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Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 20 (174 total).

Bronheim S, Fiel S, Schidlow D, MagrabP, Boczar K, Dillon C. n.d.. Crossings: A manual for transition of chronically ill youth to adult health care. Harrisburg, PA: Pennsylvania Department of Health, 52 pp.

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Keller A. n.d.. Services for Adults with Cystic Fibrosis [Final report]. Harrisburg, PA: Pennsylvania Department of Health, 37 pp.

Annotation: This project addressed the issue of transitioning of late adolescents and young adults with cystic fibrosis from pediatric care to the adult health care system. The project was developed in order to study the issue of transitioning in terms of the health care delivery system. The goal of the project was to develop an appropriate adult health care delivery model and to study this process and the process of transitioning patients from a pediatric hospital to an adult hospital in separate locations. The objectives of the project were to examine four issues: (1) The effect of the transition on patients and families; (2) determining what services are needed in the adult care setting to provide appropriate care; (3) determining whether interinstitutional issues can be overcome to successfully develop such a program; and (4) studying the financial impact on patients and institutions of this transition. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Chronically Ill, Cystic Fibrosis, Data Collection, Stress, Youth in Transition

Hostler S. n.d.. Family Autonomy Project [Final report]. Charlottesville, VA: University of Virginia, 50 pp.

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

Family Voices; IMPACT. n.d.. Transitions--Growing up and away. Albuquerque, NM: Family Voices, IMPACT, 3 pp.

American Academy of Pediatrics. n.d.. Helping children in foster care make successful transitions into child care. Elk Grove Village, IL: American Academy of Pediatrics , 2 pp.

The National Center for a System of Service for CYSHCN . 2025. Title V CYSHCN programs advancing the system of services for CYSHCN: From the field. American Academy of Pediatrics,

Annotation: This online resource from the American Academy of Pediatrics for state Title V programs and their partners describes strategies to improve systems of services for children and youth with special health care needs (CYSHCN) and their families. It presents vignettes from Arizona, Colorado, Iowa, Louisiana, Rhode Island, Utah, and Wyoming that highlight peer-to-peer learning and cross-sector partnerships. Featured activities include engaging families and young adults with lived experience, developing electronic referral systems, and integrating national standards for systems of care into needs assessment processes. The resource also discusses provider toolkits for developmental screening, Medicaid payment incentives for health care transition services, and the use of telehealth for care coordination in rural and frontier areas.

Keywords: Arizona, Child health, Children with special health care needs, Colorado, Developmental screening, Intersectoral collaboration, Iowa, Louisiana, Partnerships, Program coordination, Rhode Island, State initiatives, Title V programs, Utah Wyoming, Youth, Youth in transition programs

Genetic Alliance, Parent to Parent USA, Family Voices. 2023. Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success. Washington, DC: Genetic Alliance, multiple items.

Annotation: This resource provides individuals with special health care needs and their families with tools and strategies to advocate for whatever they may need. Topics include access to health care, accessible communities, advocacy and leadership skills, communicating about health, education services and support, insurance and financial assistance, legislation and political action, steps to employment success, transition to adulthood, and youth leadership.

Keywords: Access to health care, Advocacy, Communication, Family support services, Leadership, Life course, Special health care needs, Transitions

Nemours Children's Health System. 2023. Transition of Care . Jacksonville, FL: Nemours Children's Health System, multiple

Annotation: This website includes information for families about changes that occur when a child with a disability or with special health care needs becomes a legal adult. Teaching your child how to navigate the health care system and encouraging them to become actively involved in their medical care are among the topics explored in video and e-publication formats.

Keywords: Adolescents, Consumer education, School to work transitions, Special health care needs, Transition planning, Transition to independent living, Young adults

Ziemann M, Salsberg E, McManus M, White P, Schmidt A. 2023. Strengthening the adult primary care workforce to support young adults with medical complexity transitioning to adult health care. Washington, DC: George Washington University ,

Annotation: This report presents recommendations to strengthen the primary care workforce for young adults with medical complexity (YAMC) by promoting and increasing the supply of well-prepared adult primary care physicians for YAMC transitioning to adult care. Included is an overview of the YAMC population and the current care landscape, including health workforce and financing consideration. The recommendations were developed by a national advisory committee established by the National Alliance to Advance Adolescent Health/Got Transition and the George Washington University Fitzhugh Mullan Institute for Health Workforce Equity.

