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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 4 (4 total).

Pearson HA, Berman LC, Crocker AC, eds. 1997. Thalassemia intermedia: A Region I conference. Arlington, VA: National Center for Education in Maternal and Child Health, 52 pp.

Annotation: These proceedings are from a conference sponsored by the New England Thalassemia Program held in Boston on November 14, 1996. They define thalassemia intermedia, present data from patients, discuss research at the National Institutes of Health on the use of sodium phenylbutyrate and hydroxyurea to stimulate fetal hemoglobin, and analyze the molecular basis of the disease. Other presentations deal with the assessment of iron overload, the use of chelation therapy, splenectomy, and infection control. Finally, there is a panel discussion about treatment approaches. The proceedings are published as a special issue of The Genetic Resource (vol 11, no. 2). [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Education in Maternal and Child Health, Georgetown University, Telephone: (202) 784-9770 E-mail: [email protected] Web Site: https://www.ncemch.org Available from the website. Document Number: ISBN 1-57285-041-8.

Keywords: Conference proceedings, Genetic disorders, Hematologic diseases, Thalassemia

Berman LC, Crocker AC, eds. 1991. Thalassemia and Southeast Asians in New England: A regional conference. Washington, DC: National Center for Education in Maternal and Child Health, 61 pp.

Annotation: These proceedings include the presentations, discussions, and recommendations from a conference that brought together public health planners, health care providers, health educators, bilingual/bicultural human service workers, community and religious leaders, refugee service providers, and genetic counselors to explore in depth issues inherent in providing culturally sensitive and appropriate services to Southeast Asians at risk for thalassemia. Topics covered include Southeast Asian refugees in Massachusetts, testing for hemoglobinopathies in Southeast Asians, cultural perspective, hemoglobinopathy screen in an Asian health center, and Southeast Asian health center patient's knowledge and attitudes toward genetic services and thalassemia. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Photocopy available at no charge. Document Number: HRSA Info. Ctr. MCHE050.

Keywords: Asian Americans, Child health, Culturally competent services, Thalassemia

National Center for Education in Maternal and Child Health. 1986. Cooley's anemia: A psychosocial directory. Washington, DC: National Center for Education in Maternal and Child Health, 61 pp.

Annotation: This publication describes types of resources available to patients with Cooley's anemia (thalassemia) and their families. It describes the disorder and the psychosocial needs of patients from infancy to young adulthood. Information is given about finding assistance in genetic services, self-help and advocacy groups, education, employment, financial assistance, medical assistance, transportation, civil rights/legal assistance, tax benefits and housing. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan; also available from the ERIC Document Reproduction Service, 7420 Fullerton Road, Suite 110, Springfield, VA 22153-2852. Telephone: (800) 443-ERIC / e-mail: [email protected] / website: http://edrs.com/; gopher://edrs.com. Document Number: ERIC ED 296 494.

Keywords: Adolescent health, Child health, Thalassemia

Lin-Fu JS. 1981. Cooley's anemia: A medical review. Rockville, MD: U.S. Department of Health and Human Services, Bureau of Community Health Services, 50 pp.

Annotation: This publication reviews the current knowledge of Cooley's anemia (beta thalassemia).

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available in libraries. Document Number: DHHS (HSA) 81-5125.

Keywords: Thalassemia

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.