Search Results: MCHLine

Annotation: This book explains the steps needed to plan and implement collaboration between community programs, agencies and individuals who provides services to children with disabilities and their families. This book was reprinted by the Georgetown University Child Development Center as a part of the Workbook Series for Providing Services to Children with Handicaps and Their Families.

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Keywords: Children with special health care needs, Collaboration, Community based services, Interagency cooperation

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://gucchd.georgetown.edu Price unknown.

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Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Keywords: Audiovisual materials, Child nutrition, Children with special health care needs, Health services, Videotapes

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Annotation: The purpose of this project was to improve the health care delivered to children with rheumatic diseases in New England. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158707.

Keywords: Arthritis, Children with special health care needs, Community based services, Coordinated care, Interdisciplinary teams, Rheumatic diseases

Annotation: The goal of this project was the development of a multilevel model of care for infants with bronchopulmonary dysplasia that was cost effective, decreased length of hospital stays, and allowed for a physically, emotionally, socially, and developmentally healthier child. Inservice training for staff and parenting workshops were conducted as part of this project. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161966.

Keywords: Bronchopulmonary dysplasia, Children with special health care needs, Coordination of services, Infants, Length of stay, Ventilator dependent

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121834.

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Annotation: This document encourages families to partner with health professionals on getting preventive health services and to take a lead role in promoting health at home and where they live, work, and play. Topics include how information sharing between families and health professionals can promote child health, the Affordable Care Act's preventive health services for children, the Bright Futures initiative, and tips for a healthy lifestyle. [Funded by the Maternal and Child Health Bureau]

Contact: Family Voices, IMPACT, 3701 San Mateo Boulevard, N.E., Suite 103, Albuquerque, NM 87110, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.fv-impact.org Available from the website.

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Keywords: Bright Futures, Child health, Children, Families, Family centered care, Health care reform, Health promotion, Parent professional relations, Patient Protection and Affordable Care Act, Preventive health services, Public private partnerships, Special health care needs

Annotation: This resource provides individuals with special health care needs and their families with tools and strategies to advocate for whatever they may need. Topics include access to health care, accessible communities, advocacy and leadership skills, communicating about health, education services and support, insurance and financial assistance, legislation and political action, steps to employment success, transition to adulthood, and youth leadership.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

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Keywords: Access to health care, Advocacy, Communication, Family support services, Leadership, Life course, Special health care needs, Transitions

Annotation: This issue brief describes key characteristics of children with special health care needs and explores insurance affordability, adequacy of coverage, and benefits for children covered by Medicaid/CHIP compared to those with private insurance only. The brief provides a context for ongoing policy discussions around additional investments in Medicaid, including home and community-based services (HCBS), for children with special health care needs.

Contact: Henry J. Kaiser Family Foundation, 2400 Sand Hill Road, Menlo Park, CA 94025, Telephone: (650) 854-9400 Secondary Telephone: (202) 347-5270 Fax: (650) 854-4800 Web Site: http://www.kff.org

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Keywords: Children with special health care needs, Community based services, Health care costs, Health insurance, Home care, Medicaid, Public assistance, Special health care services, Statistics

Annotation: This document requests input on a blueprint designed to inform programs and policy at the community, state, and federal levels on how systems of care for children and youth with special health care needs (CYSHCN) can be operationalized in the key areas of health equity, access to services and supports, family/child well-being and quality of life, and financing of services. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

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Keywords: Adolescents with special health care needs, Children with special health care needs, Health care systems, Public health services, Service delivery systems

Annotation: This report focuses on the financial hardships facing families raising children on the autism spectrum. It discusses disability and sociodemographic characteristics of children with autism spectrum disorders, levels of family financial hardship, and safety net program use. Recommendations are included. [Funded by the Maternal and Child Health Bureau]

Contact: Drexel Autism Institute, Drexel University, 3141 Chestnut Street, Philadelphia, PA 19104, E-mail: https://drexel.ed Web Site: https://drexel.edu/autisminstitute/ Available from the website.

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Keywords: Autism, Children with special health care needs, Family support services, Financial barriers, Financial support, Statistics

Annotation: This policy brief examines how six states structure, finance and provide home health services that are designed to provide important home-based care and family supports, improve quality of care, and avoid costly, hospitalizations and institutionalized care. [Funded by the Maternal and Child Health Bureau]

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org Available from the website.

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Keywords: Children with special health care needs, Home care services, Medicaid, State programs

Annotation: This glossary provides terms and definitions for acronyms used in the disability field.

