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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (31 total).

Children's HealthWatch. 2018. Children with special health care needs and disabilities: Solutions for stable homes . Boston, MA: Children's HealthWatch, 8 pp.

Annotation: This policy action report describes the various reasons why young children with special health care needs (SHCN) are at risk of living in unstable homes and recommends policy solutions that can mitigate the risk. The report points out that children with SHCN are more likely to live in families that are behind on their rent, moved two or more times in the past year, and/or were homeless during the child's lifetime. Statistics presented on these risk measures indicate that children/families that receive supplemental security income are more likely to live in a stable home.

Contact: Children's HealthWatch, Dowling Building, 771 Albany Street, Ground Floor, Boston, MA 02118, Telephone: (617) 414-6366 Fax: (617) 414-7915 E-mail: [email protected] Web Site: http://www.childrenshealthwatch.org

Keywords: Children with special health care needs, Homelessness, Housing, Public policy, Statistics, Supplemental security income, Young children

Boat TF, Wu JT, eds; Institute of Medicine, Committee to Evaluate the Supplemental Security Income Disability Program for Children with Mental Disorders. 2015. Mental disorders and disabilities among low-income children. Washington, DC: National Academies Press, 520 pp.

Annotation: This report reviews previously unreleased data on the rates of mental disorders and disabilities among low-income children from the Supplemental Security Income (SSI) program and from Medicaid. Contents include background and context of the SSI disability benefit program for children, clinical characteristics of selected mental disorders, prevalence of selected mental disorders, and results from a 10-year multistate analysis of Medicaid service encounter and pharmacy claims data (Medicaid MAX study).

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu Available from the website. Document Number: ISBN 978-0-309-37685-3.

Keywords: Adolescents, Children, Data analysis, Federal programs, Infants, Low income groups, Medicaid, Mental health, Prevalence, Special health care needs, Statistical data, Supplemental Security Income, Trends

Howell E, Pergamit M, Chen V. 2013. Behavioral and developmental health problems and Medicaid costs for youth approaching adulthood by gender and basis of eligibility in selected states: FY 2006. Washington, DC: Urban Institute, Health Policy Center, 10 pp.

Annotation: This paper describes the use and cost of Medicaid behavioral and developmental health services for adolescents who reached their 18th birthday sometime during fiscal year 2006. The authors also examine differences between groups including gender differences and differences between adolescents receiving Supplemental Security Income (SSI), adolescents in foster care (excluding those receiving SSI), and all other adolescents enrolled in Medicaid.

Contact: Urban Institute, 2100 M Street, N.W., Washington, DC 20037, Telephone: (202) 833-7200 Fax: (202) 467-5775 E-mail: http://www.urban.org/about/contact.cfm Web Site: http://www.urban.org Available from the website.

Keywords: Adolescents, Costs, Developmental disabilities, Foster care, Health care utilization, Medicaid, Mental health services, Sex linked developmental differences, Statistical data, Supplemental security income

U.S. Government Accountability Office. 2012. Supplemental security income: Better management oversight needed for children's benefits. Washington, DC: U.S. Government Accountability Office, 66 pp.

Annotation: This report summarizes a study conducted by GAO to assess (1) trends in the rate of children receiving Supplemental Security Income (SSI) benefits due to mental impairments; (2) the role that medical and non-medical information plays in the determination of children's eligibility; and (3) steps that the Social Security Administration (SSA) has taken to monitor the continued medical eligibility of these children. The report describes the data sources used in the study; summarizes the key findings; and presents GAO's recommendations on steps SSA could take to ensure that all necessary information is consistently collected.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 Secondary Telephone: E-mail: [email protected] Web Site: http://www.gao.gov Available from the website. Document Number: GAO-12-497.

Keywords: Child mental health, Federal programs, Mental disorders, Mental health services, Supplemental security income

Generations United. 2010. The benefits of Social Security for children. Washington, DC: Generations United, 5 pp. (Stronger together; Fact sheet)

Annotation: This fact sheet provides information on how social security benefits children. It describes the survivor's benefit; disability benefits for children; and benefits for retired caregivers with dependent children. It also explains why policy makers should work to reinstate the social security child benefits for college students that were eliminated in 1983. A table displays the types of social security benefits for children, including eligibility requirements and average monthly benefits.

