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Strengthening the evidence for maternal and child health programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (1,399 total).

Stein REK, Jessop DJ, Ireys HT, eds. rev. 1984. Conference report: Education of pediatricians for the ongoing care of children with special health care needs, July 26-28, 1983. New York, NY: Albert Einstein College of Medicine, Department of Pediatrics, 45 pp.

Annotation: This report describes the organization, structure and objectives of the conference on educating pediatricians in the care of children with special health needs. The conference was organized into small group sessions dealing with the following topics: roles of the pediatrician in the care of children with special needs, skills needed for executing identified roles, how current medical education fosters and obstructs the development of needed skills, enhancing the preparation of pediatricians for the care of children with special health needs, and a discussion about what changes need to be made to educational programs. [Funded by the Maternal and Child Health Bureau]

Contact: Albert Einstein College of Medicine, Department of Pediatrics, Montefiore Medical Center , Rosenthal 4, Room Red Zone SE Pavillion , 111 East 210th Street , Bronx, NY 10467, Telephone: (718) 741-2460 Fax: (718) 654-6692 E-mail: Web Site: http://www.einstein.yu.edu/departments/pediatrics/ Available from the website.

Keywords: Children with special health care needs, Conferences, Educational programs, Medical education, Pediatricians, Professional training, Reports

Magrab P, Elder J, Kazuk E, Pelosi J, Wiegerink R. n.d.. Developing a community team: A companion to the community workbook for collaborative services to preschool handicapped children. Washington, DC: American Association of University Affiliated Programs for the Developmentally Disabled, 39 pp. (Workbook series for providing services to children with handicaps and their families)

Annotation: This book explains the steps needed to plan and implement collaboration between community programs, agencies and individuals who provides services to children with disabilities and their families. This book was reprinted by the Georgetown University Child Development Center as a part of the Workbook Series for Providing Services to Children with Handicaps and Their Families.

Keywords: Children with special health care needs, Collaboration, Community based services, Interagency cooperation

National Center for Clinical Infant Programs. n.d.. Meeting the medical bills. Washington, DC: National Center for Clinical Infant Programs, 1 p., 1 videotape (VHS).

Annotation: This brochure describes a videotape by the same title that gives excerpts of a talk by Julie Beckett of Iowa on strategies for financing the health care needed by families of chronically ill children, and includes a glossary of terms used in the videotape. [Funded by the Maternal and Child Health Bureau]

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Contact Phone: (202) 638-0840 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org Brochure available at no charge; videotape $10.95 from National Information Center for Handicapped Children and Youth, P.O. Box 1492, Washington, DC 20013.

Keywords: Child health, Children with special health care needs, Health care financing

MetroHealth Medical Center, Pediatric Service Coordination Program. n.d.. Working with your health insurance. Cleveland, OH: MetroHealth Medical Center, Pediatric Service Coordination Program, 16 pp.

Annotation: This booklet provides information and forms to help families work with their health insurance companies. It includes questions to ask the insurance company and billing office, tips for keeping records of bills and claims, and who to talk with for assistance. A glossary of terms and list of publications on health insurance are included. Resource organizations in Cuyahoga County and the state of Ohio are also listed. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Family centered, community based care, Health care financing, Insurance, Medical records

National Maternal and Child Health Resource Center. n.d.. A national goal: Building service delivery systems for children with special health care needs and their families—Family centered community based coordinated care. Iowa City, IA: National Maternal and Child Health Resource Center, 9 pp.

Annotation: This document describes the elements of a family-centered, community-based system for delivering health care for children with special health needs. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, Box 571272, Washington, DC 20057-1272, Telephone: (202) 784-9770 E-mail: mchgroup@georgetown.edu Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHF061.

Keywords: Children with special health care needs, Family centered community based care

Bronheim S, Fiel S, Schidlow D, MagrabP, Boczar K, Dillon C. n.d.. Crossings: A manual for transition of chronically ill youth to adult health care. Harrisburg, PA: Pennsylvania Department of Health, 52 pp.

