Search Results: MCHLine

Annotation: This book explains the steps needed to plan and implement collaboration between community programs, agencies and individuals who provides services to children with disabilities and their families. This book was reprinted by the Georgetown University Child Development Center as a part of the Workbook Series for Providing Services to Children with Handicaps and Their Families.

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Keywords: Children with special health care needs, Collaboration, Community based services, Interagency cooperation

Annotation: This brochure describes a videotape by the same title that gives excerpts of a talk by Julie Beckett of Iowa on strategies for financing the health care needed by families of chronically ill children, and includes a glossary of terms used in the videotape. [Funded by the Maternal and Child Health Bureau]

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Contact Phone: (202) 638-0840 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org Brochure available at no charge; videotape $10.95 from National Information Center for Handicapped Children and Youth, P.O. Box 1492, Washington, DC 20013.

Keywords: Child health, Children with special health care needs, Health care financing

Annotation: This booklet provides information and forms to help families work with their health insurance companies. It includes questions to ask the insurance company and billing office, tips for keeping records of bills and claims, and who to talk with for assistance. A glossary of terms and list of publications on health insurance are included. Resource organizations in Cuyahoga County and the state of Ohio are also listed. [Funded by the Maternal and Child Health Bureau]

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Keywords: Children with special health care needs, Family centered, community based care, Health care financing, Insurance, Medical records

Annotation: This document describes the elements of a family-centered, community-based system for delivering health care for children with special health needs. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHF061.

Keywords: Children with special health care needs, Family centered community based care

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://gucchd.georgetown.edu Price unknown.

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Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Annotation: This report presents the results of a 1989 survey of state Title V maternal and child health (MCH) programs and children with special health needs (CSHN) programs with respect to their roles in serving adolescents. The publication brings together the results of adolescent health initiatives from both MCH and CSHN perspectives in order to examine how these programs might be better coordinated and strengthened. The survey revealed that most Title V-supported programs routinely bill Medicaid (and, to a lesser extent, private insurance) for some services. Limited revenues are received from insurance due to inadequate billing capacity, the type of services offered by Title V programs, and low reimbursement from Medicaid. [Funded by the Maternal and Child Health Bureau]

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Keywords: Access to health care, Adolescents, Child health, Insurance, Maternal health, Medicaid, Social Security Act, Special health care needs, Title V

Keywords: Audiovisual materials, Child nutrition, Children with special health care needs, Health services, Videotapes

Annotation: This manual was developed to accompany an 8-hour class. It introduces the concept of mainstreaming and relates it to the principles of early childhood education and best practice guidelines for caring for children with special needs. Module one includes sections on the importance of working with families, ethical issues, laws protecting children with special needs, typical vs. atypical development, how children learn, suggestions for working with parents are included, and diversity resources. Module two deals with motor development and concludes with a bibliography and references. Module three covers social-emotional development and behavioral issues. [Funded by the Maternal and Child Health Bureau]

Contact: San Diego State University, Mainstreaming Project, 6505 Alvarado Road, Suite 108, San Diego, CA 92120, Telephone: (619) 594-4373 Available in libraries.

Keywords: Americans With Disabilities Act, Child behavior, Child care, Child development, Children with special health care needs, Developmental disabilities, Ethics, Families, Learning, Legislation, Mainstreaming, Motor development, Parents, Psychosocial development, Special education

Annotation: The purpose of this project was to increase access of pediatric rheumatology patients to the team approach, improve regional care, provide psychosocial counseling and support, increase knowledge of medical professionals and the lay public, and provide cost-effective, outpatient care. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-165686.

Keywords: Arthritis, Children with special health care needs, Multidisciplinary teams, Pediatric rheumatology, Rheumatic diseases

Annotation: The purpose of this project was to conduct a workshop for nutritionists, nurses, physicians, and other health professionals to update knowledge of nutritional needs of chronically ill/handicapped children, identify screening and referral procedures and develop a plan for improving nutrition services through Title V programs in the 13 states comprising Region IV and VI. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196749.

Keywords: Children with special health care needs, Nurses, Nutrition, Nutrition screening, Nutritionists, Physicians, Professional education

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Annotation: This program trained parents in specific competencies necessary for teacher aides, with special emphasis on appropriate and frequent child and adult interactions. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196756.

Keywords: Children with special health care needs, Parents, Special education

Annotation: The goals of this project were to: (1) Develop and demonstrate office-based models that assure comprehensive services through the medical home for all children, especially those served under Part H of P.L. 99-457; (2) promote effective linkages and coordination of care between the medical home and early intervention service providers through community forums; and (3) gather, develop, and disseminate nationally creative strategies that promote comprehensive care through the medical home. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121-891.

Keywords: Children with Special Health care Needs, Early Intervention, Information dissemination, Medical Home, Minority Groups, PL 99-457, Service Coordination

Annotation: This project's goals were to provide comprehensive community-based nutrition consultation services to children with special health needs, nutrition-related intervention to children and adolescents identified as high risk for future coronary heart disease, and nutrition-related weight management services to children and adolescents identified as obese. The objectives were to: (1) Make available a comprehensive nutritional program for children with handicapping conditions or chronic diseases by means of screening and, if needed, through their involvement in a nutrition care plan; (2) identify at an early age and screen for hypercholesterolemia those children and adolescents who have a family history of coronary heart disease and to provide them and their families with subsequent dietary and other risk factory counseling; and (3) make available a comprehensive, individualized regional weight management program for obese children and adolescents and their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152916.

Keywords: Children with special health care needs, Handicapped High risk children, Heart Disease, Nutrition, WIC Program

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Annotation: The goal of this project was to establish a network of care that provided early and effective intervention for children with rheumatic disease in a four State area including Kansas, Western Missouri, Nebraska, and Iowa. Two specific components were clinical service and education. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-153005.

Keywords: Arthritis Service coordination, Children with special health care needs, Infants with special health care needs, Pediatric rheumatology, Rheumatic diseases

Annotation: The principle aim of this project was to demonstrate a coordinated, community-based program model for the screening, evaluation, and treatment of children from birth to five years of age with developmental disabilities, children at risk for them, and for their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152932.

Keywords: Children with special health care needs, Collaboration, Developmental disorders, Early intervention, Family centered care, Interagency cooperation, community based care

Annotation: This project developed a model for public/private sector collaboration in the financing and case management of home care for technology-assisted children. The project also developed a methodology for educating professionals in case management for family-centered care; identified and analyzed options to hospitalization; and provided family-centered case management services. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158269.

Keywords: Children with special health care needs, Community based care, Financing, Home care, Technology dependent, Ventilator dependent

Annotation: The purpose of this project was to improve the health care delivered to children with rheumatic diseases in New England. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158707.

Keywords: Arthritis, Children with special health care needs, Community based services, Coordinated care, Interdisciplinary teams, Rheumatic diseases

Annotation: The purpose of this institute was to maintain and strengthen leadership capabilities for medical, nursing, and administrative personnel in programs providing services to children with special health care needs. One institute and one topical seminar were given each year. The institute offered orientation for new staff concerning the history, organization, funding, purposes, and functions of CSHCN programs. The topical seminar attracted senior CSHCN program officers who discussed current issues, developed problem-solving strategies, and forecasted future trends in health care services for children with special health care needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161958.

Keywords: Continuing education, Health professionals, Leadership training, Professional education, Special health care needs