Contact: Generations United, 1331 H Street, N.W., Suite 900, Washington, DC 20005, Telephone: (202) 289-3979 Fax: (202) 289-3952 E-mail: [email protected] Web Site: http://www.gu.org Available from the website.

Keywords: Child health, Federal programs, Social Security Act, Supplemental security income

Washington State Department of Health, Adolescent Health Transition Project. 2003. Working together for successful transition: Washington State adolescent transition resource notebook. Olympia, WA: Adolescent Health Transition Project, Washington State Department of Health, ca. 350 pp.

Annotation: This notebook is a resource on transition from adolescence to young adulthood for young adults with special health care needs and disabilities.The notebook is geared toward families, students, school personnel, community agency workers, health professionals, and other groups working with adolescents and young adults in Washington State. The notebook is organized into the following sections: (1) transition overview, (2) the student, (3) school, (4) post-secondary education, (5) work, volunteering, community participation, (6) division of vocational rehabilitation, (7) community resources, (8) recreation, (9) legal matters, (10) Division of Developmental Disabilities, (11) Supplemental Security Income, (12) health, and (13) transition stories. The notebook contains one appendix that includes information on multicultural and translated resources, acronyms and definition, health insurance terms and definitions, sample forms, information on educational resources, and a transition guide for Washington State.

Contact: Washington State Department of Health, Office of Maternal and Child Health, Children with Special Health Care Needs Program, P.O. Box 47835, Olympia, WA 98504-7835, Telephone: (360) 236-3571 E-mail: [email protected] Available from the website.

Keywords: Adolescents with special health care needs, Community participation, Developmental disabilities, Education, Health, Legislation, Recreation, School to work transition, Schools, Students, Supplemental security income, Transition to independent living, Vocational rehabilitation, Volunteers, Washington, Young adults, Youth

Lazear KJ, Worthington J. 2002. Supplemental Security Income (SSI) family impact study. Tampa, FL: University of South Florida, Research and Training Center for Children's Mental Health, 89 pp.

Annotation: This report describes the findings of a study of 40 families over a 22 month period to examine the impact of changes enacted in 1996 in the Supplemental Security Income (SSI) program that altered definitions and procedures for families with children with serious emotional disturbances. Categories of findings include who the children and families are, the importance of the SSI financial benefit, the impact on families of the SSI changes and process, Medicaid and health care coverage, coping mechanisms of families, and the SSI process. The report also describes the methodology, the sites, the families, implications of the study, and future directions.

Contact: University of South Florida, Research and Training Center for Children's Mental Health, 13301 Bruce B. Downs Boulevard, Tampa, FL 33612-3809, Telephone: (813) 974-4661 Fax: (813) 974-6257 E-mail: [email protected] Web Site: http://rtckids.fmhi.usf.edu/ Available at no charge; also available from the website.

Keywords: Affective disorders, Behavior disorders, Children with special health care needs, Families, Family support programs, Federal legislation, Federal programs, Mental disorders, Studies, Supplemental security income

Schulzinger R. 2000. Key transition issues for youth with disabilities and chronic health conditions. Gainesville, FL: Institute for Child Health Policy, Center for Policy and Partnerships, 23 pp. (Healthy and ready to work policy paper)

Annotation: This paper describes recent changes in the Supplemental Security Income (SSI) program affecting adolescents, what SSI work incentives are available to them, how they can maintain access to quality health care and benefits during their transition years, and key issues to consider during transition planning. This is the first of a series of working papers aimed at assisting service providers and families to ensure successful transitions to work and independence for youth with disabilities and chronic illnesses. [Funded by the Maternal and Child Health Bureau]

Contact: Institute for Child Health Policy, University of Florida, 1329 SW 16th Street, Room 5130 , Gainesville, FL 32608, Telephone: (352) 265-7220 Secondary Telephone: Contact Phone: (888) 433-1851 Fax: (352) 265-7221 Contact E-mail: [email protected] Web Site: https://ichp.ufl.edu Available from the website. Document Number: ISBN 0-9700909-0-0.