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: gucdc@georgetown.edu Web Site: http://gucchd.georgetown.edu Price unknown.

Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

McManus M, Kelly R, Newacheck P, Gephart J. n.d.. The role of Title V maternal and child health programs in assuring access to health services for adolescents. Washington, DC: McManus Health Policy, 36 pp.

Annotation: This report presents the results of a 1989 survey of state Title V maternal and child health (MCH) programs and children with special health needs (CSHN) programs with respect to their roles in serving adolescents. The publication brings together the results of adolescent health initiatives from both MCH and CSHN perspectives in order to examine how these programs might be better coordinated and strengthened. The survey revealed that most Title V-supported programs routinely bill Medicaid (and, to a lesser extent, private insurance) for some services. Limited revenues are received from insurance due to inadequate billing capacity, the type of services offered by Title V programs, and low reimbursement from Medicaid. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Adolescents, Child health, Insurance, Maternal health, Medicaid, Social Security Act, Special health care needs, Title V

Prendergast A. n.d.. Planning comprehensive health services for the chronically ill/handicapped child: Need for nutrition component. Cincinnati, OH: Educational Television Services, 1 videotape.

San Diego State University, Mainstreaming Project. n.d.. Including all of us: Caring for children with special needs in early childhood settings—Manual for child care providers. San Diego, CA: San Diego State University, Mainstreaming Project, 218 pp.

Annotation: This manual was developed to accompany an 8-hour class. It introduces the concept of mainstreaming and relates it to the principles of early childhood education and best practice guidelines for caring for children with special needs. Module one includes sections on the importance of working with families, ethical issues, laws protecting children with special needs, typical vs. atypical development, how children learn, suggestions for working with parents are included, and diversity resources. Module two deals with motor development and concludes with a bibliography and references. Module three covers social-emotional development and behavioral issues. [Funded by the Maternal and Child Health Bureau]

Contact: San Diego State University, Mainstreaming Project, 6505 Alvarado Road, Suite 108, San Diego, CA 92120, Telephone: (619) 594-4373 Available in libraries.

Keywords: Americans With Disabilities Act, Child behavior, Child care, Child development, Children with special health care needs, Developmental disabilities, Ethics, Families, Learning, Legislation, Mainstreaming, Motor development, Parents, Psychosocial development, Special education

Spencer C. n.d.. Regional Center for Children with Rheumatic Diseases [Final report]. New Orleans, LA: Children's Hospital, 33 pp.

Annotation: The purpose of this project was to increase access of pediatric rheumatology patients to the team approach, improve regional care, provide psychosocial counseling and support, increase knowledge of medical professionals and the lay public, and provide cost-effective, outpatient care. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-165686.

Keywords: Arthritis, Children with special health care needs, Multidisciplinary teams, Pediatric rheumatology, Rheumatic diseases

Cloud H. n.d.. Nutrition Programming for the Chronically Ill/Handicapped Child: [Final report]. Birmingham, AL: University of Alabama at Birmingham, Sparks Center for Developmental and Learning Disorders, 7 pp.

Annotation: The purpose of this project was to conduct a workshop for nutritionists, nurses, physicians, and other health professionals to update knowledge of nutritional needs of chronically ill/handicapped children, identify screening and referral procedures and develop a plan for improving nutrition services through Title V programs in the 13 states comprising Region IV and VI. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196749.

Keywords: Children with special health care needs, Nurses, Nutrition, Nutrition screening, Nutritionists, Physicians, Professional education

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Semrau B. n.d.. Competency-Based Parenting Skills for Handicapped and Special Needs Mothers and Children [Final report]. Jonesboro, AR: Focus, Inc., 6 pp.

Annotation: This program trained parents in specific competencies necessary for teacher aides, with special emphasis on appropriate and frequent child and adult interactions. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196756.

