Search Results: MCHLine

Annotation: This summary report is from a focus group convened to discuss issues related to the use of ACTG 076 to treat HIV-infected pregnant women. The chief issues covered are: women's attitudes about health care providers and the health care system; information and informed decision making; and counseling and testing. Implications, conclusions and recommended are included. [Funded by the Maternal and Child Health Bureau]

Contact: Institute for Patient and Family-Centered Care, 7900 Wisconsin Avenue, Suite 405, Bethesda, MD 20814, Telephone: (301) 652-0281, ext. 16 Fax: (301) 652-0186 E-mail: [email protected] Web Site: http://www.familycenteredcare.org Available from the website.

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Keywords: Attitudes, Counseling, HIV, HIV infected patients, Pediatric HIV, Pregnant women, Testing, Treatment outcome, Treatment refusal

Annotation: This report for educators and community leaders provides information about ways to limit children's exposure to lead in drinking water in schools and early childhood education facilities. Contents include information about the danger of lead in drinking water, how federal regulation has reduced exposure to lead in drinking water, deciding if a lead testing program is necessary, getting school buy-in for a program, involving external and community partners, preparing and taking lead samples, choosing remediation options, and communicating with the public. Recommendations are also included.

Contact: WKKF, One Michigan Avenue, East, Battle Creek, MI 49017-4012, Telephone: (269) 968-1611 Fax: (269) 968-0413 Web Site: http://www.wkkf.org Available from the website.

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Keywords: Child care centers, Communication, Community action, Environmental exposure, Lead, Lead poisoning, Lead poisoning prevention programs, Lead poisoning screening, Regulations, School health programs, Schools, Testing, Water

Annotation: This guideline offers guidance on secondary prevention of cervical cancer. Contents include key recommendations for screening; triage; and treatment of women with precursor lesions. Recommendations for special populations, such as women who are HIV positive, immunosuppressed, pregnant, postpartum, or women who have had hysterectomies are also addressed. Topics include developing infrastructure for HPV testing, diagnosis, and treatment in settings without current mass screening; cost and policy implications, guideline implementation, and future directions.

Contact: American Society of Clinical Oncology, 2318 Mill Road, Suite 800, Alexandria, VA 22314, Telephone: (571) 483-1300 Fax: (703) 299-1044 E-mail: [email protected] Web Site: http://www.asco.org Available from the website.

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Keywords: Advocacy, Cervical cancer, DNA testing, Diagnosis, Disease prevention, Human papillomavirus, International health, Medical treatment, Oral cancer, Oral health, Postpartum women, Pregnant women, Primary care, Triage, Women', s health

Annotation: This document summarizes a workshop held on February 27, 2013, in Washington, DC, to examine and discuss challenges and potential solutions for the co-development of targeted therapeutics and companion molecular tests for the prediction of drug response. Topics include perspectives from a variety of stakeholders including patients, providers, and laboratory representatives; pharmaceutical developers; and payers and regulators.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu Available from the website. Document Number: ISBN 978-0-309-29821-6.

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Keywords: Financing, Genomics, Laboratory techniques, Pharmaceutical research, Regulations, Testing, Therapeutics

Annotation: This resource provides information about genetics and health. Topics include how genes work; genes, lifestyle, and environment; collecting family health history; genetic disease information; advocacy and support groups; financial planning; talking to families and health professionals; compensation for genetic testing; whole genome sequencing; screening vs. testing; disease research; patient privacy; clinical trials; and biobanks. Features include Ask the Experts, frequently asked questions, and a blog. [Funded in part by the Maternal and Child Health Bureau]

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

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Keywords: Communication, Counseling, Family health, Genetics, Information sources, Medical history, Research, Screening, Testing

Annotation: This report compiles 2010 national surveillance data on infectious disease in single race Asians and Native Hawaiians and Other Pacific Islanders. Contents include background information and data sources, overviews, snapshots, discussion, and references on tuberculosis, viral hepatitis, sexually transmitted diseases, and HIV and AIDS.

Contact: National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov/nchhstp Available from the website.

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Keywords: AIDS, Asian Americans, Communicable diseases, Data sources, Epidemiology, HIV, Hawaiians, Hepatitis, Mortality, Pacific Americans, Pacific Islanders, Population surveillance, Sexually transmitted diseases, Testing, Trends, Tuberculosis

Annotation: This brief is an electronic guide to recent resources on genetics and genomics; genetic testing, counseling, and disorders; and newborn screening. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Education in Maternal and Child Health, Georgetown University, Telephone: (202) 784-9770 E-mail: [email protected] Web Site: https://www.ncemch.org Available from the website.

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Keywords: Genetic counseling, Genetic disorders, Genetic screening, Genetic services, Genetics, Genomics, Newborn screening, Resources for professionals, Testing

Annotation: This brief provides information about molds and the potential impact of molds on children's health. Topics include types of mold; symptoms of exposure to mold in children; allergies, asthma, and mold; monitoring, prevention, and cleanup tips; and tips on remediation for school officials, parents, and school personnel.