Keywords: Access to health care, Adolescents with developmental disabilities, Adolescents with special health care needs, Supplemental security income, Transition planning, Transitions

Schulzinger R. 2000. State Title V rehabilitation services: The federal law and how states implement it. Gainesville, FL: Institute for Child Health Policy, Center for Policy and Partnerships, 20 pp. (Healthy and Ready to Work policy brief)

Clark J, Manes J. 1998-. The advocate's guide to SSI for children: A manual for working with the laws, regulations, policies and procedures governing children's eligibility for Supplemental Security Income. (3rd. ed.). Washington, DC: Mental Health Law Project, ca. 300 pp.

Annotation: This manual is designed to help families, disability advocates, and others learn about the Supplemental Security Income (SSI) program and how it can help children who have mental and physical disabilities. After a general overview of SSI in part one, the next two sections examine how the Social Security Administration (SSA) decides if a child meets the fundamental criteria of financial eligibility and disability. Two more sections discuss what occurs after SSA's decision, whether denial or award of benefits. Part six looks at the Sullivan v. Zebley decision, both how to apply for back benefits under it and what they will mean to a family receiving other public benefits. Finally, part seven offers an overview of other benefits and resources for which children with disabilities may qualify. The manual includes a set of fact sheets that summarizes the key topics discussed in the guide.

Contact: Judge David L. Bazelon Center for Mental Health Law, 1101 15th Street, N.W., Suite 1212, Washington, DC 20005, Telephone: (202) 467-5730 Secondary Telephone: (202) 467-4232 Fax: (202) 223-0409 E-mail: [email protected] Web Site: http://www.bazelon.org Available in libraries.

Keywords: Children with special health care needs, Disability evaluation, Eligibility determination, Supplemental Security Income

Perrin J. 1998. Changes in supplemental security income for children [Final report]. Boston, MA: Massachusetts General Hospital, 41 pp.

Annotation: The project goal was to further document the growing numbers of children and adolescents receiving Supplemental Security Income (SSI) benefits, and their health characteristics. To better understand their use of resources and to define options for cost savings, this study examined: 1) variations in access to SSI programs by State; 2) changes over time among child and adolescent SSI recipients, both in types of health conditions and use of services; and 3) SSI recipients who have particularly high utilization rates. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-145674.

Keywords: Adolescents, Children with Special Health care Needs, Data Analysis, Data Collection, MCH Research, Medicaid, Research, Supplemental Security Income

Pickett C. 1997-. Children receiving SSI. Baltimore, MD: U.S. Social Security Administration, Office of Research, Evaluation and Statistics, semi-annual.

Annotation: This document provides a statistical profile of children receiving supplemental security income (SSI) in June or December of the specified year.. Tables provide selected program and demographic characteristics of the children and include statistics on the number of children receiving SSI and percentage distribution by: selected characteristics, age, diagnostic group, SSI amount, child's income, parents in household, and parental income. The source record is the supplemental security record. Electronic files are available for 2003-2006. After 2006, the information is included in the publication SSI Annual Statistical Report.

Contact: U.S. Social Security Administration, Office of Resarch, Evaluation, and Statistics, 500 E Street SW, Eighth Floor , Washington, DC 20254, Telephone: (202) 358-6220 Secondary Telephone: (410) 966-4109 Fax: (2020 358-6192 Web Site: http://www.ssa.gov/policy/about/ORES.html Available at no charge.

Keywords: Children, Socioeconomic factors, Statistics, Supplemental security income

U.S. Department of Health and Human Services, Health Care Financing Administration, Office of Legislation and Intergovernmental Affairs, Division of Intergovernmental Affairs. 1997-. Medicaid services state by state. Washington, DC: U.S. Department of Health and Human Services, Health Care Financing Administration, Division of Intergovernmental Affairs, 1 poster (14 x 16.5 inches).

