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Strengthening the evidence for maternal and child health programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (452 total).

Magrab P, Elder J, Kazuk E, Pelosi J, Wiegerink R. n.d.. Developing a community team: A companion to the community workbook for collaborative services to preschool handicapped children. Washington, DC: American Association of University Affiliated Programs for the Developmentally Disabled, 39 pp. (Workbook series for providing services to children with handicaps and their families)

Annotation: This book explains the steps needed to plan and implement collaboration between community programs, agencies and individuals who provides services to children with disabilities and their families. This book was reprinted by the Georgetown University Child Development Center as a part of the Workbook Series for Providing Services to Children with Handicaps and Their Families.

Keywords: Children with special health care needs, Collaboration, Community based services, Interagency cooperation

Bronheim S, Fiel S, Schidlow D, MagrabP, Boczar K, Dillon C. n.d.. Crossings: A manual for transition of chronically ill youth to adult health care. Harrisburg, PA: Pennsylvania Department of Health, 52 pp.

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: gucdc@georgetown.edu Web Site: http://gucchd.georgetown.edu Price unknown.

Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Prendergast A. n.d.. Planning comprehensive health services for the chronically ill/handicapped child: Need for nutrition component. Cincinnati, OH: Educational Television Services, 1 videotape.

Nelson R. n.d.. Analysis and Expansion of Community-Based Interagency Collaborative Efforts: [Final report]. Iowa City, IA: University of Iowa, 51 pp.

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Schaller J. n.d.. The Affiliated Children's Arthritis Centers of New England [Final report]. Boston, MA: New England Medical Center, Department of Pediatrics, 52 pp.

Annotation: The purpose of this project was to improve the health care delivered to children with rheumatic diseases in New England. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158707.

Keywords: Arthritis, Children with special health care needs, Community based services, Coordinated care, Interdisciplinary teams, Rheumatic diseases

Branca P. n.d.. The Care of Bronchopulmonary Dysplasia In a System Encompassing Tertiary, Rehabilitative and Home Care [Final report]. Philadelphia, PA: Thomas Jefferson University Hospital, 13 pp.

Annotation: The goal of this project was the development of a multilevel model of care for infants with bronchopulmonary dysplasia that was cost effective, decreased length of hospital stays, and allowed for a physically, emotionally, socially, and developmentally healthier child. Inservice training for staff and parenting workshops were conducted as part of this project. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161966.

Keywords: Bronchopulmonary dysplasia, Children with special health care needs, Coordination of services, Infants, Length of stay, Ventilator dependent

Williams S. n.d.. Improving Community-Based Services for Special Needs Children and Their Families in Rural Utah [Final report]. Salt Lake City, UT: Utah Department of Health, 19 pp. pp.

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB97-121834.

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Family Voices, IMPACT. n.d.. The Affordable Care Act (ACA): Prevention and health promotion for everybody!. Albuquerque, NM: Family Voices, IMPACT, 2 pp.

Annotation: This document encourages families to partner with health professionals on getting preventive health services and to take a lead role in promoting health at home and where they live, work, and play. Topics include how information sharing between families and health professionals can promote child health, the Affordable Care Act's preventive health services for children, the Bright Futures initiative, and tips for a healthy lifestyle. [Funded by the Maternal and Child Health Bureau]

Contact: Family Voices, IMPACT, 3701 San Mateo Boulevard, N.E., Suite 103, Albuquerque, NM 87110, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.fv-impact.org Available from the website.

Keywords: Bright Futures, Child health, Children, Families, Family centered care, Health care reform, Health promotion, Parent professional relations, Patient Protection and Affordable Care Act, Preventive health services, Public private partnerships, Special health care needs

Association of Maternal and Child Health Programs. 2019. AMCHP's implementation toolkit for National Performance Measure 12: Percent of adolescents with and without special health care needs who received services necessary to make transitions to adult care. Washington, DC: Association of Maternal and Child Health Programs, 1 set of linked pages.