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Keywords: Adolescents with special health care needs, Children with special health care needs, Dictionaries, Public health services, Rehabilitation, Special health care services

Annotation: This toolkit contains examples of strategies state Title V programs can use to address National Performance Measure 12: Percent of adolescents with and without special health care needs who received services necessary to make transitions to adult care. Strategies are listed in these categories: (1) youth and family education and leadership development; (2) health care professional workforce development; (3) care coordination; (4) communications and social media; and (5) measurement and assessment. [Funded by the Maternal and Child Health Bureau]

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

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Keywords: Adolescents, Model programs, Resources for professionals, Special health care needs, State programs, Title V programs, Transition to adult services, Young adults

Annotation: This consensus study report provides a comprehensive analysis of health outcomes for school-aged children with disabilities. It reviews and assesses programs, services, and supports available to these children and their families and describes overarching program, service, and treatment goals. The report also examines outreach efforts and utilization rates; identifies which outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu

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Keywords: Access to care, Children with developmental disabilities, Children with special health care needs, Disabilities, Learning disabilities, Outcome evaluation, Outreach, Physical disabilities, School age children, Services

Annotation: This document offers information about federal programs that provide funding to health centers, states, academic institutions, and other entities to recruit, train, and retain health professionals, including dentists and dental hygienists, in efforts to increase access to oral health care. The document also highlights program efforts to establish benchmarks for the nation’s oral health status and for oral health care and to ensure that oral health care is available to people living with HIV/AIDS; mothers, children, and adolescents, including those with special health care needs; and those who receive care at health centers.

Contact: U.S. Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (888) 275-4772 Secondary Telephone: (877) 464-4772 Fax: (301) 443-1246 E-mail: [email protected] Web Site: http://www.hrsa.gov Available from the website.

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Keywords: Access to health care, Adolescents, Benchmarking, Children, Community health centers, Federal programs, HIV infected patients, Health care delivery, Health occupations, Health status, Low income groups, MCH services, Mothers, Oral health, Primary care, Quality assurance, Recruitment, Service integration, Special health care needs, State MCH programs, Training, Work force, Young adults

Annotation: This document defines the term "family leader" and describes the roles for family leaders in the Association for Maternal and Child Health Programs' activities. Topics include title, eligibility criteria, selection process, timeline, and duties.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Contact Phone: (202) 775-1472 Fax: (202) 478-5120 E-mail: [email protected] Contact E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

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Keywords: Collaboration, Community participation, Consultants, Employment, Families, Leadership, Mentors, Parent participation, Parent professional relations, Public private partnerships, Recruitment, Special health care services, State MCH programs, Teaching, Technical assistance, Title V programs, Training, Volunteers, Work force

Annotation: This brief examines the role of Medicaid in funding critical health-related services for students with disabilities. Topics include providing reimbursement for health care services that are necessary for students with disabilities to succeed in school and ensuring schools' compliance with Individuals with Disabilities Education Act requirements, helping students to stay healthy and succeed academically, and connecting students to coverage. The brief also describes the long-term benefits of Medicaid for eligible children and the potential impact of spending reductions on students, local communities, and state budgets. The appendix contains a table on state and federal Medicaid spending in schools.

Contact: Center on Budget and Policy Priorities, 820 First Street N.E., Suite 510, Washington, DC 20002, Telephone: (202) 408-1080 Fax: (202) 408-1056 E-mail: [email protected] Web Site: http://www.cbpp.org Available from the website.

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Keywords: Academic achievement, Chronic illnesses and disabilities, Eligibility, Enrollment, Medicaid, Reimbursement, Role, School health services, Schools, Special health care needs, State programs, Students

Annotation: This report provides a snapshot of Title V Children and Youth with Special Health Care Needs (CYSHCN) programs across the United States. Contents include background and history of CYSHCN programs, recent changes affecting CYSHCN programs, and methods and results from an electronic survey of Title V CYSHCN directors to assess key characteristics of each state's CYSHCN program. Topics include program structure and strengths, roles in systems of care, CYSHCN program partnerships, financing of care for CYSHCN populations and emerging issues for CYSHCN programs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

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Keywords: Advocacy, Children with special health care needs, Community based services, Consultation, Cultural competency, Data, Family centered care, Financing, Health care delivery, Health care reform, Health care systems, Health insurance, Leadership, Medicaid managed care, Models, Networking, Pediatric care, Policy development, Program coordination, Program development, Public health infrastructure, Public private partnerships, Quality assurance, Reimbursement, Role, Standards, State MCH programs, Title V programs