White P, Schmidt A. 2022. A guide for designing a value-based payment initiative for pediatric-to-adult transitional care. Washington, DC: The National Alliance to Advance Adolescent Health, 18 pp.

Annotation: This guide contains a step-by-step approach for state Medicaid and managed care organizations (MCOs) as well as commercial payers interested in starting a value-based payment (VBP) initiative around pediatric-to-adult transitional care. The document presents six steps in establishing a VBP initiative, as well as issues and strategies to consider, tips, and examples from managed care organizations.

Contact: National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3557 E-mail: [email protected] Web Site: http://www.thenationalalliance.org/ Available from the website.

Keywords: Access to health care, Adolescents, Medicaid, Transition planning, Transitions, Young adults

Parsons HM, Abdi HI, Nelson VA, Claussen A, Wagner BL, Sadak KT, Scal PB, Wilt TJ, Butler M. 2022. Transitions of care from pediatric to adult services for children with special health care needs. Rockville, MD: Agency for Healthcare Research and Quality, 323 pp. (Comparative effectiveness review; no. 255)

Annotation: This systematic review provides the results of an analysis of the evidence base for care interventions, implementation strategies, and between-provider communication tools among children with special health care needs who are making the transition from pediatric to adult medical care services. Several databases were searched to identify studies published through September 2021; gray literature searches were also conducted in order to identify additional resources relevant to the topic. The publication is divided into 12 chapters and includes tables, figures, and appendixes.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1104 Secondary Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website.

Keywords: Adolescents, Literature reviews, Research reviews, Special health care needs, Transition planning, Transition to independent living, Transitions, Young adults

White PH, Greenberg A. 2021 (ca.). Telehealth toolkit for a joint visit with pediatric and adult health care clinicians and transferring young adults. Washington, DC: Got Transition, 6 pp.

Annotation: This toolkit offers pediatric and adult medical professionals sample content that can be used to facilitate transfer to adult care, as well as a sample resource for the transferring young adult that explains the telehealth visit. The two tip sheets are designed to be used as a general guide for the agenda of the joint telehealth visit, and both can be customized to the practice and young adult and family situation. Additional resources include a practice script example and a link to Got Transition's Six Core Elements of Health Care Transition.

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Access to health care, Adolescents, Telehealth, Telemedicine, Transition planning, Transitions, Young adults

Ilango S, McManus P, Beck D, White P . 2021. Health care transition in state Title V programs: A review of 2021 Block Grant applications/ 2019 annual reports and recommendations. Washington, DC: Center for Health Care Transition Improvement, 14 pp.

Annotation: This report presents information about state Title V transition strategies and evidence-informed measures. Contents include an executive summary and recommendations, examples of innovative transition strategies, and information about a new transition measure from the National Survey of Children's Health that will be used to report state and national transition performance. [Supported by the Health Resources and Services Administration (HRSA), U.S. Department of Health and Human Services (HHS)]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Measures, Program development, Program planning, State programs, Transition planning, Transitions

Ilango S, McManus P, Beck D, White P. 2021. Health care transition in state Title V programs: A review of 2021 Block Grant applications/2019 annual reports and recommendations. Washington, DC: Got Transition , 14 pp.

Annotation: This report summarizes the health care transition (HCT) strategies that Title V agencies documented in their 2021 applications and 2019 annual reports. The document highlights examples of states' HCT innovations and offers recommendations for future health care transition strategies in state Title V action plans.

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Adolescents, Federal agencies, Maternal and Child Health Bureau, Transition planning, Transition to independent living, Transitions, Young adults

Okumura MJ, Kuo DZ, Ware AN, Cyr, White PH . 2021. Improving health care transitions for children and youth with special health care needs. Academic pediatrics, 22(2S), S7–S13, 7 pp.

Annotation: This journal article reviews programs and literature on the transfer of care for children and youth with special health care needs (CYSHCN). Often these patients do not have adequate transition structure to adult health care, and it suggests that future research focus on patient and family transitions of care in the context of their social and community environment, and uncover knowledge about adequate services and payment structures and incentives to promote continuity of care and the need for family/youth and young adult-centered models of care across the life-span.

Contact: Elsevier, Health Sciences Division, 1600 John F. Kennedy Boulevard, Suite 1800, Philadelphia, PA 19103-2822, Telephone: (215) 239-3900 Fax: (215) 239-3990 Web Site: http://www.us.elsevierhealth.com

Keywords: Adolescents with special health care needs, Children with special health care needs, Transitions

Oregon Center for Children and Youth with Special Health Needs. 2021. Improving the transition from pediatric to adult health care for Oregon’s youth with special health care needs fact sheet. Portland, OR: Oregon Center for Children and Youth with Special Health Needs, 2 pp.

Annotation: This fact sheet from the state of Oregon uses statistics to draw attention to the need for youth with special health care needs (YSHCN) to receive help in their transition to adult health care. It lists the benefits of adequate transition, and provides strategies to improve transition in the state of Oregon. [From the Oregon Center for Children and Youth with Special Health Needs (OCCYSHN), Oregon’s public health agency for children and youth with special health care needs. OCCYSHN is funded through the Oregon Health Authority, with a designated portion of the state’s annual US Maternal and Child Health Bureau (MCHB) Title V Block Grant.]

Contact: Oregon Center for Children and Youth with Special Health Needs, 707 South West Gaines Road, Portland, OR 97239, Telephone: (503) 494-8303 Secondary Telephone: (877) 307-7070 Fax: (503) 494-2755 E-mail: [email protected] Web Site: http://www.ohsu.edu/xd/outreach/occyshn

Keywords: Adolescents with special health care needs, Oregon, Transitions

Got Transition. 2020. Six core elements of health care transition [3.0]. Washington, DC: Got Transition, multiple items.

