Search Results: MCHLine

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://gucchd.georgetown.edu Price unknown.

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Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Annotation: This project addressed the issue of transitioning of late adolescents and young adults with cystic fibrosis from pediatric care to the adult health care system. The project was developed in order to study the issue of transitioning in terms of the health care delivery system. The goal of the project was to develop an appropriate adult health care delivery model and to study this process and the process of transitioning patients from a pediatric hospital to an adult hospital in separate locations. The objectives of the project were to examine four issues: (1) The effect of the transition on patients and families; (2) determining what services are needed in the adult care setting to provide appropriate care; (3) determining whether interinstitutional issues can be overcome to successfully develop such a program; and (4) studying the financial impact on patients and institutions of this transition. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-198372.

Keywords: Adolescents, Chronically Ill, Cystic Fibrosis, Data Collection, Stress, Youth in Transition

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196962.

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

Annotation: This fact sheet provides tips to help parents of adolescents with special health care needs support their sons' and daughters' transition into adulthood.

Contact: Family Voices, P.O. Box 37188, Albuquerque, NM 87176, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.familyvoices.org Available from the website.

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Keywords: Adolescent development, Adolescents with special health care needs, Parenting, Transition planning, Transitions, Young adults

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: 800/433-9016 Secondary Telephone: 202/347-8600 E-mail: https://www.aap.org/en/pages/contact-us/contact-national-headquarters/ Web Site: https://www.aap.org Available from the website.

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Keywords: Child care, Child mental health, Foster care, Transitions

Annotation: This resource provides individuals with special health care needs and their families with tools and strategies to advocate for whatever they may need. Topics include access to health care, accessible communities, advocacy and leadership skills, communicating about health, education services and support, insurance and financial assistance, legislation and political action, steps to employment success, transition to adulthood, and youth leadership.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

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Keywords: Access to health care, Advocacy, Communication, Family support services, Leadership, Life course, Special health care needs, Transitions

Annotation: This website includes information for families about changes that occur when a child with a disability or with special health care needs becomes a legal adult. Teaching your child how to navigate the health care system and encouraging them to become actively involved in their medical care are among the topics explored in video and e-publication formats.

Contact: Nemours Children's Health System, 10140 Centurion Parkway North, Jacksonville, FL 32256, Telephone: (904) 697-4100 Web Site: http://www.nemours.org Available from the website.

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• Teen Health Site

Keywords: Adolescents, Consumer education, School to work transitions, Special health care needs, Transition planning, Transition to independent living, Young adults

Annotation: This report presents recommendations to strengthen the primary care workforce for young adults with medical complexity (YAMC) by promoting and increasing the supply of well-prepared adult primary care physicians for YAMC transitioning to adult care. Included is an overview of the YAMC population and the current care landscape, including health workforce and financing consideration. The recommendations were developed by a national advisory committee established by the National Alliance to Advance Adolescent Health/Got Transition and the George Washington University Fitzhugh Mullan Institute for Health Workforce Equity.

Contact: George Washington University , Fitzhugh Mullan Institute for Health Workforce Equity , 2175 K Street, NW, Suite 250, Washington, DC 20037, Telephone: (202) 994-3423 Web Site: https://www.gwhwi.org/

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Keywords: Adolescents, Chronic illnesses and disabilities, Primary care, Professional education, Professional training, Program improvement, Transition planning, Transitions, Young adults

Annotation: This tip sheet for professionals providing transition services in pediatric and adult primary and specialty care settings summarizes innovative transition payment models. Contents include alternative payment methodologies and transition-related CPT codes and corresponding Medicare fees. Enhanced fee-for-service payments, pay-for-performance, capitation, bundled payments, shared savings, and administrative or infrastructure payments are among the topics covered.

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

• 2022

Keywords: Adolescents, Financing, Model programs, Pediatric care, Primary care, Reimbursement, Transition planning, Young adults

Annotation: This guide contains a step-by-step approach for state Medicaid and managed care organizations (MCOs) as well as commercial payers interested in starting a value-based payment (VBP) initiative around pediatric-to-adult transitional care. The document presents six steps in establishing a VBP initiative, as well as issues and strategies to consider, tips, and examples from managed care organizations.

Contact: National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3557 E-mail: [email protected] Web Site: http://www.thenationalalliance.org/ Available from the website.

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Keywords: Access to health care, Adolescents, Medicaid, Transition planning, Transitions, Young adults

Annotation: This transition payment tip sheet is produced by Got Transition and the American Academy of Pediatrics in order to support the delivery of recommended transition services in pediatric and adult care settings. The tip sheet begins with a listing of transition-related CPT codes and corresponding Medicare fees and relative value units (RVUs), effective as of 2022. The resource also includes a set of clinical vignettes with recommended CPT and ICD coding, as well as detailed coding descriptions for each transition-related code.

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

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Keywords: Adolescents, Financing, Model programs, Pediatric care, Primary care, Reimbursement, Special health care needs, Transition planning, Young adults

Annotation: This systematic review provides the results of an analysis of the evidence base for care interventions, implementation strategies, and between-provider communication tools among children with special health care needs who are making the transition from pediatric to adult medical care services. Several databases were searched to identify studies published through September 2021; gray literature searches were also conducted in order to identify additional resources relevant to the topic. The publication is divided into 12 chapters and includes tables, figures, and appendixes.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website.