Keywords: Adolescents, Chronic illnesses and disabilities, Primary care, Professional education, Professional training, Program improvement, Transition planning, Transitions, Young adults

Schmidt A, McManus M, White P, The National Alliance to Advance Adolescent Health; Slade R, Salus T, Bradley J., American Academy of Pediatrics . 2022. Coding and reimbursement tip sheet for transition from pediatric to adult health care (upd. ed.). Washington, DC: Got Transition™/Center for Health Care Transition Improvement, 32 pp. (Practice resource; no. 2)

Annotation: This tip sheet for professionals providing transition services in pediatric and adult primary and specialty care settings summarizes innovative transition payment models. Contents include alternative payment methodologies and transition-related CPT codes and corresponding Medicare fees. Enhanced fee-for-service payments, pay-for-performance, capitation, bundled payments, shared savings, and administrative or infrastructure payments are among the topics covered.

Keywords: Adolescents, Financing, Model programs, Pediatric care, Primary care, Reimbursement, Transition planning, Young adults

McManus M, White P, Schmidt A. 2022. A guide for designing a value-based payment initiative for pediatric-to-adult transitional care. Washington, DC: The National Alliance to Advance Adolescent Health, 18 pp.

Annotation: This guide contains a step-by-step approach for state Medicaid and managed care organizations (MCOs) as well as commercial payers interested in starting a value-based payment (VBP) initiative around pediatric-to-adult transitional care. The document presents six steps in establishing a VBP initiative, as well as issues and strategies to consider, tips, and examples from managed care organizations.

Keywords: Access to health care, Adolescents, Medicaid, Transition planning, Transitions, Young adults

Schmidt A, McManus M, White P, Slade R, Salus T, Bradley J. 2022. 2022 Coding and payment tip sheet for transition from pediatric to adult health care. Washington, DC: Got Transition, 32 pp. (Practice resource; no. 2)

Annotation: This transition payment tip sheet is produced by Got Transition and the American Academy of Pediatrics in order to support the delivery of recommended transition services in pediatric and adult care settings. The tip sheet begins with a listing of transition-related CPT codes and corresponding Medicare fees and relative value units (RVUs), effective as of 2022. The resource also includes a set of clinical vignettes with recommended CPT and ICD coding, as well as detailed coding descriptions for each transition-related code.

Keywords: Adolescents, Financing, Model programs, Pediatric care, Primary care, Reimbursement, Special health care needs, Transition planning, Young adults

Parsons HM, Abdi HI, Nelson VA, Claussen A, Wagner BL, Sadak KT, Scal PB, Wilt TJ, Butler M. 2022. Transitions of care from pediatric to adult services for children with special health care needs. Rockville, MD: Agency for Healthcare Research and Quality, 323 pp. (Comparative effectiveness review; no. 255)

Annotation: This systematic review provides the results of an analysis of the evidence base for care interventions, implementation strategies, and between-provider communication tools among children with special health care needs who are making the transition from pediatric to adult medical care services. Several databases were searched to identify studies published through September 2021; gray literature searches were also conducted in order to identify additional resources relevant to the topic. The publication is divided into 12 chapters and includes tables, figures, and appendixes.

Keywords: Adolescents, Literature reviews, Research reviews, Special health care needs, Transition planning, Transition to independent living, Transitions, Young adults

Association of University Centers on Disabilities, National Association of Councils on Developmental Disabilities, National Disability Rights Network. 2021-. HCBS advocacy. Silver Spring, MD: Association of University Centers on Disabilities, multiple items.

Annotation: This website provides a platform for the aging and disability communities to post information and resources about the home and community-based services (HCBS) settings rule and steps each state is making to comply with the rule. Contents include resources, dates and deadlines, documents, news, and other information organized by state. Additional contents include official resources and information from the federal government about the HCBS rule including guidance and a settings requirements and compliance toolkit.