Annotation: This oversized chart enumerates the basic required Medicaid services and shows the optional services offered by the individual states, the District of Columbia, American Samoa, Guam, Puerto Rico, and the Virgin Islands in a tabular display. The reverse side of the poster indicates changes made in state Medicaid programs listing services added or deleted in each state.

Contact: U.S. Centers for Medicare & Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Telephone: (877) 267-2323 Secondary Telephone: (410) 786-3000 Contact Phone: (410) 786-3870 Fax: Web Site: https://www.cms.gov Available at no charge. Document Number: HCFA pub. no. 02155.

Keywords: Health services, Medicaid, Medicaid managed care, State programs, Supplemental Security Income, Waiver 1115

U.S. Social Security Administration. 1997. Social security: Review of SSA's implementation of new SSI childhood disability legislation. Baltimore, MD: U.S. Social Security Administration, 65 pp.

Annotation: This review of Supplemental Security Income (SSI) eligibility legislation for disabled children defines disability in children, and discusses eligibility review and implementation of the new legislation. Some corrective actions are recommended to ensure that every child receives a fair assessment. The three specific areas of concern identified were: cessation of eligibility of children classified as having mental retardation, quality of case processing, and appeals and requests for benefit continuation during appeal.

Contact: U.S. Social Security Administration, 6401 Security Boulevard, Baltimore, MD 21235, Telephone: (800) 772-1213 Secondary Telephone: (800) 325-0778 Contact Phone: (410) 965-4005 Web Site: http://www.ssa.gov Price unknown. Document Number: DHHS (SSA) 64-070.

Keywords: Children with developmental disabilities, Children with special health care needs, Disability evaluation, Legislation, Mental retardation, Supplemental security income

National Governors' Association, National Conference of State Legislatures, and American Public Welfare Association. 1996r. Analysis of the Personal Responsibility and Work Opportunity Reconciliation Act of 1996 conference agreement for H.R. 3734 (P.L. 104-193). [Online]. Washington, DC: National Governors' Association, 32 pp.

Annotation: This report provides commentary on the conference agreement for the Personal Responsibility and Work Opportunity Reconciliation Act of 1996 (PL 104-193). For each of the major provisions of the act, the report explains its intent and clarifies the states' responsibilities for implementing it. The act itself makes modifications to welfare services within these topical areas: Temporary Assistance for Needy Families (TANF), child care, Medicaid, social services, benefits for immigrants, supplemental security income (SSI), child protection, the Food Stamp program, child nutrition, electronic benefit transfer systems, and child support enforcement.

Contact: National Governors Association, 444 North Capitol Street, Suite 267, Washington, DC 20001-1512, Telephone: (202) 624-5300 Secondary Telephone: Fax: (202) 624-5313 E-mail: [email protected] Web Site: http://www.nga.org Available from the website.

Keywords: Block grants, Child abuse, Child care, Child nutrition, Child support, Federal legislation, Food Stamp Program, Immigrants, Prevention programs, Social services, Supplemental security income, Temporary Assistance to Needy Families, Time limited benefits, Welfare reform

Aron LY, Loprest PJ, Steurle E. 1996. Serving children with disabilities: A systematic look at the programs. Washington, DC: Urban Institute Press, 182 pp.

Annotation: This book provides a comprehensive accounting of public expenditures on children and families. It compares expenditures across all the major programs. It develops guiding principles about how to allocate resources in order to simplify programs, integrate efforts and find more cost-effective ways to respond to families' and children's needs.

Contact: University Press of America, 4501 Forbes Boulevard, Suite 200, Lanham, MD 20706, Telephone: (410) 459-3366 Secondary Telephone: (800) 462-6420 Web Site: http://www.univpress.com Available in libraries. Document Number: ISBN 0-87766-651-2, paper; 0-87766-650-4, cloth.