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Keywords: Adolescents, Literature reviews, Research reviews, Special health care needs, Transition planning, Transition to independent living, Transitions, Young adults

Annotation: This website provides a platform for the aging and disability communities to post information and resources about the home and community-based services (HCBS) settings rule and steps each state is making to comply with the rule. Contents include resources, dates and deadlines, documents, news, and other information organized by state. Additional contents include official resources and information from the federal government about the HCBS rule including guidance and a settings requirements and compliance toolkit.

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: [email protected] Web Site: http://www.aucd.org Available from the website.

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Keywords: Advocacy, Community based services, Compliance, Disabilities, Federal legislation, Guidelines, Information sources, Medicaid, Networking, Public private partnerships, Transition planning

Annotation: This toolkit offers pediatric and adult medical professionals sample content that can be used to facilitate transfer to adult care, as well as a sample resource for the transferring young adult that explains the telehealth visit. The two tip sheets are designed to be used as a general guide for the agenda of the joint telehealth visit, and both can be customized to the practice and young adult and family situation. Additional resources include a practice script example and a link to Got Transition's Six Core Elements of Health Care Transition.

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

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Keywords: Access to health care, Adolescents, Telehealth, Telemedicine, Transition planning, Transitions, Young adults

Annotation: This report presents information about state Title V transition strategies and evidence-informed measures. Contents include an executive summary and recommendations, examples of innovative transition strategies, and information about a new transition measure from the National Survey of Children's Health that will be used to report state and national transition performance. [Supported by the Health Resources and Services Administration (HRSA), U.S. Department of Health and Human Services (HHS)]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

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Keywords: Measures, Program development, Program planning, State programs, Transition planning, Transitions

Annotation: This report summarizes the health care transition (HCT) strategies that Title V agencies documented in their 2021 applications and 2019 annual reports. The document highlights examples of states' HCT innovations and offers recommendations for future health care transition strategies in state Title V action plans.

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

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Keywords: Adolescents, Federal agencies, Maternal and Child Health Bureau, Transition planning, Transition to independent living, Transitions, Young adults

Annotation: This journal article reviews programs and literature on the transfer of care for children and youth with special health care needs (CYSHCN). Often these patients do not have adequate transition structure to adult health care, and it suggests that future research focus on patient and family transitions of care in the context of their social and community environment, and uncover knowledge about adequate services and payment structures and incentives to promote continuity of care and the need for family/youth and young adult-centered models of care across the life-span.

Contact: Elsevier, Health Sciences Division, 1600 John F. Kennedy Boulevard, Suite 1800, Philadelphia, PA 19103-2822, Telephone: (215) 239-3900 Fax: (215) 239-3990 Web Site: http://www.us.elsevierhealth.com

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Keywords: Adolescents with special health care needs, Children with special health care needs, Transitions

Annotation: This fact sheet from the state of Oregon uses statistics to draw attention to the need for youth with special health care needs (YSHCN) to receive help in their transition to adult health care. It lists the benefits of adequate transition, and provides strategies to improve transition in the state of Oregon. [From the Oregon Center for Children and Youth with Special Health Needs (OCCYSHN), Oregon’s public health agency for children and youth with special health care needs. OCCYSHN is funded through the Oregon Health Authority, with a designated portion of the state’s annual US Maternal and Child Health Bureau (MCHB) Title V Block Grant.]

Contact: Oregon Center for Children and Youth with Special Health Needs, 707 South West Gaines Road, Portland, OR 97239, Telephone: (503) 494-8303 Secondary Telephone: (877) 307-7070 Fax: (503) 494-2755 E-mail: [email protected] Web Site: http://www.ohsu.edu/xd/outreach/occyshn

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Keywords: Adolescents with special health care needs, Oregon, Transitions

Annotation: This resource describes the basic components of a structured transition process and includes customizable sample tools for each core element and an implementation package for each type of practice. They are tailored to the type of practice facilitating the health care transition in these areas: (1) transitioning youth to an adult health care clinician, for use by pediatric, family medicine, and med-peds clinicians; (2) transitioning to an adult approach to health care without changing clinicians, for use by family medicine and med-peds clinicians; and (3) integrating young adults into adult health care, for use by internal medicine, family medicine, and med-peds clinicians. A summary chart describes the three sets of tools and six elements. The materials are available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: [email protected] Web Site: http://gottransition.org Available from the website.

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Keywords: Access to health care, Adolescents, Coordination, Pediatric care, Spanish language materials, Transition planning, Transitions, Young adults

Annotation: This document describes contract language options states can use to provide for the availability of pediatric-to-adult transitional care, in the areas of definitions, member services and education, provider networks, covered services, care coordination, and quality and evaluation. Appendices list actual 2018/2019 contract language on the same topics from selected states. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3557 E-mail: [email protected] Web Site: http://www.thenationalalliance.org/ Available from the website.

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Keywords: Access to health care, Adolescents, Coordination, Pediatric care, Transition planning, Transitions, Young adults