Annotation: This toolkit contains examples of strategies state Title V programs can use to address National Performance Measure 12: Percent of adolescents with and without special health care needs who received services necessary to make transitions to adult care. Strategies are listed in these categories: (1) youth and family education and leadership development; (2) health care professional workforce development; (3) care coordination; (4) communications and social media; and (5) measurement and assessment. [Funded by the Maternal and Child Health Bureau]

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: info@amchp.org Web Site: http://www.amchp.org Available from the website.

Keywords: Adolescents, Model programs, Resources for professionals, Special health care needs, State programs, Title V programs, Transition to adult services, Young adults

University of Kentucky Human Development Institute. 2018. Glossary of disability terms and acronyms. [Lexington, KY?]: University of Kentucky Human Development Institute, 10 pp.

Seattle Children's Hospital, Washington State Department of Health, Within Reach. 2017. Starting point guide: Resources for parents of children with special health care needs. Seattle, WA: Seattle Children's Center for Children with Special Needs, 31 pp.

Annotation: This directory provides an overview of resources for families who have children with health conditions or special health care needs in Washington. Topics include tips from parents, legal help, child care and respite care, child growth and development, community health, oral health, family support, financial information, health insurance information, hearing and vision services, information and referral, medical supplies and equipment, mental health, nutrition, recreation programs, school, and transportation. A form for use in case of an emergency is included

Contact: Seattle Children's Center for Children with Special Needs, P.O. Box 5371, M2-16, Seattle, WA 98105, Telephone: (206) 987-3736 Fax: (206) 884-5741 E-mail: cshcn@seattlechildrens.org Web Site: http://www.cshcn.org Available from the website.

Keywords: , Child care, Child health services, Children, Community based services, Directories, Families, Family support services, Forms, Infants, Information services, Parents, Referrals, Special health care needs, State programs, Washington

Association of Maternal and Child Health Programs. 2017. Pathways to family leadership within AMCHP. Washington, DC: Association of Maternal and Child Health Programs, 5 pp.

Annotation: This document defines the term "family leader" and describes the roles for family leaders in the Association for Maternal and Child Health Programs' activities. Topics include title, eligibility criteria, selection process, timeline, and duties.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Contact Phone: (202) 775-1472 Fax: (202) 478-5120 E-mail: info@amchp.org Contact E-mail: mjarvix@amchp.org Web Site: http://www.amchp.org Available from the website.

Keywords: Collaboration, Community participation, Consultants, Employment, Families, Leadership, Mentors, Parent participation, Parent professional relations, Public private partnerships, Recruitment, Special health care services, State MCH programs, Teaching, Technical assistance, Title V programs, Training, Volunteers, Work force

Schubel J. 2017. Medicaid helps schools help children. Washington, DC: Center on Budget and Policy Priorities, 7 pp.

Annotation: This brief examines the role of Medicaid in funding critical health-related services for students with disabilities. Topics include providing reimbursement for health care services that are necessary for students with disabilities to succeed in school and ensuring schools' compliance with Individuals with Disabilities Education Act requirements, helping students to stay healthy and succeed academically, and connecting students to coverage. The brief also describes the long-term benefits of Medicaid for eligible children and the potential impact of spending reductions on students, local communities, and state budgets. The appendix contains a table on state and federal Medicaid spending in schools.

Contact: Center on Budget and Policy Priorities, 820 First Street N.E., Suite 510, Washington, DC 20002, Telephone: (202) 408-1080 Fax: (202) 408-1056 E-mail: center@cbpp.org Web Site: http://www.cbpp.org Available from the website.

Keywords: Academic achievement, Chronic illnesses and disabilities, Eligibility, Enrollment, Medicaid, Reimbursement, Role, School health services, Schools, Special health care needs, State programs, Students

Association of Maternal and Child Health Programs. 2017. National Title V children and youth with special health care needs program profile. Washington, DC: Association of Maternal and Child Health Programs, 15 pp.