Keywords: Children with special health care needs, Parents, Special education

Peter M. n.d.. Medical Home Project: [Final report]. Honolulu, HI: Hawaii Medical Association, 30 pp.

Annotation: The goals of this project were to: (1) Develop and demonstrate office-based models that assure comprehensive services through the medical home for all children, especially those served under Part H of P.L. 99-457; (2) promote effective linkages and coordination of care between the medical home and early intervention service providers through community forums; and (3) gather, develop, and disseminate nationally creative strategies that promote comprehensive care through the medical home. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB97-121-891.

Keywords: Children with Special Health care Needs, Early Intervention, Information dissemination, Medical Home, Minority Groups, PL 99-457, Service Coordination

Nelson R. n.d.. Demonstration of a Regional Nutrition Program for Handicapped or At-Risk Children: [Final report]. Iowa City, IA: University of Iowa, 40 pp.

Annotation: This project's goals were to provide comprehensive community-based nutrition consultation services to children with special health needs, nutrition-related intervention to children and adolescents identified as high risk for future coronary heart disease, and nutrition-related weight management services to children and adolescents identified as obese. The objectives were to: (1) Make available a comprehensive nutritional program for children with handicapping conditions or chronic diseases by means of screening and, if needed, through their involvement in a nutrition care plan; (2) identify at an early age and screen for hypercholesterolemia those children and adolescents who have a family history of coronary heart disease and to provide them and their families with subsequent dietary and other risk factory counseling; and (3) make available a comprehensive, individualized regional weight management program for obese children and adolescents and their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152916.

Keywords: Children with special health care needs, Handicapped High risk children, Heart Disease, Nutrition, WIC Program

Nelson R. n.d.. Analysis and Expansion of Community-Based Interagency Collaborative Efforts: [Final report]. Iowa City, IA: University of Iowa, 51 pp.

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Lindsley C. n.d.. Mid-America Pediatric Rheumatology Outreach Program: [Final report]. Kansas City, KS: University of Kansas Medical Center, Department of Pediatrics, 18 pp.

Annotation: The goal of this project was to establish a network of care that provided early and effective intervention for children with rheumatic disease in a four State area including Kansas, Western Missouri, Nebraska, and Iowa. Two specific components were clinical service and education. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-153005.

Keywords: Arthritis Service coordination, Children with special health care needs, Infants with special health care needs, Pediatric rheumatology, Rheumatic diseases

Nicol P. n.d.. Coordinated Community-Based Services: [Final report]. Frankfort, KY: Division of Maternal and Child Health, Department for Health Services, Kentucky Cabinet for Human Resources, 39 pp.

Annotation: The principle aim of this project was to demonstrate a coordinated, community-based program model for the screening, evaluation, and treatment of children from birth to five years of age with developmental disabilities, children at risk for them, and for their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152932.

Keywords: Children with special health care needs, Collaboration, Developmental disorders, Early intervention, Family centered care, Interagency cooperation, community based care

Kaufman J. n.d.. A Model for Home and Community Care for Children who are Technology Assisted [Final report]. Baltimore, MD: Children's Medical Services , 13 pp.

Annotation: This project developed a model for public/private sector collaboration in the financing and case management of home care for technology-assisted children. The project also developed a methodology for educating professionals in case management for family-centered care; identified and analyzed options to hospitalization; and provided family-centered case management services. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158269.

Keywords: Children with special health care needs, Community based care, Financing, Home care, Technology dependent, Ventilator dependent

Schaller J. n.d.. The Affiliated Children's Arthritis Centers of New England [Final report]. Boston, MA: New England Medical Center, Department of Pediatrics, 52 pp.

Annotation: The purpose of this project was to improve the health care delivered to children with rheumatic diseases in New England. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158707.

Keywords: Arthritis, Children with special health care needs, Community based services, Coordinated care, Interdisciplinary teams, Rheumatic diseases

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.