Contact: Healthy Schools Network, 773 Madison Avenue, Albany, NY 12208, Telephone: (518) 462-0632 Fax: (518) 462-0433 E-mail: [email protected] Web Site: http://www.healthyschools.org Available from the website.

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Keywords: Allergies, Asthma, Environmental exposure, Environmental health, Environmental pollution, Hazards, Respiratory diseases, Risk factors, School age children, Schools, Testing, Toxic disorders

Annotation: This testimony before the House of Representative's Subcommittee on Oversight and Investigations, Committee on Energy and Commerce, summarizes findings from an investigation conducted by the Government Accountability Office (GAO) on the reliability of test results from direct-to-consumer genetic tests and the marketing and advertising used to sell these products. Included is a full description of the study conducted by GAO in 2006 and the results of their findings.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 Secondary Telephone: E-mail: [email protected] Web Site: http://www.gao.gov Available from the website.

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Keywords: Consumer protection, Federal initiatives, Genetic predisposition, Investigations, Marketing, Research, Testing

Annotation: This website provides information about the 2010 Newborn Screening and Genetic Testing Symposium held in Orlando, Florida, on May 3-6, 2010. The symposium brought together almost 400 laboratories, follow-up professionals, and metabolic specialists from around the world. The site presents the symposium schedule and provides links for presentations that have been authorized for posting. Meeting session topics included health information technology, education, program quality improvement, laboratory quality improvement, international perspectives, old conditions, new information, and candidate conditions.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website.

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Keywords: Conference proceedings, Education, Genetic testing, Health, Information, Laboratory techniques, Neonatal screening, Programs, Technology

Annotation: This briefing paper outlines issues surrounding the screening of young athletes for their sickle disease carrier status (sickle cell trait), a genetic condition. The report discusses research findings and reports on health outcomes of individuals with sickle sell trait, public health implications of the National Collegiate Athletic Association rule on testing athletes for sickle cell trait, and recommendations. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Advisory Committee on Heritable Disorders in Newborns and Children, U.S. Maternal and Child Health Bureau, Parklawn Building, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-1080 Web Site: http://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/ Available from the website.

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Keywords: Athletes, College students, Genetic disorders, Genetic screening, Public policy, Research, Sickle cell trait, Testing

Annotation: This paper provides information to help families talk to their doctor about medical testing for inherited disorders following a sudden unexplained death. Although the paper points out that sudden unexpected infant death syndrome (SIDS) cannot be predicted or prevented, it describes certain rare, inheritable diseases that can cause sudden death in infants and children. The paper discusses the evaluation of inborn errors of metabolism and cardiac mechanisms, including Long QT Syndrome. Research and commercial testing options for families are are also presented.

Contact: CJ Foundation for SIDS, HUMC: WFAN Pediatric Center, Hackensack University Medical Center, 30 Prospect Avenue***MERGED WITH FIRST CANDLE*** 2017, Hackensack, NJ 07601, Telephone: (888) 8CJ-SIDS Secondary Telephone: (551) 996-5111 Fax: (551) 996-5326 E-mail: [email protected] Web Site: http://www.cjsids.org Available from the website.

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Keywords: Child death, Consumer education materials, Genetic disorders, Infant death, SIDS, Testing

Annotation: This brochure for pregnant women and mothers of infants provides information about how women can protect themselves and their children from hepatitis B. The brochures explains what hepatitis B is, how to prevent it, and what to do for those who have it. Resources for more information are included. The brochure is available in English, Cambodian, Chinese, Korean, Samoan, and Vietnamese.

Contact: WithinReach , 155 North East 100th Street, Suite 500, Seattle, WA 98125, Telephone: (800) 322-2588 Secondary Telephone: (206) 284-2465 Fax: (206) 270-8891 E-mail: [email protected] Web Site: http://withinreachwa.org

Keywords: Breastfeeding, Consumer education materials, Hepatitis B, Infant health, Non English language materials, Pregnant women, Prevention, Screening, Testing, Vaccinations, Women', s health

Annotation: This book's purpose is to provide solid grounding about library Web site design and testing for beginners and to introduce experienced library Web site designers to to new techniques. The book is divided into 17 chapters. Chapter 1 introduces usability assessment and its application to library Web sites. Chapters 2-8 discuss the primary assessment techniques: heuristic evaluations, surveys of library users and and others in the target population the library is meant to serve, focus group interviews, card sorting to analyze how library Web site information should be grouped, paper prototyping of Web pages, developing and conducting usability testing, and Web server logs analysis. Chapters 9-11 focus on general usability testing issues, including attracting users for testing, low cost usability recording, and communicating usability results effectively. Chapters 12-17 present usability case studies in several types of libraries. The book also includes a bibliiography that lists sources for additional information. An index is included, as well.

Contact: Neal-Schuman Publishers, 50 East Huron, Chicago, IL 60611, Telephone: (866) 672-6657 E-mail: [email protected] Web Site: http://www.neal-schuman.com Available from the website. Document Number: ISBN 9781555706203.

