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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

2018. Tips for families on working with the national standards. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp. (A Critical Tool to Improve Systems of Care for Children and Youth with Special Health Care Needs)

Annotation: This document provides guidance for families on using the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN). It explains that these standards offer a framework for families, health policymakers, providers, and insurers to collaboratively improve care systems for CYSHCN. The document emphasizes the importance of these standards, noting that one in five U.S. children have special health care needs, yet four out of five CYSHCN families report not receiving care in a well-functioning system. It outlines practical ways families can use the standards as advocacy tools, including countering policies that overlook CYSHCN needs, promoting family partnerships in health-related services, and sharing knowledge with other families. The second page highlights successful implementation examples from Iowa, Georgia, Kansas, and Minnesota, and describes available resources including assessment tools, communication materials, and online toolkits to help families work with the standards to improve care systems.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: State CHSCN programs, Standards, Family Centered Health Care, State CHSCN programs, Case Studies, Iowa, Georgia, Kansas, Minnesota
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.