Annotation: This report provides a snapshot of Title V Children and Youth with Special Health Care Needs (CYSHCN) programs across the United States. Contents include background and history of CYSHCN programs, recent changes affecting CYSHCN programs, and methods and results from an electronic survey of Title V CYSHCN directors to assess key characteristics of each state's CYSHCN program. Topics include program structure and strengths, roles in systems of care, CYSHCN program partnerships, financing of care for CYSHCN populations and emerging issues for CYSHCN programs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: info@amchp.org Web Site: http://www.amchp.org Available from the website.

Keywords: Advocacy, Children with special health care needs, Community based services, Consultation, Cultural competency, Data, Family centered care, Financing, Health care delivery, Health care reform, Health care systems, Health insurance, Leadership, Medicaid managed care, Models, Networking, Pediatric care, Policy development, Program coordination, Program development, Public health infrastructure, Public private partnerships, Quality assurance, Reimbursement, Role, Standards, State MCH programs, Title V programs

Oregon Health Authority, Oral Health Program. 2016. Oregon oral health surveillance system 2002–2015. Portland, OR: Oregon Health Authority, Center for Prevention and Health Promotion, 7 pp.

Annotation: This document provides data on key indicators of oral health in Oregon for the period 2002 through 2015. Contents include a description of each indicator and the source and frequency of data available by year. Topics include preventive oral health services for pregnant women, toddlers, children, adolescents, and adults. Data on work force, Medicaid, cancer, cleft lip/palate, and water fluoridation are included.

Contact: Oregon Health Authority, Oral Health Program, 800 N.E. Oregon Street, Suite 850, Portland, OR 97232, Telephone: (971) 673-0348 Secondary Telephone: (971) 673-0372 Fax: (971) 673-0240 E-mail: oral.health@state.or.us Web Site: https://public.health.oregon.gov/PreventionWellness/oralhealth/Pages/index.aspx Available from the website.

Keywords: Adolescents, Adults, Children, Data sources, Dental care, Medicaid, Oral health, Oregon, Population surveillance, Pregnant women, Preventive health services, Special health care needs, State surveys, Statistical data, Toddlers, Work force

Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health and Autism Speaks. 2016. Experience matters: A view into the health and wellbeing of US children and families with autism spectrum disorder. Baltimore, MD: Data Resource Center for Child and Adolescent Health, 117 pp.

Annotation: This chartbook for families, advocates, policymakers, and researchers provides a national portrait of how children in the United States receive their diagnosis of autism spectrum disorder (ASD), how their daily lives are impacted, and how their families are doing. Topics include the prevalence of ASD, diagnosing ASD, the child's health, health care and related services, school and social wellbeing, and coping with ASD. The appendices contain information on the ASD data presented in the chartbook including a glossary, a crosswalk of the data sources, methodological information, and guidance for accessing the data. [Funded by the Maternal and Child Health Bureau]

Contact: Data Resource Center for Child and Adolescent Health, Child and Adolescent Health Measurement Initiative, The Johns Hopkins Bloomberg School of Public Health, 615 North Wolfe Street, Baltimore, MD 21205, E-mail: info@cahmi.org Web Site: https://childhealthdata.org Available from the website.

Keywords: Adolescent health, Adolescents with special health care needs, Autism, Child health, Child with special health care needs, Coping, Data sources, Diagnosis, Early intervention services, Family health, Prevalence, Relationships, Special health care services, Statistical data

American College of Physicians, Got Transition/Center for Health Care Transition Improvement, Society of General Internal Medicine, Society for Adolescent Health and Medicine. 2016. Pediatric to adult care transitions initiative [toolkit]. Philadelphia, PA: American College of Physicians, multiple items.

