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Strengthen the Evidence for Maternal and Child Health Programs

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Association of Maternal and Child Health Programs; March of Dimes. 2019. Preparing for the future: Zika & long-term implications for systems of care. Washington, DC: Association of Maternal and Child Health Programs; [Arlington, VA]: March of Dimes, 8 pp.

Annotation: Based on data from the U.S. Zika Pregnancy and Infant Registry (USZPIR) and a 2019 multidisciplinary leadership meeting organized by AMCHP, March of Dimes, and CDC, this report outlines the long-term challenges and preparedness needs for supporting children and families affected by the Zika virus. It highlights that approximately 14% of infants born to mothers with confirmed or possible Zika infection experienced health problems, requiring comprehensive, long-term support across multiple systems. The document identifies seven key areas for systems improvement, and for each area, it provides detailed recommendations for both individual/family needs and systems-level responses, emphasizing the importance of sustainable healthcare coverage, coordinated care systems, cultural competency, and ongoing surveillance. The report concludes that states must assess and strengthen their infrastructure, leverage existing programs, and foster collaborative partnerships to better serve both Zika-affected families and all children with special healthcare needs.

Keywords: Title V programs, Children with special health care needs, Disaster planning, Health screening, Congenital abnormalities, Infant health, Maternal health
   

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