Keywords: CSHCN programs, Children with developmental disabilities, Children with special health care needs, Eligibility determination, Entitlements, Head Start, Program coordination, Program evaluation, Special education, Statistics, Supplemental Security Income

Koyangi C, Schulzinger R. 1996. An uncertain future: How the new welfare law affects children with serious emotional disturbance and their families. Washington, DC: Georgetown University Child Development Center, National Technical Assistance Center for Children's Mental Health, 50 pp.

Annotation: This document reports on the expected results of the Personal Responsibility and Work Opportunity Reconciliation Act of 1996 on the families of children with severe emotional disturbance. It discusses the loss of, or cuts in, help from Aid to Families with Dependent Children, Supplemental Security Income, nutrition programs, Medicaid coverage, and family support services. It mentions the difficulty of arranging adequate child care when the mother is forced to work, and other requirements that will add to the burdens of these families. It also discusses how the states can mitigate some of the difficulties.

Contact: National Technical Assistance Center for Children's Mental Health, Georgetown University Center for Child and Human Development, 3300 Whitehaven Street, NW, Suite 3300, Washington, DC 20007, Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://gucchdtacenter.georgetown.edu/index.html Available from the website.

Keywords: Affective disorders, Block grants, Child care, Child mental health, Child welfare, Children with special health care needs, Federal legislation, Medicaid, Regulations, Social Security, Supplemental Security Income, Temporary Assistance to Needy Families, Time limited benefits, Welfare reform

U.S. General Accounting Office. 1995. Social security: New functional assessments for children raise eligibility questions. Washington, DC: U.S. General Accounting Office, 31 pp.

Annotation: This report considers the effects of using the individualized functional assessment (IFA) process to determine if children should receive Supplemental Security Income (SSI) benefits from the Social Security Administration. Its use has increased the number of children eligible for SSI. The report presents background information, reviews the impact on the Social Security program, considers inconsistencies in the administration of the process, and discusses the possibility of coaching children to influence the results of the process. Appendices describe the scope and methodology used and contain supporting materials.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 Secondary Telephone: E-mail: [email protected] Web Site: http://www.gao.gov Available from the website. Document Number: GAO/HEHS-95-66.

Keywords: Children with special health care needs, Eligibility, Federal government, Federal programs, Low income groups, Mental disorders, Physical disabilities, Regulations, Supplemental Security Income

U.S. General Accounting Office. 1995. Supplemental security income: Growth and changes in recipient population call for reexamining program. Washington, DC: U.S. General Accounting Office, 40 pp.

Annotation: This report provides a recent history of the Supplemental Security Income program based upon an analysis of the state caseloads and recipient populations. It examines factors that are contributing to the growth in the reported caseloads and changes in its recipients. It reports the findings in brief; provides a background for the study; and details factors that are causing the caseloads to grow such as expanded eligibility, program outreach, fraud and abuse, limited efforts for recipients to return to work, and an increase in immigration. The report also considers the demographics of the recipients with regard to physical and mental disabilities, age, and their status as citizens. The report includes observations pertaining to development of future policies for the program.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 Secondary Telephone: E-mail: [email protected] Web Site: http://www.gao.gov Available from the website. Document Number: GAO/HEHS-95-137.

Keywords: Demographics, Eligibility, Expanded eligibility, Program evaluation, Statistics, Supplemental Security Income

National Commission on Childhood Disability. 1995. Supplemental security income for children with disabilities: Report to Congress. [Baltimore, MD: U.S. Social Security Administration], ca.250 pp.

Annotation: This report examines the appropriateness of the present definition of disability and the advantages and disadvantages of alternatives. Topics include: 1) an overview of the Supplemental Security Income Childhood Disability Program, 2) profiles of children receiving SSI, 3) the Commission's deliberations, 4) recommendations to Congress, 5) alternative forms of support, 6) health care coverage for children with disabilities, and 7) research for future policy directions.

Contact: U.S. Social Security Administration, 6401 Security Boulevard, Baltimore, MD 21235, Telephone: (800) 772-1213 Secondary Telephone: (800) 325-0778 Web Site: http://www.ssa.gov Available in libraries.

Keywords: Children with special health care needs, Supplemental security income

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.