Keywords: Advocacy, Community based services, Compliance, Disabilities, Federal legislation, Guidelines, Information sources, Medicaid, Networking, Public private partnerships, Transition planning

White PH, Greenberg A. 2021 (ca.). Telehealth toolkit for a joint visit with pediatric and adult health care clinicians and transferring young adults. Washington, DC: Got Transition, 6 pp.

Annotation: This toolkit offers pediatric and adult medical professionals sample content that can be used to facilitate transfer to adult care, as well as a sample resource for the transferring young adult that explains the telehealth visit. The two tip sheets are designed to be used as a general guide for the agenda of the joint telehealth visit, and both can be customized to the practice and young adult and family situation. Additional resources include a practice script example and a link to Got Transition's Six Core Elements of Health Care Transition.

Keywords: Access to health care, Adolescents, Telehealth, Telemedicine, Transition planning, Transitions, Young adults

Ilango S, McManus P, Beck D, White P . 2021. Health care transition in state Title V programs: A review of 2021 Block Grant applications/ 2019 annual reports and recommendations. Washington, DC: Center for Health Care Transition Improvement, 14 pp.

Annotation: This report presents information about state Title V transition strategies and evidence-informed measures. Contents include an executive summary and recommendations, examples of innovative transition strategies, and information about a new transition measure from the National Survey of Children's Health that will be used to report state and national transition performance. [Supported by the Health Resources and Services Administration (HRSA), U.S. Department of Health and Human Services (HHS)]

Keywords: Measures, Program development, Program planning, State programs, Transition planning, Transitions

Ilango S, McManus P, Beck D, White P. 2021. Health care transition in state Title V programs: A review of 2021 Block Grant applications/2019 annual reports and recommendations. Washington, DC: Got Transition , 14 pp.

Okumura MJ, Kuo DZ, Ware AN, Cyr, White PH . 2021. Improving health care transitions for children and youth with special health care needs. Academic pediatrics, 22(2S), S7–S13, 7 pp.

Annotation: This journal article reviews programs and literature on the transfer of care for children and youth with special health care needs (CYSHCN). Often these patients do not have adequate transition structure to adult health care, and it suggests that future research focus on patient and family transitions of care in the context of their social and community environment, and uncover knowledge about adequate services and payment structures and incentives to promote continuity of care and the need for family/youth and young adult-centered models of care across the life-span.

Keywords: Adolescents with special health care needs, Children with special health care needs, Transitions

Oregon Center for Children and Youth with Special Health Needs. 2021. Improving the transition from pediatric to adult health care for Oregon’s youth with special health care needs fact sheet. Portland, OR: Oregon Center for Children and Youth with Special Health Needs, 2 pp.

Annotation: This fact sheet from the state of Oregon uses statistics to draw attention to the need for youth with special health care needs (YSHCN) to receive help in their transition to adult health care. It lists the benefits of adequate transition, and provides strategies to improve transition in the state of Oregon. [From the Oregon Center for Children and Youth with Special Health Needs (OCCYSHN), Oregon’s public health agency for children and youth with special health care needs. OCCYSHN is funded through the Oregon Health Authority, with a designated portion of the state’s annual US Maternal and Child Health Bureau (MCHB) Title V Block Grant.]

Keywords: Adolescents with special health care needs, Oregon, Transitions

Got Transition. 2020. Six core elements of health care transition [3.0]. Washington, DC: Got Transition, multiple items.

Annotation: This resource describes the basic components of a structured transition process and includes customizable sample tools for each core element and an implementation package for each type of practice. They are tailored to the type of practice facilitating the health care transition in these areas: (1) transitioning youth to an adult health care clinician, for use by pediatric, family medicine, and med-peds clinicians; (2) transitioning to an adult approach to health care without changing clinicians, for use by family medicine and med-peds clinicians; and (3) integrating young adults into adult health care, for use by internal medicine, family medicine, and med-peds clinicians. A summary chart describes the three sets of tools and six elements. The materials are available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Adolescents, Coordination, Pediatric care, Spanish language materials, Transition planning, Transitions, Young adults
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The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.