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Strengthening the evidence for maternal and child health programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 3 (3 total).

VanLandeghem K, Sloyer P, Gabor V, Helms V. 2017. Standards for systems of care for children and youth with special health care needs version 2.0. [Washington, DC]: Association of Maternal and Child Health Programs; [Palo Alto, CA]: Lucile Packard Foundation for Children's Health, 32 pp.

Annotation: This revision of the National Standards for Children and Youth with Special Health Care Needs has been created to increase the readability and ease of use of the first version of the National Standards while also maintaining their integrity and essential content. It builds upon the critical domains, elements, and standards from the original National Standards work (Version 1.0), while streamlining content for easier use by states and stakeholders. It covers Family Professional Partnerships and Insurance and Financing as foundational standards that should exist in any system that serves CYSHCN, and is divided into eight domains: (1) identification, screening, assessment, and referral; (2) eligibility and enrollment in health coverage; (3) access to care; (4) medical home; (5) community-based services and supports; (6) transition to adulthood; (7) health information technology; and (8) quality assurance and improvement.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: info@lpfch.org Web Site: http://www.lpfch.org Available from the website.

Keywords: Adolescents, EPSDT, Health care systems, Measures, National initiatives, Quality assurance, Special health care needs, Standards: Children, Young adults

VanLandeghem K, Sloyer P, Gabor V, Helms V. 2014. National standards for systems of care for children and youth with special health care needs. [Washington, DC]: Association of Maternal and Child Health Programs; [Palo Alto, CA]: Lucile Packard Foundation for Children's Health, 37 pp.

Annotation: This resource provides a set of standards of care for children and youth with special health care needs (CYSHCN) that can be used or adapted by systems and organizations that serve CYSHCN, including state Title V programs, state Medicaid programs, health plans, health professionals, and family/consumer groups to improve quality of care and outcomes for CYSHCN. The standards are divided into eight domains: (1) identification, screening, assessment, and referral; (2) eligibility and enrollment in health coverage; (3) access to care; (4) medical home; (5) community-based services and supports; (6) transition to adulthood; (7) health information technology; and (8) quality assurance and improvement.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: info@lpfch.org Web Site: http://www.lpfch.org Available from the website.

Keywords: Adolescents, EPSDT, Health care systems, Measures, National initiatives, Quality assurance, Special health care needs, Standards: Children, Young adults

VanLandeghem K, Sloyer P, Gabor V, Helms V. 2014. Developing structure and process standards for systems of care serving children and youth with special health care needs. [Washington, DC]: Association of Maternal and Child Health Programs; [Palo Alto, CA]: Lucile Packard Foundation for Children's Health, 31 pp.

Annotation: This white paper from the National Consensus Framework for Systems of Care for Children and Youth with Special Health Care Needs Project describes how the project has been conducted, highlights findings from project research on capacity and performance of systems of care serving children and youth with special health care needs (CYSHCN) and lists recommendations from key stakeholders. The paper also includes case studies of four sites that are using system standards in their work with CYSHCN, in Iowa, Michigan, Rhode Island, and Texas. The standards are available in a separate companion document.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: info@lpfch.org Web Site: http://www.lpfch.org Available from the website.

Keywords: State programs, Adolescents, Health care systems, National initiatives, Special health care needs, Standards: Children, Young adults

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.