Annotation: These disease/condition-specific tools were developed by internal medicine subspecialties to assist physicians in transitioning young adults with chronic diseases/conditions into adult care settings. Contents include sets of tools containing the following customized elements (at a minimum): transition readiness assessment, medical summary/transfer record, and self-care assessment. Sets of tools are available for the following subspecialties and diseases: general internal medicine, cardiology, endocrinology, gastroenterology, hematology, nephrology, and rheumatology. [Funded in part by the Maternal and Child Health Bureau]

Contact: American College of Physicians, 190 North Independence Mall West, Philadelphia, PA 19106-1572, Telephone: (215) 351-2400 Secondary Telephone: (800) 523-1546 Web Site: https://www.acponline.org Available from the website.

Keywords: Assessment, Chronic illnesses and disabilities, Coordination, Medical records, Pediatric care, Self care, Special health care services, Transition planning, Young adults

Holicky A. 2016. Florida's burden of oral disease surveillance report (upd.). Tallahassee, FL: Florida Department of Health, Public Health Dental Program, 62 pp.

Annotation: This report summarizes information on the burden of oral disease in Florida, highlights oral health disparities associated with specific populations, and describes resources and programs for improving oral health. Topics include state and national objectives, the societal and economic impact of oral disease, risk and protective factors, work force capacity and diversity, and use of oral health care.

Contact: Florida Department of Health, Public Health Dental Program, 4052 Bald Cypress Way, Bin A14, Tallahassee, FL 32399-1724, Telephone: (850) 245-4333 Web Site: http://www.floridahealth.gov/programs-and-services/community-health/dental-health/index.html Available from the website.

Keywords: Access to health care, Adolescents, Children, Disease prevention, Florida, Health disparities, Health objectives, Health services delivery, Health status, Infants, Life course, Low income groups, Older adults, Oral health, Population surveillance, Pregnant women, Prevalence, Program improvement, Protective factors, Risk factors, Special health care needs, State initiatives, State programs, Statistical data, Work force

Brown LW, Camfield P, Capers M, Cascino G, Ciccarelli M, de Gusmao CM, Downs SM, Majnemer A, Miller AB, Saninocencio C, Schultz R, Tilton A, Winokur A, Zupanc M. 2016. The neurologist's role in supporting transition to adult health care: A consensus statement. Neurology 87(8):835–840, 7

Annotation: This article describes the child neurologist's role in planning and coordinating successful transition from the pediatric to adult health care system for youth with neurologic conditions. Topics include eight common principles that define the child neurologist's role in a successful transition process as outlined by a multidisciplinary panel, the evidence for successful transition models, and areas for future consideration. [Funded by the Maternal and Child Health Bureau]

Contact: American Academy of Neurology, 1080 Montreal Avenue, Saint Paul, MN 55116, Telephone: (651) 695-2717 Secondary Telephone: (800) 879-1960 Fax: (651) 695-2791 E-mail: memberservices@aan.com Web Site: http://www.aan.com Available in libraries.

Keywords: Adolescents, Family support services, Financing, Health care systems, Interdisciplinary approach, Leadership, Legal issues, Model programs, Multidisciplinary teams, Neurologic disorders, Program coordination, Special health care needs, Transition planning, Young adults

[U.S. Maternal and Child Health Bureau]. 2016. Resource guide for states and communities caring for infants and children affected by Zika (upd.). [Rockville, MD: U.S. Maternal and Child Health Bureau], 18 pp. (Latest update 10/21/2016; document doesn't cite author/publisher; received via AMCHP's Emerging Issues Committee. (JMB))

Annotation: This resource is designed to assist states and communities in developing a coordinated response to the immediate and long term needs of infants and children affected by Zika virus (ZIKV), and their families. Contents include an overview of ZIKV, infection, and outcomes; systems of care as a public health approach for comprehensive care for infants and children exposed to ZIKV; and an overview of federal and state programs serving children affected by ZIKV. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Assessment, Child health, Community coordination, Comprehensive health care, Emergency medical services for children, Federal programs, Health care systems, Infant health, Infection control, Neonatal screening, Policy development, Population surveillance, Program coordination, Program planning, Quality assurance, Resources for professionals, Service coordination, Service integration, Special health care needs, State programs, Systems development, Virus diseases, Work force

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.