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Keywords: Assessment, Case studies, Evaluation, Libraries, Library services, Technology, Testing, World Wide Web

Annotation: This website describes the Iowa prenatal screen that integrates information from early ultrasound results with blood tests to determine whether or not a pregnant woman has an increased risk for giving birth to a baby with Down syndrome, Trisomy 18, or certain birth defects such as neural tube defect and therefore. The website provides information about the birth defects covered in the screening; discusses what the results of the screen mean; and explains how the screen test is not a diagnosis, but rather a tool to help predict the likelihood of a problem. A summary of the website content is provided, along with answers to frequency asked questions. A list of state agencies affiliated with the Iowa Integrated Screen is also provided.

Contact: University of Iowa Carver College of Medicine, 200 Medicine Administration Building, 451 Newton Road, Iowa City, IA 52242, E-mail: http://www.medicine.uiowa.edu/contactus/ Web Site: http://www.medicine.uiowa.edu/ Available from the website.

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Keywords: Integrated information systems, Iowa, Prenatal screening, State programs, Testing

Annotation: This paper summarizes the outcomes of a workgroup meeting convened by the Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children (ACHDGDNC) to discuss how to establish a rigorous evaluation and recommendation process to determine the suitability of screening for certain rare inherited disorders. The paper includes background on ACHDGDNC; an overview of the nomination form for adding conditions to the uniform screening panel of 29 conditions; issues in evidence review for genetics and pediatric and newborn screening; and a case study on the evaluation of Pompe disease. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Advisory Committee on Heritable Disorders in Newborns and Children, U.S. Maternal and Child Health Bureau, Parklawn Building, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-1080 Web Site: http://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/ Available from the website.

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Keywords: Children, Evaluation, Genetic disorders, Genetic testing, Infants, Screening

Annotation: This paper addresses the effectiveness of in-hospital paternity establishment (a federal requirement since 1993) and whether paternity establishment is associated with father involvement (including formal and informal child support payments and father-child visitation). The paper introduces the issue, discusses previous literature on the evolution and effectiveness of paternity establishment policies, provides the conceptual framework and expected effects of covariates, describes the data and methods, and offers findings. References are included. Statistical information is presented in tables at the end of the paper.

Contact: Princeton University, Bendheim-Thoman Center for Research on Child Wellbeing, Wallace Hall, Princeton, NJ 08544, Telephone: (609) 258-5894 Fax: (609) 258-5804 E-mail: [email protected] Web Site: http://crcw.princeton.edu Available from the website.

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Keywords: Child support, Father child relations, Fathers, Hospitals, Paternity, Paternity testing, Public policy, Research, Single parents

Annotation: This annual report provides a summary of the lead poisoning testing and results as well as abatement program activities in New Jersey during fiscal year 2003. Chapter topics include testing children for lead poisoning, children with elevated blood lead, and environmental investigations by local health departments. The report also outlines the planning process, accomplishments, and initiatives planned for addressing childhood lead poisoning in New Jersey. The appendices include municipal data tables for cities with populations over 35, 000, environmental investigation status by local health department jurisdiction, reasons why lead poisoning in children is a priority for New Jersey, and an overview of the state's lead poisoning surveillance system.

Contact: New Jersey Department of Health and Senior Services, Division of Family Health Services, 50 East State Street, P.O. Box 360, Trenton, NJ 08625-0364, Telephone: (609) 292-4043 Secondary Telephone: 609-292-7837 Fax: (609) 292-9288 Web Site: http://www.nj.gov/health/fhs/index.shtml Available from the website.

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Keywords: Child health, Data, Environmental influences, Lead poisoning, Lead poisoning testing, New Jersey, Population surveillance, Program descriptions, Public health agencies, State programs

Annotation: This paper examines the short-term returns on public investments in children. The authors analyze child outcomes in several domains: child health and mortality, standardized test scores, child poverty, and adolescent behavior. The paper includes a review of prior research on this topic, a description of the data and methods used in the study, descriptive and regression results, and a discussion of the findings.

Contact: Princeton University, Bendheim-Thoman Center for Research on Child Wellbeing, Wallace Hall, Princeton, NJ 08544, Telephone: (609) 258-5894 Fax: (609) 258-5804 E-mail: [email protected] Web Site: http://crcw.princeton.edu Available from the website.

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Keywords: Academic achievement, Adolescent behavior, Child health, Child mortality, Government financing, Government programs, Outcome evaluation, Poverty, Research, Testing

Annotation: This report, which is geared toward health departments, case managers, primary care physicians, and others, defines elements of case management and offers assessment and management guidelines for the testing and treatment of children with elevated blood lead levels. The report discusses home environment investigation and interventions, medical evaluation and treatment, nutritional assessment and dietary modification, developmental surveillance and interventions, and education for caregivers. The report also discusses the importance of state laws, regulations, and financing related to lead-abatement efforts. Each chapter begins with a summary table of specific management recommendations and concludes with suggestions for further research. A glossary, references, and statistical data in chart and table formats are provided throughout the report.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov Available from the website.

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Keywords: Assessment, Blood testing, Case management, Consumer education, Dietary assessment, Environmental exposure, Intervention, Lead poisoning, Lead poisoning prevention programs, Low income groups, Medical evaluation, Model programs, Nutritional status, Professional training, Young children