Annotation: This resource describes the basic components of a structured transition process and includes customizable sample tools for each core element and an implementation package for each type of practice. They are tailored to the type of practice facilitating the health care transition in these areas: (1) transitioning youth to an adult health care clinician, for use by pediatric, family medicine, and med-peds clinicians; (2) transitioning to an adult approach to health care without changing clinicians, for use by family medicine and med-peds clinicians; and (3) integrating young adults into adult health care, for use by internal medicine, family medicine, and med-peds clinicians. A summary chart describes the three sets of tools and six elements. The materials are available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Access to health care, Adolescents, Coordination, Pediatric care, Spanish language materials, Transition planning, Transitions, Young adults

McManus M, Schmidt A, White P. 2020. Medicaid contract language to expand the availability of pediatric-to-adult transitional care. Washington, DC: National Alliance to Advance Adolescent Health and Got Transition™/Center for Health Care Transition Improvement, 27 pp.

Annotation: This document describes contract language options states can use to provide for the availability of pediatric-to-adult transitional care, in the areas of definitions, member services and education, provider networks, covered services, care coordination, and quality and evaluation. Appendices list actual 2018/2019 contract language on the same topics from selected states. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3557 E-mail: [email protected] Web Site: http://www.thenationalalliance.org/ Available from the website.

Keywords: Access to health care, Adolescents, Coordination, Pediatric care, Transition planning, Transitions, Young adults

McManus M, White P, Borden C. 2019. Incorporating pedatric-to-adult transition into NCQA patient-centered medical home recognition: 2019 update. Washington, DC: Got Transition™/Center for Health Care Transition Improvement, 13 pp. (Practice resource)

Annotation: This resource is intended to facilitate the application of nationally-recognized transition tools to address specific criteria developed by the National Committee for Quality Assurance (NCQA) in their 2017 Patient-Centered Medical Home standards. Contents include NCQA criteria and guidance cross-walked with relevant sample tools. Topics include team-based care and practice organization, knowing and managing patients, patient-centered access and continuity, care management and support, care coordination and care transitions, and performance measurement and quality improvement. Descriptions of the tools are also provided. [Funded by the Maternal and Child Health Bureau]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Children, Measures, Medical home, Patient care management, Patient care teams, Program coordination, Program improvement, Quality assurance, Special health care needs, Standards, Transitions, Youth

Minnesota Department of Health . 2019. Minnesota Department of Health White paper on the transition from pediatric to adult health care. St. Paul, MN: Minnesota Department of Health, 20 pp.

Annotation: This report provides data on the 25.6% of Minnesota youth with special health care needs and how well they transition to adult health care, as well as recommendations on how the system can be improved in the future. At the writing of this report, only 1 in 5 youth received the care they needed. The white paper identifies factors that contribute to the lack of transition planning and readiness, and makes recommendations on how to improve the outcomes of healthcare transition in the future.

Contact: Minnesota Department of Health , Children and Youth with Special Health Needs, PO Box 64882, St. Paul , MD 55164-0882, Telephone: 651-201-3650 E-mail: [email protected] Web Site: www.health.state.mn.us

Keywords: Adolescents with special health care needs, Minnesota, Transitions

White P, Schmidt A, McManus M, Irwin CI Jr. 2018. Incorporating health care transition services into preventive care for adolescents and young adults: A toolkit for clinicians. Washington, DC: Got Transition; San Francisco, CA: Adolescent and Young Adult Health National Resource Center, 18 pp.

Annotation: This toolkit for clinicians provides suggested questions and anticipatory guidance specific to adolescents' transition to adult health care, and is meant to be used alongside Bright Futures. It covers early adolescence (11-14 years) through early adulthood (22-25 years), and includes transition and preventive health care guidance. It is aimed at the entire health care team. It is available in English and Spanish.

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

Keywords: Access to health care, Adolescents, Coordination, Pediatric care, Self care, Spanish language materials, Transition planning, Transitions, Young adults

Hergenroeder AC, Wiemann CM, eds. 2018. Health care transition: Building a program for adolescents and young adults with chronic illness and disability. New York, NY: Springer, 394 pp.

Annotation: This book addresses aspects of transitioning from pediatric to adult health care for adolescents and young adults with chronic illness or disability. It includes a framework, tools, and case-based examples to inform developing and evaluating a health-care-transition (HCT)-planning program that can be implemented regardless of an individual’s disease or disability. Selected topics include defining successful transition, financing transition, special issues in transition, and models of HCT programs. One chapter provides an overview of the Dental Education in the Care of Persons with Disabilities Program at the University of Washington School of Dentistry.

Contact: Springer, 233 Spring Street, New York, NY 10013, Telephone: (212) 460-1572 Fax: (212) 620-8442 E-mail: [email protected] Web Site: http://www.springer.com Order from the website for a charge.

Keywords: Access to health care, Adolescent health, Adolescents with special health care needs, Oral health, Transition planning, Transitions

Library of Congress, Congressional Research Service. 2018. Vulnerable youth: Background and policies. Washington, DC: Library of Congress, Congressional Research Service, 60 pp.

Annotation: This document discusses federal efforts to help vulnerable youth make successful transitions to adulthood in six areas: workforce development, education, juvenile justice and delinquency prevention, social services, public health, and national and community service. It describes risk factors, positive youth development, the evolution of the federal role in assisting vulnerable youth from 1912 through the present, and federal efforts to improve coordination among programs for vulnerable youth.

Contact: Library of Congress, Congressional Research Service, 101 Independence Avenue, S.E., Washington, DC 20540-7500, Fax: Web Site: http://www.loc.gov/crsinfo Available from the website. Document Number: RL33975 · Version 28 · Updated.

Keywords: Federal programs, High risk adolescents, History, Transitions, Youth development
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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.